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Myasthenia Gravis

A Guide to Posting in Your SparkTeam Forum

  FORUM:   Introduce Yourself to Team Forum
TOPIC:   Newly diagnosed 


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DEBBIEANNE1124
DEBBIEANNE1124's Photo SparkPoints: (94,373)
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11/22/11 4:11 P

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Hi Beth. I'm glad you're here.
I'm real close to Portland, OR. I'm In Oregon Cityt. right down the road from PDX.

I ahd been telling robert i sense change in my vision but i couldn't figure it out. It was when my daughter visited about a month ago she said "mom, open your eye" Just the left eyelid was more than 3/4 closed & a week later the right started in. No sagging or numbness in my face. I called my eye specialist and he said to come right in. He msut have suspected M because he ordered blood work to look for it and one other disorder. It was positive for MG.

Neurologist appt went okay i did lots of arm exercises and Dr. asked me many ?'s do i ahve trouble breathing? weakness anywhere, etc. He put me on a pill called Pyridostigmine. It has helped my eyes a lot and I've learned to eat before taking my pill and with milk to avoid upset stomache.

I'm waiting for a CT scan of my chest (Thymus) and a breathing test.

MG patients can ahve trouble breathing and trouble swallowing and chest muscles can close up.

I'm feeling pretty good have my old energy back Just frustrated cuz of the rain.

Right eye is fully opened up Left eye is getting there. Vision in left eye is slightly blurry.

I ahve an optholmoplogist appt comign up in a few to check out my eyes again. Eye specialist is keeping a close watch on me.

thanks for asking.



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BETHHONEY
BETHHONEY's Photo SparkPoints: (2,327)
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11/22/11 12:50 A

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I'm glad that you started this group and invited your friends to come and lend you support. I had never heard of it until my friend's dad came down with it. I had thought he must have had a stroke, because half of his face looked droopy. But that wasn't what it was. He lives in Portland, Oregon. Tell us how the appointment went and how you're doing now.


"...The nurse was genuinely kind. Why was it that kindness made her want to weep? She used to take it for granted that people liked her."
_Mary Higgens Clark, A Cry in the Night


DEBBIEANNE1124
DEBBIEANNE1124's Photo SparkPoints: (94,373)
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11/17/11 11:42 A

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Thank you Linda. I love you all for helping out. I'll let you know how the appt went today.



 current weight: 170.0 
 
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PICKIE98
PICKIE98's Photo SparkPoints: (249,028)
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11/17/11 7:42 A

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Hi! I am here as an MG supporter for my friend, Debbie. There is a lot of info out there, but when it hits home, it is the personal things and people that matter to the MG patient. Let's all try to learn as much as possible and share with each other!!

SIX YEARS SPARKING!!

Lost 66 pounds!



 
249,028 SparkPoints


DEBBIEANNE1124
DEBBIEANNE1124's Photo SparkPoints: (94,373)
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11/16/11 6:56 P

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I have terrific friends! who stick by me. I love them to pieces. I didn't ask to get this thing.
I asked your mom to help me with a picture for the team image. Maybe one from her vacation?



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TWEETYKC00
TWEETYKC00's Photo Posts: 73,564
11/16/11 6:50 P

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Hi there my wonderful spark friends. I do not have this myself, but I am hear for the support of my dear friend Debbie and all others here that need us.


 Pounds lost: 85.4 
 
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DEBBIEANNE1124
DEBBIEANNE1124's Photo SparkPoints: (94,373)
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11/16/11 6:21 P

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Thanks! I hope I'm not the only Sparker with this disease



 current weight: 170.0 
 
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WILLOW49
WILLOW49's Photo Posts: 38,307
11/16/11 6:09 P

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I'll see what I can do to get others to join!

- - - - - - - - - - - - - - -
Willow
= ^..^ =

Co-Leader of Emotional Eaters
Co-Leader of Binghamton Area Losers
Leader of We Three Queens


"Every passing minute is another chance to turn it all around" Penelope Cruz in ' 'Vanilla Sky'

I am not where I need to be, but thank God I am not where I used to be. - Joyce Myers

You never know how strong you are until being strong is the only choice you have. - unknown to me


DEBBIEANNE1124
DEBBIEANNE1124's Photo SparkPoints: (94,373)
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11/16/11 5:38 P

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Aww Thank you Willow! Robert told me this is a rare disorder and that by his research he found in the main Portland area here there is pretty much only 35 diagnosed. You might see fi you can help get others to join. Other than my bloging this is pretty much where I will be sharing my journey.



 current weight: 170.0 
 
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WILLOW49
WILLOW49's Photo Posts: 38,307
11/16/11 5:24 P

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While I've never been diagnosed with MG, I'm here to offer support to those who need it!
emoticon

- - - - - - - - - - - - - - -
Willow
= ^..^ =

Co-Leader of Emotional Eaters
Co-Leader of Binghamton Area Losers
Leader of We Three Queens


"Every passing minute is another chance to turn it all around" Penelope Cruz in ' 'Vanilla Sky'

I am not where I need to be, but thank God I am not where I used to be. - Joyce Myers

You never know how strong you are until being strong is the only choice you have. - unknown to me


DEBBIEANNE1124
DEBBIEANNE1124's Photo SparkPoints: (94,373)
Fitness Minutes: (30,324)
Posts: 23,704
11/16/11 11:59 A

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It was the change in my vision and the droopy eye first in left then in right and botha re almost fully closed. I see my neurologist for the first time tomorrow. I'd love support here I hope everyone would be able to offer me and others a ray of light. Here I'll discuss my journey.



 current weight: 170.0 
 
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