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Fibro is tough because it is manageable not curable. Educating yourself is the best place to begin. Read this - it really explains what this disease is like and how to make decisions about how to use your spoons!
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Under the General Discussion forum there are discussions called "Reading Rooms". You'll find lots of great links to information there.
You're one step ahead of your doctor in that you use your computer. Search "fibromyalgia" and you'll find more information than you'll ever need. Just be skeptical of everything and wait until you see the information at least twice.
If I find articles on the Internet that are particularly useful in my case, I print them out and take them to my doctor. I think, since acceptance of fibromyalgia as a disease is new, we need to educate our doctors, if they're willing.
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Co-Leader: Fighting Fibromyalgia
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Dream it. Do it.
Fibromyalgia is in the process of shifting categories, from a rheumatoid or inflammatory disease to a neurological disorder. A lot of people (yes, doctors included) don't understand what they can't SEE, and you can look pretty good and still be in pain, but it is REAL, and NOT just in your imagination. Check out some of the links in our library, there are studies and articles you can share with the 'unbelievers'--if they'll listen. Some will...
It's not much fun when you're older either! LOL
As for how to handle it... It's a fine line we have to walk, between doing enough and doing too much--and every day the line changes! LOL Mostly, I use warm baths and exercise and meditation to combat the pain. Stretching and staying mobile is key--even on flare-days, I cannot afford to just stop, though I may slow down considerably...LOL
Like a lot of things in life, you just have to keep working at it, experimenting, trying new things... but do know this:
YOU ARE NOT ALONE.
"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL
Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t
i am only 21 years old and i suffer from fibromyalgia on a daily basis. it is very very hard to live a normal life of a 21 year old, going out with friends, working and going to school, when there are so many days when i cant get out of bed. i also really struggle with the fact that no one around me understands what is like to live with this. most of the people closest to me think that i am full of it. the doctor that i have is not very good, it is the only place that i can afford, and i don't think he is very educated at all about this disorder. i was wondering if any of you have any advise for me. medications that work, home remedies, or just anything that helps you live a somewhat normal life!
thanks so much