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JAMER123
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10/19/12 9:41 P

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Hi Mark, It is kind of a long story but my mom got me going to a lady in my area that takes on FM clients. When she started with me, she said she gave me a purple ribbon. When i asked why, the comment was "For having the worst back I have ever felt. It is like trying to put my finger through cement!" That's how it started. She knows how to treat FM She is also trained in Riki. Work gently as deep as the client can tolerate without tensing, then stopping and hold that muscle. At the beginning, I hollered uncle several times and took about 2 mins. to actually turn on the table. Together, we have worked (gently but firmly) through several layers of muscle and fascia. It has taken several yrs. and the muscles even today, don't behave after a couple days but at least it is a couple days feeling better. Now I can zone out when it gets too intense. I do have a very high pain threshold as well but I do understand trying massage and not liking it. There are not that many people that truly know how to work with FM. i have one here at home and then one in TX. where we winter. I have tried a few others and they weren't close to being able to help me. Hope this helps, Mark.
emoticon emoticon emoticon emoticon emoticon (gently)!

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
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1GRNTHMB
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10/19/12 11:15 A

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Yes they are with Yoga and Tai Chi classes. I have taken both now and the meditation is all part of it. It relaxes the body and mind and is Soooooo Refreshing.

Now that I have finally adjusted to the new and changed medication I am really feeling the benefit of the deeper sleep. I have a lot less Fog during the day and a lot less fatigue. I am mot completely fog free but it is greatly reduced when it kicks in.

Eileen, how can you tolerate the deep tissue massage? I have tried it a couple times but they invariable hit the Fibro Pressure points on me and that takes away all the relaxation it gives for me.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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JAMER123
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10/18/12 9:47 P

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When I meditate, I find a spot I am comfortable, turn off the TV and put on music that is very comforting to me. I begin to picture the beauty of the world and "float" with the music. I learned this with the deep tissue massage I go for twice a month. When it gets too uncomfortable, I tell I am going to zone out. She stops talking and I think about the music she is playing and she can feel the relaxation in my muscles. I can do this while traveling as well. There are CD's that teach this as well. I believe they are with Yoga, Tia Chia, etc programs. Let my know if it is different from what I have heard. I am going to try Yoga when I get the time to concentrate on it.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
191,780 SparkPoints


1GRNTHMB
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10/18/12 11:12 A

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I also am really affected by weather and stress. The weather I can not do anything about but for stress the meditation and Tai Chi have really helped to calm myself down. I well still have a flare but it is much shorter and less intense by using the two meditative exercises (not meant as physical exercise). The type of Tai Chi Chih I do is called meditative motion. It has been very helpful for me.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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THOMASINA57
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10/18/12 10:57 A

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Oh how I agree about the weather and flares. It's gotten very wet, cool and damp here the past week after a 2 month summer and fall drought. I am trying hard to do more stretching, yoga and need to learn how to meditate. I've read so much about the benefits of meditation, but just never get around to really giving it a go. The more time I spend on Sparkpeople the more motivated I get and my motto has always been to put one foot in front of the other and keep on going, it's very similar to your one day at a time.

How does one meditate, and stay focused when the dogs want to share your blanket? emoticon





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JAMER123
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10/17/12 10:37 P

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I agree with the stress flares. I have learned to not stress out about things by going to my quiet place (meditate) which really helps me. One thing I can't change is the weather. The seasonal changes are really hard on me. Right now the flaring is intense and I am very anxious to head south for the winter. Our temp has been on a roller coaster and I apparently am on the ride!! Just have to take it one day at a time!

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
191,780 SparkPoints


THOMASINA57
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10/17/12 11:14 A

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I find the different combos of sleep meds interesting. It's nice to know what other folks take so I am armed with new information when I talk to my dr. So far the amitripyline is helping and I'm happy about that. I find if I get really stressed about something, my FM really flares up bad. I'm sure that's very common though.

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JAMER123
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10/16/12 11:29 P

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I too, have had a sleep problem. Most of it comes from the FM but I also worked 3rd shift most my working life. I started with Amitriptyline, Trazadone and then to Lunesta without good luck. I have been taking Restoril for a little over a yr. and get 4-5 deep hours of sleep. My hubby tell me I still talk in my sleep occasionally (and he only hears me when he is awake as he is a deep sleeper) but at least I don't wake myself up talking and laughing :) I have just added Tramadol for pain to see if this works better that Lyrica & Ibuprofen.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
191,780 SparkPoints


1GRNTHMB
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10/16/12 7:17 P

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I used the Amitripytline also for several years and always had that Zombie feeling but it helped some with the pain. Now I am on Hydrocodone to stop the pain so I can sleep, Trazodone and Donnatal. All three make me fall to sleep and stay to sleep. I take them right at bedtime.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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THOMASINA57
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10/16/12 10:27 A

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Hi Mark
I've had a sleep disorder for as long as I can remember and it's my biggest problem with FM and the only medication that really helps is amitripyline, which I have never liked taking.

I had a setback in June and went back on it, but had to increase the strength to 50mg and I felt like a zombie most mornings. I perservered this time and after 3 months the zombie feelings went away. For the first time in years I'm actually getting through my days without napping in the afternoon or falling into bed early. I also think adding cycling to my life has helped with my sleep also.

My sleep disorder is the sort where I fall asleep easy, but toss and turn, talk and carry on alot in my sleep. My poor husband has been woken up so many times with sleep antics. My stressors seem to come alive during my sleeping hours and because of this I'd wake up so tired.
Some nights the amitripyline doesn't work, but for the most part it's helping right now.

Thankyou for being interested.

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1GRNTHMB
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10/15/12 3:54 P

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Are you having problems sleeping or feeling really tired when you wake up?

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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THOMASINA57
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10/15/12 11:17 A

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Hi Mark
Thankyou for the welcome!
Your story reminds me of how my fibro seemed to start. I was in my mid 30's and after repeated upper chest type infections, I'd get this pain between my shoulder blades that never went away. It got worse as the years went by, but I was fortuate to see a rhuematologist early and he diagnosised me right away. It was hard working full time, but I basically fell into bed each night around 7:30 for years. I was living just to work and had no energy left over for any kind of life. I lived like this for many years until I was fortunate enough to retire early.

My osteo showed up a few years ago and walking was getting difficult, so I started using a walking stick and that helped. Now that my new hip is healed, dealing with fibro is easier these days..

Today I'm feeling kind of "foggy", but hopefully after my morning dog walk it'll go away!!

Have a good day!

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1GRNTHMB
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10/14/12 4:16 P

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Welcome to the team Tomasina. I love the pictures of your dogs.

I honestly can not tell you when my Fibro started. I have had so much pain all the time that I can not remember exactly when I started feeling the muscle and skin pain and it was hard to tell where or what the pain was coming from. But in 1999 I had an infection and BAMM! I started feeling the Fibro pain which at first they were calling mild Neuropathy. I thought "if this is mild I do not want to know what sever is". But it continued and I went through all kinds of medication before they found the ones that helped. Most of us have to go through that,

Fibro fog is also something we seem to all live with. My new Rheumatologist finally came up with a combination of medications that help me sleep at night and that in turn seems to help with the Fibro fog.

Exercise is really helpful to relieve some of the Fibro pain. There well be days that you just do not have enough energy to do it. I just read an article at WebMD that recommend the break in the exercises but only for 1 day. after that try to do at least 15 minutes and then build up from their. Strength exercises are also essential so do something where you can get in a little strength exercise. WebMD again has some wonderful articles on what to do and not do, Tai Chi Chih is a wonderful exercise for for strength, stability and stretching,

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


 current weight: 199.0 
 
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THOMASINA57
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10/14/12 11:26 A

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Have a great vacation, it sounds like you have a nice lifestyle. I hope the meds work for you and you don't get all knotted up without your massages!

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JAMER123
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10/14/12 12:48 A

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You're good to go then. I just have to tell people to be sure of what they are buying or using as it has been ingrained in me for many, many yrs. Try the web site i gave you and see what you think. Good luck!!

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
191,780 SparkPoints


SASSYTHING52
SASSYTHING52's Photo Posts: 10,621
10/13/12 11:47 P

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i had one in my early years but its a very old version but i know how to use them

judy says have a happy new year


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JAMER123
JAMER123's Photo SparkPoints: (191,780)
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10/13/12 11:28 P

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NO. You don't need a RX for a T.E.N.S but you should get some information on how to use it correctly. If you have physical therapy or use a chiropractor, they can give you instructions. It isn't hard to work!!!

I got mine yesterday from this company. www.tenssystem.com. They do have a live chat available on this site as well. I got the 7000 style unit and get the 2x2 reusable pads with it. I think if you are interested, you will like it. Please have someone help you if you are not familiar with how to use it.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
191,780 SparkPoints


SASSYTHING52
SASSYTHING52's Photo Posts: 10,621
10/13/12 11:14 P

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do you have to get dr to be able to get a tens machine

judy says have a happy new year


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JAMER123
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10/13/12 10:01 P

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emoticon Thomasina. We love our little chihuahuas and dearly miss little Angel. She was the one special pet in a lifetime & our vet. even said so. But our newest 2 little girls are as fun as can be and we love them too.

I am going on the road in another week and will truly miss the massages but I am hoping the changes we have made with the meds. last week will take the edge off. We are taking an extended travel vacation before we head down to our winter home and my therapist there. I am guessing it will be about 6 weeks after Mon's. before I can get another. Yes, they are expensive but it has kept me out of a wheelchair and for that, I will hand over the "dough". I was having many problems yrs. before it was finally figured out and working 2 jobs just did me in. So far I am liking the Tramodol and the Restoril.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
191,780 SparkPoints


THOMASINA57
THOMASINA57's Photo Posts: 794
10/13/12 9:09 P

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Hi Jammer

Oh how I would love to be able to have the deep tissue massage you mentioned, but it's way too expensive where I live to be an option for me.

I'm sorry you are hurting so much and the Lyrica doesn't work for you. I know it works well for me as when I'm without it, I sure notice an increase in pain. It took along time for me to adjust to amitripyline as it really made me feel like a zombie, but I kept on taking it and after 3 months those awful side effects finally went away.

I love all your animal pics!!!

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JAMER123
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10/13/12 7:07 P

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emoticon and emoticon . My story is a little different as my FM pain is not being controlled with Lyrica so I am in the wean off process and going to try Tramodol to see if this will help. My feet are a major problem with me. I have very flat feet and an ankle that the bones have shifted in so walking is hard. I just got a T.E.N.S machine in the mail today and I am going to see if it helps with the neuropathy in the feet and the low back pain. These are some of the other options when Lyrica doesn't work. I use a sleeping med and sleep very hard for about 4 hrs. and then fatigue hangs in there with a little fog. I think Lyrica is doing it so another reason to try without. My best help is a deep tissue massage with a therapist that does myofascia release. You have to find one that is well versed in FM to have the best results.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
191,780 SparkPoints


THOMASINA57
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10/13/12 4:06 P

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Hi Jae
Wow, our stories sure are similar! I get so tired so easy and exercise is something that I have to do to manage both conditions. The osteo has developed in my fingers the past couple of years also.
today I have to use my stationary bike and I'm tired and not feeling very motivated, but after a bit on this site, I'm going to do it!!
thanks for your support.

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JAE_HENNINGTON
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10/13/12 1:03 P

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welcome to Sparks and FF team. We have similar stories, I have had fibro for awhile and took awhile to get a definite diagnosis. I also have OA in my hip and had a hip replacement a few years ago. I find I have a lot of pain with both if I do not exercise. sometimes though that seems like that feels like that's the last thing I want to you. Glad to hear that you are in this for the long haul that's what it takes.



Where there is no struggle, there is no strength.




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THOMASINA57
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10/13/12 11:45 A

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I'm new to Sparkpeople and all the message boards and couldn't remember if I introduced myself. After scrolling through the posts, I found I hadn't.

I'm 57 and have lived with FM since around the age of 35 and have osteoarthritis also and had a hip replacement 2 years ago.

I really need to exercise to keep my pain levels down and with the help of lyrica during the day and amitripyline for sleep have been doing pretty good this summer. I discovered cycling and just love it, but now the winter is coming so I bought a stationary bike to help stay fit and keep my weight down.

I've been using the food tracker and discovered I was eating way too much and blaming my meds for my weight gain, and thus was able to loose 2.5 lbs my first week. I am so pleased with sparkpeople and plan on hanging around for a long time.

It's nice to connect with other folks and not feel so alone.



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