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FATSHARK Posts: 4
6/10/11 2:29 P

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Hey Everyone!


I haven't been on here for awhile, but i just got the email that we have a new member - Hi NANAVET! - and I wanted to check in.

Welcome : )

Nicole

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6/10/11 1:48 P

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Hello Y'all!!! I have had Inverse psoriasis for 45years. This form is also called skin-fold, flexural, or genital psoriasis, because smooth, red, dry patches often occur in the folds of the skin (known as flexures). Inverse psoriasis may concentrate in the genital area, as well as under the breasts and in the armpits, and is more common in people who are overweight. I also have Psoriatic Arthritis with AS. I am on Imuran, Tramadol, Gabapentin and Prozac for the pain and depression. I am having a pretty hard time loosing weight because of my pain level, some days are great and then boom... I have a few days of misery...

AACJ9901's Photo AACJ9901 Posts: 24
5/28/11 6:24 A

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I have been seeing a rheumatologist for several years. At first she diagnosed me with RA, but now thinks I may have psoriatic arthritis. I take methotrexate and humira weekly. My joints are what bothers me the most and I have been lucky to have only minor skin issues on my elbows. My husband exercises for at least an hour everyday. He doesn't understand what it feels like to be in pain everyday. I am trying to make minor changes to lose weight which will also help decrease my pain and stress on my joints.

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BMAXWELL9303's Photo BMAXWELL9303 SparkPoints: (0)
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3/16/11 9:56 A

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I understand the long diagnosis process as well. It took a while to find a good doctor. My dermatologist and his staff are awesome. They have worked well with me, but until I found them it probably covered 70% of my body. After a couple of years its probably down to 10% with most of the plaque gone. Now its just dealing with the arthritis. Glad you found the group as well.

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TRWHEELER1's Photo TRWHEELER1 SparkPoints: (9,861)
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1/29/11 7:47 P

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Hi

I am glad U found us. Psoriatic Arthritis is a bad condition that effects every part of ur life and ur family and friends life. Sounds like you have a pretty good doctor though. My husband went to a wonderful dermatologist.

Please post if u get depressed or need any help. We will try to do the best we can to help u.

Tammy



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DOVEOFDRAGON's Photo DOVEOFDRAGON Posts: 14
12/6/10 7:58 P

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Nicole, Thank you for sharing your story. I have a very similiar story of lengthy time of misdiagnosis. My personal experience is the medications that I have tried have made the symptoms worse and accelerated the spread of the loss of cartilage and intensified the pain significantly.
I am on a study drug for depression and it has significantly cut my pain where I have very, VERY little pain. Also, I have lost 22 lbs and that is helping too.
There are going to be ups and downs and don't get too discouraged about the episodes and the pain. You can do it!

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FATSHARK Posts: 4
11/8/10 2:04 P

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How is everyone?
My name is Nicole and I just got a diagnosis of psoriatic arthritis about 2 months ago after a year and a half of misdiagnoses, unhelpful physical therapy sessions and generally being treated by medical professionals as though I was a hypochondriac who liked attention. Very relieved to know what it is, but still an uphill battle, both with pain and doctors. I am on Imuran and it seems to help somewhat but I don't really like being on such a strong immuno-suppressant medication, I have to say.
Other than that, glad to have found this group and just wanted to introduce myself!

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