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Andrea, remember to take care of yourself first. That's the only way you will be able to take care of your family, too. Sounds like you have a good support system. Hang in there, we're all here for you. Vent as needed!
One day at a time...
Thank you for the encouraging words everyone. Today has been a hard day. Horrible period combined with sinusitis and a painful flareup. Unfortunately, my 5 kids (ages 4-17) don't stop needing me when I'm feeling so yucky. Fortunately, my hubby came home and made a healthy lunch. Plus, a friend had the 4 year old over for a playdate, which gave me an opportunity to rest.
I'm diabetic, and I do NOT use artificial sweeteners. If I have any sweetening at all, I use fruit or real table sugar. And I do just fine with it... The thing for me about artificial sweeteners?
They CAUSE FIBRO FLARE-UPS!
Found out the hard way, I stayed away from anything but fruit for a long time, then my MIL made me some "diabetic" desserts for Thanksgiving... and I had a few bites, to please her.
I was sick and in pain for about three days.
I thought I just had a flu bug or something--until it happened again at Christmas! LOL
I'm smart now; if I have any desserts at the holiday gatherings, I make it myself (yes, with sugar if necessary) and take it to share! LOL
I don't have a reason to avoid gluten, I've been tested and don't have an issue that makes it a problem. I did try eating gluten free for a while just to see what would happen... and there was no discernible difference in any of my symptoms, so I figured, why bother? LOL
The thing is, this disorder is very individual. The symptoms are triggered--or not--by whatever is specific to YOU. So you're on the right track by trying different things. Experimentation may be the only way to find things that help. Just beware of scams, there are a lot of people out there who want to cash in on any desperate attempts to lose the pain...
My best tools?
Meditation and positive people.
SP is terrific! LOL
Edited by: I.M.MAGIC at: 9/15/2012 (01:51)
"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL
Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t
Hello and welcome! I was diagnosed with fibro many years ago, although I'm sure I had it long before the diagnosis. About 3 years ago I decided to try being gluten free. It made a big difference for me, so I've been gluten free since. I'm not symptom free, but my issues are much more manageable without gluten in my body. If I 'get glutened', my body complains strongly with joint and muscle pain, fatigue, and irritability. We don't have a gluten free household, but with two adults and no children, it's not too difficult to manage cross contamination.
When going gluten free, remember that it's an all or nothing endeavor. Being 'gluten light' isn't going to help. For we who are gluten intolerant or those who have celiac disease, any amount of gluten can cause damage and symptoms. (Although there are 'silent celiacs' who do not show any symptoms.)
Celiac.com is an excellent resource for information and support. I subscribe to Fibromyalgia Network, another superior information source.
When first starting out, it's best to eat foods that are naturally gluten free for a month or two or three, to allow your digestive system to heal. Foods that you cannot tolerate now (for example for some people that's dairy, soy, some non-gluten grains, etc) you may be able to tolerate in 6 months or a year after your gut has done some healing.
I tend to eat very simply, focusing on what I CAN have, rather than what I can't have. However, I was very pleased when my new daughter in law served gluten free (and vegan!) cake at her wedding to our son. A piece of excellent cake is a true treat for me!
Gluten free is an overwhelming concept at first, but it can be done. I'm very happy to help as I can.
Oh... have you looked into using stevia instead of sugar? Just a thought...
Edited by: PURPLEDRAGONM at: 9/12/2012 (20:50)
One day at a time...
I have been trying to slowly cut back on the gluten, but finding it so hard to do. I got a cookbook for it, but when I have written down ingredients and tried to find them either the stores around here don't have the items or if they do they are rather on the expensive side. There is one recipe I really wanted to try but none of the stores even the health food stores don't have the two items needed, so have gone without making any of the recipes. Although have started being more cautious with looking at things I or my family would normally buy and seeing if they are gluten free or have a version that is. Where I work is a gluten/wheat free zone so have to make sure anything I might have there doesn't have it.
I have never tried to go sugar free, I was told years ago buy a specialist because I was having bad headaches never to use artificial sweeteners or drink diet soda as those can contribute to them. Although I never liked those anyway can't stand the taste of them or anything they are in, so never drank or used it anyway.
Good luck on your journey of cutting those things out.
Eastern standard time zone.
Hi and welcome Andrea! I'm Dianna and had to cut out sugar and extra carbs due to my diabetes. But with birthdays coming and going in the family I've had to look for recipes not containing sugar or flour. If you google gluten free recipes, there are some good ones out there.
I made a chocolate cake with a cream cheese frosting for my daughter's birthday. It was delish! I used this recipe; www.freecoconutrecipes.com/recipe_co
I just substituted xylitol and erythitol for the sugar. The same for the cream cheese frosting, I just subbed the sugar.
Also, here's another recipe I'm thinking of trying;
I admit, at first I was a little hesitant to buy all this stuff to make cakes and such. It's after all, new territory for me but I've found it VERY worth it. I can enjoy cake and goodies without serious worry now.
I hope this was helpful and if you run across any other yummy recipes, please share:)
Edited by: DEADEND-DREAMER at: 9/13/2012 (07:56)
~Dianna in WA is running to the light!
Challenged with fibromyalgia, diabetes T2, Myofascial pain syndrome, Osteo-Arthritis, chronic bursitis, glaucoma and severe dry eyes.
Medication reduced to 1 - 500mg tablet of metformin daily.
Love my grand baby!
"Far away there in the sunshine are my highest aspirations. I may not reach them, but I can look up and see their beauty, believe in them, and try to follow where they lead." ~Louisa May Alcott
I forgot to mention. I feel so much better when I'm not eating sugar. Why then is it so hard to stay away from the stuff?!!!!
I was diagnosed with fibromyalgia earlier this year. I've actually been struggling with fatigue and pain for several years, but was able to manage the symptoms pretty well with healthy living. I even had a couple symptom free years. The last couple years I saw my flare ups happening with increased duration and frequency.
Fortunately, I found a fantastic rheumatologist (Dr. Michael Powell in Sacramento), who diagnosed me and has been educating me and treating me with a multifaceted approach. He has encouraged me to cut out sugar, but I am finding this to be extremely difficult. The longest stretch I've had without sugar has been 8 days. I have 5 children and sometimes the stress just gets to be too much and I turn to food, particularly sugary food. Has anyone else had success with cutting out sugar? I'd also like to cut out gluten and dairy.
Edited by: REARUNS at: 9/12/2012 (17:44)