It sounds like you may also be experiencing myofascial pain as well as the fibro... massage helps with that, but it can sometimes leave fibromyalgia patients worse off--especially if they get a massage practitioner who isn't familiar with fibro... It's not uncommon for FM folks to have both. I do, actually, and whether or not massage helps depends a great deal not only on the type of pain I'm having but on who is doing the massage! I was lucky enough for a while to have a friend studying for her license, and she was amazing! She has a kind of sixth sense about what a body needs. I asked her about it, once, and she said she just kind of feels the trapped energy and tries to release it, using the techniques they were teaching her. No three weeks of relief, that never happened--but for the first time in my life, I actually fell asleep on the massage table instead of crying--and I felt great for a whole day and part of the next...! For me that was a miracle. Sadly, she moved to Alaska and then to Iowa...
Its only recently that I've begun to be able to differentiate between the two types of pain... wait, make that three. I have neuropathy too now! LOL
Mostly I just live with it. If you check out some out the discussions you will discover that we all have different ways of dealing with it. I worked with the Mind/Body Institute, learning a few meditation techniques and something called PACING, that have been the most useful... LOL
As for sleep...
Sadie, have you ever been tested for a sleep disorder? Studies have shown that sleep deprivation can induce fibro-like symptoms in college athletes... just imagine what that can do to folks who actually HAVE fibro! Yikes!
These disorders can take all kinds of forms, so why not ask your doctor the next time you're there?...
I need to go fix dinner right now, but you know that if you have any questions, just keep asking... there's always someone around, and if we don't know, we often know how to find out! LOL
"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL
Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t
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