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WELDER43's Photo WELDER43 SparkPoints: (162,514)
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12/24/11 1:22 A

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Edited by: WELDER43 at: 12/24/2011 (01:23)
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KYNISKA's Photo KYNISKA Posts: 19
12/18/11 4:13 P

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Thank you all for the re-welcome! :-) I'm a little more grumpy/gloomy than usual because my GP is convinced that he needs to add CFS to my diagnoses. My appointment with the new rheumatologist is at the end of January, and I'm really hoping he'll prescribe some Neurontin. I tolerate it well and don't feel like I'm being pulled apart at the seams when I'm on it.

Martha, I live in the TN Valley, a.k.a. "The Valley of the Bad Head." Sinuses and allergies are huge problems here, and I'm supremely sensitive to temperature changes. I wouldn't be surprised if that is one of my issues. Obviously I'm a Bama girl, though, because I'm dying to move someplace warmer! lol

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SARAHTAIT's Photo SARAHTAIT Posts: 26,287
12/18/11 11:29 A

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I can totally relate to trying to deny fibro. I still have that problem after 15 years of dealing with it. My pain has been horrible lately so I have learned not to try to push through things. It took me a long while to learn that one.
So proud of you for getting your diet under control. I do hope it makes you feel better...it can't hurt!
Hang in there and know that support is very important!
Hugs,
Sarah

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
12/18/11 11:27 A

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I don't know where you live but we are all very weather sensitive, especially to big barometric shifts. Could that (winter) be affecting you? Fibro is unpredictable and we all learn to go with its ebbs and surges. It will improve again.

Martha
Central Time Zone
(1 hour slower than EST)
I wish you all JOY and the fulfillment of your dreams.
Baby Step Spark People Team Co Leader
Fighting Fibromyalgia Team Co Leader
Spirited Underdogs Challenge Team
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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
12/18/11 2:32 A

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WE've all been where you are at one time or another. I think it's called "denial"... LOL

You've learned something, that's always a good thing.

Fibromyalgia is a "Use it or Lose it" game... with a few rather unusual basic skills that you have to add to your repertoire: Keep moving, trial and error, and walking that fine line between doing enough to make a difference and doing enough to put you back at square one! LOL

And every day is going to be different. What you accomplish today may be too much for you tomorrow. So you take baby steps. Start small, and when it gets easier, take a baby step up-- and don't take another until THAT has no evil backlash. It's okay to stay at one level if that's what you can do NOW... and when the next level up beckons because you're having a good day and want to do more... DON'T. You'll need to experiment to find the intervals of upward change that will work for you, so there will quite naturally be setbacks... and working a job is a part of that too.

Hang in there. This is like a lot of other things: NOT a death sentence, but a LIFE sentence. And
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Stick with us and your doctors, and you'll see!

Welcome back...

...and have a Merry Christmas!

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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SMIDGON's Photo SMIDGON Posts: 4,381
12/17/11 7:44 A

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After approx. 15 yrs., I still have my ups and downs. I have learnt to 'go with the flow'. This past Wed. hubby and I worked Food Bank in the morning. We had just 4 clients. Then, we ate out. Came home, I sit down in my recliner. I slept the rest of the day, all evening and yet I slept all nite! So, you will always have your ups and downs.

After awhile, you will enjoy your 'good times'. Don't want to be doom-and-gloom, but, you get where you take it as it comes. It could be worse, its not some terminal illness.

Blessings,


"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,953
12/17/11 6:01 A

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Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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KYNISKA's Photo KYNISKA Posts: 19
12/16/11 8:04 P

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While I was originally glad to get my diagnosis, I very much resented the doctors telling me what I could and couldn't do. I decided I was going to do what I wanted and make myself better. I joined this group a few months ago and kind of didn't listen to the very smart people who shared their experiences with me.

This summer, though, I started having a lot of problems. I wasn't on SP at all, so I wasn't getting your support. I had gone for months without pain pills (mostly even OTC!) and with few-to-no headaches and migraines, so I started a new workout program. I slept through the Fourth of July weekend because I'd overexerted myself. I finally decided to get on a regular, dr.-approved workout schedule but started having headaches, migraines, pain, aches, fatigue, etc. I get off work and fall asleep on the couch, waking only to shift to the bedroom where I can't sleep. I took sugar completely out of my diet for a month before adding it back in limitedly, and I've basically eliminated caffeine from my diet. I work to add whole grains, fruits, veggies. I limit chemicals (including artificial sweeteners) due to reactions. I've gotten much better about this over the last few months, but I'm still feeling worse and worse.

I'm being assigned a new rheumatologist, but I don't have an appointment until the end of January. So, in the meantime, I'm back, and I very much hope I will take your support and experiences more to heart than I did before!

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