I'd had pain issues--and ignored them as much as I could-- for YEARS, but I was laid off my job and lost my insurance... and my diabetes went berserk without medical care... and that was when I was also sent to an internal medicine specialist who diagnosed fibromyalgia, as well as some other kind of connective tissue disease that all the specialists since have been unable to name. Go figure. LOL
You'll like it here, the people are terrific!
"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm! P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!
Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL
I believe I had a mild case of fibro when I was in my twenties, but after I got married I had a traumatic childbirth and lost my first son the fibro intensified tremendously, although it wasn't diagnosed until several years later. I've had major flares every time I've needed a surgery or had an emotional trauma. I haven't been able to take many of the meds targeted specifically for fibro, due to reactions, but other meds have helped me.
Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!
You are successful the moment you start moving toward a worthwhile goal. -Charles Carlson
Pounds lost: 65.0
Fitness Minutes: (3,294) Posts: 5 7/9/12 12:13 P
Thanks for all the great welcomes. As a researcher, I'm fascinated by everyone stories, and as a survivor, I'm encouraged by everyone living and dealing with FMS. I'm looking forward to more conversations in the future :)
"Dream with your eyes wide open."--Barbie
Pounds lost: 3.4
Fitness Minutes: (192,645) Posts: 8,898 7/8/12 5:21 P
Hi! We're glad you're part of the team. I was diagnosed 20+ years ago by my rheumatologist. I already had rheumatoid arthritis and in those days, most doctors thought fibro was a hysterical women's disease. Fortunately, my rheumatologist had a fellowship abroad and took it seriously. Over the years, I have tried all of the medications for it and have settled now on Lyrica and Savella and vicodin for breakthrough pain. Whenever there is a trauma to your body, like the back surgery I just had, the fibro will become a bit more active (unfortunately). Being aware of that helps me recognize it and work on it with massage, hydrotherapy and reiki before it really goes wild. I agree with Jae - I have never known anyone who has fibro who has not endured some major emotional and/or physical trauma, rape, abuse, in their lives. It seems that the constant "fight or flight" posture creates the tendency to triggering areas in our back, shoulders, neck and hips while internally our adrenal glands are burning hot and fast, self destructing. There is also a group of neurologists who believe that we have actually changed the pain pathways in our brains, creating people who are in some ways very highly tolerant of pain but who, when subject to too much pain, will actually become hypersensitive to even minor pain. Fibro is a tricky disease. If I can help you, let me know!
Martha Central Time Zone (1 hour slower than EST) I wish you all JOY and the fulfillment of your dreams. Baby Step Spark People Team Co Leader Fighting Fibromyalgia Team Co Leader Spirited Underdogs Challenge Team EL
Hi and welcome.. you will find this a great team with lots of care and understanding.. I am glad you came our way. I would like to add you as a friend so we can support one another in our goals I was told I had fibro over ten years ago. I was in denial until just recently I had a really bad flare and then I realized it was true.. I am on lots of meds. I hate it because it really does not take the pain away totally .. and I find myself just sitting and in a fibro fog..my fibro stems I think basically I have had a lot of stressful cirmunstances to deal with through my life and could so it finally took its toll on my body...
Where there is no struggle, there is no strength.
Pounds lost: 0.0
Fitness Minutes: (3,294) Posts: 5 7/7/12 5:55 P
I recently joined SparkPeople and am excited to learn how to use the site. My goals are ultimately to lose weight and gain health, but managing my pain and FMS better would satisfy many desires. I'm a medical researcher focusing on FMS and chronic pain disorders, who also happens to have FMS. I was diagnosed 2 years after a car accident (I told the MD what I suspected), but I'm curious about when and how others were diagnosed. If you have the time and are willing to share, I'm all eyes and ears :)
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