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Ovarian Cancer Fighters and Survivors!

A Guide to Posting in Your SparkTeam Forum

  FORUM:   Introduce Yourself to Team Forum
TOPIC:   Getting to Know You 


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KNYAGENYA
KNYAGENYA's Photo Posts: 6,167
10/16/13 1:12 P

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Welcome to the group. I hope you are well. We are here for you if you need it.

" The road to success is always under construction."- Lily Tomlin


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BTRX71
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10/15/13 8:11 P

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Hi. I'm Lori. I was dx with ovarian cancer in 2004. Have had chemo three times since then. I was sent for genetic test and found to be brca2positive so I will probably have it again. Sigh* We fight on!



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BTRX71
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10/15/13 8:09 P

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Hi. I'm Lori. I was dx with ovarian cancer in 2004. Have had chemo three times since then. I was sent for genetic test and found to be brca2positive so I will probably have it again. Sigh* We fight on!



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TASHATRIX
SparkPoints: (2,125)
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12/1/12 11:02 A

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Hi Im tasha . Im 38 mother of 3, 21, 17 & 12. I was diagnosed 11/4/12 with stage iv ovarian cancer. I have three large pelvic tumors and one in each lower lung. Im patiently waiting for my medical to get approved so that i can patiently wait for dr appts . Im desperately seeking help with a weight gaining healthy diet. Im completely allergic to pork and semi lactose.. A friend referred me to sparkpeople, so here i am. I posted a couple in detail blogs if anyone is interested in the details .

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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KNYAGENYA
KNYAGENYA's Photo Posts: 6,167
8/31/12 4:11 P

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Welcome to the group! I am glad that you found it. I hope your tests come back ok and nothing has returned. I found out I had cervical cancer through my regular pap test. I then found out I had tumors and had to have a hysterectomy at 33. After my surgery was over I found I had ovarian cancer as well. Remember you are a fighter and a survivor. If you need to vent, scream, yell, cry or just talk I am here.

" The road to success is always under construction."- Lily Tomlin


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JESSICAMONT32
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8/30/12 7:07 A

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Hi everyone.

Hope i am posting in the right place. I am new to sparkpeople and new to the group. My name is Jessica, I am 32 stay at home mom of a two and half year old. Anastasia is my entire world. She truly was a miracle baby. I was not susspossed to able to get pregnant and after many many many years of trying it happened :-) When she was 14 months old and 6 weeks after my husband and mine wedding I was diagnosed with ovarian cancer. I went to the doctors complaining of nausea, and tighting in my belly. I thought maybe I was pregnant again because it felt that way. However they found a large cyst on my right ovary ( 10.5 cm) and 4 cm cyst on the left. The doctors immediatly went in and tried to remove the 10cm but when they did remove it they found a tumor underneath it. They removed the ovary and found it was stage 1 grade 2. My left ovary was clear. After 6 months of treatments and some scan later they found a small tumor within my left ovary. This past june I had my left ovary removed. I am now on HRT, since they were able to preserve my uterus. Hoping to in the future do a egg donation and try to concieve again....
However I am once again not feel well. The last few weeks, I have been having a lot of pain in my lower abdomin and bloating, and nausea again. So i made an appointment and am having a bunch of scans done today to see if anything has returned. I am praying not.
That is my story so far....


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KRNMAC
KRNMAC's Photo Posts: 1,710
6/22/12 11:03 P

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Hi Dana,
Glad to "meet" you! Chemo brain? Very real for me!!! I've been done with chemo over a year now, and am back to health, but am struggling at work where they've loaded me with lots of - how to describe it? - extreme stress. I mentioned the impossibility of keeping up, and they basically told me to suck it up and just do it. Not sure I can. Time to seriously (!!!!!!) plan for retirement, sooner rather than later. I've thought about disability, but I'm only disabled from overwork, not from regular pressure.
My hair came back really well - I've stopped coloring it for the first time in probably 40 years, so it's gray streaked, and very curly. I get lots of compliments, but really I'm just glad to have hair, period. Nails? Not so much. Weaker than they used to be, and very brittle.
As you know, everyone's experience is different - but I'm glad you're proving the doctor wrong!!!!

"Everything will be alright in the end. If it is not alright, it is not yet the end!" -- Best Exotic Marigold Hotel

Southern California - PST


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IAM3RD
IAM3RD's Photo SparkPoints: (1,905)
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6/21/12 10:56 P

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Hi Dana! I'm surprised your doctor would give you an estimate of how many years you have. How would he or she know? Both my surgeon and oncologist said there was no way to predict whether the surgery and chemo would buy me 5 months, 5 years, or many more to come. So far, so good. I've been done with chemo for about 4 months and so far so good. :)

Anyway, I'm glad you proved them wrong and are doing so well!

~ Laurie


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THENEWDANA12
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6/21/12 10:05 P

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Hello Ladies,
Have read your stories, and mine is very similar. I was diagnosed with stage 3 primary peritoneal (ovarian cancer) in Jan. 09. They gave me 3.5 years. I did the 6 cycles, and a year of Avastin, and have been cancer free since. Thanks to a lot of awesome doctors, modern medicine, and God! But now that I have pulled through this long and realized I am not going to die any time soon, it is time to take it up a notch. I lost 23 lbs during chemo...but as soon as I got my taste buds back and could eat spicy foods, I gained most of it back...:(
I have just started to exercise first time in years. I fell 2 years ago and really messed my knee up, had it operated on and now can move again.( that is the only thing that gives me energy is exercising) I am wondering if any of you have chemo brain, or neuropathy?? That has been an added struggle for me. My hair has finally grown, but is very brittle, as are my nails. Do you have lasting affects from chemo?
Thank you all for sharing your stories...it is always nice to know we are not alone. NO one knows what is like unless they have been there.

Life is ten percent what happens to you and ninety percent how you respond to it...


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IAM3RD
IAM3RD's Photo SparkPoints: (1,905)
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3/10/12 1:29 P

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Lillian, thank you for sharing your experience and the things you've learned. I am thrilled at your successfully staying cancer-free, in spite of your doctor's prediction.

I've heard much about the importance of nutrition. I am more vegetarian than not, and generally eat more healthy than most folks. Am just now getting back into exercise. I am sooo out of shape. Yikes! I do find starting my day with yoga, followed by some kind of cardio really boosts my energy level.

Yesterday was my first follow up since my last chemo. My dr says all levels look good. It appears my CA-125 has stabilized at 11.8. So, I've "graduated" to quarterly check ups with bi-monthly port flushes. My goal is to become my healthiest me...spiritually, physically, and emotionally. Having an incredibly supportive husband, as well as an expanded support network, has been such a blessing.

Bless my dr's heart, after my rant yesterday about needing to lose 50 lbs, she smiled and suggested I start with 5. She pointed out that my body has been through a tremendous amount of trauma, and maybe I should give myself just a little break. She has such a nice way of putting things into perspective. :)

~ Laurie


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LILLIANK2
SparkPoints: (5,430)
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3/10/12 9:24 A

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HI I don't know how I missed this message - I can only say that I am not very experienced at blogs/chats/social sites etc. I am glad that you are coping well with your chemo - I well remember how difficult it could be at times. Keep on praying - the Lord is good. I too experienced a delay in treatment due to low platelets. That's when I discovered shark live oil. Look it up on the internet - it has great cancer fighting properties - as well as upping the platelet count. (In fact it's so good at this that they reccomend you keep an eye on the count in case it gets too high.) While your in treatment theres no chance that this would go un-noticed.

I live in the south of England. We have three boys, all married with six children between them.

My cancer journey started in February 2004 - ongoing problems resulted in my having a hysterectomy - and pathology found cancer in the fallopian tube. CA 125 count went up in 2008 when it was discovered that the cqncer has metastasised retro peritoneal, and a large mass was discovered at the level of my kidneys along with several smaller ones round the lymph system. My Dr decided not to operate, and I had six cycles of chemo ending June 2009.

Since then my CA125 has stabalized at around 7-9. My Dr is quite astounded that I remain clear - he warned me very clearly that he expected it to come back within a few months of the treatment ending. However - so far - God willing - I am fit and healthy!

I do think that nutrition is very important - also some exercise. (I know that is rarely possible when you are in treatment.) But eat well and you'll keep your strength up. Keep away from sugar - eat lot's of greens, pulses and fruit. (Never eat sugar - even natural sugar from fruit on an empty stomach - eat chicken, turkey and fish, nuts. Keep away from red meat. At first all this might seem like too much trouble - but it's worth the effort and it's amazing how quickly you get used to it.

Most of all do not be anxious. The good Lord knows what you need - and He works in all things to the good of those who love Him.(Rom 8:28) Be assured that no matter what happens the result for you will be positive!

Please keep in touch - let me know how you are doing.



Edited by: LILLIANK2 at: 3/10/2012 (09:43)


IAM3RD
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3/4/12 3:59 P

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Hi you all. I live in northern California with my loving husband and german shepherd 'Duke'. We are fairly recent empty nesters with our brood of four spread out all over the US.

My journey overcoming Ovarian cancer began last September, when my primary dr sent me for an ultrasound, believing I was having issues with my gall bladder (as did I). What they found instead was an 18 cm mass on or near my right ovary. A month later, I had that mass, and another 4 cm mass removed along with scraping of other cancer cells, and the complete removal of my reproductive organs. My diagnosis was stage 3. Although this is nothing I'd wish on anyone, I'm blessed and amazed at all the good that has come from my journey so far.

Finished my sixth round of chemo two weeks ago. CA-125 at that time had dropped from my original of 1,975 to 11.9. That's the power of prayer for ya! Other than a magnesium deficiency that is being addressed, and a week delay for one of my treatments due to low platelets, things are looking have gone smoothly. My energy has been mostly good, with the exception of one down day per treatment.

I look forward to getting to know you all as we continue our journeys to better health!

~ Laurie


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DEBBIEHEU
DEBBIEHEU's Photo Posts: 720
1/30/12 12:03 A

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God Bless you Abby! Enjoy Disneyland.

Debbie
Try the plan I am using that is working!!
http://flatbelly.naviibk.com/flatbelly

2012 GOAL: Exercise 4 times per week.


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ABBY86
Posts: 8
1/22/12 10:44 P

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Up date My count went up in Oct 2011 to 59. Nov 9th started Chemo again with the count at 268. first treatment I went to 204, second to 143. third I do not have my totals back yet. I had to have a blood transfusion done on the 6th of Jan. and a Port put in on the 10th of Dec. I have treatments until March or May depending on my body and counts. We are going to Disney land the first of next month for a much needed break for our whole family. We are all looking forward to it as our girls (11 &14) have never been.


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DEBBIEHEU
DEBBIEHEU's Photo Posts: 720
1/21/12 10:46 P

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My name is Debbie and am a cancer survivor. I went to the doc with a lump in my abdomen area end of May last year, after many tests and scans, I was found to have cysts or something on my ovaries. What I felt ended up being Endimitriosis. Had surgery on 6/13/11 to find the other ovary to have clear cell cancer stage 1A.

I had 6 treatments the last one being 11/4/11. I am feeling fine now. My hair is growing back slowly, but I thought it would be fun to join a group here that have fought the same thing and are also trying to lose.

My only issue I have since the treatments is the nuerapathy in my feet. They are a bit numb and tingly and it's hard to be too active on them.

I am married and have 2 daughters, 19 & 16. and I have a cat named Cookie.

I hope that I can find where you all are chatting because I didn't see it earlier.

Debbie

Edited by: DEBBIEHEU at: 1/22/2012 (19:24)
Debbie
Try the plan I am using that is working!!
http://flatbelly.naviibk.com/flatbelly

2012 GOAL: Exercise 4 times per week.


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MISSNA1958
MISSNA1958's Photo Posts: 13
6/27/11 8:28 P

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I joined this team to support the ladies who are currently fighting ovarian cancer. I was diagnosed in September 2009 after surgery for a 14 cm ovarian cyst. I was fortunate (I call it blessed) because I was Stage 1. Both my gynecological and medical oncologists told me that they so seldom see Stage 1 that they truly don't have a protocol for treating it. So my treatment was the same as it would have been if I had been diagnosed with Stage 3 or 4. I had 6 rounds of chemo, completing treatment in January 2010. I am thankful to be healthy and to have had good care. I am especially thankful because I am here to get to know and to have time to love our first grandchild, our now 10 month old granddaughter.

Becci, I would encourage you to read positive and uplifting articles and books (go to the library on a good day. If you don't feel like reading, they might have books on tape or CD that you might listen to.) and to steer clear of negative people and people who want to tell you about someone they know. Watch sitcoms, funny and uplifting movies - I love the movie Mama Mia, it always makes me smile - ...anything to keep your attitude positive. Also, stay as busy as you can stand to be - if you are a crafter, work on somthing simple if you can, to keep yourself busy. Will be thinking of you, and hoping for you to complete your treatments soon.
Naomi


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ABBY86
Posts: 8
6/23/11 2:06 A

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Nessa, I am so glad to find this. I went in for inlarged ovarian surgery Jan 26 2011, 3-7 day stay.
11 days later I left the hospital with a 12 inch scar, my Ovaries, tubes, uterus, 6 inches of my intestines and a 4in x 6in 7 lb turmor on my peritenum (sp) removed. What a shock! I spend 6 weeks healing, and I have a total of 6 Chemo treatments, becaues of low platelets, and White blood cell counts I am behind in my treatments by one. I recieved my 5th treatment today and on to my 6th and final on July 11. My outcome looks good as my blood marker on the 12 of May was 16. I am trying to have a possitive out look on my emotions after my last treatment. but by nature am a worry wort. this is where a could use the encouragement.
Becci


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LILSNOWPEA
LILSNOWPEA's Photo Posts: 46
3/7/11 2:53 P

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Hello everyone!

I am your Team Leader, Vanessa, AKA Nessa. I joined SparkPeople almost three years ago, but found I was not giving it my all. Recently, I have rededicated myself to SparkPeople and to my weight loss battle. In looking through the SparkTeams, I noticed there were no teams dedicated to the Ovarian Cancer cause, so I decided to start one! I am brand new to being a Team Leader, so please bear with me while I get the hang of things. I am so excited to be here!!

I am a FIVE YEAR Ovarian Cancer SURVIVOR! I was diagnosed December 23, 2004 with a grapefruit sized tumor that had taken over my left ovary. Now, I am not going to lie to you, I was scared to death. I cried. I was angry. But, I was proud for listening to my body and recognizing that something was wrong. With the removal of my ovary, it was determined that I would be cancer-free. I was assigned to a wonderful gynecological oncologist out of Duke University who confirmed this outcome, but had to continue to undergo more blood work and internal/external ultrasounds twice a year through September 2010. When my doctor looked at me and told me I met my five year goal, I hugged her! It was an amazing feeling!

Thank you for letting me share the short version of my story with you. I look forward to learning all about each and every one of you. Remember, this is a completely judgement-free zone. Respect each other. Love each other. Remember we are all winners!

Much love,
Nessa
emoticon

PS. My own fitness goals are on hiatus at the moment as I am recovering from hernia surgery and bronchitis. Yuck. I can't wait to get back up and moving again!

Edited by: LILSNOWPEA at: 3/7/2011 (15:33)

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