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NYTRINK's Photo NYTRINK SparkPoints: (18,395)
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3/12/12 4:42 P

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Hi, Larissa, I feel for you.

Everyone w/fibro is different, but I know what you mean about feeling like exercise is a ridiculous suggestion...my first reaction was "I hardly have enough energy to do my job and crawl home, and you want me to exercise on top of that???". I though my doc was nuts, and so I didnt' follow the advice. Lo and behold, I didn't feel any better.

What helped: on those days when it's a struggle to get out of bed to go to work, I do stretches IN BED (yes, I'm at that point - I know it sounds silly). I usually set my alarm for 6am just so I have enough time to do this (I don't leave the house til 7:30, and I only need really about 30-45 min to get ready). Setting it early gives me the option of stretching. My fibro settles in my quads a lot, so I do those stretches first. I go about 10-15 minutes of stretches, then I can get up. This is activity I wasn't doing before, so it counts as exercise - don't feel like you need to be in an aerobics class 3x/week for it to count. Do what you can do.

I do find this makes the rest of the day easier. Sometimes I do the same things at night, after I've sat with my beloved heating pad for awhile and used my massager to work out the knots that inevitably form around my should blades daily. After stretching, I take a nice warm shower, and that helps me sleep (so does the melatonin I take).

With this ritual, some days I feel pretty good, actually. I havve to be very careful not to over-exert on those days, though, as the payback is hell the next several days.

Basic advice: do what you can do. Can you stretch for 5 minutes? Do that. having a good day and you can go on a 15 minute walk? do that. Just set the goal to do what you can do, when you can do it (setting a goal of "I'll walk 3 miles every day" can just beat you down if you can't meet it). I've had a tough time finding my balance, since it changes pretty often, but it IS possible to get some exercise even w/fibro (I'm at the point now I can do 30 min on the treadmill walking, 15 min of stretches, and 15 min of weight machines all in the same session some days - but it's taken a couple years to get here for me).

Best of luck to you, and let us know how you're doing.

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ABERLAINE's Photo ABERLAINE Posts: 6,404
3/6/12 5:39 P

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Larissa, has your doctor tried you on any of the fibromyalgia drugs out there? I've been on Cymbalta for years and don't have much pain at all. What I do have is from arthritis in my joints.

I ride my exercycle for 10 minutes every day. That's my limit. Once in a while I feel good enough to walk my dog for 1/2 hour.

Even if you only do chair exercises, it's important to move. That way you won't get so stiff.

Nancy
Co-Leader: Fighting Fibromyalgia
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Leader: Buffalo Bills
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Dream it. Do it.


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WELDER43's Photo WELDER43 SparkPoints: (158,324)
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3/6/12 1:13 A

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emoticon emoticon

Edited by: WELDER43 at: 3/6/2012 (01:13)
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CAROLHARMON's Photo CAROLHARMON Posts: 351
3/5/12 2:08 P

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Hi I am new to fibro. Had it about a year. I don't understand why or how but the pain is unreal. Your right it is hard to get anything done. You no more than start to do something and then the pain sets in or you become so tired you just want to sleep. My primary dr and my heart dr both say to exercise. I try but it hurts alot. so I try every day to simply walk for at least ten minutes, not fast but just move. sometimes it is okay sometimes not but I just keep trying. Please never give up. Just keep trying. emoticon emoticon

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RLARISSA SparkPoints: (598)
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3/5/12 12:35 P

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Hi I'm 33 and have had fibro for years, I'm so tired of being tired and hurting all the time.
I get so mad because I can never get anything done!
It's almost imposable to exercise but I'm told to exercise isn't that a little unrealistic?
I don't know anymore -- sometimes I feel like just giving up.


Larissa


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