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CJSAMPSON298's Photo CJSAMPSON298 SparkPoints: (2,646)
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5/8/12 8:48 A

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Since I was diagnosed beck in 2000 I have tried so many different things. The Guaifenisen Protocol was probably one of the most helpful therapies, but with the addition of Omega 3, 6, 9 and Garlic for my high cholesterol, I started having constant bloody noses and would bleed to easily. So something had to go and the Guaifenisen was the protocol that I stopped using. I have used herbs, vitamins, exercise, massage, relaxation techniques, yoga, tai chi, prescription medications of many kinds.

I now am trying to rid myself of as many prescription medications as possible. I have gotten rid of everything but my pain meds (Fentanyl patch, Oxycodone) which I take to keep my Blood Pressure under control. I also take many vitamins because I have found that I was deficient in quite a few essential vitamins. I exercise daily, try to get plenty of sleep, lots of water, lots of relaxation, peace and quiet. I go weekly for massages and use refloxology to easy pain and discomfort. It really helps that I was finally granted SSDI and I no longer have to worry about trying to get to work or trying to keep up at work. I can devote my time to taking care of myself and trying to be more comfortable.

Blessings and Peace,
Candi


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NEWVINE's Photo NEWVINE Posts: 4,843
5/5/12 8:13 A

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emoticon Fibromyalgia seems to be different for each of us, but there are a lot of people here who do some thing that help. I take Cyclobenzaprine at bed time , a muscle relaxer the Dr. put me on. Helps to start the day a little easier. There is a lot of trial and error with treatments. Read all the information on fibro. you can find and ask questions. There is an answere some where even if you have to find it your self. Only you know how you feel. emoticon

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,827
5/4/12 10:13 P

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Have been avoiding Neurontin, though it's often prescribed for another issue I have, diabetic neuropathy... but I had nasty reactions to ALL the 'normal' medications used for fibromyalgia. I'm stuck taking low doses of Vicodin every day... which suits me fine, at least I don't REACT to it! LOL

My "best frenemy" is exercise-- I have physical therapy exercises, two different workouts, each twice a week on different days. It hurts to do, sure, but it at least allows me more mobility! LOL

Sometimes you just have to keep trying new things... You'll fit right in!

Welcome to the team!...

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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DEADEND-DREAMER's Photo DEADEND-DREAMER Posts: 1,971
5/4/12 3:39 P

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Greetings and emoticon Candy!! I'm Ruby, 55 and have literally been sick since I was a child. I have the same as you along with osteo and all the other fun things that seem to tag along with this. I'm taking tramodol and gabapentin which quite honestly, barely touch the pain. Aw.. life's an adventure isn't it? *smiles*

I'm sorry you have fibro but glad you found our little group. Please feel free to add me as a friend if you like.

Blessings,
emoticon ~Ruby

~Dianna in WA is running to the light!

Challenged with fibromyalgia, diabetes T2, Myofascial pain syndrome, Osteo-Arthritis, chronic bursitis, glaucoma and severe dry eyes.

Medication reduced to 1 - 500mg tablet of metformin daily.

Love my grand baby!

"Far away there in the sunshine are my highest aspirations. I may not reach them, but I can look up and see their beauty, believe in them, and try to follow where they lead." ~Louisa May Alcott



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VALCARAZ's Photo VALCARAZ Posts: 125
5/4/12 3:30 P

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Hi CJ, and welcome!! I feel your pain because even though I was officially diagnosed in 2004, I was being treated for "spasms" like since middle school. I was blessed enough to basically come off the medication by working out (but like insane, working out is like my drug now) and natural supplements. My theory is that even when I'm in pain, the muscle doesnt hurt (or hurts less)... and because I stretch after each workout, the muscle relaxes. Dr. Guariglia (NJ) recommended a supplement of Magnesium and Malic Acid that helped in the long run.

I am a Zumba Instructor, so if you think there is anything I can do to help, send me a message :)

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CJSAMPSON298's Photo CJSAMPSON298 SparkPoints: (2,646)
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5/4/12 1:44 P

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Hello,
I was diagnosed with fibro and chronic myofascial pain syndrome in 2000. I have tried many different therapies, some have worked some haven't but as I get older it becomes more difficult to deal with the horrible daily pain. I use a fentanyl patch and oxycodone for pain due to high blood pressure that wouldn't respond to other therapies. I am hoping to use as many alternative therapies and healthy living to try to feel better.

Blessings and Peace,
Candi


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