I just discovered this team on Spark People and I'm so glad I found it! I am looking forward to the tips, advice, and support that this team can offer. It's nice to finally know that I'm not alone.
My name is Becca. I have had fibromyalgia since 1996, when I was diagnosed after a car accident. I didn't know what it was back then since I was just a teenager, I just knew that my body hurt all the time. Then in 1998 I was in another car accident--this one was much worse (I was t-boned)--and that exacerbated my fibro problems.
As I got older, I struggled with weight gain, depression, insomnia, a whole host of issues. Now I'm realizing that those symptoms are all related to the fibro. I am the only one in my family that has fibro, so I don't get a lot of support from them simply because they don't know what I'm going through (which is good for them because I wouldn't wish this on my worst enemy!)
So now, here I am, at a point where I am so sick of living with constant pain every day! I was seeing a chiropractor for a few months, but he closed his practice a few weeks ago and I haven't found a new one yet. It did seem to help, mostly because he would use ice on my back. I get massages as often as I can and those seem to help as well, and usually with the hot stones because that heat can penetrate so deeply into my muscles and body, more than just the hands of the massage therapist. For me, massages work well, but only if I get them on a regular basis, like once or twice a week (not once or twice a year like now). They are just so expensive...
I've dabbled briefly with meditation, but it didn't really seem to work for me, although I probably wasn't doing it right. Part of my problem is that I just can't shut my mind off.
Being chronically in pain really takes a lot out me. I'm tired ALL THE TIME, and I struggle with depression. Even after I sleep for 12 hours (which I do sometimes on the weekend because I'm so exhausted from the week), I still wake up exhausted. I have 5 pillows on my bed because I have to have good support or I can't sleep. Even with all of that, I have chronic insomnia (mine is the kind where I can't fall asleep--once I finally do fall asleep, I tend to stay asleep).
It seems so weird, although I guess it is a symptom of the fibro, but when I touch my shoulder joints, or my hip joints, or really anywhere on my body, it HURTS. My neck. My back all over, especially lower back. Just everywhere.
I've also tried stretching, although I am not as diligent about it as I should be. I work on a computer all day, and then I come home and work on another computer for hours each night (I'm working on my MBA), and I don't get enough sleep. I'm just full of complaints, aren't I? Ha.
I guess what I'm looking for is just some support, some tips, some ideas, someone to bounce ideas off of. I'm looking for people who can relate to what I go through every day with this disease. I look forward to talking to you all, and I want to learn more about how to support myself, and others, with this disease. Thank you in advance for your time. :)
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