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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,829
11/12/11 2:12 A

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The best advice I was ever given was to keep moving.

With fibromyalgia, it's "use it or lose it"--and you learn to walk the fine line between doing enough to make a difference and doing enough to put you out of commission for days on end! LOL

And it changes every day.

You get used to there being ups and downs. doesn't mean you have to LIKE it! LOL

And here, the others are right. You are NOT alone...
Welcome to the team!
Kathy emoticon

Edited by: I.M.MAGIC at: 11/12/2011 (02:13)
"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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JUNEBUGGEM65's Photo JUNEBUGGEM65 Posts: 46
11/10/11 6:08 P

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The people who are close to you already know/sense that something is wrong, so having a diagnosis just puts a name to the face (so to speak). The one's who don't/won't/can't understand or listen, i have found, aren't worth putting my effort into changing. When people ask how i'm doing i answer "hanging in there". Some will accept that 'as is' others will ask for clarification, and then I offer more info. As someone who has always put others first, I am just learning that its ok if i think of myself now.

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ANNAKOUKLA's Photo ANNAKOUKLA SparkPoints: (76,336)
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11/10/11 1:58 P

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Hello & welcome! :)

"Forgiveness is the fragrance a violet sheds, after a heel has crushed it." ~Mark Twain.



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LAURAS-SEEN SparkPoints: (1,014)
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11/10/11 3:06 A

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thank you for all your kind words!
what lifestyles changes made a difference good/bad?
and how do you tell family and friends even those who are less supportive so to speak
the only others person I've told is my mum

WELDER43's Photo WELDER43 SparkPoints: (154,531)
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11/10/11 1:41 A

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emoticon

Edited by: WELDER43 at: 11/10/2011 (01:41)
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JUNEBUGGEM65's Photo JUNEBUGGEM65 Posts: 46
11/9/11 8:50 P

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When I was diagnosed I had never even heard of it before. When the doctor saw my face he grabbed my hand and had to assure me it wasn't fatal. The first thing I did when I got home was educate myself about the condition, then I shared the information with my family and co-workers so they could better understand what I was going through. They have been very supportive. This is not a journey you need to take alone.

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TRY2KEEPGOING's Photo TRY2KEEPGOING SparkPoints: (35,458)
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11/9/11 7:57 P

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I was in denial when the doctor told me I had fibro. She had to convince me. When she grabbed my elbow and I almost dropped to the floor she reminded me that is not normal. My first response was that I did not want to be one of "those" fibro people. Then she gently pinched my cheek and I dropped to the floor again. She had me do the same thing to her and she did not even flinch! Darn it....I had to come to the realization that she was right. I knew down inside for a long time that I had it. In the long run, I am grateful that she did not let me deny this and that I too knew that I wasn't actually a hypochondriac. We nurses do make the worst patients!

Good luck to you. You have come to the right place where others understand. Vent, complain, share, celebrate anything you want to here.

You have to take care of yourself in order to be able to take care of others

Be kind to all because everyone you meet is fighting some sort of battle.



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JUNEBUGGEM65's Photo JUNEBUGGEM65 Posts: 46
11/9/11 5:11 P

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My diagnosis was a relief for me too. Once I had a name for all my different, sometimes crazy, ailments I felt I could face it head-on. Not knowing what was wrong and thinking it was all in my head was making me crazy. Many people and even some doctors still think Fibro is isn't real. To them I say...spend a week in my shoes then explain to me what's real and what's not.

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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,733
11/9/11 11:04 A

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Having the diagnosis of fibro was a relief. I wasn't crazy after all! I wasn't making things up for attention!

Bri from Colorado, MDT
ANNAELIZA's Photo ANNAELIZA SparkPoints: (1,951)
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11/9/11 9:55 A

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Hi Laura I agree with Debbie, the diagnosis for Fibro is more like sentencing. Worse, the treatment doesn't always offer relief. Like so many of the "condition" diseases Fibro is considered by some in the medical field as a tagalong to an actual disease. Arthritis, hypothyroidism, and other lesser known auto immune diseases have fibromyagia as a side kick. I think the first and best thing to recognize when it is solidily confirmed that you have the beast is that it is extremely PERSONAL. Please start a symptom journal. Record all the elements in your world and see how you react to them. Then begin to control whatever you can and eliminate as many triggers as you can. Poor sleep, weather and stress are mine. Your journal will identify yours.

Be sure to record your body's reaction to prescriptions. Some flares respond to aspirin the same as a painkiller and aspirin is cheaper.

Please try to put it in the right perspective (doctors will tell you it is not fatal: and it isn't.) It is like "how do you eat a bear?" answer "one bite at a time". Find support on Spark, other FM sites, local groups and books. Don't depend on your general practioner, even the good ones don't keep up with it. Seek your own comfort level and your own knowledge, then share it with others

Continue to value yourself enough to discover what works for you. Make the necessary adjustments to find relief and remember You are still You. God Bless Susie



Until the pain of remaining the same is greater than the pain to change: You won't.


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JUNEBUGGEM65's Photo JUNEBUGGEM65 Posts: 46
11/9/11 6:37 A

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Hi Laura, Fibro is a daunting diagnosis, and very frustrating. It took me many years to and multiple doctors to finally get a diagnosis. There is no straight answer on what will or will not help since we all respond differently to the various drugs they push. I found that eating healthier all grain foods and not processed ones has helped. There are no easy answers but if you need to talk, vent, or ask questions feel free to contact me. Good luck!

Debbie

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LAURAS-SEEN SparkPoints: (1,014)
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11/9/11 1:47 A

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hi im laura from hamilton nz and im in the middle of me and the doctors figuring out whats wrong i cant seems to get a straight answers but hes going with fibromyalgia 80 to 90 percent sure he told me what am i ment to do with that?! advice please!

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