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GRAYLADY13's Photo GRAYLADY13 SparkPoints: (8,337)
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11/30/13 2:31 A

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Welcome! Karen!

Your exercising routines amaze me. Maybe one day I'll be there.
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Happiness grows inside me.


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,937
9/10/13 12:48 A

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Another thing about Lyrica, I found the clinical trials quite a while ago, and there was an astronomical amount of people in the trials(for fibromyalgia) that dropped out due to adverse reactions to the medication(19%). Big surprise!!
See the trials, page 17 in particular:



labeling.pfizer.com/ShowLabeling.asp
x?
id=561


Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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WRINKLEFREEDIVA's Photo WRINKLEFREEDIVA SparkPoints: (4,249)
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9/10/13 12:13 A

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So funny you should mention that Hippiegurl. My coworker's life partner was taking Lyrica for depression and fibromyalgia and according to my coworker, it made her almost manic. She said that one minute she would be raging and aggressive and then the next she would be sobbing like a baby... and we're talking about a woman in her 60s. That, and the threat of weight gain, were enough for me to say NO to Lyrica. While I totally understand that no two people respond exactly the same way to a course of treatment, but when you are constantly hearing horror stories, it makes you sit up and take notice. I swear, some of the side effects these medications cause are almost worse than the ailment they are designed to treat. Dry mouth may not be such a biggie as side effects go, but for me as a teacher who has to all the time, it was beyond uncomfortable. While I was on the Cymbalta, I constantly felt like I had cotton in my mouth and my kids wanted to know why I could chew gum and they couldn't. (The short answer was "because I'm an adult and you're not!") At this point, I think I'd almost rather deal with the pain and just take a couple of Advil when it starts to hurt a little too much.

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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,937
9/9/13 10:49 A

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Yes you have, Diva! And may I comment on the Lyrica? My doctor asked me to try it, so I did, and after 4 days I had a massive allergic reaction(don't know why it took 4 days) and gained 8 lbs in that 4 days. It wasn't water weight, either, because it took me a long time to get that 8 lbs back off! The allergic reaction was double vision, swelling of my lips, tongue, nose, sinuses & nose. I called my doctor's office first thing in the morning to tell them I was having an allergic reaction to the Lyrica and they never called me back until after office hours at 5:30pm and told me to stop taking it immediately(ya think?), take double doses of benadryl and flush my system with water. Gee, I could have used that info 9 1/2 hours ago!!
Anyway, I've heard so many negative things about Lyrica, I wouldn't recommend it to anyone.

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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WRINKLEFREEDIVA's Photo WRINKLEFREEDIVA SparkPoints: (4,249)
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9/8/13 7:42 P

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Thanks Magic! At your suggestion, I did check out the reading room. I did take the time to read several articles, but I have many more to go.

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WRINKLEFREEDIVA's Photo WRINKLEFREEDIVA SparkPoints: (4,249)
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9/8/13 7:41 P

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Thanks Hippiegurl! Haven't I seen you over in the Thyroid group? emoticon

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WRINKLEFREEDIVA's Photo WRINKLEFREEDIVA SparkPoints: (4,249)
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9/8/13 7:40 P

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Thank you Lew! My doctor and I talked about Lyrica, but with weight gain being a major side effect, we decided against it. I worked much too hard to lose this measly 20 pounds and still have 25 to go!

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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,937
9/4/13 2:59 P

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emoticon

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,821
9/4/13 10:59 A

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Keeping fit is a difficult task with fibro on some days... I'm glad you are doing what you can, that's very good!
If you stay active on the team, you'll get great ideas, make friends, have a place to vent or get inspiration... they're nice folks here!

You may want to check out the Reading Rooms here for suggestions too...

emoticon
Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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LEW0213's Photo LEW0213 Posts: 3,962
9/4/13 8:17 A

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Hi Karen. Welcome to the team. I applaud you for being a middle-school teacher. I use to drive a school bus and the middle-school kids were the most difficult in my opinion. Gotta love those 12 year old boys! They never slow down.

Good luck with your new journey into fibromyalgia. The meds that helped me the most was Lyrica. I know I couldn't afford it if I didn't have insurance. The word is that they are almost ready to bring out a generic version. That will help I think.

Hang in there, girl. Things will get better, Linda

Linda
Arkansas

Some days it's not worth chewing through the straps!
Thanks, Jules.
Frustration is trying to find your glasses without your glasses.
Thanks, Mary Anne!


Remember: Don 't make old People mad.
We don't like being old in the first place, so it doesn't take much to piss us off.

Rescuing one dog may not change the world, but for that one dog, the world will be changed forever.


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WRINKLEFREEDIVA's Photo WRINKLEFREEDIVA SparkPoints: (4,249)
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9/4/13 12:44 A

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Hi everyone... my name is Karen and although I am new to this group I am not new to SP. I'm 53 and had a total thyroidectomy in June 2012. Since then my body has been going through numerous changes, the latest of which is a fibromyalgia diagnosis. I am a middle-school math teacher; if you look up the definition of MS teacher in the dictionary, you will see the word STRESSED!

My doctor was able to provide me with enough samples of Cymbalta to last for about four weeks. By week three the pain was much better and by week 4 I had to start weaning off of it because with my high-deductible insurance plan I simply can't afford to get a prescription. So I am bound and determined to manage without it and continue to have a good quality of life.

Currently I go to Curves two to four times a week, where I am [loosely] following their food plan and have lost about 20 pounds. I have 25 more to go. I also go to Zumba twice a week even on the days when I hurt a lot; I go because the music and the people motivate me.

I have learned so much from the Thyroid SparkTeam. I am hoping to learn just as much from this team as well!

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