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FSUNOLESGIRL's Photo FSUNOLESGIRL SparkPoints: (7,344)
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5/29/13 9:43 A

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Hi! My name is Rebecca. My son will be two this month, and was diagnosed with Stage 3, Int. Risk Neuroblastoma on 9/12/2012. He has been through 3 rounds of chemo, 5 surgeries, and a few complications along the way (he lost a kidney, his spleen, and has a feeding tube), however he is on his way to remission and I couldn't be happier about that!

We have had 2 month long stays in the hospital, and 2 half month long stays, and ofcourse scattered 3-6 day stays in the hospital since September. I gain a lot of weight, and lost a lot of muscle during this time due to a lot of lounging in the hospital and at home when he wasnt feeling well, and a lot of fast food. I am now trying to get back on track.

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- 519 Mother to an awesome Warrior (2yrs old)! dx Neuroblastoma Stage 3, favorable histology 09/2012
Remission 08/2013 519


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BRITMIYA1 Posts: 305
1/6/12 10:40 P

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Hello everyone, how are you doing? My name is Erica and I am the mother of two daughters, one with ADHD and the other is in remission from cancer. She was diagnosed with cancer three years ago and has been in remission for 1 1/2 years. She was diagnosed with Medulloblastoma (brain tumor). She is doing great.

I pray that all is well with you and your entire family.

My weight gain started before she was diagnosed but has continued on even more since then. I joind a gym and still havent been going, but now I am ready.


Erica

DANPERSINGER's Photo DANPERSINGER SparkPoints: (685)
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1/5/12 10:08 P

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Hello, My Name is Danielle and I am the mother of a child with neuroblastoma, a form of childhood cancer. He was diagnosed when he was 6 months of age and underwent 8 rounds of chemo over a 6 month period. He is now 3 years old and is doing well. He has been considered stable with disease for the last 2 years. (He still has the tumor but it has been inactive.)
After having my son, I was able to get back to my pre-baby weight but following the diagnosis I began eating to feel better. In the first hospital stay (we were there for 12 days) I gained 15 pounds. I was unwilling to leave my son's side because I was convinced that it would be the last minute he would be with me.
My weight has been a roller coaster, anytime anything happens to my baby I gain weight. I am now to the point that I am ready to get control. I have noticed than my poor eating habits have rubbed off on my son and that needs to stop. It will be wonderful to have people to talk to as I go through this life change

Danielle


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STEPHIEBETH's Photo STEPHIEBETH Posts: 49
11/14/11 6:16 P

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Hello! I havent been on sparkpeople in 9 months since my then 2 1/2 yr old daughter was diagnosed with ALL - TCell (high-risk) and blasts were found in her CNS. Needless to say, I havent taken time to take care of myself the past 9 months. Just this past week started to do the Jillian Michaels DVD as I dont get out of the house other than to get my daughter, Emma, to the doctors appointments & hospital stays. I have completely lost sight of my own health realing in a world of fear for my daughters. She is going to have cranial radiation in 2 weeks from today which I am so frightened of as well as not looking forward to. It will be a very emotional 2 weeks and exhausting as well. We will be waking up daily at 5am to get her to the radiation appts.
I guess I just need to give my health priority as well and I really need to get motivated. I need to start eating healthy again & devoting an hour a day to working out at home. The stress and poor eating habits combined with a lack of exercise has unfortunately contributed to me gaining 20 lbs since diagnosis (and I needed to lose 15 lbs at that point already). It's definitely a tough road, but I need to get myself back on board!

You never know how strong you truly are until being strong is the only choice you have. (Author Unknown). I am the mom of a beautiful 3 year old fighting Leukemia.

Nobody trips over mountains.  It is the small pebble that causes you to stumble.  Pass all the pebbles in your path and you will find you have crossed the mountain.  ~Author Unknown



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LUVS2ZUMBA's Photo LUVS2ZUMBA SparkPoints: (0)
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6/7/11 7:29 A

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Welcome to the group Natasha! What a joy that your son is in remission! A 9 week old with AML - wow! He is a living miracle! Treasure every day of it and I pray that the remission continues. This team should be a good place for you to discuss your fears of relapse and the pressure of having a cancer kid. It can wreak havoc on your lifestyle and it's hard to have a healthy one when you're inpatient. We go inpatient on Friday for a few days (our last scheduled inpatient hospitalization) and I'm hoping to stay on track. Our next hospitalizations will be for the dreaded fevers.

What I've experienced in the last five months since my son was diagnosed has been the apathy towards my own health and fitness status. I have been so focused on my cancer kid and his brother and trying to make their lives OK. I'm hoping to add myself to the list of priorities.

Did you go to the University of Florida? I'm a UGA grad. www.caringbridge.org/visit/rettbush

Edited by: LUVS2ZUMBA at: 6/7/2011 (07:33)
GATORGRAD Posts: 422
6/6/11 11:38 P

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Hello -
I hope it is appropriate that I joined this group. My son is almost three and is in remission from AML(Acute Myeloid Leukemia). He was diagnosed at nine weeks old and underwent five rounds of chemo. We were inpatient the entire treatment because he was so small. AML is very agressive and they didn't give us a prognosis...because infantile leukemia has a poor prognosis typically. (Yes, believe in miracles!!)

Anyhow, I didn't really take very good care of myself when we were there and the last 28 months of remission haven't been much better. I think I must eat when I am worried! Anyhow...I have 30 to 35 pounds to lose.

I came here because mostly people don't understand cancer or relapse fears. So sometimes I think people think I am crazy to still worry!! Hoping to find some who can relate.

Natasha

Look forward to getting to know you all and hope to lose some weight along the way.

*Gatorgrad* ~~ Natasha

Start weight: 190

Goal: 160

STG: 180 byJan


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LUVS2ZUMBA's Photo LUVS2ZUMBA SparkPoints: (0)
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6/3/11 12:54 P

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Welcome to the team nobody wants to join. I am sorry to hear about your son. I will keep him in our prayers and hope for a miracle. They do happen and we'll keep hoping. There is nothing like cancer to put the important things into perspective. Stay strong!

ONEAL_70's Photo ONEAL_70 Posts: 131
6/3/11 12:09 P

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Im sorry to hear about your child. I have a 4 year old little boy who was recently diagnosed with a grade 4 glioblastoma. We may only have a year or two more with him and I'm trying to enjoy every moment I can. Stay strong and stay positive:) emoticon

LUVS2ZUMBA's Photo LUVS2ZUMBA SparkPoints: (0)
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6/1/11 9:38 P

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I am a Mom of a three year old battling acute lymphoblastic leukemia (ALL) and am trying to keep myself and my family healthy during the very long journey to battle this disease. I hope there are others out there thay could use the support.

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