Hi Mamarks A big welcome! this is the most inspirational and motivating site I've found and it's done wonders for helping me to drop a few pounds. FM is awful and I've managed this syndrome since around the age of 35. I too have gone on and off the meds and sometimes it was due to the price tag, but thankfully now I have a plan that covers 70% of the cost. Lyrica, Elavil and Cipralex have helped me out alot and the main FM fighter for me is exercise, especially walking as much as I can each day. Yes, I do get really tired and brain foggy still, but I still try and put that foot in front of the other and keep on going.
I wish you well on your journey and look forward to cheering you on as you reach your set goals.
Oh! And to let everyone know, I was not officially diagnosed until after I graduated High School. I had multiple doctors say that Fibro was what I had, but I refused to allow them to write that in my charts on the basis that my parents insurance company would charge them higher premiums and/or kick me from the plan. I finally went and saw a rheumatologist thinking and being told that I had RA. He did a full exam and told me he thought I had Fibro.
At first I was like "Nuh uh! No way. This is not going to happen." Until he handed me a pamphlet about Fibromyalgia that said it was similar to the chemical deficiencies that happen in certain types of depression. The more I researched it, the more I came to understand that the medical community had finally moved away from the whole 'it's all in your head' mentality into the 'this is a real problem and it can be treated'.
I have taken Lyrica and Neurontan off and on and am currently on nothing as it is so expensive. The medication helps and I do have an increase in attacks when not on them. But so far, I have been doing fairly good as far as the pain and sensitivity goes. I hope as I loose weight and get more active again, the pain and fog and fatigue I have continue to recede.
current weight: 355.0
Fitness Minutes: (2,042) Posts: 33 11/17/12 9:51 P
Hey all! I've had Fibro since I was in junior high. So from around age 14 and up, I've been fighting this and also been gaining weight. I have many other issues, but Fibro would be one of the main ones that keeps giving me excuses to not exercise. I was a very active and healthy child. Never gaining any weight until around age 14-16. Arthritis, Fibro, nerve damage from being hit by a drunk and other issues has made me very compliant with the 'no exercise, eat what makes you feel better' crowd. I am hoping to get support, suggestions and answers to many questions. Thanks all and looking forward to getting to know you all better later.
SparkPeople, SparkCoach, SparkPages, SparkPoints, SparkDiet, SparkAmerica, SparkRecipes, DailySpark, and other marks are trademarks of SparkPeople, Inc. All Rights Reserved. No portion of this website can be used without the permission of SparkPeople or its authorized affiliates.
SPARKPEOPLE is a registered trademark of SparkPeople, Inc. in the United States, European Union, Canada, and Australia. All rights reserved.