Hi, all - SO cool that there's a board for us here!
I'm Katie, age 44 (today - woot woot - survived another year!). I've been diagnosed w/fibro for a few years (3ish?), and it was such a relief to give my "issues" a name. I have a pretty good rheumatologist, and I'm currently on amitriptyline 50mg, which seems to be working for the most part (i.e. I'm functional almost every day, and my flares don't last as long - not running marathons, but getting in some activity/exercise).
I have some additional medical things (don't most of us?) - my biggest annoyance is diffuse esophageal spasms (DES) - I get a charley horse in my esophagus when I eat or drink, several times a day, and can't always swallow or get what I've already swallowed to go into my actual stomach. I've been diagnosed with that fun for about a year and a half -- I'd be VERY curious to hear from any other fibro folks with esophagus problems, as I'm still trying to figure out if they're related to the fibro or my lap band or both or neither. As a result of this condition, I'm on lots of acid suppressors and nitrates, but fortunately amitriptyline is rx'ed for both conditions.
I have 2 lovely daughters, 14 and 16, and a great hubby for support. They're all very understanding, but I know these conditions wear on them sometimes almost as much as they wear on me. There are times when groceries do not magically appear on a set schedule - if it's too much to do that day for me, it's too much.
I'm working on losing weight right now to hopefully improve both conditions. For fibro, it'll reduce the bulk I have to haul around, so I'm hoping for more energy. For the DES, it should reduce my intra-abdominal pressure and hopefully reduce the frequency of the spasms (please please please!).
Anyway, I'm overall a very optimistic person, although these conditions do erode my sunniness on occasion - I know chronic stuff can really drag us down. I'd love to hear from anyone about either topic, the types of exercises you find work best, etc. We're all together in this!
All the best,
| Pounds lost: 21.8