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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,100
5/28/14 1:39 P

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Hi KATLORAX and TIMPTAMPIMP sorry have mist you two I have been trying to work and is hard on me and I am to tired to get on the computer at the end of the day.

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KATLORAX's Photo KATLORAX Posts: 48
5/21/14 8:20 A

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TIMTAMPIMP2010
I'm sorry for your circumstances, I know how you feel. I used to be so active and I LOVED Step Aerobics, but now my 84 year old mother has more energy than me. The fact that you love to swim is good. You just have to try not to be so competitive and more maintenance. When younger I loved water Aerobics, but can not find a pool close that is not heated to 90 degrees Fahrenheit, I think that is like 40/45 C. I had a friend from Oz!!! The worst thing about MS is that you remember what you could do before! Try just laps in the pool and maybe just walking a few laps, then turning around and go AGAINST the tide. Just do little things at first and do not expect to lose weight like a "normal" person. I even had my diagnosis Tattooed on my forearm, so people would stop giving me dirty looks when I would park in the handicap spots. Any energy saved is good. I might get my house vacuumed!
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5/19/14 8:24 P

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Hi,

I'm a 37 year old female, who was diagnosed in December 2010. I've been taking Copaxone since Apr '11. I was livingin Los Angeles with my daughter and husband, but we have since moved back to Australia, and in with my parents.
I've realised I've most probably had this disease for at least 18 years. It's only been in the last few months that I've realised that the way I love to exercise is actually harming my body and trigering relapses. (I was a gymnast and a competitive swimmer when younger) I've always loved to exercise, but my body apparently doesn't like "normal" exercise. Very frustrating that I start to exercise again, get into the groove of healthy eating...and then BOOM a relapse hits me..which leads to an initial stress-induced weight loss but inevitably becomes a large gain. (Am a stay at home mum since I cannot work due this invisible disease) And once I recover from that, as much as possible, I feel better start to exercise again and eat better and BOOM..is a vicious cycle.
I feel so much rage/fear/sadness that all I can do to exercise is the few core exercises that my neurophysiotherapist has given me..which I haven't done because I'm still in the anger/denial part of learning I'm not able to exercise like a "normal" person. That I can't be the sports-loving, active person I am on the inside.
Add to the fact that my latest relapse in February now prevents me from using the one mouthguard that kept my sleepapnea in check (cpap machines aren't compatible with me) and I've seemingly tripled the MS fatigue since then. I've regained the 7 kgs I painstakingly lost last year and am feeling really despondent about my chances of ever reaching a weight that make life and Ms any easier.
Currently stuck at 110kgs once more. Too brain-fogged to try and keep a food diary, can't exercise. Folks around me don't understand that completing half my daily chores uses up more spoons than I have for the day.
Any help motivation you could give me would be great. I'm usually a positive person but today I feel stuck.

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