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Fighting Fibromyalgia

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  FORUM:   Introduce Yourself to Team Forum
TOPIC:   Hi. Another "newbie" 


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JUST-DUCKY
JUST-DUCKY's Photo Posts: 15,332
1/2/12 8:52 A

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No worries! lol.

You might want to make a new post so people can see it though. If you haven't already, that is.

How long has it been since you changed your diet and activity? Is it helping?

Welcome!

~~Tina ~~


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HILLIKERMOM4
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1/1/12 12:02 P

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Tina, I am sorry I posted my "entry" into the group as a response to you. I have to learn my way around here properly. I guess we are joining here together. I hope you have a great day...and again I am sorry for posting my intro on your thread :(

-Tammy
"All the art of living lies in a fine mingling of letting go and holding on."
Hold on, hold tight...we will all get there :)


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HILLIKERMOM4
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1/1/12 10:36 A

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Hello, I too am a new member. It was so encouraging to just get on here and realize that there are others who are dealing with the same issues as myself. Please do not take that wrong, I definitely do not WISH the pain and inconvenience Fibro. adds to life on anyone. Just a comfort to know that there are others out there that can truly understand. This disease is one that unless you deal with it, you cannot understand it. After years of health issues and a 2011 that was full of nothing but specialists, surgeries and medications; I have found myself with the Fibromyalgia diagnosis and a body that is in the worst shape of my life! I was on all kinds of meds that had horrible side effects and made me feeling worse than ever. So against the advice of my doctors, I weened myself off of all the medicines (took some time, and please don't have try to go cold turkey...i did that too and got extremely ill) and am going to face this thing head on through diet, exercise and hopefully encouragement. I have been researching these issues and am hoping to find the right combinations for me. Thank you for letting me be a part of your team. I hope I can get to know some of you better soon. Happy New Year everyone!

-Tammy
"All the art of living lies in a fine mingling of letting go and holding on."
Hold on, hold tight...we will all get there :)


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JUST-DUCKY
JUST-DUCKY's Photo Posts: 15,332
1/1/12 9:33 A

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It's so hard even knowing where to begin. I'm so tired of waking up in pain every single day and not being able to do the things I should be doing, like household chores. While I love that my husband helps me by doing things like the laundry, I feel that he shouldn't have to. You know?

I am in upstate NY as well. If you draw a line from Albany to Binghamtom, I'm about in the middle of it. A bit closer to Albany though.

I have started riding my recumbent bike for 30 minutes a day. Well, I aim for 30. I'm able to do about 15 most times. I really should do it 2 times a day to get in the 30 minutes, but just haven't yet.

I've been doing low(ish) carb for probably 2 weeks now. I eat mostly lean meat, veggies and a greek yogurt daily. I haven't checked into diet changes for this yet. I need to do that. It's just all a bit overwhelming.

Thanks for the welcome!

~~Tina ~~


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ABERLAINE
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12/30/11 6:01 P

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Hi Tina. Welcome to our group. You said you were from New York, but not NYC. I live in Elmira - upstate New York.

When I was first diagnosed with fibromyalgia, the thing that kept on popping up was we are deficient in magnesium and malic acid. That was my first supplement.

I find that walking my dog is my best exercise. She's eight years old and doesn't walk very fast, so it's a good pace for me. And, speaking of pace, pacing your activities is the best thing you can do. We don't have much energy so we need to conserve it as much as possible.

Here's a story we share periodically: www.butyoudontlooksick.com/articles/writte
n-by-christine/the-spoon-theory-writte
n-by-christine-miserandino/
. It was written for lupus, but it fits any "invisible illness": fibromyalgia, me/cfs, Lyme Disease, MS.

If you have any other questions, ask away. We'll try to help you find the answers.

Edited by: ABERLAINE at: 12/30/2011 (18:02)
Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
-----------------
Dream it. Do it.


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I.M.MAGIC
I.M.MAGIC's Photo Posts: 12,745
12/28/11 8:14 A

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Lupus and fibro have many similarities, but lupus is more serious in that it can actually affect your life expectancy... especially if kidney issues become involved. There are other issues with lupus that fibro patients don't usually have to deal with, such as nausea... Usually, it's lab tests that will point out the difference too.

Either way...

the others have pointed you in the right direction. Trial and error, learning what works for you... we all have our own unique combination of symptoms--AND of what helps and what doesn't.

As for foods? Look up any that have anti-inflammatory properties, and concentrate on those. Some people have issues with things like gluten, or refined sugar. For me, artificial sweeteners are a DEFINITE trigger to DAYS of pain--and I'm diabetic! LOL

Just start reading.

If you click on the team name at the top of this page, it takes you to a list of discussion topics. One is the library, where you can find articles and links to other helpful websites...

Have some fun exploring what's there!

Welcome!
Kathyemoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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WELDER43
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12/28/11 1:41 A

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emoticon

Edited by: WELDER43 at: 12/28/2011 (01:42)

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ANNAELIZA
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12/27/11 11:31 P

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Welcome Newbie. Congratulations on your family.

Do you believe you have FMS? If you do, you need to start taking care of yourself because you are going to have to be your body's best friend. The team has a lot of folks who will help with ideas and suggestions.

I did not have symptoms until I was 67. Bummer!! But, when I hear of young people struggling to work and raise a family with Fibro, I can't help but be glad I was already retired when I was diagnosed.

The best way to fight this is to be aware of what works for you and what doesn't. My best tool has been my journal. I record everything from the weather to my meds. Best time of day and worst and what I was doing activity wise. Gather as much info as you can then try it out with a good attitude. The process of knowing what gives relief and what doesn't is very important. Know your triggers and develop ways to avoid them. Recording is the best way to figure out what to express to your doctor and you can back up what you tell him/her.

I do not take any medications for my fibro so I can't help you there (I have glaucoma) but I have 2 dear friends who do and they have to watch for interactions and monitor their dosage with their doctors because of side effects. There are a lot of folks on Spark that know about scripts that help. So stay on the site and keep asking, I am sure you will get some answers. My best to you in all you do.



Until the pain of remaining the same is greater than the pain to change: You won't.


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STARSAPPHIRE57
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12/27/11 9:53 P

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Welcome, Tina! emoticonemoticon Pam

Pamela
Co-Leader SP Mend Your Mind/Body Connection Team: teams.sparkpeople.com/mindbodymend

Excellence is the result of caring more than others think wise, risking more than others think safe, dreaming more than others think practical, and expecting more than others think possible.


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SASSYTHING52
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12/27/11 9:15 P

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judy says have a happy new year


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JUST-DUCKY
JUST-DUCKY's Photo Posts: 15,332
12/27/11 8:48 P

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Hello! I believe I may have been a part of this team before. My Dr went back and forth saying I have fibromyalgia, then I didn't, now I do, etc. So yeah, here I am.

Anyway. I'm Tina. I'm 38 years old and from NY. I have kids ranging from 3 - 21 and 2 grand-daughters (aged 3weeks and 18 months) I'm happily married to my soulmate (yes, it's corny but true) He's my English gentleman. I currently stay at home with my little girl, but am a Certified Nurses Assistant and will go back to that in a year or 2. I would love to get this pain under control because that job is extremely hard on the body. I really can't imagine working with the way I feel these days.

I'm going to check out some of the links, but have a few questions.

Are there foods to avoid to help reduce fibro pain?

Are there any meds that help with pain? I currently take desipramine, which my doc says is helpful in patients with fibro, but I don't have tons of faith in him lately. I was originally put on it for headaches.

I'm seeing a rheumatologist in Feb. Any thing I should be prepared to ask for? Tests?

Anyone familiar with lupus? My Dr mentioned it as a possibility, anything I need to know?

What types of exercise do you do to help relieve pain?

I guess that's it. Anything you want to know about me, just ask.

~~Tina ~~


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