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JAMER123's Photo JAMER123 SparkPoints: (214,285)
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12/9/12 10:44 P

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I was thinking the same thing, Beth. Many times, a pain clinic can focus on a specific area and it helps all. I have a feeling, Starr, that your headaches are a direct result of the neck pain. Hope you can get that area treated first to see if it is the cause. Eileen

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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12/9/12 12:21 P

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Hi, Starr. I was thinking this morning that you would be a good candidate for referral to a pain clinic, for assessment and treatment by a pain specialist.
I hope you are having a good day, this fine Sunday.
--Beth.

One day at a time...
TEENYSMOM's Photo TEENYSMOM Posts: 4,279
12/9/12 10:44 A

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Thanks for the advice everyone. I appreciate it. I hate being in pain all the time, put the headaches & neck pain is the worst. Most of the time I am lucky if I get one day a week of no headache and/or neck pain. That and the depression. They really rule my life. I don't even do things any more that I use to like to do. Right now in my life, to be honest, there is not anything that I truly enjoy. That is a very sad state to be in, I know. But I have no clue of how to get out of it.

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HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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JAMER123's Photo JAMER123 SparkPoints: (214,285)
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12/8/12 9:39 P

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Those are all good suggestions. I am a Fibromyalgia (FM) person that has found 2 massage therapists that do deep tissue extremely well. They make sure I tell them just how far they can go. The majority of their clients have FM and they do a myofascial release as well as massage. Both therapists at totally different in technique but both effective. i occasionally go to a chiropractor for gentle adjustments when the muscles are relaxed enough to allow the adjustment and the one I go to doesn't require you to come in frequently, just when I feel the need. So there are others out there but it is hard to find help & treatment for FM people because the pain is always with us. Water exercise is great as well as the hot tub when they are available. Choose your exercises to not be painful to you. All this has kept me out os a wheelchair that I was headed for several yrs. ago. It is an extremely slow process but eventually I got to the point of having a couple days in 2 weeks with little pain. I hope you can find some relief.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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12/8/12 9:09 P

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Kathy, excellent point about the neck x-rays before any chiropractic work is done.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,821
12/8/12 4:05 P

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Have you had x-rays of your neck? Personally, I won't let a chiropractor touch me if they haven't got x-rays. I have a herniated disk in my neck! If they don't know where, they can cause even MORE damage, instead of helping!...

And the one thing that I HAVE found that has been more help than any thing--and this might sound strange to someone who hasn't tried it--is exercise.

Let me qualify that. It's the RIGHT exercise. There is a very fine line we walk with fibro, between doing enough to make a difference and doing too much--and every day, the line MOVES! LOL

I have had injuries over the last several years, and my exercise program now includes six weekly cardio sessions-- primarily dancing (it's not as repetitive as walking so it doesn't hurt as much) or swimming (when I have access to a pool)-- and two different physical-therapy-based strength training workouts, three times a week each. Of course, breaks are included, and slow days where I do the minimum instead of the whole thing... LOL You HAVE to have plans for contingencies when you have fibromyalgia.

Poke around a bit in the discussions, and you'll see what I mean. And join in!...

Welcome aboard...
Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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12/8/12 3:04 P

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Hi, Starr. I'm always wary of massage therapists, unless they truly listen to me and know how to manage someone like us. Sounds like you had a horrible experience! I've had massages on occasion, and learned the hard way to not allow deep massage. I know I'll hurt for weeks after. Seems to defeat the purpose of the massage. I'm very fussy as to who I will allow to touch me therapeutically.

At our old house, we had a jaccuzzi tub just off the master bedroom. I really miss it, as it was wonderful for relaxing sore and tight muscles, especially just before bedtime. Someday I'll have another one, I hope.

--Beth.

Edited by: PURPLEDRAGONM at: 12/8/2012 (15:04)
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TEENYSMOM's Photo TEENYSMOM Posts: 4,279
12/8/12 1:46 P

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No, I have not heard of magnesium oil as a topical spray for muscle spasms & pain. It would be worth a try though.

I take a prescription muscle relaxer, but it does not do much for the pain, only makes me very sleepy. Which means that I cannot take it during the day, which is when I have the most pain.

Last year I went to a massage therapist. Having never been to one before, I stupidly assumed that the they did general (relaxing) message of the back. BOY WAS I WRONG!!!! I found out, after the fact, that she was doing deep vein massage. I am telling you, THAT hurt almost as much as having a baby. I'm not kidding. For a full 3 months after that massage, I had huge deep purple & red bruises all over my back, neck, both arms & legs. And the massage (although I should say after being beaten up) my pain level was the same.

Starr

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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12/8/12 1:10 P

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Don't give up on that so easily. You might find a great chiro with a sliding scale, who would be willing to see you every other week, or even monthly. Or as often as needed, for a set cost per month.

Also, I've been looking into using magnesium oil, as a topical spray, for relief for muscle spasms and pain. It was recommended by a friend who is a massage therapist. Haven't tried it yet, so I can't say if it works or not. Have you heard of this?

One day at a time...
TEENYSMOM's Photo TEENYSMOM Posts: 4,279
12/8/12 12:57 P

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Thank you purpledragon,

I guess that I need to look into finding a good Chiropractor. When my mom was alive, she swore by her's. But I know that with just starting with one, they will want to see me at least 2 or 3 times a week. At $40.00 a visit, we could not even afford for me to go once a week. And my insurance (military) will not pay for Chiropractic care.

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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12/8/12 12:36 P

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Hi. Wow. I am so sorry you have so many things to manage and deal with! I have had significant problems with my neck and lower back, from a car accident and lateral whiplash in 1978. It took the usual route of pain for a couple of years, then remission for about 20 years, then recurrence of the pain, resulting in a fusion of several vertebrae in 1995. I'm again having problems above and below the fusion point.

HOWEVER!! I see a chiropractor who was trained in the Atlas Orthagonal method, which focuses on upper cervical spinal health, and does NOT involve snapping and twisting the spine. Rather, she gently manipulates my spine, and focuses on my upper cervical spine. She has been treating me for several years, and I give her much credit for keeping me functional. I see her about once a month now, more often if needed. She literally 'keeps my head on straight'. I, too, have times when it's painful to keep my head upright, when stress in my neck causes migraines and muscle spasms.

Believe me, I do not allow chiropractic care on my body that involves twisting and snapping. I know my poor old fibro body won't tolerate that at all.

Here is a link to my chiro's website. (I hope I can leave a link here?) She describes upper cervical care there. www.specificallyyourschiro.com

I hope this is helpful.



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TEENYSMOM's Photo TEENYSMOM Posts: 4,279
12/8/12 12:01 P

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I want to thank you all for your support. Even though it is thru the computer, I am glad that I have some friends to talk to and to give me support. And none of you make me feel stupid or make me feel like I have been put-down. I sure do appreciate your all's friendship. all for caring about me.

I have a question that I hope someone will be able to give me some ideas on. I think you all know that I have Fibermyalgea, Chronic Fatigue syndrome, scoliosis, chronic headaches, depression....to name the most pressing problems. Well the past 6 months or so, I have been having a LOT of pain when I sit and watch TV. (I don't do a lot of that, but it is painful anyway). When I sit in my recliner, or any chair for more then 20 minutes or so (even when sitting here at my computer) my neck hurts and I get a headache. And it hurts my neck to hold my head up when I am in a relaxed position without support. When I am in my recliner and I rest my head on the back of the recliner, my neck still hurts and when I put a pillow behind my head my headache gets worse. It seems that no matter what position I get in to watch TV, my neck and/or head hurt to where it is not pleasurable to watch a TV show.

I told my doctor and he said that it was the Fibermyalgea and there really was not anything that could be done about it.

Anybody have any ideas?




~~Starr~~ emoticon

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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12/8/12 11:06 A

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emoticon This is a great place for support and success on your journey. Chair exercises might be helpful. You sit in a chair and exercise! Videos are available. Might be useful for you, for upper body strength and a bit of cardio. Just a thought. I hope you heal quickly and well and are soon back on your feet.


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THOMASINA57's Photo THOMASINA57 Posts: 798
12/8/12 10:59 A

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Welcome to the team!

You have been through so much and I'm sorry to hear about your problems with your knee surgery and now your back surgery. This will make your journey more difficult at first, but in time, you will get stronger.

This site is great and if you track your food, that will help with over eating and as for fitness, I'm sure you will only be able to do minimal for awhile until you heal a bit more.

There is alot of good information on this site and lots of good people willing to help out. So, read as much as you can and make as many friends as you can.. the support system is so helpful.

I wish you all the best in your journey to health and wellness! emoticon

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SWAMPY11 Posts: 14
12/8/12 8:26 A

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Hi everyone I don't know where to begin except I need help. A year ago I had a total knee replacement with complications of not healing properly. Thru various Drs. they concluded it was a pinched nerve in my back. So 16 days ago I had back surgery. So far the leg is still shaking.( I know give it time).
Meanwhile I gained 20# from the knee surgery and another 20# overnight in the hospital. How can that happen?

I need to get my eating habit under control. At least that will help till I can excercise more than walking 15 min at a time. Help and give me some suggestions. I am replying to indygirl blog as she has overcome a lot.

Thanks Spark People

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