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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
12/7/08 2:10 P

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Check through the discussion topics and jump in and ask questions, and try some of the suggestions... that's the best way I know of to learn anything...
Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
12/7/08 12:28 A

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Bio-Feedback is a method I was taught when I went to the Hospital for a Pain Management Course. At the time, I had FMS, a bad back that was going to end up with Surgery on anyway. To do it, you first need a soothing music tape that doesn't have words or a regular rhythm or beat to it. I like an Ocean waves one with the birds to it as it is soothing and I can picture myself in a cove where I have a little Grass Shack. I picture myself walking along the shore playing in the waves. You need to do this sitting up in a chair with your feet up and get comfortable. Do not lie on the couch or bed as you aren't to go to sleep. I was hooked up to a machine that buzzed every time any of my muscles tensed up. I didn't even have to feel them doing it for it to buzz. No distractions for anyone or anything for at least 30 min. Set a timer if you need too. Eyes closed, music on. Now, begining at the top of your head, you are going to slowly work your way down your body. Your head, does it hurt? Y?N. Y then relax after acknowledging it, taking deep breaths, next go to your neck. Same question, Y/N? if no relax more and go down to shoulders, arma, hands, fingers. Ask question - Y/N? always relax and breath deep. If the answer is yes, spend a minute or so relaxing that part of your body. You will feel the tenseness easing away and you won't hurt as much as you did. Continue this method. Do arms etc. separately of course. It will take practice. The Dr worked with me 2 a week for 3 or 4 weeks till I got it down pat. No, you won't wipe the pain completely away. but it will ease it off alot and you wil get a much higher tollerance to pain. Remember, no distractions. Turn off the phone. I always did it for 15 min in the dark right before bed and boy, did it work wonders for being able to go to sleep!

It's Only Temporary

Member of:

JW's On the Narrow Path Teams

'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
12/7/08 12:27 A

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Be sure and sign up for Spark America and when you go in and set up your exercise program, just remove all the ones you can't do, I had to remove all of them, and put in the ones you can do. I found that there are a dozen that my body can handle. Some of which are ones you do while in Physical Therapy. After you set up your exercises and heed the fact they don't want us exercising every day, go into your Spark Appointment Calendar and set it up for reminders. I really like this feature as it keeps me exercising regularly on the 3 days I'm supposed to. Until signing up for SA, I hadn't been exercising because I didn't check to see if there were any my body could handle. Make sure you set up days for Cardio so you can have access to all the other things we do that are exercise like house cleaning, playing with your kids, mowing the lawn, moving boxes, etc. You need to go in and go through the lists and put any you might do at any given time, into Favorites. Then all you have to do is go there and hit favorites and get them from the drop down box. You just enter in the time you did those activities. After you get your info and record it, it will tell you on the fitness page the calories you burned.


It's Only Temporary

Member of:

JW's On the Narrow Path Teams

'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


 current weight: 230.0 
 
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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
12/7/08 12:27 A

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I subscribe to Real Age and I received a 6 part series of e-mails on managing Fibromyalgia. Does anyone want these articles forwarded to them. There is a lot of information in them with links for even more. If any one wants me to forward them to them, send me a Spark Mail with your e-mail address and I will get them right out.


It's Only Temporary

Member of:

JW's On the Narrow Path Teams

'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


 current weight: 230.0 
 
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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
12/7/08 12:26 A

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A number of years ago, I found a Chiropractor that uses a Drop Table and the Activator methods. I hadn't slept through the night for a good 25 years. He started treating me and of course it began with 3 times a week for the first 2 weeks then gradually cut down to once a month. Anyway, he used the drop table each time to put everything in the was being pulled out. Then he worked on all the pressure points. At first just lightly touching me brought the tears but I knew I had to go through with it to get relief. After a few weeks, I could tell the pain wasn't near as bad. He was pushing the pain away from the surface of my body. After about 4 weeks, I also began sleeping through the night! If any of you can afford it or have Ins. and can go to one like him I highly reccomend it. He also reccomended massage therapy but said no Deep Tissue massage as it would create more damage. I couldn't afford to go so never got to find out. To find a Chiropractor like him, start calling the different offices in the phone book or go on line. He also had a movable table that he moved in different directions and it loosened up my low back where I had, had surgery and was all jammed up. The Chiropractor Office here that has the drop table is I believe a chain and its called Simpson Chiropractic and Sports Medicine if that is any help. My old one is Dr's. Marty & Sharon Thornton in Independance, Oregon.


It's Only Temporary

Member of:

JW's On the Narrow Path Teams

'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


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ONLYTEMPORARY's Photo ONLYTEMPORARY Posts: 42,795
12/7/08 12:26 A

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JFBRAD56 did this for us.


I am posting the symptoms of fibro that I compiled from the books. I would never have connected some of these things!!

CENTRAL NERVOUS SYSTEM SYMPTOMS
• dragging fatigue that worsens as the day goes by
• exhaustion at the end of the day
• irritability, nervousness, and anxiety
• depression, apathy
• impaired memory and concentration (fibro fog)
• headaches, migraines
• insomnia (difficulty falling asleep, staying asleep, or falling back asleep)
• non-restorative sleep (waking up unrefreshed)
• sensitivity to light, smell,. and sounds
• chemical sensitivities

MUSCULOSKELETAL SYMPTOMS
• pain most often in the back (upper and lower including neck, shoulders, and buttocks), in the arms (wrists, elbows, shoulders), hips, legs, thighs, knees, ankles, feet, and chest wall
• pain described as throbbing, burning, stabbing, stinging, grabbing, with intensity that varies from hour to hour and can increase with cold or damp weather, anxiety, stress, and activity
• being able to predict a change on weather by an increase in certain symptoms
• muscle spasms and cramps
• widespread stiffness in muscles, tendons, and ligaments
• pain typically worse in the morning and may improve somewhat during the day, but will return in the evening
• numbness of the extremities or face
• diffuse pelvic pain
• chest wall pain (chostocondritis)
• Temporomandibular joint pain, facial and head pain originating in the neck area
• feelings like electrical impulses in the muscles
• restless legs
• feeling of general weakness often described as “poor stamina”
• joint hypermobility
• plantar arch or heel pain

GASTROINTESTINAL SYMPTOMS
• Irritable bowel syndrome
• gas pain, bloating, and constipation
• diarrhea
• nausea
• hyperactivity
• crampy abdominal pain that can be intense and unpredictable
• heartburn

GENITOURINARY SYMPTOMS
• vulvodynia
• vulvar vestibulitis
• vaginal spasms or cramps
• burning discharge
• increased menstrual and uterine cramps
• dyspareunia (painful intercourse)
• bladder pain
• recurrent bladder infections
• interstitial cystitis
• dark, pungent urine that burns

DERMAL SYMPTOMS
• crawling feelings
• itching, scaly patches
• rashes (many varieties) in strange patches
• small areas of pimples occur
• perspiration that is pungent and irritates the skin
• sensitive allergic skin
• dermatographia is fairly common
• Raynaud’s syndrome

MISCELLANEOUS SYMPTOMS
• excessive nasal congestion and mucus or post nasal drip
• brittle nails, inferior hair quality
• scalded or metallic mouth sensations
• bitter (sometimes even salty) taste in mouth
• eye irritation, or blurring, burning eyes
• ringing in the ears or popping sounds
• vertigo, dizziness
• low frequency hearing loss
• heart palpitations
• non-cardiac chest pain


It's Only Temporary

Member of:

JW's On the Narrow Path Teams

'It's only Temporary'

Water is very important for us. We may, and I do, require more than the 8 glasses a day. The link goes to a water calculator I use to see what I need for my current weight. Mt requirement has dropped 9 ounces due to weight loss. Yipee!
fitnessgear101.com/fitness-calculato
rs/water-requirement-caculators.aspx


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,953
12/6/08 7:08 P

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Welcome to the team, Laurie!

I've had fibro for decades, and was in pain from it for years prior to being diagnosed. I take Celebrex for OA, which helps the fibro to some extent, and my Rheumie has me taking Topamax(200mg 2x daily), which helps to desensitize the nerve endings to the pain message, so that also helps the pain.

Blessings,
Sandy

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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SAVANNA263's Photo SAVANNA263 Posts: 303
12/6/08 6:59 P

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The lack of information can be SO frustrating. I definitely know how you feel. For me, it is comforting to know that fibromyalgia is not actually damaging the tissues in my body, even if it might feel that way. It can also be hard that a lot of people in your life are not familiar with the condition or think it is in your head.

Make use of the group if you need support...there is so much information and we all know how you feel. You are NOT ALONE!

Soft emoticon ,
~Savanna

~Savanna~
SDEHNKE's Photo SDEHNKE Posts: 1,913
12/6/08 6:50 P

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The best information about Fibro that I've ever gotten has been from the fmaware.org or this website. The doctors either don't know much or don't tell us much. It's mostly been trial and error for me. And then I found this website and found all kinds of people who have discovered the same things that have helped me. And they've thought of some that I didn't.

Suellen


Suellen
Outside Indianapolis


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MOTHERSNEST's Photo MOTHERSNEST SparkPoints: (2,140)
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12/6/08 11:53 A

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After many years of suspecting I have fibromyalgia, a rheumatologist finally gave me the "official" diagnosis yesterday. I, too, would like to know anything that can help ... ANYTHING! I'm always in pain and it's such an effort to function. Any advice is welcomed.

Why is weight so easy to find, but so hard to lose?


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SPARKLINGHOPE's Photo SPARKLINGHOPE Posts: 14,647
12/6/08 11:35 A

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emoticon

Becki
(IN - Eastern Time Zone)
FITBIT ONE

Your beliefs become your thoughts. Your thoughts become your words. Your words become your actions. Your actions become your habits. Your habits become your values. Your values become your destiny.

Mahatma Gandhi
(1869 - 1948)


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DAVESLAURIE's Photo DAVESLAURIE SparkPoints: (0)
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12/6/08 11:21 A

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what is happening to me

.•:*¨¨*:•.Laurie.•:*¨¨*:•.





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