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Fighting Fibromyalgia

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  FORUM:   Introduce Yourself to Team Forum
TOPIC:   Hello :) 


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ROTTLADY
ROTTLADY's Photo SparkPoints: (43,095)
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1/18/12 5:19 P

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emoticon and WELCOME to the team, we are more like family and you have already gotten a lot of great advice.emoticon


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DEADEND-DREAMER
DEADEND-DREAMER's Photo Posts: 1,971
1/18/12 3:27 P

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emoticon
Looks like you have a lot of great advice!
emoticon
~Ruby

~Dianna in WA is running to the light!

Challenged with fibromyalgia, diabetes T2, Myofascial pain syndrome, Osteo-Arthritis, chronic bursitis, glaucoma and severe dry eyes.

Medication reduced to 1 - 500mg tablet of metformin daily.

Love my grand baby!

"Far away there in the sunshine are my highest aspirations. I may not reach them, but I can look up and see their beauty, believe in them, and try to follow where they lead." ~Louisa May Alcott



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MOON.NSTARS
MOON.NSTARS's Photo SparkPoints: (7,174)
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1/18/12 10:33 A

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Thanks for making me feel so welcome here emoticon It really helps to find people who are experiencing the same things and also trying to get healthier.



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BEKAHBELL
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1/18/12 3:50 A

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welcome Jessi! I'm new, and seeking a lot of the same things you are. :) hope you and I will be able to find some answers & help

Bekah :o)



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NELLIEBLUE
NELLIEBLUE's Photo Posts: 1,022
1/18/12 2:08 A

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Hi Jessi,

emoticon to the group.


♥ .* ) ..*) -::-
(. ;..♥ Nellie ♥.*)
♥.*-::-. ;.-:.♥ :-

Arkansas
Birthday
July 16
Anniversity
Feburary 17

Time on this earth is only preparations for Heaven.

The Shepard always tries to persuade the sheep that their interest and his own are the same.

sparkpeople.com/bonus/bonus_sparkpoint
s.as
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I.M.MAGIC
I.M.MAGIC's Photo Posts: 12,749
1/18/12 2:04 A

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Exactly! The fun thing is you can apply this principle to just about everything! LOL AND...

Since I cannot "multitask" the way I used to, I have found that I take real joy in just FOCUSING ON WHERE I AM, y'know? LIfe has a lot more wonder now...

Kathyemoticonemoticonemoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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WELDER43
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1/18/12 1:13 A

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emoticon

Edited by: WELDER43 at: 1/18/2012 (01:14)

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MOON.NSTARS
MOON.NSTARS's Photo SparkPoints: (7,174)
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1/17/12 10:28 P

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I do pretty much the same thing. I have a timer that can track two times at once, so I keep one set for when I need to take my next dose of pain meds and the other is for whatever I'm working on. I'm getting better at reminding myself to stop without always needing the timer. I made soup this morning and took a break after prepping each type of vegetable I used. It makes things take a lot longer to finish, but I'm in better shape by the time I'm done.






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I.M.MAGIC
I.M.MAGIC's Photo Posts: 12,749
1/17/12 8:25 P

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I learned a technique called pacing... it helps me get things done without overdoing. I live with a timer... I do a chore for a certain length of time (I started with three minutes, right now I'm up to nine minutes) then I sit or lie down for that long. Then I go on to the next thing for ten minutes... and after a few weeks of it, I can bump it up by a minute--both the activity AND the rest. It works... and I was amazed how much I can accomplish in small increments of time! LOL

Granted, there are some things it would be difficult to use this with, but the idea is to not to stop participating in the activities, but to take plenty of breaks, and keep moving forward.

And I agree about spending time with your loved ones. It's about the most therapeutic thing you can do! Your attitude is SO much more important than your aptitude--and I'm sure they miss you!

You'll find all kinds of support here, so take a little time for YOU too, and log in when you can... Welcome to the team!
Kathyemoticonemoticon

Edited by: I.M.MAGIC at: 1/17/2012 (20:27)
"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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MOON.NSTARS
MOON.NSTARS's Photo SparkPoints: (7,174)
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1/17/12 7:02 P

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Hi Renee,

Thanks for all the tips and your quick response. I'm doing some of them already and I'll see what I can do about the other things you've suggested.

I am usually able to stay positive, and I've become very good at finding humor in not-so-good days. I laugh at myself quite a bit...little things like how I can't wash my hair and straighten it on the same day...which means the only time I'm guaranteed to have a good hair day is the day I get it cut lol

I do a lot of delegating. The kids clean their bathroom and the one downstairs and take turns doing dishes. DH & I either take turns cooking or cook together. Everyone takes their own laundry downstairs, I do most of the washing & drying, and everyone folds their own laundry and puts it away. The kids usually fold things everyone uses to earn extra game time. DH does all the vacuuming and is usually the one who changes our bedding. I sometimes feel bad for having them do so much, but I know there's no way I could keep up with it.

I use my volunteer time and the time I spend cooking as distractions to give me something to focus on other than how I'm feeling. I help kindergarten classes choose books in the elementary school library and I work on a website while I'm at the middle school library. I've had to take a break from the elementary school, but I'm hoping I'll be able to start again soon.

Distractions are a huge help to me, as my prescription insurance doesn't cover any meds approved for FM. I go to our family doctor and he does what he can. I get by with a prescription anti-inflammatory, one I take at night for nerve pain, and tylenol 1s and 3s. He started me on daily doses of 2000 iu of Vitamin D several months ago and the deep bone pain in my legs has since stopped.

I'm on my feet the whole time I'm working, so between that and our stairs (our house has 3 levels) I am getting some exercise. Finding someone local to walk with would probably be really good for me. The biggest drawback for me is all my local friends work during the day, and I've learned (the hard way) that doing anything after 4 or so is a *really* bad idea. Guess it's time to make some new friends emoticon

Thanks again!



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LADYBUG22166
LADYBUG22166's Photo SparkPoints: (1,445)
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1/17/12 6:01 P

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Jessi,

I feel for you and understand your perdicament. I have had FM for 20 plus years and have gained alot of weight because I kept thinking there was nothing I could do to lose the weight or to feel healthy. I have a few suggestions that have helped.

1. Be positive - in all things. Losing weight, exercise, your personal worth. You are very important, especially in God's eyes.

2. Be determined to complete a goal; no matter the size of the goal. Do be discouraged if you have a flare up.

3. Know your limitations - as I read your email, I noticed that you keep yourself busy. Five hours of work, volunteer work, your children, home and yourself. Family is important and spending time with them, as you know, is very important. You might want to look at your daily activities and see if you can dwindle something out; that way when the weekend comes, you have time for them.

4. Deligate - if you can't do something (i.e. housework, laundry, etc) assign someone in your home to help, especially if the children are old enough to do any chores. I had to do this, even though the house wasn't how I wanted it, the work got done.

5. Exercise - this is probably the hardest, because it can cause a flare up. I have a walking buddy that I met on this site and we try to walk our local mall M-F, and we walk slowly, and do anywhere btwn 2 - 4 miles. She walks my pace. Find a buddy who would like to help you that will encourage you and yes, maybe be a drill seargant on days that you don't feel walking.

6. Lose weight - yeah, I know, hard. It is. In August 2010, I stepped on a scale at my mother's house and it topped over 300. I said, "No way! and started to lose weight by using SparkPeople, keeping track of food intake, exercise log and journal. I really got serious this past August and have lost 55lbs. I want to lose another 100lbs. Granted, even when you lose your weight you will still have flare ups, but you will feel better about yourself.

7. Take vitamins. I take Fish Oil for both the FM and Osteoarthritis. I have real bad knees and have to wear braces on both legs to get around. Fish Oil is great, also take a b12 or complex B vitamin. This will give you good metabolism.

8. Find a friend who you can confide in, that you can tell anything to. This is the best stress releaver, and the less stress, the less flare ups.

I know I have said alot, but these are things that I like to remember to help me. Since Sunday, I have had a bad flare up, but I still walked today, and rested afterward. I hate to hear that you are so bad for the weekends. I use to be that way and decided I had to change the way I was living and had to revamp how I was going to spend my days. Please, if you would like, I can be there for you. If not me, find someone, use this group. The people are very knowledgeable. Medication is good, but don't let it control you. I found lyrica worked best for me, but my insurance stopped paying for it. The last advice I have for you and it is probably the most important, find a doctor who know about and believes that FM is real. I was pushed from one RA to another, with them telling me it is not their field and nothing than can do. Very discouraging. You take care and God Bless, Reneeemoticonemoticon



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MOON.NSTARS
MOON.NSTARS's Photo SparkPoints: (7,174)
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1/17/12 4:59 P

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I'm new to the group and looking for ideas on how I can lose weight and become more active, without setting off flares. I was diagnosed with FM two years ago. Because of my symptoms, I only work one hour a day/five days a week and I go to school part time. I try to volunteer two hours a week (one at each of my children's schools) and I take as many of my classes online as possible. By Friday afternoon, I'm usually in bad enough shape that DH and the kids (11 & 14) are on their own for the evening.

I'm almost 33 and as of last weekend I need to lose about 110 pounds. I usually do pretty well for two or three weeks, then I spend a week or more in a flare. By the time I start to feel better, I've lost momentum and I'm afraid of setting off another flare. I need to stop this negative cycle I seem to be stuck in so I can take my life back and be here for my family.



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