Welcome to our group!
I have had Lupus for 26 years and I have fibro as well. I have been on plaquenil for many years and it does help a lot...it takes quite a few months for your body to feel benefits from it. I know many have had side effects from it but I have never had a problem. The only thing you need to do is have your eyes checked 2x a year because plaquenil can accumulate in the eye and cause problems. I have never had trouble with this either.
Using sunscreen is important but also using sunglasses, a hat and clothing that blocks the sun, if you are going to be outside. The sun can cause flare ups in your symptoms and you will feel more tired and worn out. You also need to pace yourself with activity...doing too much in 1 day can cause you to be worn out the next day. If you do a search on Lupus, you will find a wealth of information.
A rheumatologist who is a specialist knows more about Lupus, more than a primary care doc. If you're not happy or getting answers from your doc, you may have to search for another doc. Many of us have been to many different doctors till we find one that will work with us and understands Lupus.
Our group is very helpful so please feel free to ask questions!
Other Resource: Peace is to be found only within, and unless one finds it there he will never find it at all. Peace lies not in the external world. It lies within one's own soul.
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