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CRE-CRE SparkPoints: (12)
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5/28/14 10:32 P

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Hello everyone I'm new to the team, happy to be able to speak with others regarding thyroid. I was sick for almost a year before they figured out what was causing my heart to go into A-Fib, weight lost, weakness, fatigue, low blood pressure, hair lost, bowel movements 3-5Times a day, and other symptoms I have Graves Disease Hyperthyroidism with nodules found growing . I was a wreck I had surgery to remove my thyroid 2 weeks ago which has converted me to hypo. I'm feeling great compared to how I was a few months ago my energy is back , but I have gained 4 pounds since surgery which worries me. I pray that my levels become normal quickly I see my Endo next week to make sure I'm on the correct dosage of Synthroid. Pray for me

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3/24/14 1:55 P

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Hello!! I'm new to this team. My name is Kimberlyn. I was diagnosed with hyperthyroidism almost 3 years ago. Going for a check up in two weeks. Hoping to get this thing on track and get everything leveled out. I didn't lose a whole lot of weight like some people did. I lost maybe 10lbs when I found out but I thought it was due to all the working out I was doing. I looking forward to meeting my weightloss goals.

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HASHIMOTOSGIRL SparkPoints: (202)
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11/17/13 9:36 P

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Hi all! I'm new to the team and wanted to introduce myself... I've had thyroid problems for 2 1/2 years now.. just diagnosed with Hashimoto's and joined sparkpages to track my diet. I've researched gluten free is the way to go... so wish me luck!

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VASEASHELL's Photo VASEASHELL Posts: 84
10/30/13 8:20 A

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Hello
glad to have found this group!!!!
I was initially diagnosed with HYPO but after taking synthroid and my heart almost came out of my chest they did more tests and said I had hyper and also Graves. After going through a year of testing and specialists and no signs of graves in the eyes the doctors said I had Hashimoto disease! So I have been full circle with this crazy thyroid disease!
I am now on methimazole and for about 9 months my levels are good! I still dont fit completely in hashimoto BUT that is where i am. I also do not have the classic lose weight symptom. I was gaining weight until earlier this year.
My thyroid team is suggesting that i take the thyroid BUT i said not now. I want to level out for a while before I have to fight the problems of going on Synthroid for the rest of my life.
I do not have any problems with Methimazole so far!
we are are own best advocates so stay involved and understand your disease.
best of luck

Edited by: VASEASHELL at: 10/30/2013 (08:21)
Hungry... No More...sometimes!

"Hitch Your Wagon To A Star"
~ ralph waldo emerson ~


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JWHITEHEAD05 SparkPoints: (1,411)
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10/24/13 11:40 P

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Hi I'm Joanna and was diagnosed with hyperthyroidism just 3-4 months ago. I am taking 25MCG Levothyroxine. Since I started taking the medication I have had my thyroid checked two times and both times everything has turned out normal.

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TERRI289's Photo TERRI289 Posts: 16,196
10/22/13 7:19 P

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Thanks Sharon..good to know that it can be ok.

Exercise to be fit, not skinny.Eat to nourish your body.and Always Ignore the doubter, haters, and unhealthy examples that were feeding you. YOu are worth more than you realize." From the Fitness Facebook page..

There is always reason to Dance!!
--From my birthday gift from a cherished friend



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SHARONS11157's Photo SHARONS11157 Posts: 20
10/22/13 6:41 P

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Hi Terri, I'm on the generic version, Methimazole which is working pretty good for me. After I started eating right and exercising, my Endo cut it in half, and then half again. Hopefully one day it'd be nice not to have to take them anymore. But a quarter of 10grams is nice right now.

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TERRI289's Photo TERRI289 Posts: 16,196
10/21/13 7:40 P

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HI! I am a formerly hypothyroid that went to normal and as of today, looks like I am hyperthyroid. Going foranother thyroid scan I hope since the one in August was normal. Any opinions on Tapazole? Bad reactions,no reactions?

Love to hear what you think about it..thanks..

Exercise to be fit, not skinny.Eat to nourish your body.and Always Ignore the doubter, haters, and unhealthy examples that were feeding you. YOu are worth more than you realize." From the Fitness Facebook page..

There is always reason to Dance!!
--From my birthday gift from a cherished friend



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SPARKETTE-CJ's Photo SPARKETTE-CJ Posts: 1,499
10/14/13 10:33 P

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lol..Sharon, I didn't even notice this one particular thread had to do with hyper, since I knew many of the threads in this team pertained to hypo, I really DO need new glasses..for real haha...oh boy..ok, good to know this thyroid community addresses both conditions..that's great. ...I am still looking into what, if any, raw greens would be ok for me..Ok, well good luck with yours and thanks!

“Any fool can criticize, condemn, and complain but it takes CHARACTER and self control to be understanding and forgiving." and if we all try to practice this, it'll be a much nicer world :)


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SHARONS11157's Photo SHARONS11157 Posts: 20
10/14/13 6:44 P

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And this person probably does know her stuff. For one thing it might benefit you to be on the site for HYPO thyroid instead of HYPER, just to let you know since symptoms and benefits are so different from each other. Even though I'm HYPERthyroid, I still gained since I was ravenous all the time. So I don't want to steer you the wrong way. In fact, I meant to say this before when you first mentioned the smoothies, but it just amazed me that they could be bad for you since they helped me. But what do I know, I'm not a doctor.

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SPARKETTE-CJ's Photo SPARKETTE-CJ Posts: 1,499
10/14/13 6:36 P

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I looked in this team and saw a post by MZZCHIEF, who seems to know her stuff. It is under the Health articles for discussion, title hypothroidism revolution program, saying Some general advice on things to avoid:
1. Lots of raw "goitrogens"... these are the foods like kale, broccoli and cabbage, that you're always told to eat because they are good for you. Steaming them or saute-ing them lightly will disable the substances that effect your thyroid. As long as you have enough iodine, you should be ok, since these veggies tend to bind it.

I also saw another article on SP under Beat Hypothyroidims The Natural Way, saying Goitrogens are naturally occurring anti-nutrients in certain foods that interfere with the production of thyroid hormones.
Cruciferous vegetables like broccoli and kale also contain goitrogens although in smaller quantities. Cooking these vegetables has been shown to effectively remove goitrogenic compounds. Lightly steaming is the most effective way to consume cooked vegetables as it maintains a large quantity of the nutrients. Anyone with a thyroid disorder or family history of thyroid problems should eat the majority of their cruciferous vegetables lightly steamed.

So it sounded to me like those greens should mostly be eaten steamed or cooked and less raw as in smoothies...I had planned to try to have two green smoothies a day. Thanks for your post back.

“Any fool can criticize, condemn, and complain but it takes CHARACTER and self control to be understanding and forgiving." and if we all try to practice this, it'll be a much nicer world :)


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SHARONS11157's Photo SHARONS11157 Posts: 20
10/13/13 11:27 A

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Who told you that green smoothies or any kind of salad greenery wasn't the way to do it? It couldn't have been your doctor? I've found it to be the secret I wish I had known years ago when I was a lot younger. Between that, eating less meat, more beans, cutting out sugar and back on salt is really what helped me. I just got out of eye surgery and I think it wouldve hit me a lot harder if I hadn't been eating right, exercising and taking my vitamins. It's too bad when people give you the wrong advise.

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SPARKETTE-CJ's Photo SPARKETTE-CJ Posts: 1,499
10/11/13 10:58 A

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Thank you for allowing me to join this team. I have been Hypothyroid for about ten years or so. I have been on Synthroid the whole time, and often the dosage was increased. Still have aches and pains, loss thinning of my once thick hair, weight gain and retention, depression etc etc.

I now feel frustrated more than ever because I had set my mind to start drinking green smoothies including all the greens thought to be healthy, spinach, kale etc. and NOW I hear I shouldn't have them and other foods? I was NEVER told this and am embarrassed to say I never researched it myself. I always thought I could eat anything and not have to be restricted. So I suppose that throws the green smoothie idea out the window?

“Any fool can criticize, condemn, and complain but it takes CHARACTER and self control to be understanding and forgiving." and if we all try to practice this, it'll be a much nicer world :)


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SHARONS11157's Photo SHARONS11157 Posts: 20
9/20/13 2:18 P

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I also have Grave's disease and am on the lower end of hyperthyroid. I started out taking 10 mg of Methimazole, then my doctor cut it back to half, and now half of that. I told him I had heard about the Eat to Live book that Dr. Fuhrman wrote on the Dr. Oz show and decided to do it. My Endo agreed that it would help. I also started walking and using my elliptical. I lost 29 lbs in 6 months. I did it the slow way. That way I'd become accustomed to that way of eating which is some type of greenery at lunch and dinner and oatmeal loaded with fruit,nuts, and seeds for breakfast. I feel better about myself. Just wish I had known about this way of life in my 20's. Now I'm getting ready to do Orbital Decompression surgery which takes a bone and fat from behind your eyes to stop the enlarging and bulging. Thank God insurance covers 80%, even with an occular plastic surgeon. So at 5"8', I'm at 145 lbs, and hopw to get maybe a little lower. We'll see how the surgery does me a couple of weeks from now.

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UNO2425 Posts: 51
8/25/13 8:04 A

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I was diagnosed with Graves disease in March 2012. Since then, my endo doctor left the practice and moved far away so I started seeing another doc in the practice. I am on methimazole 5mg right now. It took awhile to make my numbers go in the right direction, which made my weight go in the wrong direction. I have mostly the symptoms of HYPO and I am obese.

Is it possible to lose weight with Graves? I am really struggling and I don't feel my doc supports me. She thinks I am almost in remission, but wants me to take RAI. I don't understand that logic.

Misty


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LITTLEPEEPS's Photo LITTLEPEEPS SparkPoints: (5,147)
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4/18/13 7:05 A

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My endocrinologist had told me that those with thyroid cancer have normal thyroid function tests (mine were very abnormal.) Were your thyroid function tests borderline?? Fingers crossed for ya.

"Laughter makes the bitter swallowing of truth, for some, a little easier."
--Bill Hicks

"Isn't it enough to see that a garden is beautiful without having to believe that there are fairies at the bottom of it too?"
--Douglas Adams

"In the beginning the universe was created. This has made a lot of people very angry and has been widely regarded as a bad move."
--Douglas Adams, HHGTTG


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MBRASSFIELD2's Photo MBRASSFIELD2 SparkPoints: (5,307)
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4/15/13 3:06 P

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Hi I just found out I am hyper. I have 5 goiters on my thyroid also. I am going to Dr today to discuss what we are going to do. Has anyone else had this? I am nervous and worried. The word cancer has been thrown around. They cannot tell through test if it is or not.

Suck it up and one day you won't have to suck it in!!!



Hebrews 12:11
No discipline seems pleasant at the time, but painful. Later on, however, it produces a harvest of righteousness and peace for those who have been trained by it.

Life doesn't have a remote, you have to get up and change it yourself.


If it is not challenging you, then it is not changing you.


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LITTLEPEEPS's Photo LITTLEPEEPS SparkPoints: (5,147)
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3/28/13 10:16 A

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Glad I found this thread. :)

I was brought to the Emergency Care Center (kind of like the ER, but for less life-threatening situations) for heart palpitations about a week ago. The very next day, I saw my primary care doctor, who sent me for blood work and a thyroid ultrasound. I see her again to day to follow up, and have an appointment with an endocrinologist April 10th. (How I got one so soon, I've no clue.) Based on the meds my primary gave me and my symptoms, I have hyperthyroidism. I find out today the cause of it.

Let me just say that heart palpitations or racing heart sucks haha. I tend to shake badly when I get them. The ER doc thought I was having a panic attack, and so did I until my blood work came back that my thyroid was out of whack.

"Laughter makes the bitter swallowing of truth, for some, a little easier."
--Bill Hicks

"Isn't it enough to see that a garden is beautiful without having to believe that there are fairies at the bottom of it too?"
--Douglas Adams

"In the beginning the universe was created. This has made a lot of people very angry and has been widely regarded as a bad move."
--Douglas Adams, HHGTTG


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ROSEDALE777's Photo ROSEDALE777 Posts: 136
1/10/13 9:31 A

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Hi J. I was not diagnosed with Graves but readings and symptoms close. I personally would not rush into RAI without a lot of research as there are side effects. Once done you cannot reverse. There is a great website "Natural Endocrine Solutions" that deals with Graves and how Olansky dealt with it naturally. Of course doesn't work for everyone but check it out.

Rrmember you always have support here.

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JVAHLING SparkPoints: (736)
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1/10/13 9:13 A

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Hi There - I also have graves disease, I took the RAI in November and I have just recently started feeling better. Before I couldn't work out because I was so out of breath and I was so hot all the time. The hot flashes were the worst. I have just recently started working out again and as of today I am going to try a more strict diet as I have already gained 5 pounds. I am comfortable with the weight gain as long as I don't gain anymore because it is worth feeling better. There are no side effects from taking the RAI, I didn't feel any different at all, it just the aftermath. You are really going to have to make some lifestyle changes and that has been the hardest for me.

J-HANSEN's Photo J-HANSEN SparkPoints: (14,682)
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10/24/12 5:21 P

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Hi Everyone - recenty diagnosed with Graves. Not thrilled about RAI, and I am very irritable (increased with) the anti-thyroid methiamazole and atenolol. REALLY wanting to do some natural treatments. I would LOVE to hear from anyone that has had some success without RAI. Thanks!

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MHUGS15's Photo MHUGS15 Posts: 12
9/17/12 7:39 P

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I ALSO HAD HYPERTHYROID WITH NODULES AND A GOITER. IT WAS MAKING ME SO SICK TIRED ALL THE TIME, HIGH BLOOD PRESSURE, HEART PALPITATIONS. I WAS TOLD THREE YEARS AGO AND THEY WATCHED MY LEVELS THEY WERE STAYING WITH-IN RANGES. IT WASN'T UNTIL 6 MOS.AFTER A CAR ACCIDENT THAT MY LEVELS REALLY CHANGED. I HAD TO HAVE A THYROID REMOVAL WAS VERY SCARED ABOUT THIS. SO FAR EVERYTHING WENT BACK TO NORMAL. DR. SAID MY GOITER WAS TAKING OVER MY THYROID AND GOING TO THE OTHER SIDE THAT'S WHY I WAS GETTING SO SICK. I'M STILL A LITTLE TIRED BUT MY WEIGHT SEEMS TO HAVE STAYED THE SAME. BEING HYPER DIDN'T HELP ME LOSE FOR SURE BUT HOPING I CAN BETTER NOW.

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9/13/12 7:21 P

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Hi there. I just went to the Endocrinologist this week. He said 10% of women experience Thyroiditis after birth. I have a 7 month old and he said it could still be an inflammation of the thyroid. This is all new to me. I do have a family history of an over-active thyroid.

This is an awful experience. We want to get pregnant next summer, however, I was reading that babies can have birth defects with hyperthyroidism. I forgot to ask my doctor about that. They started me on an anti-thyroid drug and will monitor my thyroid level in 6 weeks.

Hope this helps.

ROSEDALE777's Photo ROSEDALE777 Posts: 136
8/31/12 11:25 P

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I was diagnosed hyper and ultrasound found a couple nodules but not too big. Just had RAI uptake Wed and discovered only right thyroid lobe functioning as left side didn't show up in scan. That explains why I'm on overdrive. They are trying to figure what happened to the left as my tsh plummeted from normal to. 01 in 3 mos.

I've been given choice between RAI or anti-thyroid meds. Not keen on either and wondering if meds a waste of time anyway if only one lobe. Anyone else hear of this?

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COLIBRI1's Photo COLIBRI1 SparkPoints: (12,829)
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8/8/12 2:35 P

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Minnie, enlarged thyroid can compress the larynx and vocal cords, and give you sore throat and hoarseness... my SIL is having the same symptoms right now.
It's good you are doing the tests, there are several conditions which may cause hyper - but anyway, all of them are treatable! So, as soon as you have the results, the doctor will probably start the right treatment.
Good luck to you!!

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MINNIEKS6101's Photo MINNIEKS6101 SparkPoints: (6,584)
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8/4/12 7:43 A

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Hi - I am new to hyperthyroid community. I was told yesterday that I am hyper and very confused/concerned. To back track a bit I have always been a sweat hog and had a baby 6 months ago. Everyone kept telling me that my hormones are out of wack and not to worry. Well, the sweating became out of control and I sweat like a farm animal, sometimes taking 3 showers a day and I am not a diva. I went for my follow up with my obgyn and was told it is my body getting back to normal, maybe it is. I was finally fed up so went to my primary and after my blood test I was told I'm hyper. I'm wondering if it is a result of pregnancy???? Also, I have sore throats and even losing my voice which my Dr. said is normal, is it??? Very confused. My Dr. is running more tests. I am just waiting for results and my appt next week. Who knows. Any info would be great! Thanks!

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AMJAPU SparkPoints: (361)
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7/27/12 6:54 P

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Any of you have issues with nodules? I was told early this week that I have one. I don't see an ENT to discuss it for another month. I think I can feel it in my throat, like a piece of food is stuck. Any resources to look at until I meet with him?

By the way, it is helpful to read everyone's messages to learn what is going to happen in my process. Keep it up! emoticon

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7/27/12 5:01 A

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DABGURLIE, big emoticon to you!
I also received the radioiodine on July 8.
My doctor told me that it takes about a month for the hormone levels to drop, and then he'll start me on Eltroxin. So I'm waiting...
I'm not even afraid of weight gain, since I never lost any weight with Graves - only gained :)
But anyway, I'm on a diet and hope to achieve and keep healthy eating habits, and with prope titration of Eltroxin, I hope to be OK...
Wishing you the best!!!

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ALASKASKY's Photo ALASKASKY Posts: 6,159
7/4/12 6:50 A

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3/1/12 9:28 P

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Hi everyone!

I was also diagnosed with Graves disease 3 years ago I think. I initially dropped 10 kgs really fast, but once on Carbimazole I gained all that back plus another 10kgs on top. I got so frustrated I stopped taking them (not recommended) I was about to put myself back on them when I found out I was pregnant, throughout the whole pregnancy all thyroid blood tests were normal so I thought YAY, my baby is now 5 months old and about 2 months ago I felt the Graves back so booked myself into the doctors again, sure enough back worse than ever, I was sent to see a specialist who then redirected me to the Nuclear Medicine department, Wednesday just gone I was administered with the Radioiodine treatment, I am so afraid of putting on anymore weight as I am already classed as obese, as soon as I got home I started researching and found this site I am determined to work my butt off and become healthy and fit again.

The worse thing I found with Graves disease were my mood swings some days I thought my head was going to explode, it was not good for me or my family. So hopefully this will be under control now.

If I can get through today, tomorrow will be a breeze!


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JILLITA55's Photo JILLITA55 SparkPoints: (74,274)
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12/29/11 6:09 A

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I'm with you. I go thru times when I am not hungry at all. I always try to eat the fruits and veggies.

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ALASKASKY's Photo ALASKASKY Posts: 6,159
10/25/11 12:33 A

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THEMIDDLEKID's Photo THEMIDDLEKID Posts: 11
10/19/11 8:38 A

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Thanks for your response. I am very impressed with my Endo so far. He has adjusted meds twice and I am doing bloodwork about every six weeks until I'm in good shape with the numbers again. Feeling SO much better - it's hard to believe that tiny little pill can make such a difference! In December I have another ultrasound to find out if a biopsy is necessary, but I am feeling so much better I'm guessing I won't need it. Thanks again!

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SOLUCKY1's Photo SOLUCKY1 Posts: 33
10/18/11 10:51 P

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I was diagnosed with Graves Disease about 20+ years ago. I cant't add to much that hasn't been said,. my only advise is make sure you have a good Doctor who seems to be knowledgeable . If they don't seem very concerned, please find someone who understands that this can be serious if not treated properly.
I don't know how others felt with it, but it affected my thinking. . Im so glad your here and have the support you need to get through this. I wish I could have had someone to talk to then. Keep sharing there are lots of people who know exactly what your going through here. I had to have Radio Active Iodine treatment. I still get checked every 6 months now. Endocrinologists are definitely the way to go as far as Im concerned. Good luck with it all.

“The journey is the reward”
- TAO SAYING


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THEMIDDLEKID's Photo THEMIDDLEKID Posts: 11
8/16/11 8:10 A

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Thanks so much for the response. :)

I'm going to an Endo on Friday, and will hopefully find out at least the basics. I have never been sick with anything before and the way my doctor's office has handled this so far has not put me at ease...


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AMINDANAO SparkPoints: (1,515)
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8/16/11 6:59 A

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I don't think that you are overreacting at all. Especially since they told you that your levels were labs were abnormal and that you are basically hyperthyroid. Make sure that you keep and get a copy of all of your labs. If you don't feel comfortable with how your doctor is treating your thyroid go to an endo. Having a good endo who is going to treat your thyroid aggressively and who is going to listen to you and how you feel makes a world of difference. Sometimes the meds will make you feel like poo but the lab work might show that you are on normal levels. Listen to how your body is making you feel and make sure to tell your endo. Also, I am hyper due to Graves and I get bloodwork done about every six weeks. So for them to tell you that they aren't going to check again until six months from now seems a little unreasonable. I would think that they would want to check more often than that. Especially since you are just now getting started on the meds. Like I said before, see if you can find an endo who is willing to check more often. Good luck!

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THEMIDDLEKID's Photo THEMIDDLEKID Posts: 11
8/15/11 9:37 P

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Hi all! New to the team and new to hyperthyroid problems, just diagnosed last week. Have had massive hair loss, heavy sweating, racing heart, low fever, shortness of breath and extreme fatigue among many other problems since February. After the second TSH test (-0.02) the nurse told me I am "hyper" pick up the Rx and have an ultrasound. It came back "abnormal" but they just want to watch it for 6 months and no follow up at all???? REALLY???

So... I'm going to an endo on Friday - for those of you with experience with all this - what do I need to know? What should I ask/expect? Family doctor is not concerned with whatever the cause of this is - should I be? (Graves or whatever?) Am I over reacting? Any advice would be appreciated.



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ANGELBLUE112's Photo ANGELBLUE112 Posts: 33
7/22/11 10:44 P

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Hi. I was reading everyone's posts and gaining much needed support but your story touched me particularly. I'm sorry people were so cruel to you without having a clue about what you've been going through. I know what it is like to be judged. If I've learned anything about having Graves' disease it is that no one can tell you what your life will be like. You decide. Congrats on the slow and steady weight loss, our bodies are very smart and we will be great as long as we listen to them. Peace and blessings to you and please stay a positive inspiration like you have been to me :)

Fortune sides with she who dares...:)


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EMMAJEAN50's Photo EMMAJEAN50 Posts: 739
7/9/11 10:59 A

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you are very welcome, since i am going through the same thing.. last year i lost 50 pounds.. I thought it was because i was doing everything right, working out, swimming and playing in the pool with the kids, eating right, and then wham.. I find out i have raves disease and i struggle between my diet, and my appetite, and my inability to really be physical. and like you as they work out the right dosage, i have to keep taking my pulse and find balance. sometimes i am just tired of the fight with myself. so.. it really is easier to look at the big picture. eventually it will be under control and it will be easier if i am already taking care of myself or at least helping myself. eventually i know i will be undergoing the RAI, and then taking thyroid meds (although not right away?) and it will be a whole new set of problem. that scares me, but i just cannot think that far ahead. lol

Rhonda

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PURPLEPIZAZZ's Photo PURPLEPIZAZZ SparkPoints: (12,610)
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7/8/11 11:15 A

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Thanks Rhonda! Those are good points, good things to focus on beside the scale.

Thank you!


HUGS!

“Limitations live only in our minds. But if we use our imaginations, our possibilities become limitless.”
~Jamie Paolinetti



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EMMAJEAN50's Photo EMMAJEAN50 Posts: 739
7/8/11 11:04 A

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I think the most important thing to remember that this set back is temporary. I know having graves disease is permanent, but you said yourself you won't be as successful until your thyroid levels are more normal. in my mind the key is to minimize the damage. you might be very successful at getting healthier even though the scale might not reflect it.

we are all on journey to be the best we can be, try the hardest, make everyday count, etc. i love the mini goals, and spark streaks. focusing on one thing i can do to make myself healthier. in addition to my fast break goals i am trying to log all my food everyday, and yes even i may and do go over goals. we will get there eventually, one step at a time!



Rhonda

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7/7/11 7:41 P

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OK. I have Graves and like you all am once again battling the bulge. Today I am a little be down because I know my levels are out of wack and despite trying a new diet, I know that there is a high chance I won't be very successful losing the weight until my levels are normal again. Does anyone have any tips, insight...???

I'm very blue tonight about this whole issue and I could use any help anyone is willing to lend.

“Limitations live only in our minds. But if we use our imaginations, our possibilities become limitless.”
~Jamie Paolinetti



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EMMAJEAN50's Photo EMMAJEAN50 Posts: 739
6/16/11 12:36 P

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I think was the same way. and that was my biggest complant at the time. how can i be so overweight and be hyPERthyroid? i was started on 20 mgs of tapazole/met and propanalol, i have since had it all doubled, (40 mg met and 50 mg atenolol) now my thyroid numbers are going back to normal. (or to the hypo side.) i gained a little over 20 pounds during the doubled stage. thankfully i am using a little less now. and my heart rate is way lower.. most times around 60 something without taking atenolol. in fact i have to take my pulse before i use my meds every time.

my whole life i was always the same weight year after year. then i had children, was injured.. gained about 25 pounds.. but when menopause hit all hell broke lose, my weight has been up , down up down.. now this.. at least i know what i am dealing with (graves disease) now, how it will effect me next who knows. but now that i have the drs ok to lose weight again, i am starting my goals over with a fresh slate. hopefully my meds are low enough i can start to lose again instead of continuing to gain.

Rhonda

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FWYATT1 Posts: 4
6/15/11 4:12 P

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Hello!

I was diagnosed with Graves last month. I caught it quickly and only had it for 6 months or so before I went to the doctor. I was not happy because I didn't loose any weight in all the time that I had it ( maybe due to the excessive dairy queen consumption). I am now on Tapazole and beta blockers. Everything is fine other than I can't taste anything. Has anyone else found this? If so do you have any tips or ways of coping? I would like to lose weight too so I'm not sure if I should use this as an excuse to eat super healthily for the next 6-18 months.

Help!

Thanks!

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5/25/11 9:44 A

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Hello,
What is exactly is a fat flush? What exactly do you have to do? I am on methimazole 15mg a day. I have gained 20lbs since I was on it. They lowered my meds to 15mg a day and I have't gained weight since then. however, I haven't been able to loose any weight no matter how much I diet and exercise.

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ILOVEMY2BIRDS's Photo ILOVEMY2BIRDS Posts: 2,646
4/30/11 2:07 P

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I haven't check in with this team for a while... it was nice to see that so many new people joined this thread.
My update: I was taken off the Diovan (for my blood pressure) basicly because my BP was like a child's and I would sometimes become light headed. Within 2 weeks I started feeling edgy, angry, and scatter-brained (more than usual) and was given an increased dose of my beta blocker (propanolol) That absolutely did the trick! It has been a month and I feel so normal and my BP is a real normal.
It got me to thinking back about before I was diagnosed with Graves in 2007... I was a scary person back then! I was very edgy, bordered on paranoid, and seemed to be "picking a fight" all the time. I didn't really realize it until I had this latest episode of edgyness/anger. There are people who still steer clear of me til this day.
I feel awful about how i had acted in the past. There is not much I can do to repair it now because its almost 4 years ago now.
But I wanted to share with you all in case you are feeling this way to get those beta blockers increased! It did a world of good!

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WRIGHTCHOICES's Photo WRIGHTCHOICES Posts: 102
4/15/11 7:30 P

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I was diagnosed with Graves Disease in Sept 2009 and was placed on Methimazole. Since that time I have gained 20 pounds. It has been a struggle to lose weight...I diet and exercise and still can't lose a pound. I just joined Sparkspeople and I'm glad to find this team. If... you have any tips on weight loss please send them my way

emoticon

Edited by: WRIGHTCHOICES at: 4/17/2011 (09:01)
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4/5/11 11:59 P

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I was diagnosed with Graves about three years ago and spent a long time trying to control my symptoms and get my levels into the norm. The very, very best remedy for symptoms as well as bringing levels to normal is ACCUPUNCTURE. Since I started doing accupuncture 2 times a week for the last 6 months, my levels are completely normal, my doctor is lowering my PTU meds and I am symptom free. Miracle.

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EMMAJEAN50's Photo EMMAJEAN50 Posts: 739
3/30/11 12:09 P

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Perhaps its time for another blood check? My doctors had said once my thyroid is under control, I would not need the beta blocker however meanwhile I have instructions to take my pulse before meds. I recently had the uptake scan, and was told the results. I have graves disease. My methimazole was doubled.but while i was waiting for a diagnosis i ended up in the hospital for chest pains, there they changed the beta blockers, amount and type.

I take my meds morning and night. and now my instructions are to take my pulse, before. if my pulse is more than 70 or so take the beta blocker. if not skip it. many times i skip it in the morning , but take it at night when my heart rate is higher.

however I am still under instruction to not diet, and not exercise, only eat healthy and walk but not too much.

I am Afraid I can't totally answer you michelle, because you are ahead of me in treatment, but really I would their ok before you exercise any more, and ask about your pulse over the phone at least.

Rhonda

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MICHELLE_391's Photo MICHELLE_391 Posts: 321
3/25/11 10:16 P

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Hello everyone! I'm so glad to see a spot here on the message boards for us hyperfolk.

I'm writing today because I've got a question. But first, some background. I have Graves and take Methimazole. Happily, my levels have been in the desirable range for about six months now.

Here's my question: my blood pressure, which has always been normal, has suddenly shot up in the past couple of months as has my resting heart rate. I have started to exercise, but am taking it slowly until I see my endo again, because I'm afraid I'll hurt my heart in some way. Is it common to have high blood pressure once the thyroid levels are normal? I'm so afraid that my heart is in trouble ...

I was on beta blockers when I was first diagnosed to help me with the shaking and palpitations. Perhaps I need to get back on.

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WAYLEYN's Photo WAYLEYN Posts: 4
3/7/11 4:25 P

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HI all. I am having to make a decision as to whether to do surgery or a lateral medication move (with surgery being a definite need later). I have a multi-nodular, toxic goiter and move from hyperthyroidism to normal to hypo several times a month. I am currently on and have been taking PTU for over 3 years along with a beta blocker for heart palps. I was told today the PTU has been black boxed (bad side actions possible) for liver issues. My liver panels are okay at this time. My doctor has given me the option to move to another thyroid suppressor or to have surgery. And the beta blocker is giving me problems with side effects that I don't want to deal with either, first and foremost extreme joint pain.

I am also having symptoms of insulin resistance, which according to my research can be caused by the hyperthyroidism.

So, to remove or not to remove at this time. I am currently unemployed and looking for work, so time wise this would be good so I don't have to take leave later. Money wise, it makes it harder, although we do have insurance. I would definitely like to be on only one med, but I have heard it takes a very long time to get stable. I also want to lose weight. I have the unfortunate rare complication that I gain weight with the hyper (probably because of the insulin resistance.)

I think I may have a lot of unique features to my issues, or maybe not. Is there anyone out there who has been here? Or even close? I would appreciate some advice.

Ley

"We must all suffer from one of two pains: the pain of discipline or the pain of regret. The difference is discipline weighs ounces and regret weighs tons." Jim Rohn


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3/5/11 4:46 P

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Hi, I too was diagnosed with Graves disease this last year. I thought cool, I will lose some weight and then get on meds. Well, I havent lost a pound and the Methimazole causes me to become so hypo so much I cant get out of bed, even the smallest dose. So Doc took me off it. The only symptoms I really have are my heart is racing, cant sleep and I am very grumpy. I am very hesitant about taking the med again, even though I am back to being hyper (TSH .009). Anyone else having trouble finding that happy place where you are neither hyper nor hypo?

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EMMAJEAN50's Photo EMMAJEAN50 Posts: 739
3/5/11 10:50 A

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Hi everyone, I was diagnosed in january with hyperthyroidism. and am scheduled next week to have the uptake scan to find out whats causing it. I was taking tapazole, but am off it in preparation for the scan. gosh after just a month taking those meds and now not taking it, i feel so nervous and jumpy inside. can't wait to find out whats going on with my thyroid.

Rhonda

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SMMEYLAN76's Photo SMMEYLAN76 Posts: 14
2/11/11 6:18 P

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when I first found out I had hyperthyroidism/graves I too lost about 15lbs! Then I too was put on methazemnol,I started at 30mg a day and I gained 40lbs very fast. I am now down to only 5mg a day and still am having a hard time with my weight. I just started a 2 week Fat Flush. Mary Shomon recommended it and in 2 days so far I have lost 4lbs which I have been trying for over a year to lose just 1!!!! I think its working. But I'm only on day 2 out of 14.

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2/10/11 5:35 P

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Hey Everyone,

I am so glad to have found this team. I have Graves also. I was recently diagnosed in June of 2010, it was so great at first I lost about 15 lbs. I got put on methazemnol and a lot of it, within 2 weeks I was up 20 lbs and I am having such a hard time losing it. I am now down to only 2.5mg a day which is half a pill and my levels are looking good. Does anyone else have trouble losing weight on meds?

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1/21/11 9:56 A

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Forgot to say I opted against surgery. My father was a doctor and he felt RAI was safer and if I did have surgery so ensure the surgeon had carried out many thyroidectomies and knew what they were doing - so esearch your surgeon!

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MUMMYCHICKEN's Photo MUMMYCHICKEN SparkPoints: (7,647)
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1/21/11 9:53 A

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I too have graves disease and had RAI 16 years ago. It took about 8 weeks after the RAI for my levels to drop significantly and then put on to thyroxine. Once on thyroxine - I started at a dose of 150mg a day I rapidly felt well and maintained that dosage for 12 years. Menopause mucked it up again and haven't been settled since! I lost weight once on thyroxine - but had gained significant weight when being treated for hyperthyroid.

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BRINDAMOUR Posts: 1
1/19/11 8:31 P

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Hi everyone. I am so glad I found this team. I need help. I have to decide whether or not to proceed with surgery to remove my thyroid (scheduled for Feb 3) or take the radioactive iodine. I have Graves disease and an enlarged thyroid. the drs, general, endo, and surgeon all say that i could do either with the same long term results. the only advantages to the surgery are elimination of the goiter and a quicker result. I have heard it can take months after iodine to get hormone levels to normal. Does anyone have any advice? I am stressing every night and my family is concerned about surgery. Also, I am very concerned about weight gain. Does anyone know if either of these options makes it easier to maintain weight post treatment?

BEAUTIFULBEX's Photo BEAUTIFULBEX Posts: 5
1/16/11 2:52 P

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Hi everyone emoticon

It's so good to find people who are going through similar things to me...I don't know anyone in 'real life' who has had hyperthyroidism so no one really understands...

Just a little bit about me - I was diagnosed with Grave's disease and hyperthyroidism when I was 18, and I think I had the disease for a couple of years before it was diagnosed. I lost a lot of weight (about 30 pounds in a few weeks) after I went on a diet...I just thought it was an amazing diet! But I didn't feel right - I felt like an old woman. The crunch came when I couldn't get up my stairs at home and had to be helped out of chairs, despite being young and quite light. I became paranoid and nervous, and stopped going to my lessons despite being a straight A kind of student beforehand. The doc said my results were off the chart. Anyway I was put on meds and I put about 3 stone on. Fast forward 4 years and I had an op to remove my thyroid last summer. I feel pretty normal now, though I will still be on thyroxine for the rest of my life I'm a lot better than I was.

For those of you still not quite feeling yourself, believe me you will one day. It doesn't last forever.

I still deal with hyperthyroidism because I got a reputation as being a lazy person whilst I was ill, because no one knew or they didn't understand. I also made some crazy decisions in my life and it's affected my relationships with people...all I can say is it gets better with time.

As for tips - I would say remember you are not the only one and it's not your fault. I was awful to my family when I was ill, I was never in a good mood, ever, and it was a struggle to get up every morning. But now I am ok, all my family and friends say is that they wished they could have helped. As long as your family/hubby know you are ill, and they know why you are cranky they will still love you and forgive you when you snap at them.

Good luck in your journeys everyone emoticon

“There is no elevator to success. You have to take the stairs.”


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LYNNUTTE SparkPoints: (1,429)
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1/15/11 1:02 P

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Why couldn't I have found this team last night!?! Hi everyone I'm 38 and was diagnostic hyperthyroid last year. My doctor suspects it's Graves. (Thanks for those genes Mom.) I am supposed to be on meds, but haven't been able to afford them for a about a week now. I will be able to get them again after the 26th. I am so glad I'm not the only one who is hyper with hypo symptoms. I always thought that if I ever got a hyperthyroid, I would loose weight without trying. Boy was I wrong.

Does anyone else get really bad pains for no reason? Ones that come and go? I get them really bad in my arms, but using a hot pad seems to help.
I knew since I was a teen that I needed to keep an eye on my thyroid because my Great Grandmother, my Mom and her twin and one of there cousins have or had thyroid problems. My Mom and her twin went Hyper at the same time. Mom ended up in the emergency room, and that's how she found out.

I got checked because I didn't feel right. I thought it was menopause. When I tried to go to sleep at night I felt like someone placed a burning piece of coal in my chest. Ice packs became my friend real fast. I was having sever mood swings too. I liked the happy moods because when I was happy, I was really happy. But the lows, I hated. So I went and got tested. I was just barely hyper. I am so glad I didn't wait any longer to get tested. If my moods were that bad when I was just barely hyper, I don't even want to know what they would have been like if my thyroid had gotten any worse. lol

Sorry this is so long. It's just really good to be able to talk to others going through the same thing.
Does anyone have any tips on how I can keep my moods under better control until my hubby gets paid and I can get my meds again?

Edited by: LYNNUTTE at: 1/15/2011 (13:04)
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AMINDANAO SparkPoints: (1,515)
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1/13/11 6:28 A

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Hello everyone! I was diagnosed with hyperthyroidism due to Graves Disease. I lost 52lbs before I found out that I had graves which was right after I gave birth to my son. Now that I am on methimazole to try to regulate my thyroid I have gain 10lbs of it back. I would still like to loose at least 20lbs more. Any tips woudl definitely be appreciated. I have been watching what I eat as well as exercising on a regular basis. Thanks!

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CHRISSYBABE1973's Photo CHRISSYBABE1973 SparkPoints: (1,077)
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1/8/11 8:40 P

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Hi I'm Chrissy I have Grave's disease and hyperthyroidism. Im on Tapazole and have gained 31 lbs on the meds since March 2010. My job is very physical and I bike 7 miles a day but the weight won't come off. I also quit bread and most sugars 1 month ago (Dec.12/10) I live near Vancouver B.C I hope by joining sparkpeople and tracking, it may help. If your in the same boat as me, please add me to be a friend. I'm needing some support thanks

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GARYSWIFE95's Photo GARYSWIFE95 Posts: 59
11/16/10 10:27 P

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Hi everyone. Had my thyroid removed in August because of Graves Disease.

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TWIXXX's Photo TWIXXX Posts: 164
11/12/10 6:03 P

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In regards to Donna,

If you plan on keeping your thyroid you need to figure out if anything is setting the Graves off. For me, so far I've discovered, it's coffee, microwaves, and environmental heat (anything above 85deg. Why coffee, I have no clue. I can drink soda pop and no issues. But when I drink coffee for an extended period of time, ie. weeks, Graves flares up. I don't understand the microwave thing either but, since getting rid of it and staying away from food cooked in them as much as possible - I haven't had as many issues. And heat has always been a big factor for me. It hasn't been easy to figure out what caused the flares. Thought maybe this would help. :)

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11/12/10 3:18 P

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Hi to all and everyone new!

I have a question. Do any of you experience not being hungry or thirsty at all?

I've been going through a spell here recently where I have no appetite and am never thirsty either.

Current weight 325. And been stuck this way for 3 weeks. Move scale! Move!

GONABESKINEBY35's Photo GONABESKINEBY35 Posts: 8
11/3/10 10:22 P

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WOW What Great NEWS!

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KAT_72's Photo KAT_72 SparkPoints: (0)
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10/28/10 4:34 P

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Way to go, Boriquanmami!

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10/27/10 10:33 A

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I have some exciting news to share with the group. Thanks in large part to suggestions,following my Spark plan, and outting away the scale, I am happy to report that I ahve finally broken through my weight plateau and while not where I want to be yet, have reached a health 130 lbs. On top of that and the bit I think all of my "hyper" friends will likely be able to appreciate is that in combination with medication and exercise my resting heart rate is at the lowest it's been in well over a year...75-78 bpm!!!! At my peak, I've had a resting rate of up to 140 bpm, so you can just imagine how much of a relief, literally, this is!

emoticon

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10/26/10 3:38 P

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I had hyperthyroidism for over 5 years then took a radio active pill to kill it. It did the job well. I gained over 50 lbs and have now energy even though I take a thyroid suppliment everyday. Now that I'm on sparks I've lost 18 lbs and am feeling better. emoticon

e-mail diamon_child@yahoo.com


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10/26/10 12:17 P

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I've been feeling pretty depressed lately, and have some weight gain to go with that. I don't know how much of the problem is coming from being hypo, going through peri-menopause, or just run of the mill S.A.D. Would the real culprit please stand up, so I can get on with dealing with it! Ugh!

Faith is believing in what you can't see.


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10/21/10 7:15 P

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I was dianosed with overactive thyroid about a month ago. They re-did the labs recently, and my TSH (3RD GENERATION) was still low (0.005), while my FREE THYROXINE LEVELS were still high, but lower than a month ago (Sept. FTL-1.98 and Oct. FTL-1.72). Although I am being told I have hyperthyroidism, each time I look at the symptoms for hypothyroidism, I see my very own symptoms. In fact, I have fewer hyperthyroidism symptoms than hypothyroidism. I noticed on my lab results that my Vitamin D levels are EXTREMELY low. I decided to look up the symptoms of Vitamin D deficiency, and wouldn't you know, Vitamin D deficiency actually causes hyperparathyroidism! I'm not sure if this is what has happened in my case, but I will definitely be looking into it. I will be returning to te lab next week for more bloodwork. I'm hoping things are better. I really hope things get better for you, Donnaanc65 emoticon

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10/18/10 2:12 P

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I remember being relieved I had made it through the night! My heart pounded to hard and fast and I couldn't breathe - very scary. I can't remember the name of the drug I was put on to slow it down - this was 15 years or more ago but I did gain weight big time - 5 stone in 3 months! However once stable I got it off again although I confess to doing it on a very low calorie meal replacement diet. I had Radio Active Iodine and yes I am now hypothyroid, but I would rather this than hyper. I think hyper is far more scary and difficult to control. Sure I struggle with weight being hypo but a couple of years ago I went hyper again and I was scared! I would have RAI rather than hyper thyroid any day.

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DONNANC65's Photo DONNANC65 Posts: 1
10/18/10 1:58 P

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Hi! I was recently diagnosed with hyperactive thyroid. I started out feeling like something wasn't right before I ever went to the doctor. My husband just started a new job and he was on night shift, which I did not like at all. I thought I was just reacting to the change of this. It kept getting worse, I was feeling really bad, felt like I was falling apart on the inside and was dropping weight. I went from 164 pounds down to 148 in no time. My heart was pounding like crazy and I found it hard to move around alt because I became out of breath so easily even while sitting still. At night the racing heart kept me up, I was scared to go to sleep in fear I would make it through the night. I went to the doctor and did the blood tests and had a scan and it came back my scan was fine just one small node the size of a pencil eraser. The blood work came back as hyperactive. I started talking Tapazole and my heart slowed down but the weight now has come back. I have a doctors appointment on Nov 2 2010 to see a thyroid doctor because I was just seeing a family doctor when this started. I don't have health insurance and it's kind of tough to see specialists without it. My doctor has given me a referral so I will know more after I see him. My thyroid has enlarged just from the time I had the scan. From what I have been reading on here and other places I DO NOT want the radioactive iodine or surgery if at all possible! If anyone has any kind of suggestions I would be glad to hear them. I am a NEWBIE to all of this so I don't know about the numbers that everyone knows so please bear with me!

Edited by: DONNANC65 at: 10/18/2010 (14:12)
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