Hi there. I'm sorry things have been so rough getting your diagnosis. When it sinks in it can be a very miserable experience mentally. Still, there are many treatments available. I went through a lot of years with less medication than I needed and spent a lot of my life in bed. I'm not a doctor, but I have been on Lyrica and it made me gain weight also. I find that Gabapentin does not make me gain weight, and it is basically the earlier version of Lyrica. Other than that, I take a sleep medication (very small dose), a small dose of muscle relaxant, and a small dose of pain medication. You do not have to medicated into a stupor to live with this disease, and you can still be active (though probably not anything that puts too much pain on the joints). I'm able to do weight training and walk on the treadmill. The elliptical is also nice because it feels like running (freedom!) but puts no stress on the joints. The weight training makes me sore for two days like you'd expect for a normal person. The cardio gives me energy I haven't had in years. Good luck with your journey. We're here for you!
"God has not given us a spirit of fear, but of power and love and a sound mind." 2 Timothy 1:7
current weight: 177.0
Fitness Minutes: (55,257) Posts: 6,234 7/9/14 7:07 A
Welcome Kristal. I am glad you shared your story. I was diagnosed more quickly, but it still was difficult and I did muscle relaxers (Lyrica wasn't out at that time), and used them. But after trial and error, time and money, found some avenues that work for me in order to manage it, and lose the weight I had gained due to not being able to be as active as I one was. I also do not use any prescription meds to manage it.
Anyway, welcome aboard and hope to get to know you better here.
I just rejoined/connected here on SP about two weeks ago, after taking a few years off - just busy. I am focusing, refocusing my energy/energies for me, at this point in my life/journey (as I am trying to figure it out), giving back, and hopefully helping others in the process.
Edited by: COCOA99 at: 7/9/2014 (00:41)
BE YOURSELF! BE YOU! You can do it!
Debbie (Washington State)
April Minutes: 0
Fitness Minutes: (6,087) Posts: 490 7/8/14 9:35 P
1st off I have been on Spark for a few years but inactive most of the last 2 years due to a very busy lifestyle. The site has changed so I am still feeling my way around.
I am 38 as of this past Sunday. I have 3 adult kids that recently made me an empty-nester and a 7 week old granddaughter. My middle child is finishing Air Force Security Forces tech school then heading to Korea.
Well I could go on and on to take the pressure off of myself but here's the deal: during my previous spark time I pushed and pushed but always felt like a hypochondriac. It took a long time to get a 3 minute run without stopping on a treadmill and it only happened once because I fractured my foot on that run. I did taekwondo for about 5 months while living in Korea in 2012. I fought through pain that doctors said should not exist. Then I moved home to TX, went through a divorce, started working again to add to my schedule as a Master's student, and stopped all exercise through this change. I gave up on Spark. I watched as others progressed and no matter how hard I fought I couldn't make change. That was 2 years ago. Last Fall I had a mass show up in my calf that started hurting a month later. Doc said it is fatty tissue "fatty tissue just doesn't hurt" and I was sent to a pain management doc. He said the same thing but said it is more likely to be herniated muscle "nothing we can do about that." I was referred to a rheumatologist. 2 weeks ago I saw him and he said I have fibro. I told him "No disrespect, but thought that was a diagnosis given when docs don't know what else is wrong. I prefer to know what is wrong." He explained it to me. I accepted the Lyrica and went home. Of course there's a lot of missing information. As I have read, most go through years of issues before getting a diagnosis. I'm still battling it mentally.
To top off the realization that I may hurt the rest of my life, I have gained weight!! I don't know how much exactly but I know my entire wardrobe suddenly BARELY fits. Some don't fit, others are uncomfortable, and thank God I bought a couple pairs of stretchy pants for work recently. I can't afford a new wardrobe, nor do I want a new one in this direction. I'm very unhappy and feel worse. The Lyrica helps me sleep and lessens the pain a little but gaining weight is no good! I'm debating stopping Lyrica or asking doc for some additional help. I'm still exhausted during the day with zero energy. Again, I could go on and on. I recognize many are worse off than me so I feel guilty complaining but I try to remind myself that we are all individuals and individually I feel like crap!! I hope to get this pain and weight under control with support, proper nutrition, and exercise.
SparkPeople, SparkCoach, SparkPages, SparkPoints, SparkDiet, SparkAmerica, SparkRecipes, DailySpark, and other marks are trademarks of SparkPeople, Inc. All Rights Reserved. No portion of this website can be used without the permission of SparkPeople or its authorized affiliates.
SPARKPEOPLE is a registered trademark of SparkPeople, Inc. in the United States, European Union, Canada, and Australia. All rights reserved.