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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,823
2/19/12 4:21 A

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My docgtor took me through the whole list of know types of fibro meds. Nada. Either no effect, or dire side effects, some of which put me in the ER. No more, I'm not a guinea pig and I can't live like that so... I take microdoses of Vicodin every day, and all my other meds are for other things. I can't take magnesium because my kidneys don't filter it right... so I never looked! LOL And if I weren't on Medicare, I'd be paying around $1000-1500 a month for my current meds--and that doesn't include the CPAP supplies for my sleep apnea... as it is, my copays are around $200 a month. Just a bit more than what I actually have each month, and still be able to pay the rent...

I do find that exercise in general makes a HUGE difference. But I say this all the time: there's a fine line to walk between doing enough to make a difference, and doing too much--and every day it's different! LOL

I only stop for medical reasons (like the recent colonoscopy--that prep doesn't allow leeway for exercise! LOL) Even on flare-up days, I exercise, or I'll get stiff and my muscles start the cramping and burning. I just tone it down a bit. Don't get me wrong, it isn't easy some days. Besides the fibro, I have neuropathy from diabetes... you know that foot pain you mention? sometimes mine feel like they're bruised, like someone beat the bottoms of my feet. I hurt. Any and all places. All the time. And sometimes it's worse than others. But...

...I can move.

It's a "use it or lose it" proposition. If I don't keep it moving, I lose the ability to.

Not fun. I'd rather be in motion! LOL

The right kind of meditation helps too. I'm doing some research right now, about learning to do moving meditation... THAT would be amazing stuff... kind of like the Tai Chi of every day living! LOL
Kathy emoticon emoticon

Edited by: I.M.MAGIC at: 2/19/2012 (04:25)
"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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KRYSTALLA's Photo KRYSTALLA Posts: 1,061
2/17/12 7:57 P

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I am just wondering if there is a particular brand name of the Magnesium-Malic Acid that you have found works best for you?

Lisa

Eastern standard time zone.


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ROBINCT135's Photo ROBINCT135 Posts: 126
2/2/12 2:25 P

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Thanks so much for the suggestions...question here, what is the difference between the magnesium-malic acid and (regular) magnesium (that's in my multi-vitamin) ?

The prescription that I was taking (that helped me tremendously with my fibro. pain) is still very expensive, even with my Walgreen's Club/AARP card...$175.00 a month.

Another question for those of you here who regularly do walking for exercise...do you find that the walking helps alleviate your fibro. pain?

Robin


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KRISTYLH7's Photo KRISTYLH7 SparkPoints: (2,040)
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2/2/12 2:05 P

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I take the Magnezium-Malic Acid too. Yep, it helps!

Take Care Now! Kristy


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VALCARAZ's Photo VALCARAZ Posts: 125
2/2/12 10:28 A

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Robin, a Fibro-specialized doctor recommended me a 'Magnesium-Malic Acid' supplement, you can find them in a vitamin store or health food and they are not expensive at all. Honestly, at the beginning I thought they werent doing anything until I ran out of them and took a week to buy them. My muscles were soooooo stiff I could barely get out of bed.

Hope you feel better soon :)

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,823
2/2/12 12:29 A

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emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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KRISTYLH7's Photo KRISTYLH7 SparkPoints: (2,040)
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2/1/12 2:09 P

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Hi Robin,
I too have Fibro. I do have insurance, but I do know that you may be able to get some type of insurance through the state that you live in. Another suggestion is that some drug companies help pay for your prescriptions. Even Walgreens has that card that you can buy, (I think it is $25.00 per year) and that brings the costs down a lot. Maybe give those things a try.

Take Care Now! Kristy


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ROBINCT135's Photo ROBINCT135 Posts: 126
2/1/12 8:37 A

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Hi, I'm new to this forum, but not to fibromyalgia. I was "diagnosed" with fibro. about twenty years ago, after suffering from horrible neck strain & a terrible headache that "never went away". I had every test imaginable done to try to find out the cause of the pain, went from doctor to doctor to doctor (I'm sure you all know how that goes), and they couldn't find the exact cause of my pain. In the years since, I've suffered from "allover" muscle pain (burning & numbing type pain), from the top of my head to my toes, so to speak. Nothing that the doctors gave me helped, and I was at my wits end. I was a miserable person to be around, because of the pain. Because I was sick & tired of being shuffled around from dr. to dr., after about five or six years, I just quit trying to find out what was causing the pain, and decided to "learn to just live with it".
On a fluke, about fifteen years ago, I happened to be at my family doctor's office for a checkup (non related to the fibro), and I started talking to my family doctor about my chronic pain & told him that nothing any dr. had ever prescribed had helped at all. He mentioned that a few of his patients had chronic pain (for which nothing had helped), and he put them on an anti-depressant, Effexor XR, and it really helped them. He thought that maybe I had a lack of seratonin, and that my brain just couldn't turn off whatever trauma caused my initial pain twenty five years ago. Well, this theory seemed a little crazy to me at the time, but I decided to take the Effexor XR...I waited weeks & weeks, and no improvement. Just when I was about to give up on it (after about 6-7 weeks of taking it), it must have kicked in, because it was like a miracle for me. My fibromyalgia (or whatever it may be) pain subsided and eventually went away.
About two years ago, I decided that maybe I was fine and could stop taking the Effexor XR, so my doctor slowly took me off of it. I was fine for about six months, then the pain came back. So...I went back on it, and again, the pain went away.
You're probably wondering why I'm telling you this long story...LOL...
well, unfortunately I now have no health insurance...so, for financial reasons, I had to stop taking the meds. I seemed okay, until about a month ago, I was vacumming the kitchen floor (with a heavy vacuum), then mopped it, and that must have set things off...like a flare-up.
I started exercising (walking) on my treadmill a few weeks ago (trying to lose weight & get healthier), and stupid me, overdid that by running for a few minutes at a time (and the bottoms of my feet have been hurting for a week).
It didn't dawn on me that any of this could have been related to the fibromyalgia and stopping the meds., until my husband said something to me about it this morning.
I'm not sure what to do...my prescription has no refills left (without dr. approval), and I haven't been to the doctor in over a year, so I'm sure they'll want me to come in. Without insurance, I simply cannot afford any of this.
I apologize for rambling on and on...but, has anyone else gone through a similar situation? If so, what did you finally do to alleviate the pain?
I'm usually not one to complain (hard to believe that by this post, huh?), and I am a very optimistic, cheerful person...I just want the pain to go away. Thanks so much for listening to me rant on and on!

Robin


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