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JSTHIEL SparkPoints: (640)
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4/1/14 11:04 A

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Glad you are here! I've had it for 20+ years but was only diagnosed 6 months ago. I also was completely bewildered about what I was supposed to do, if I would get better, how I would know when I did too much or too little. For me exercise makes it worse, I have to be VERY careful to choose exercises that are gentile, lots of stretching. Trying to identify triggers is a learning process.
The two major things that got me off my pain meds was daily paced deep breathing exercises and drastically moderating my activities.. The doctor spent 45 minutes with me explaining how the paced breathing helps shut down or at least slow down the pain response (we use it in labor right?) and "prescribed" paced breathing up to 30 minutes a day. He said it could take up to two weeks before I noticed a difference, but I could tell after only 3 days. Now if I get a sudden increase in pain or I know I've triggered myself, I just stop everything and breathe for 10 minutes and it drastically reduces my flair intensity.
And we've invested in energy saving products, delegated chores, etc. to help me be able to relax a little more. I've learned to pace myself and slow life down. Of course we all have bad days.
Another book you may enjoy if you haven't already read it, "The fibromyalgia help book" it was the most helpful one I read. That's my two cents. Each person is different, the only way to know what helps is to try a lot of different things. And over time I'm sure you continue to adjust and change as your Fibro ebbs and flows.

KLASMITH's Photo KLASMITH Posts: 160
4/1/14 3:26 A

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Hi

Cheers for the very thin line! I am hoping to find it and stabilize. You are so right -- emoticon

ICXC NIKA

My personal 27-year Guernica has been assuring my son a debt-free college degree. It's going to happen !


I.M.MAGIC's Photo I.M.MAGIC Posts: 12,840
12/21/13 6:26 P

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For me, pain is a daily thing... but there are days when it's fairly easy to deal with, and days that nothing but narcotics helps. I have been unable to tolerate any of the alternative medications, some even put me in the Emergency Room. The only way to find what is going to make life tolerable for you is careful experimentation.

There are various techniques to deal with the pain. Surprisingly enough, the most common one is exercise. But it's like walking a VERY thin line between doing enough to make a difference and doing too much--and every day the line moves! You take things slow, don't back down, and if something doesn't work and you hit a wall... find a way around it.

Just FYI, Fibromyalgia is currently being considered for reclassification as a neurological disorder... Some doctors are already treating it as such.

Who knows where it starts... it isn't terminal, at least. Ask questions, study, experiment...this is your life, after all.

My mom was the smartest lady... she always told me, it isn't what happens to you, it's how you deal with it.

You're not alone, and emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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JAMER123's Photo JAMER123 SparkPoints: (226,514)
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12/9/13 8:39 P

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Everyone's so different with the pain. You have to learn what your body is going to feel like on a daily basis and what a flare feels like. For me, it's pain daily except a day or 2 after a massage. A flare puts me down for at least a couple days. Shopping has to be dealt with as 1-2 stores of walking or by the time I get home, I can't do a thing into the next day. And the other thing you will learn is where is the most painful are on your body. Pain does more but you may have one central area that is daily. For me it's the entire back and feet that are constant. For now, listen to what your body is saying and let the brain learn how to ignore some of it. It will come but it takes time.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


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MRSSHMTHAUS's Photo MRSSHMTHAUS SparkPoints: (6,584)
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12/9/13 10:01 A

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Thank you all for the warm welcome and the good advice. I will be sure to follow up with all you have said.

I've had a few days to digest this diagnosis and I guess that I've had symptoms for years, and just ignored what my body was telling me. It wasn't until a very strenuous vacation to Vegas, including hiking in the mountains, that just put me over the edge.

That is the biggest question I'm trying to figure out right now. Am I just having a "flare up" or am I going to feel like this from now on in. I'm holding out hope that there will be non-pain days in the future. Is Fibro a gradual thing or does some sort of switch get flipped in the body that causes it to start up.

So much to learn.

Ali

Alison (my friends call me Ali, so please do!)
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JAMER123's Photo JAMER123 SparkPoints: (226,514)
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12/8/13 9:35 P

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emoticon and emoticon to the team. Everyone is right on with the thoughts. I have had problems with FM since the late 80's and wasn't diagnosed until a few yrs. ago. Did early retirement as the work progressively became harder. One thing a lot of people don't tolerate with FM is deep tissue massage. I have been going for many yrs. and at first it was quite painful as my muscles had become "solid as cement" per my therapist. Now I do well with deep massage and need it as the muscles tend to form strings of knots. It helps but not a cure.

Take each day as it comes and do what you can to stay active, stretching as you can.

Deena, I wasn't aware of that magazine. I think I will look into it! Thanks for the suggestion!!

P.S. I went looking in the reading room of my other FM team and found this article hat is helpful in sharing with other people that don't understand what you are going through. I remember it well and it's very helpful!!

webcache.googleusercontent.com/searc
h?
q=cache:oldghostshome.com/fib
ro.html


Edited by: JAMER123 at: 12/8/2013 (22:11)
Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


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NEWVINE's Photo NEWVINE SparkPoints: (96,634)
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12/7/13 5:43 P

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Welcome You are doing the right thing reading everything you can find.You will find what works for you. emoticon

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GRAYLADY13's Photo GRAYLADY13 SparkPoints: (8,601)
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12/7/13 11:33 A

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emoticon emoticon There is always something new to learn about fibro and how your body is doing. Over the decades I've had fibro I've discovered my abilities wax and wane. As does my pain, fatigue, and brain fog. Some days I crash and burn. I worked, often poorly, for forty years with fibro. I'm disabled now and often find some days very hard. But even so I love life, my family, and the joys I do have. Keep on keeping on! Do things you can to make life easy on you. Do things you love doing. Let go of stress. Don't push too hard. Laugh a lot!

Happiness grows inside me.


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SEDONACAT's Photo SEDONACAT SparkPoints: (63,980)
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12/7/13 6:51 A

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emoticon from someone who has had it since the mid-90's. In my case, it was much worse at first but either it got more tolerable or I learned better ways of coping. I read everything I could get my hands on which was not much then. Now you have many good books out there. I also joined Arthritis Today which means I get their magazine and it always has something in it about fibro. They publish a supplement of drugs and meds at least once a yr. for arthritis and fibro conditions that you will get with the subscription. Arthritis Today has a few books that you might find in the library or a bookstore just about fibro.

Good luck and as hard as it seems some days, you will get thru it.
Gentle hug!
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SMIDGON's Photo SMIDGON Posts: 4,261
12/7/13 6:14 A

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Welcome!

I personally have been disgnoised with Fibro. some 17 yrs. ago!

A lot of things, once they are presented to you; you have to try for yourself. What works for some, won't neccessarly work for you! It's a very personal thing.

Good Luck! We are all here for you!

Smidgon [Janet]
Yorlie Lovers co-leader

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,949
12/7/13 2:07 A

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emoticon This is a great team to belong to. If you have any questions, just ask. Somebody will have an answer for you.

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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SASSYTHING52's Photo SASSYTHING52 Posts: 10,995
12/6/13 10:54 P

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MRSSHMTHAUS's Photo MRSSHMTHAUS SparkPoints: (6,584)
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12/6/13 9:51 P

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Hi - I"m new to Fibro, but have been a SP for a while - mostly as a part of the Biggest Loser contests.

I've been progressively having worse and worse symptoms, and finally got scared enough that I went to the doctor. From all I've read, I know I"m in an usual circumstance of having been diagnosed rather quickly. Now to figure out how to deal with it.

Prior to this I have heard next to nothing about Fibromyalgia, and have spent the last few days reading all I could get. Now I"m just bewildered by all the info. I wanted to find a community to hook into and was so happy to find you all. So far, the forums I found have not been too positive - well as positive as they can be with this issue. I should have known I needed to come to Spark People first!

Now I'm going to go start readingsome team posts.

Thanks for letting me join y'all!
Ali

Alison (my friends call me Ali, so please do!)
from Texas

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