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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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2/6/10 8:22 P

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Hi - I am also on 88 mcg. I think it is hard to go from hyper to hypo because I COULD eat more when hyper, and it's hard to re-learn the habits. But, I have been making progress. The best thing for me is to make sure I exercise, and make sure I am eating healthy. And set goals that are not related to weight -- such as getting blood pressure and cholesterol lower, or getting off some medicines. The scale is such a lousy way to really measure how healthy I am. So far, by upping my exercise and healthy eating, I have lost a bit of weight this year, it is slow, but like I said, I am putting a focus on being healthy, more than on looking healthy.

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CBRANHAM32's Photo CBRANHAM32 Posts: 1
2/4/10 9:50 A

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I am taking the same thing Levoxyl 88 MG, I have gained weight over the years to, I don't eat that much, but I still gain weight! I take my medicine in the evening, cause I am on 6 kinds of medicine! I am tired all the time, I can sleep al night and still want to sleep during the day! I would love to know how to shed the extra pounds! So I think it is the medicine we are taking! I have not lost any weight, I've gained more! emoticon

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COLIBRI1's Photo COLIBRI1 SparkPoints: (12,852)
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2/2/10 2:30 P

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Thank you for this community!
I am newly diagnosed with hyperthyroidism. The endo dspecialist started me yesterday on Atenolol which slowed my heart rate. For the past several months I have been simply exhausted and was having chest pains, palpitations and tachycardia with every little effort, such as going up one flight of stairs or simply lying down at night.
The endo said that next week, after the thyroid scan, he will probably start antithyroid medication, and eventually it will be the radioctive iodine.
The problem is (one of the problems, anyway), I never lost any weight with all this hyper. And probably, when I'm back to hypo, I'll gain some more.
What would you suggest, for now?

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LOVELYRITA81's Photo LOVELYRITA81 Posts: 44
1/29/10 6:06 A

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I'm newly diagnosed with Hyperthyroidism and starting on medication. Have not seen an endo yet but was referred to one.

Great to find this community because I do want to make sure I learn as much as I can about having a thyroid problem.

My running and eating blog.
dinaruns.com
FDEVINE1's Photo FDEVINE1 Posts: 136
1/27/10 11:45 A

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Where is everyone? Need someone to talk to about this. My medicare advantage offers a fitness program,so I get a free membership to a local fitness club. But my doctor won't even let me walk on the treadmill until my evaluation at the specialist next month. sigh. Oh well. Feeling rotten today. But I think it's mostly because of sinus and nasal congestion. Dizzy etc.

Frances



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FDEVINE1's Photo FDEVINE1 Posts: 136
1/23/10 12:08 P

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Yesterday, I was two or three hours late taking my thyroid med. An hour or two later, I was having pounding heart, etc. Would that have been related to waiting too long to take the pills or just coincidence?

Frances



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FDEVINE1's Photo FDEVINE1 Posts: 136
1/23/10 12:06 P

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Welcome, Heatherrye.

Frances



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FDEVINE1's Photo FDEVINE1 Posts: 136
1/23/10 12:05 P

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Toastie, 40-30-30 is 40%Carb, 30% fat, 30% protein every time you eat. But I'm just trying to do the percentages overall daily. It works well for me as long as I don't go crazy about sticking rigidly with it. But I stay as close as I can. It's lower carb without being low carb and higher protein without being high protein, fat is moderate and you're supposed to stay mainly with the good fats. I'm having a little trouble getting enough protein most days.

Frances



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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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1/23/10 9:56 A

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Mary Shomon is the author, and I believe she also has a website -- try a google for 'stop the thyroid madness'. It doesn't seem to apply to my symptoms, but it resonates with lots of others.

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INDEJAM09's Photo INDEJAM09 Posts: 2,847
1/21/10 6:07 P

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THERE IS A GREAT BOOK CALLED "THE THYROID DIET" BY MARY SOMEONE AND I FOUND IT VERY HELPFUL.
BUT I HAVE GREAT NEWS! I FOLLOWED A LINK FROM ONE OF THE THYROID TEAMS AND FOUND A HIGHLY RECOMMENDED DOC JUST 10 MILES FROM ME! I'VE GOT AN APPOINTMENT NEXT TUESDAY! YEE HAW!
JEANNE IN GA

HEATHERRYE Posts: 3
1/21/10 1:56 P

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Hi everyone - I am new to the sight - I've had hyperthyroid for 2 years & am trying to put it in remission. Just thought I would share an awesome book I read with you - its called the Thyroid Solution by Ridha Arem. M.D. It explains in easy terms about thyroid disease, makes diet & supplementary suggestions & recommends some alternative treatments such as biofeedback therapy that might help - highly recommend it.

Of particular interest is the advise about Hyper people trying to go into remission - the book advises that unless the person figures out the triggers & finds solutions to deal with them the chances of remission are slim to none. My trigger happens to be stress & I am considering the biofeed back therapy. Has anyone out there tried it or know anything about it??

TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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1/20/10 10:32 A

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Hi - what does 40-30-30 mean? I'm just following the spark-people guidelines in food tracking, and staying in the 'range', and I am losing weight. Slowly, but that's my plan.

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FDEVINE1's Photo FDEVINE1 Posts: 136
1/20/10 10:07 A

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Good moring everyone. My doctor's office called yesterday with my appointment with specialist. It's for Feb 23rd. I should find out then whet the next step is. My foodplan is going pretty good. I'm sticking as close as I can to 40-30-30, but need to work on getting my protein up and my fats down a little. I don't seem to be as nervous and stressed out as usual. That's a relief. Walk in Joy today.

Edited by: FDEVINE1 at: 1/20/2010 (10:09)
Frances



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1/18/10 10:45 A

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Glad you're feeling better. The body, and especially hormones, are complicated -- I am never quite sure what to attribute to meds vs sleep vs diet vs exercise vs various ailments vs stress, etc. I'm about due for an annual physical -- it'll be about 6 months since my last blood work, so interesting to see what it shows. When my TSH went from non-existent to high (after thyroid was removed), my cholesterol also went up, and when I started cholesterol meds, my TSH went down, too. But that only showed up in one test, and I'm not sure my body had totally adjusted and stabilized. But I feel pretty good - no symptoms that would take me back in.

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FDEVINE1's Photo FDEVINE1 Posts: 136
1/18/10 9:09 A

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Hope everyone had a great weekend. I'm feeling a little better. Maybe the meds are kicking in.

Frances



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FDEVINE1's Photo FDEVINE1 Posts: 136
1/16/10 2:20 P

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I do better with lower carb, but not extremely low. For one thing I like my whole wheat toast. :) I do better staying close to the 40-30-30 plans.

Frances



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FDEVINE1's Photo FDEVINE1 Posts: 136
1/15/10 11:34 P

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Thanks toastie. I saw my doctor today and he explained a little more. He's making an appointment for me with a thyroid specialist. He said my tests showed no sign of Graves. I'm not as nervous as I was. It helps when the doctor actually talks to you.

Frances



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1/15/10 11:19 A

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Hi FDevine1. Hopefully everything will go smoothly for you. Nothing scary happened to me.

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FDEVINE1's Photo FDEVINE1 Posts: 136
1/14/10 9:23 P

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Hi, I'm Frances, 69 years old, and just diagnosed with hyperthyroidism. I'm supposed to go for a scan soon. I have an appointment with my doctor tomorrow to find out when I go for a scan and to get more info about it. This is really scary. The night I went to the emergency room with a racing heart, they gave me something in an IV to slow my heart down, then did a lot of tests. They sent me home with a prescription for thyroid med, then I went to my doctor a few days later and he continued me on the medicine plus gave me a beta blocker for the heart rate. I feel week and tired and scared. I'm so glad to find this team and this hyperthyroid thread. Thanks for being here. I feel better already after reading some of your posts.




Frances



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1/14/10 4:29 P

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I've done very low-carb diets -- almost no-carb diets -- and I lost weight, short-term, but I gained it all back, and it was extremely hard on my health, in fact I believe it messed up my thyroid. So now I aim to stay near the lower-end of healthy, and make sure the carbs I get are healthy whole-grain, fruits, veggies, not sugary stuff. That seems to be working for me, and I am able to lose weight, although not as quickly as when I was hypo-thyroid, and younger. Hard to know how much to blame on thyroid vs over-50 hormonal changes.

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NFINNER Posts: 1
1/14/10 3:48 P

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Wallie- I am in the same boat and my Endo is concerned about the weight. He started me on a T3 replacement in addition to my T4 replacement and it helped a little. Mostly with my energy level but a little with the weight also. I am also starting to follow the South beach diet per my endo(not going very well). Low carb diets are said to be a good way for hypothyroid patients to lose extra pounds.

SOPHIADARE's Photo SOPHIADARE Posts: 316
1/13/10 4:19 P

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While I don't write people off without asking them questions to give them a chance, I do get second opinions quickly if I'm not getting adequate answers to questions. My family pratitioner was on the ball, followed up and nobody gave me meds except to aid diagnosis until they had a diagnosis.

Reading between the lines, it sounds as if you may have asked questions which have gone unanswered. If I'm right about that, it may be time to get a second opinion or change endos. Then again, it may be that you're just now formulating your question list. I can't know about your situation enough to tell you what to do, but if I had questions about why my doctor had advised me to do something, I'd make a list of the questions I wanted to ask, make an appointment ans ask the questions.

I'd ask everything I wanted to know, from "what is my diagnosis" and "why do you advise that I do it this way" (same time, with food, whatever) to "how will this change my outlook for other health problems" and if I wanted to know about other treatment options, I'd ask about that, too.

If I'd been satisfied with a doc before, I wouldn't worry that info I hadn't asked for hadn't been shoved at me. If I had trouble getting info after asking during two or three appointments, I'd figure I needed to consider a change. That doesn't mean I'd expect that a doc would know answers for which the research hasn't yet been done, but it does mean that, once I'd taken the initiative to read up and ask, I'd expect to get the explanations about how the research that was available fit with me.

Best of luck!

Sophia Dare


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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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1/13/10 2:04 P

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Hi Wallie - just a word of caution -- the doctors and endos that I know really get agitated at the thought of people using thyroid medicine to help with the weight issues, because there are serious health risks if your thyroid is working too much. I've learned not to mention weight and thyroid medicine in the same sentence. I gained 15 pounds after my thyroid was removed, and am coming to terms with the fact that I really need to watch what I eat and move a lot more because my body just doesn't work the same anymore.

removing my thyroid also put my cholesterol out of whack (Raised it). Putting me on Cholesterol medicine lowered both my chol and also my tsh.

Edited by: TOASTIE at: 1/13/2010 (16:54)
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WALLIE49 Posts: 5
1/13/10 8:25 A

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My thyroid is also zapped, now am gaining weight. Is there another med besides levoxyl to take? I've always (10 years now) taken it first thing in the morning. Could the meds now not be working? I don't want this extra weight!

MISTI_HOPE Posts: 3
1/11/10 10:27 A

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The best thing we can do as people with thyroid disease is educate ourselves. There are many resources out there. Check out "Dear Thyroid" dearthyroid.org/ for lots of support, info and links. You are not alone, whatever flavor of Thyroid condition you have.

CAMPKNITTER Posts: 1
1/11/10 4:44 A

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Hi everyone,
I was diagnosed w/Graves about a year ago. Didn't know I even had a problem, had slight protruding left eye (TED). I was treated w/RAI, BB & ATM after the RAI. By the end of June, my levels finally went down and was started on Synthroid. Each successive lab since, I have been in the high ranges yet. I am now taking a dose of 50 6 days a week.

Luckily, my TED improved by August. This was a good surprise, having the RAI treatment had me greatly worried that I would have an increase in eye symptoms.

It was the emotional stress of finding out about having this disease and uncertainty of how it would affect my life that was the hardest thing in the beginning. I tend to research things minutely, and was very worried about all the things that could go wrong with any of the suggested treatments for this disease, but I knew that no treatment was not an option.

Since having the RAI in March of last year, I have gained about 30 lbs. Since the sky didn't fall on me, I am finally at the point of starting to take control of my weight and activity issues. emoticon


I'm glad to have found this thread.

BAMABELLE3 Posts: 1
1/10/10 1:53 P

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Hi everyone. I am 39 and was diagnosed as hypothyroid. Last year I strted w/ all the usual symptoms of hyper. I was sent to an Endo. who said I have Graves. 5 months ago my thyroid was back to hypo. The Dr. lowered my meds and few months later had blood work. Still hypo. He lowered meds some more and I go back around the 12th for more blood work. I have gained about 10#'s in this time span. While exercising and watching my diet.

I am wondering if anyone out there has had the same problems as mine. Or if anyone has any advice for me on extra testing, etc.

Thanks

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KAREN_NURSE_09 Posts: 32
1/10/10 4:29 A

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I am soooo happy to find other HYPER's like me :). I have been living with Hyperthyroidism for 3 years. I take Tapazole for the thyroid and Atenalol, a beta blocker for my heart rate. If you are on a beta blocker, take my advice DON'T DISCONTINUE IT without your doctor's permission just because you are feeling better. I did and I landed in an ambulance in Sinus Tachycardia with a heart rate of 130 and my blood pressure was 160/110. Not good. The doctor in the ED gave me some atenalol and said to take it everyday! I did see my doctor before starting my diet and to get the OK to exercise. He said I should be fine as long as I'm taking the Atenalol everyday.

I also was advised to take Vitamin D and Calcium by my doctor.

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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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1/9/10 7:43 P

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Hi, Julie. I never took any meds for Graves, or for being hyper -- my endo recommended that I get rid of my thyroid and become hypo instead of putting me on hyper meds. I do know that with the hypo meds (synthroid for me), there are some little receptors in the body that absorb calcium, iron, and synthroid. They can only absorb so much at a time, so I need to spread those out. I get up, take my synthroid, shower, get dressed, drive to work, then have breakfast about an hour and a half after the synthroid. The reason to be consistent in when to take things is because if there is some interaction, and not all of the med gets absorbed, you might need to up your meds. But you don't want to yo-yo around.

Some people take their medicine in the middle of the night, or before bed, as they don't want to wait before breakfast.

Again, I know this is the way it works for being hypo, not sure if it works the same for being hyper, but it probably is also related.

Does that help?

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FAVORED_ONE's Photo FAVORED_ONE Posts: 7,804
1/8/10 1:17 P

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I have already had all the testing done. My endo said that I'm hyper. She hasn't given me rhyme or reason why. All I get from her is increased meds. No information of anykind. The only thing she told me was take my meds at the same time every day. I am not even sure how I should take them. I have heard different stories. Take with food, take without food. Take with yogurt, take with water. Wait an hour before eating. I have been doing research and am trying to find the foods I should eat and what I shouldn't. If anyone has any clue I would appreciate the help. I am not even sure what vitamins I should be taking.

Julie or Jules

(Fort Dodge, IA)

http://JulieThielen.EatLessFeelFull.co
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"Faith sees the invisible, believes the unbelievable, and receives the impossible." Corrie Ten Boom

My heart and my flesh may fail; but God is the strength of my heart and my portion forever. Psalm 76:23

For with God, nothing shall be impossible. Luke 1:37


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SOPHIADARE's Photo SOPHIADARE Posts: 316
1/8/10 1:00 P

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Graves is the most usual reason for being hyper, but not the only reason for being hyper. The NIH site was very helpful to me to begin with. Do see your doctor if you think there's a problem. Being hyper could be Graves, but it could be cancer or something else, too, so don't wait. Call right this minute. Doc is likely to order blood tests and then a thyroid scan (almost like an x-ray, only there's a 24 hour prep that's easy to do, then you take a pill with a tiny amount of radioactive iodine and then they scan the thyroid) after that, your doc will know a lot more about why you're hyper thyroid, but DO NOT WAIT since cancer is one possibility.

Hurry on in and best of luck -- Graves is very treatable and by far the likeliest, but you don't know until you check.

It is NOT a progressive thing to Graves

It's a question of finding out what is going on -- which direction, if you will. While Graves is the likeliest direction, there are others, one of which is cancer. Good treatment on some directions, including cancer, depends on speedy diagnosis. In fact, untreated Graves can be disastrous, so don't wait, consult your medical adviser.

Sophia Dare


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FAVORED_ONE's Photo FAVORED_ONE Posts: 7,804
1/8/10 11:33 A

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I have been reading a lot about hyper. Graves is always mentioned. Is that the same thing or does Graves come later?

Julie or Jules

(Fort Dodge, IA)

http://JulieThielen.EatLessFeelFull.co
m

"Faith sees the invisible, believes the unbelievable, and receives the impossible." Corrie Ten Boom

My heart and my flesh may fail; but God is the strength of my heart and my portion forever. Psalm 76:23

For with God, nothing shall be impossible. Luke 1:37


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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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1/8/10 10:13 A

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Hi everyone. I have Graves -- I was only sub-clinically hyper, meaning my TSH was non-existent, but my free T3 and T4 were normal. I never had an easy time losing weight. Had my thyroid radiated, it took nearly a year for my tsh to get high, so I guess I am now sub-clinically hypo, and yes, I have now gained weight. Cholesterol went up with the tsh, and funny, once they put me on chol. medicine, that lowered my tsh.

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APRILNWALDROP Posts: 1
1/6/10 2:26 P

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I found out I had Graves last April. I had lost weight because of it. The doctor killed my thyroid then I became hypo. I gained all my weight back and then some. I can't lose the weight. And they are still adjusting my medicine to get me regulated. WHen a person is hypothyroid and then get on medicine aren't they suppose to start losing weight again??

FAVORED_ONE's Photo FAVORED_ONE Posts: 7,804
1/4/10 12:19 A

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I am so glad I found you. I was starting to think I was going crazy. I am going to call my doctor tomorrow and get an appointment. I think I need a beta blocker. I am hyper with symptoms of hypo. I am glad to know I am not the only one. I have a question. Do any of you feel like you are retaining water all the time? Also, what is the best way to take my methimazole? I have been taking it as soon as I wake up with a cup of V8. I have a friend that told me that I should take it on an empty stomach. Is this true?
Also I read somewher that being hypo we should not eat dairy is this true?

Edited by: FAVORED_ONE at: 1/4/2010 (09:55)
Julie or Jules

(Fort Dodge, IA)

http://JulieThielen.EatLessFeelFull.co
m

"Faith sees the invisible, believes the unbelievable, and receives the impossible." Corrie Ten Boom

My heart and my flesh may fail; but God is the strength of my heart and my portion forever. Psalm 76:23

For with God, nothing shall be impossible. Luke 1:37


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SUSANNAH's Photo SUSANNAH Posts: 2,277
12/29/09 9:11 P

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I was on beta blockers when I first found out, until my thyroid meds regulated my heart rate. I wouldn't work-out until you get your hear rate down.

Patience and Fortitude - Mom

There ain't a thing I've faced that's been too much for me - Classified "Inner Ninja"


LUVTATI Posts: 7
12/24/09 2:50 A

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Have you started on meds yet? My endo doc has me on a beta blocker, it automatically got my heart rate back to normal along with my thyroid meds. So now when I get out of bed or lay down at night my heart rate is no longer 200! it's now back to under 100.

it is dangerous for your heart rate to be that high, please don't continue to exercise until you get on a beta blocker. without having your heart rate normalized it can put you into some real heart problems.

I have graves also.

LUVTATI Posts: 7
12/24/09 2:47 A

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I had the same issues, it got to the point this year where if I would stand up my heart rate would shoot to almost 200! I went to a cardiologist because I thought I had heart disease and she was the only one smart enough to check my thyroid gland. My thyroid levels were borderline high I guess the beginning stages.

Don't be distressed at least you have a community here with others that share your same issues. Just try not to get down on yourself because I notice that thyroid issues can cause depression sometimes.

It's a real struggle. I take a beta-blocker for my heart rate it has me back to normal and now I can exercise. I don't take it everyday anymore because my thyroid levels are starting to normalize but I take it when i'm going to be working out.

KATDOG76's Photo KATDOG76 Posts: 6
12/15/09 11:53 A

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I found that when I was symptomatic, it was difficult to do any type of exercise because I'd be weak, out of breath and racing pulse. I think it puts undue stress on your heart to try to work out when you're symptomatic. I would wait a couple of weeks until your meds kick in & your levels come down before doing anything remotely strenuous. At least ask your endo.

I know it's frustrating since exercise can help you stay positive and not being able to can affect your outlook. That was my experience anyway.

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GETTINGSLIM69's Photo GETTINGSLIM69 Posts: 343
12/14/09 9:27 P

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Hi guys. It's nice to see I'm not alone with HYPER! I'm also a member of the wonderful Graves. Does anyone have any ideas of exercising with hyper when pulse rate is high? After 5 minutes of me working out, my pulse is over 195 which might be kind of dangerous.

Edited by: GETTINGSLIM69 at: 12/14/2009 (21:28)






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KJGETTINHEALTHY's Photo KJGETTINHEALTHY SparkPoints: (13,487)
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12/6/09 11:52 P

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I have been both got experiences with both so can relate with both sides.

I was hyper a long time till i finally found out ofcourse by getting symptoms.

There's symptoms for both too interesting but glad to know your not alone in this.

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KATDOG76's Photo KATDOG76 Posts: 6
11/27/09 9:41 P

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Hi all. I was diagnosed with Graves in 2006 and am in remission for the second time, 10 pounds heavier than my original weight and 5% less muscle mass than before the last bout.

I'm glad to connect with other hypERs, since all the information out there is 95% for hypo. It's partially due to our health care system since it's cheaper to give someone a pill to destroy their thyroid than to monitor and give their body a chance to function normally... sorry, obviously a bit frustrated with my experience.

Still happy to connect with you all though! emoticon

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KISZKA Posts: 19
11/24/09 10:53 A

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Hi guys I also have Graves Disease. I've been desperately looking for information on weight loss and especially exercise. Most of the information out there is about hypo but I can't find much about hyper.

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KAROWE06's Photo KAROWE06 Posts: 178
11/10/09 7:12 P

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Hey Ladies! My name is Kirsten and I was diagnosed with Graves Disease in 2006.

Keep on Keepin' on!


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BREANNEJK's Photo BREANNEJK Posts: 10
11/5/09 11:52 P

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I love the title for this section. I am paradoxical hyperthyroid with Graves Disease. It's great being 100% Hyperthyroid with all the signs and symptoms of Hypo. emoticon LOL I was being sarcastic on it being great. Just wanted to say hi! emoticon

YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (120,888)
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10/22/09 6:09 A

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Mitecu, people on this team are Hyperthyroid and Hypothyroid. If you have a question ask. Some are very knowledgeable. If you are hyper click on the part that says Create a New Topic and state what you need.
There is a hypo team that you can join by going to my page and clicking on the brown butterfly under teams.
Jane on Guam
emoticon emoticon emoticon emoticon emoticon emoticon



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MITECU's Photo MITECU Posts: 7,061
10/22/09 5:44 A

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This is a Thyroid Community that doesn't designate whether you are hypo or hyper. I thought it was for everybody with any thyroid issues.

With God, all things are possible. (Matthew 19:26)

"If we all did the things we are capable of doing
we would literally astound ourselves."
Thomas Alva Edison

The mediocre teacher tells. The good teacher explains. The superior teacher demonstrates. The great teacher inspires.
-William Arthur Ward



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YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (120,888)
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10/13/09 5:47 P

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Mzzchief, is there a hyPERthyroid team as there is for hypos? Perhaps you and a couple of others could start a team. I do NOT want you to leave this team because your input has been invaluable.

Starting a team is not that difficult. I strongly suggest that any leader have an open page so members on others can find out more about you. When the leaders are not open it is difficult for members to get together.

Jane on Guam
emoticon emoticon emoticon emoticon



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SUSANNAH's Photo SUSANNAH Posts: 2,277
10/12/09 2:39 P

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Thanks! That'd be me, since I have Graves!!

Patience and Fortitude - Mom

There ain't a thing I've faced that's been too much for me - Classified "Inner Ninja"


MZZCHIEF's Photo MZZCHIEF Posts: 9,211
10/12/09 2:37 P

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Thought it might be a nice idea to provide a place for hyPERthyroid peeps to meet others with the same variety of thyroid disease that they have.

So many of our members here are hyPOthryoid, that advice a good deal of the time is geared to the hypo condition and not the hyper.

We want everyone in our community to feel welcome... potentially this thread can provide you ..the hyPERS with hyperthyroid buddy to help with your own challenges.

Welcome to Spark and to our team!

: )
Mzzchief





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ndividual.asp?gid=732


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