Debra Sue, I am a Deborah Sue. lol I live off of Tally Rd.
Barb, I sometimes have pain but it is more disfunction and numbness. Clumbsy, lack of concentration, forgetfulness. Restless leg syndrome, I think caused by the NMO. When I do have pain it is weird because I know it is not from injury or anything wrong with what hurts, It is a nerve in my spine or head being attacked, so I typically ignore pain when I have it. Do you take CellCept? It has not been pleasant for me to take.
Fitness Minutes: (28,789) Posts: 1,633 1/28/13 10:06 A
My name is Debi Mendoza. 6 years ago I was at my heaviest weight ever, I joined WW and lost 44 lbs. I kept it off for quite some time then I had a hysterectomy, then 7 mos later a partial thyroidectomy. I gained 10 lbs after the 1st surgery, and 20 more after the second. 5 years ago I was diagnosed with MS. The injections were not helping and I was still having a lot of activity so they dug deeper and surprise, you don't have MS you have NMO (neuro melitis). NMO is similar to MS in the sense that it destroys your spinal and brain nerves but it has different causes and different treatment. The cellcept pills they have me on for it really make me feel bad. I wake up tired, get exhausted easy, lose my breath easy, and just feel icky in general. I don't know which makes me feel worse, the NMO activity or the meds for it. For those who are familiar with cellcept and wonder why they have me on a transplant med it is because it suppresses the B White Cells which the NMO causes to produce and run rampant. I am going to get back into my neurologist and tell her we need to try something else. Anyways, my point is I have 30 lbs to lose and not one bit of energy or ambition at this point to get it done. I wish I could find it and lose the weight. I am sure I would feel better at least with the weight off.
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