Author: Sorting Last Post on Top ↓ Message:
SUNCRAVER's Photo SUNCRAVER Posts: 119
3/7/13 4:41 P

My SparkPage
Send Private Message
Reply
NINTENDOADDICT, I was on both Cymbalta and Lycria. I found no relieve with either. I gained weight and now have liver damage...directly related to Cymbalta. I have no history that would create liver damage.
I completely understand anxiety, depression and pain...lots of pain...with MDs telling me that there is nothing they can do. It is so frustrating.

 current weight: 184.6 
 
237
212.75
188.5
164.25
140
CREEKLADY1 SparkPoints: (34,781)
Fitness Minutes: (26,229)
Posts: 1,254
2/5/13 3:12 P

My SparkPage
Send Private Message
Reply
Hope our team has been there when you needed them!

CREEKLADY1 SparkPoints: (34,781)
Fitness Minutes: (26,229)
Posts: 1,254
2/3/13 1:21 P

My SparkPage
Send Private Message
Reply
Welcome to our team and I hope someone can be of help to you. We all have been thru alot with this disease, but we carry on! Welcome!

NINTENDOADDICT's Photo NINTENDOADDICT SparkPoints: (821)
Fitness Minutes: (352)
Posts: 30
1/29/13 11:48 P

My SparkPage
Send Private Message
Reply
Thanks PURPLEDRAGON! I graduate in 17 weeks with my MBA so I definitely plan on studying up some awesome herbal treatments instead of all this chemical mess, but I do want to be open to whatever truly helps. Thanks for the advice! I am saving it to my "Determined to Be Better" file emoticon

MINE_AH13, I sent you a message to your sparkpage....I am SO VERY GLAD TO MEET YOU!!! :)

"Never let a problem to be solved become more important than a person to be loved." Thomas S. Monson
Namaste


 current weight: 173.0 
 
173
164.75
156.5
148.25
140
MINE_AH13's Photo MINE_AH13 Posts: 83
1/29/13 9:06 P

My SparkPage
Send Private Message
Reply
Nintendo, Your post made me cry and I read it to my husband because those are exactly the words Ive been trying to find to explain how I feel 90% of the time, especially since I know he doesn't get it despite his attempt to be understanding. I worry that he thinks Im just overly lazy most the time,.

 Pounds lost: 18.0 
 
0
20
40
60
80
PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
Fitness Minutes: (111)
Posts: 177
1/29/13 12:47 A

My SparkPage
Send Private Message
Reply
I'm no help with Cymbalta and Lyrica, as I refuse to take them. However, for brain fog, I take an herb called butterbur, in a form called Petadolex. The original version was made and studied by Enzymatic Therapy (enzy.com). I use the house brand from Vitacost.com, which has the same ingredients and works as well for me. The herb opens the blood vessels between the head and neck, increasing the flow of oxygen and nutrients to the brain. It usually works for me, and has no side effects for me. And generally, if there are side effects, my body will find them and run with them.

I started using butterbur to fend off tension headaches that can become migraines, and it does work well for that also. The decreased fibro fog was a bonus.

Anyway, that's my 2.5 cents.

One day at a time...
I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
1/28/13 8:41 P

My SparkPage
Send Private Message
Reply
I had side effect issues with it... not everyone does... emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


 Pounds lost: 42.0 
 
0
21.25
42.5
63.75
85
NINTENDOADDICT's Photo NINTENDOADDICT SparkPoints: (821)
Fitness Minutes: (352)
Posts: 30
1/28/13 8:10 P

My SparkPage
Send Private Message
Reply
PURPLEDRAGON, thanks for the encouragement!

I didn't end up getting to hang out with friends Saturday and it ended up taking 8 hours to finish 2 hours worth of homework since I got myself SO worked up....of course this made Sunday a complete fog with some crazy pains.

I have had 3 panic attacks since last monday and 1 major one this morning so finally I went to the doctor...he switched me from Savella to Cymbalta this morning so hopefully this will help. It is so hard to balance everything out.

I thought Cymbalta was only for depression...is it supposed to help with the pain and brain fog too? Is anyone else taking this that can give some good feedback?

"Never let a problem to be solved become more important than a person to be loved." Thomas S. Monson
Namaste


 current weight: 173.0 
 
173
164.75
156.5
148.25
140
I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
1/28/13 8:29 A

My SparkPage
Send Private Message
Reply
JOANNE, here's a link to that "Spoon Theory" that PURPLEDRAGONM mentioned. You may find this useful when trying to explain to someone who doesn't have FM... it's about lupus, but a LOT of it also applies to fibro...

www.butyoudontlooksick.com/articles/
wr
itten-by-christine/the-spoon-theory/


"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


 Pounds lost: 42.0 
 
0
21.25
42.5
63.75
85
PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
Fitness Minutes: (111)
Posts: 177
1/27/13 1:49 A

My SparkPage
Send Private Message
Reply
Nintendoaddict, I hope you were able to enjoy the social time tonight and will be able to finish your assignments tomorrow. Remember to breathe, remember to parcel out your time and energy, and please be good to yourself. Ok?
--Beth.

One day at a time...
NINTENDOADDICT's Photo NINTENDOADDICT SparkPoints: (821)
Fitness Minutes: (352)
Posts: 30
1/26/13 9:56 P

My SparkPage
Send Private Message
Reply
Joanne, I looking to find others who understand as well. I just found this group a couple days ago and I'm already feeling more confident that I have people to finally talk to....besides my doctor once every three months!

I definitely understand what you were talking about PurpleDragon about not wanting a little thing like dirt on the white tile to ruin your day or the next couple of days. Tonight has been REALLY rough for me. I decided to spend about 11 - 3 this afternoon cleaning the house with my husband (he did the big stuff like sweep, mop, & vacuum & I cleaned the kitchen really good & dusted a few layers of the pirate dust bunny party). Well, I still had homework and COMPLETELY forgot about the possibility of hanging out with another couple later tonight. My husband came in the office at 5:40 (as I just sat down with a cup of coffee to work on my assignments) to let me know the couple called and they want us to go over there at 8:00. I tried to stay calm, but over the next 20 minutes of freaking out inside about having to rush and possibly not getting my homework completed; my body started flaring up beyond belief.........then the panic started to set in, my focus was completely gone, & the tears started streaming. I feel like such a disappointment as a wife since this has all started. Sometimes it seems like everything he once loved about me is slowly going away and today it was especially hard to deal with. I just feel so mad at myself when stuff like this happens!...I want to control it and move on, but the pain just takes over...and unfortunately I may now be in pain for the next couple of days. I just want my 2 hour nap, but my assignments are still there waiting for me to complete! emoticon

"Never let a problem to be solved become more important than a person to be loved." Thomas S. Monson
Namaste


 current weight: 173.0 
 
173
164.75
156.5
148.25
140
I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
1/15/13 3:25 A

My SparkPage
Send Private Message
Reply
Right now I have my left hand in a splint... I think the dust bunnies invited the grunge pirates over for a party, and they're still at it, hiding my stuff and making a mess! COULDN'T be me doing all that... LOL emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


 Pounds lost: 42.0 
 
0
21.25
42.5
63.75
85
PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
Fitness Minutes: (111)
Posts: 177
1/13/13 5:20 P

My SparkPage
Send Private Message
Reply
Dust bunnies can live at my house as long as they don't bite my ankles and stay out of sight. My housekeeping standards have dropped steadily over the years, out of necessity. I'd love to have someone come in and clean, but it's not in the budget.

I've found that I choose my battles. Kitchen and bathrooms are not an option, to be dirty, so they get cleaned, or at least wiped down, daily or as close as possible to daily. Keeping microfiber cloths readily available to wipe down countertops and sinks as mess happens is useful for me. The shower gets cleaned by spraying the walls with vinegar or sometimes a commercial spray cleaner, and rinsed off next time someone showers. It's not spotless, but it does keep the mold problem down, and the tiles shine.

I would NEVER put a white floor in a kitchen, but it was here when we bought the house. My version of mopping is to drop a damp microfiber cloth on the floor, or spray vinegar on the floor, and swish the cloth across the floor with my foot. Not elegant, not perfect, but gets the worst of the dirt up without ruining my day. (and the next several days, if I'm not careful. You know??)

Remember the spoons story? I only have so many spoons each day, fewer some days, more on others, and there are many more interesting things to spend them on than housecleaning. Our home is not spotless, but it's warm and friendly and a nice place to live.

One day at a time...
1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/13/13 4:13 P

My SparkPage
Send Private Message
Reply
Joanne, one of the best ways to get the house cleaning done is to do a little at a time. Just do what you can, and don't worry about the way it looks. You are doing your best. Chores like sweeping are difficult. there is something about the motion that seems to excite the nerves. So just do a little at a time so you do not get that flare up.


Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


 current weight: 199.0 
 
248
235.75
223.5
211.25
199
LADYBUG22166's Photo LADYBUG22166 SparkPoints: (1,445)
Fitness Minutes: (720)
Posts: 28
1/13/13 3:06 P

My SparkPage
Send Private Message
Reply
I know and have had many dust bunnies friends. lol I found out that if i divide my house cleaning into the days of the week, I can keep up. For example, living room Monday, family room Tuesday etc. Laundry is done three times a week, first thing in the morning, and the only thing that is done every day is the dishes and kitchen. I divide the house for six days, resting on Sunday. The other thing that may be good if you can afford it is getting a vacuum called a robyi (not sure of the spelling) it is a round vacuum that cleans by itself. It has guides it follows. That saves on having to push a vacuum, which is great for me. Also, if you can't bend over to pick up, use one of those items that people use to grap things in high places.

sorry if this sounded like a lecture, but I wanted to share what works for me.

Have a wonderful day.

emoticon



 current weight: 261.0 
 
265
238.75
212.5
186.25
160
JOANNIEWH SparkPoints: (60)
Fitness Minutes: (0)
Posts: 21
1/13/13 1:14 P

Send Private Message
Reply
I definitely can't handle afternoons. Either I get things done in the morning or...it doesn't get done. I'm frustrated because my house is so messy and I can't seem to get it really clean - bending over etc. hurts. Plus I get tired and lose focus. I can't afford a house cleaner so...dust bunnies:(

Joanne

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/13/13 11:39 A

My SparkPage
Send Private Message
Reply
I agree that it is hard to tell someone how you feel. Most people just do not understand. Both the pain and the fatigue are crippling on some days and on others they are just a back ground nuissence that just will not go away. Most people seem to think that if you look all right then you are all right. And they just do not understand.

I think between the pain and the fatigue, the fatigue is my major problem. I have to have my nap in the afternoons, and like Carole, it is often a 3-4 hour nap. I have meds that help me to sleep at night and that decreases my fatigue, but it is always there no mater what. Some days are much worse then others.

I think everyone here knows what you are going through and you are in the right place.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


 current weight: 199.0 
 
248
235.75
223.5
211.25
199
CAROLHARMON's Photo CAROLHARMON Posts: 354
1/13/13 6:13 A

My SparkPage
Send Private Message
Reply
I know that I have to get done what needs to be done first thing in the morning. By 12 - 1 o'clock I am ready for a 3-4 hr. nap. After that I am just useless. If I take my strong pain meds like last night I am no good to anyone.

 current weight: 262.8 
 
262.8
227.1
191.4
155.7
120
PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
Fitness Minutes: (111)
Posts: 177
1/13/13 1:24 A

My SparkPage
Send Private Message
Reply
Ladybug, I don't know the why of it, but I'm the same way. No 20 minute power naps for me! I either sleep 2+ hours or grit my teeth and stay awake. I envy people who can do the power nap thing. I do know that sometimes it's a choice between a nap and chowing through the kitchen looking for something to energize me. A nap has fewer calories! emoticon

Speaking of which, it's past my bedtime...

One day at a time...
LADYBUG22166's Photo LADYBUG22166 SparkPoints: (1,445)
Fitness Minutes: (720)
Posts: 28
1/13/13 1:00 A

My SparkPage
Send Private Message
Reply
I understand those fog days and the frustration of being able to complete a task one day but not the next. My current frustration is having to take an afternoon nap. I feel like a toddler, having to go lay down to sleep and it isn't just an 1/2 hour nap, no, it is 2 to 3 hours. Why?



 current weight: 261.0 
 
265
238.75
212.5
186.25
160
PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
Fitness Minutes: (111)
Posts: 177
1/13/13 12:53 A

My SparkPage
Send Private Message
Reply
JOANNIEWH, this is the right place,and I know exactly what you mean. I get tired of trying to explain to people (who generally just don't get it) what the problem is and why I'm tired and can't do what they can do, and why sometimes I just can't process mental input, despite that I sure do look just fine and healthy. Having good days and not so good days doesn't help, because, gosh, I could do that task yesterday, what is the problem today???

(I know this is a bit of a rant, but I've had a bad fibro fog day, it's frustrating. Tomorrow will be better.)

I know that everyone on this board understands, and it's a relief sometimes to be able to post something and KNOW it'll be understood, because you all here live it too.

One day at a time...
LADYBUG22166's Photo LADYBUG22166 SparkPoints: (1,445)
Fitness Minutes: (720)
Posts: 28
1/12/13 8:36 P

My SparkPage
Send Private Message
Reply
I am sorry your friend is so unsympathetic. My friend always asks me first when we walk, short or long. I am blessed to have her as a friend.

Hope your DVD comes soon.

emoticon



 current weight: 261.0 
 
265
238.75
212.5
186.25
160
JOANNIEWH SparkPoints: (60)
Fitness Minutes: (0)
Posts: 21
1/12/13 8:07 P

Send Private Message
Reply
Wow, do I ever identify! I have a friend who says she has fibromyalgia but she likes to go for long late walks and complains when I can't keep up or says "Well, if that's as far as you can go, I'd rather walk by myself."

I ordered a walking DVD so I can walk at home and am hoping it arrives soon.

Joanne

LADYBUG22166's Photo LADYBUG22166 SparkPoints: (1,445)
Fitness Minutes: (720)
Posts: 28
1/12/13 8:06 P

My SparkPage
Send Private Message
Reply
Yes, there are others out there with the same difficulty. I have one friend who I will never ever again try to explain how much pain I am in or how tired. She claims she has fibromyaglia but I don't think so, since she tries to tell me I have to work thru the pain and keep going. If she has it, she is not experiencing what we are.

I also have a friend who understands it, but I always feel guilty when I tell her I cannot walk with her when it is time for our walk. She likes to walk late into the evening and I need to go earlier for I am so tired and hurt by her time frame.

Keep your chin up!

emoticon



 current weight: 261.0 
 
265
238.75
212.5
186.25
160
JOANNIEWH SparkPoints: (60)
Fitness Minutes: (0)
Posts: 21
1/12/13 7:58 P

Send Private Message
Reply
I am hoping to find others who have days where you feel like you're in pain and tired. It is so hard to explain how I feel to others.

Joanne

Page: 1 of (1)  

Report Innappropriate Post

Other Fighting Fibromyalgia Introduce Yourself to Team Forum Posts

Topics: Last Post:
Starting anew! 10/6/2013 10:12:08 AM
Back Again 1/9/2014 4:19:47 AM
Alabama Newbie 3/13/2014 2:02:39 PM
Newly diagnosed - and very bewildered 4/1/2014 11:04:05 AM
New to Fighting Fibro Team 11/30/2013 1:43:45 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x41x51609393

Review our Community Guidelines




x Lose 10 Pounds by February 8! Get a FREE Personalized Plan