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SOYMARIPOSA's Photo SOYMARIPOSA SparkPoints: (3,552)
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8/21/13 2:08 A

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thank you, I have a few things I'm looking up and on my appointment i plan of presenting them, I no longer have the luxury to play now that several deficiency and abnormal test are noted and so we'll see. I made and appointment with a dr we used in past general practice see what he has to say i need my annual anyway he may help connect the dots. i have to take a few steps back to go forward but one nice thing my pulmonary dr i met today listened well too soon but that's one item off list



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SMIDGON's Photo SMIDGON Posts: 4,197
8/19/13 6:26 A

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Now, you are sounding like me! In the beginning, way back in the 40's they said it was just growing pains! That started it all! I have 'fought' one thing after another. There is a whole list of ailments which they say it could or is. Anything from the growing pain. stress-induced asthma; migrane headaches; hayfever; fibro., CFS; etc.,etc.. Now being tested for Sjgerns ??? and worse.
GP ignored my systomes. He was going to have me checked for this and that. Nurse said he didn't like spending more than 15 min. per patient. He, of all people shoule know how it is with older ones. He's older than I!!! He never persued any. I asked to be referred to a specialist. He said he could have me tested. I out-and-out told him he never had! Finally he consented and referred me. But, only after making it sound like it was his idea! On the first visit with this specialist, she ordered a bone density test which I was long overdue; and he hadn't done. She ordered a battery of blood work. I am to get the results thurs.. The only difference I can tell you is, it's a woman specialist and she's younger! I always prefer women drs..

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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SOYMARIPOSA's Photo SOYMARIPOSA SparkPoints: (3,552)
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8/18/13 5:29 P

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I feel your pain; my path has been a similar one. My pain came so much earlier in life now that I look back in my childhood. The earliest episode as a baby they say, then a bad episode in 5th grade a talent show the excitement I guess brought on a server leg cramps in my shins, off and on the next few years we thought growing pains, at times rashes appeared thought to be allergies, first rash I remember, I had been at outdoor circus and ate raw peanuts so doctor thought she’s allergic or heat rash??? But I think now peanuts hmm I ate peanut butter and nothing, odd rashes randomly would occur. When I was 18 lost a lot of weight size 16-12 1/2 a year and had rash but it went away. I would get flu like symptoms and in 83/84 major cramps=gall bladder surgery but I was still having ab pain. After my 3rd child lot of weight loss and odd rash appeared again and different meds; to help itch one caused me to swell up gaining overnight 20lbs literally I was swollen,and rash was not better we stopped meds finally rash just disappeared. A few pounds but I lost and was ok as the 30s where approaching things where changing pain here and there and asthma we thought a problem of my pain, with the season change I felt bad pain here and there. Some symptoms treated but not cured, had surgery in 94 to fix my left kidney explaining so they thought my side/pelvic pain, infections where better but pain plus other issue...I donated blood prior to surgery in case and got a nice note Hep-C... they tested at the dr when I mentioned it and said oh your fine just anti bodies??? (my hep-c due to per info a bad blood transfusion in the 1978/79) anyway put on back burner?? What can you do they are the specialist and life goes on gota work, take care of my kids. I gained a few pounds but was under 160 in 2002 another surgery due to pelvic tumor, in 2003 life change I started working for a new company and was on my feet nonstop 8-10hrs, they would pass by all the time in heels I danced too (my passion), all of the sudden I could barely move in the morning my heals and arches,legs and back hurt, the morning soreness and stiffness would go away later but little by little would be more intense, I had fallen in prior years and knew laying on my back was not an option’s just figured over did it or coming down with something. In 2005 the aches and pains where bad in my chest I could not breath without the pain, ER visits a few times due to and my left started to hurt more I thought great another infection or something, going to go to doctor but car accident happen, my left side already sensitive to pain was hit and a few rib fractured-great more pain...my back hurt…so no heals and that was more pain standing on hard floor and having sensitive feet finding a pair of shoes that would not make me hurt more or cause my back to hurt more… eventually I gave up dancing (I miss that) my weight was going up walking was a chore or a penance due to fatigue and pain, would start a program and my schedule and my health, and the weight... seasons changes would flair up allergies, asthma causing pain and fatigue, oh yes fatigue so tiered and the pain at times could barely brush my hair it hurt....Then my balance I would fall, and my ankle is bad so there goes my knee adding more issues to deal with it's been a year since my surgery to fix it but the pain is there and eventually replacement is in the future they say hopefully not...

So tired of it all not depressed just tired and mad to be ignored or hurried thru a doctor visit that is not free. i have insurance and my time is not cheap either I have a life too...

Sadly pain killers are not an option I get sick SO bit the bullet and take Advil, but Advil causes bruises so got take sparingly now....

Doctors at times would find this or that or hmmm love that hmmm...could be this or problem that you should try--- but never a follow thru no test for years or the wrong test. And if you are referred due to problem well that’s a joke now days … and because of the vast symptoms.... all over pain unusual lab test results...and times goes on....you go to a new doctor for one thing and instead of what you have gone in to talk to them, they have to start all over or what did they do for that….you spend all this time 5 minutes if you’re lucky talking to doctor again to hear hmmmm…..

So you give up tired of being a guinea pig...or ignored...and try to cope enjoying the good days.
Now days my mind is so fuzzy the last year or so I don't remember a show or movie that I recently saw, and go that’s cool and my son goes you saw that the other day so I think maybe I was tiered and dozed off.

This year the rash came with a vengeance, at first I thought ring worm...but no doctors treated for, maybe then thought hives=stress but no....the rash was no longer spots it was my skin my legs look like I was wearing red panty hose...itchy pain...a biopsy = SLE .I've been researching and connect the dots, sun allergy issues noticed but ignored..makeing notes of symptoms regardless what they are
And now after all these years of pain here and there Fibromyalgia is mentioned “BUT” REMEMBER MY FRIEND HEP-C being ignored even a month a go by GI dr put on the back burner… a quack said not a problem though my LIVER test are SCREAMING look at ME.. even after recent blood test, I went to an internal doctor who just made me feel like crap going you know that this could be that and that is this and all I can say is WHAT….ARE …. YOU …. TALKING…ABOUT….HAVE YOU NOT HEARD ME AT ALL.....

Just recently Sleep Apnea has been brought to the table, due to being tired but the mask is a problem the weight of the mask hurts my sinus cavity I know what a baby…^.^

Anyway that’s my situation I’m still connecting the dots and being diagnosed …all I want is to feel better, that’s all…have more good days. SORRY to throw it all out there but thanks


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