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DENIPARKER Posts: 1,085
11/2/13 7:08 A

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Hi Missa

Hope all is well. Its good to hear from new people.

Take care and hope to see your post soon.

Deni emoticon

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CAPISTRANO's Photo CAPISTRANO Posts: 3,393
11/1/13 11:57 A

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Hi Missa
How have you been feeling? Hope the Plaquenil is still working for you with no problems.
Thanks for the Spark Goodie!
Cathy


Other Resource: Peace is to be found only within, and unless one finds it there he will never find it at all. Peace lies not in the external world. It lies within one's own soul.


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DENIPARKER Posts: 1,085
10/2/13 10:55 A

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Hi Missa526,

So glad you like our team. We are all in this together. Hope you can get what you need. I remember when I first found out I had lupus. Thought my life was over as I new it. This group was a life saver for me. So glad you are here. Try our weekly check in. That is were we check in all week when we can,

WELCOME Deni emoticon

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MISSA526's Photo MISSA526 Posts: 324
10/1/13 10:45 A

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Thank you all so much! I think this team will be perfect for me! emoticon emoticon

It is what it is, or is it?

Tough times don't last, TOUGH PEOPLE DO.

The word impossible is not in my dictionary.

Be curious about what life will bring


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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,639
9/28/13 10:01 P

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Hi and welcome to the team. Look up the symptoms and see which ones affect you. We are all affected differently but they are pretty much accurate on what happens with our bodies but it does do different things in us

Dorothy





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BACKMOON's Photo BACKMOON Posts: 8,024
9/28/13 11:43 A

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Welcome Missa526!

Happy to have you aboard. I can't tell you much more than the others already have other than we have a great supportive group.

There is another thread here that has some information on Lupus and also if you click on our team logo at the start page it will take you to the "Lupus Foundation" Page and you you can get pretty much all the information you need there. So read up on it, question your Dr. and anything we can help with, Please ask!

Good luck and God Bless

Rick



Edited by: BACKMOON at: 9/28/2013 (11:44)
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CAPISTRANO's Photo CAPISTRANO Posts: 3,393
9/28/13 10:23 A

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Hi Missa526
Welcome to our group!
I have had Lupus for 26 years and I have fibro as well. I have been on plaquenil for many years and it does help a lot...it takes quite a few months for your body to feel benefits from it. I know many have had side effects from it but I have never had a problem. The only thing you need to do is have your eyes checked 2x a year because plaquenil can accumulate in the eye and cause problems. I have never had trouble with this either.

Using sunscreen is important but also using sunglasses, a hat and clothing that blocks the sun, if you are going to be outside. The sun can cause flare ups in your symptoms and you will feel more tired and worn out. You also need to pace yourself with activity...doing too much in 1 day can cause you to be worn out the next day. If you do a search on Lupus, you will find a wealth of information.

A rheumatologist who is a specialist knows more about Lupus, more than a primary care doc. If you're not happy or getting answers from your doc, you may have to search for another doc. Many of us have been to many different doctors till we find one that will work with us and understands Lupus.

Our group is very helpful so please feel free to ask questions!
Cathy


Other Resource: Peace is to be found only within, and unless one finds it there he will never find it at all. Peace lies not in the external world. It lies within one's own soul.


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DENIPARKER Posts: 1,085
9/28/13 9:48 A

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Hi Missa526,

Welcome to our team. I think you will like us and can get a lot of suport from all of us. It is very hard to say what to except. We all are different. I can tell you that being in the sun for to long will bring on a flair. Also when you are tired you need to rest. Just listen to your body. You will learn to listen to your body and do what it is saying.

We are a wonderful group and everyone truley cares. Good to have you on board.

Will talk again Deni emoticon

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MISSA526's Photo MISSA526 Posts: 324
9/28/13 8:49 A

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Hi I'm 32 years old and after years of extreme fatigue, headaches, infections and everything else I was just diagnosed with lupus. I'm on Prevequil (I don't remember how to spell it, it"s an antimalarial drug). It seems to be finally helping a bit because today I actually woke up feeling pretty good other than sore. I am totally new to all of this and my doctor told me nothing other than to use sunscreen. Any information, tips, how to deal with this, motivation or support would be greatly appreciated emoticon I also have Trochanter bursitis and just got a cortisone shot which is causing a great deal of pain and discomfort. In addition to that I have fibromyalgia which also can be difficult to manage. Please give me advice on what I can expect from lupus and how I can manage it. emoticon emoticon emoticon



It is what it is, or is it?

Tough times don't last, TOUGH PEOPLE DO.

The word impossible is not in my dictionary.

Be curious about what life will bring


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