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ARLA948
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1/30/12 7:40 P

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ARLA948
ARLA948's Photo SparkPoints: (336)
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ARLA948
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1/30/12 7:39 P

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ARLA948
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1/30/12 7:38 P

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TRY2KEEPGOING
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1/29/12 10:54 A

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Welcome to the team Arla! You may want to go to the Reading Room Discussion Forum. There is a wealth of info there.

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CINDERRELIC----That is also my favorite passage! Thanks for posting it.

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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SEDONACAT
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1/28/12 6:02 P

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emoticon but sorry that you have Fibro-it's horrible.

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CINDERRELIC
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1/28/12 1:00 P

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Hi Arla,
I am a lot like you with my FM. Like you my pain seems to be worse at night, and I have lots of side effects from most medications. I finally solved the problem by taking meds "as needed" or sparingly with my doctor's blessing. If I take them on an everyday basis they are way too much for my system and the side effects start showing up.

I also found that anti-inflamatories work sometimes but they are tough on my stomach and sometimes that is a trade off. The things I cannot have quality of life without are 2000 mg of coral calcium and, even though it is balanced with magnesium and vitamin D, a friend of mine and I were both told by doctors and lab technicians we needed to add even more vitamin D, We were told that most people and especially those with FM needed extra vitamin D.

I have been taking calcium for years and the right kind does minimize pain. I really notice it if I skip it. I started adding the extra vitamin D recently and it has seemed to help as well.

I feel like I am a little weirdly wired from the typical FM patient as I am just not able to tolerate the high powered pain and mood altering drugs they try to palm off on us. I had rather have pain and my wits and have a fair shot at losing weight, then have meds that interfere with my weight and have to deal with all the side effects. However, I would prefer NO pain. lol

Foods, Fronts, and Frustration are 3 "F's" that cause FM to Flare for me. If I can stay ahead of the 3 F's by 1) eating higher protein and avoiding junk, 2) paying attention to the weather to know when to expect a weather induced flare and planning on taking the meds I take sparingly the day the front is due so I am ahead of the pain, 3) and reading a scripture that a student of mine brought me that brings me peace and doing other things which tend to minimize stress that leads to frustration, I do moderately well.

The scripture my student gave me, by the way, and which I keep in my Bible as a book mark so I can read it every night is " Peace I leave with you, My peace I give to you; not as the world gives it do I give it unto you, Let not your heart be troubled neither let it be afraid for I am with you always." John 14:27

However, if you pick a peaceful thought or reading to dwell upon as you rise and go to bed at night and in times of frustrations it does seem to help sustain the body as well as the soul. These are the things I have found that have helped me deal with my FM.

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"Strength is the capacity to break a chocolate bar into four pieces with your bare hands -- and then eat just one of the pieces." - Judith Viorst

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I.M.MAGIC
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1/28/12 9:59 A

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How long have you known you have fibromyalgia? It seems to me from the little you've said, that you've not had much information about it. Here's a link to a little story that explains a bit how chronic illnesses such as fibromyalgia affects people's lives:
www.butyoudontlooksick.com/articles/writte
n-by-christine/the-spoon-theory-writte
n-by-christine-miserandino/

I like to share this with people who DON'T have it, but it seems to me like maybe it will help you understand too...

Einstein said that insanity is doing the same thing over and over again... and expecting different results.

People treat a disease they can't see like it doesn't exist anywhere but in your mind. This is not true. Fibro is a physical illness, and it is not going to go away. And it does mean you will not be able to do everything the way you have been. It's crazy to think things will change if you don't change what you're doing.
When I have a bad day, I take warm baths, meditate, exercise (LOTS of gentle stretching... inportant EVERY day...)... and I learned a technique called PACING that I've found very useful. I have a timer, and it is set for ten minutes. I work at a task or exercise or whatever for ten minutes. I make sure I am focusing on just that one thing. When the time is up, I REST for ten minutes... and another ten if I need it, depending on the pain level. Then I get up and work at whatever for ten minutes... etc.

You may want to try your own version of pacing. Make time during those busy days of yours to sit --or (my preference) lay down. Let gravity help your muscles and nerves relax and re-adjust. BREATHE! Just BE. Then move on to the next thing.

Just one other thing... from what my rheumatologist has been telling me the last few months, fibromyalgia does not respond to anti-inflammatory drugs, and that is why they are not prescribed as a rule as a treatment. Hence all the nasty stuff with the side effects... If the ibuprofen you've been taking indeed "helps a little" for you, it may be another issue entirely, being masked by the fibro pain... worth looking into.

I hope that helps a little...

Welcome to the team, ARLA!

Kathyemoticonemoticonemoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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ARLA948
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1/28/12 9:02 A

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Good morning to all I am new to Fighting Fibromyalgia and I could really use some help in dealing with this pain.I was given med's but I am that one in a million that gets all the side affects.So I live on motrin it helps a little but having such an active life makes it worst.
Come night fall I am in alot of pain, does anyone else feel that way?
Thank you '
Have a blessed weekend to all.



 
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