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SLACHETKA103145's Photo SLACHETKA103145 SparkPoints: (42,866)
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1/29/13 5:12 P

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Thanks for your meaningful insight! I am glad to find this group on Sparks! Do you know if anyone else has small cell? I have CT tomorrow which is a 3 month appointment for me!

Also I don't know if you post what you eat, but I do and run the months report for my oncologist. As you know Sodium is an indicator and I could not get the count to an acceptable level. He took one look at this info and asked if I was on a low sodium diet. I was as my husband is borderline High Blood Pressure so we really watch his diet. I adjusted and my next monthly check I was up over 5 points and in "safe" territory!

I wish you the best and let me know if I can help.

Jean

If you think you are beaten, you are.
If you think you dare not, you don't.
If you'd like to win but think you can't,
It's almost certain you won't.
Life's battles don't always go
To the stronger or faster man,
But sooner or later, the man who wins
Is the man who thinks he can. (Walter D. Wintle)



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MANNYINFLORIDA's Photo MANNYINFLORIDA Posts: 58
1/29/13 9:25 A

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Hi Jean,
Really good to have you join our group and to hear you are in remission. There are several of us who are in remission and enjoying life to the fullest.
When I went through chemo after the lobectomy, my doctor told me now is not the time to be dieting and I was glad he did as my labs came back all screwed up after my first chemo treatment. I am now 1 year since the last treatment and I go every 3 months for a lab and scan..
I am sorry to hear you had a rough time with the chemo, my symptoms were rather mild compared to yours and others; i had nausea, chills, cramps right after every treatment..

Hang in there and stay in touch. I was given a nutrition quide by my oncologist and I am now contemplating seeing a nutritionist. I have had weight problems since I stopped smoking some 35 years ago and I need to keep the weight in check.

God bless and stay in touch.

Manny

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SLACHETKA103145's Photo SLACHETKA103145 SparkPoints: (42,866)
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1/29/13 8:41 A

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Hi...I am Jean. I found out that I have small cell cancer in May of last year. I nearly died after the first chemo treatment but they pulled me back and started the remaining three treatments at 75% to which I have responded well to. I am currently considered in remission but I do have small cell and know what that means. I have a doctor's appointment later today and next CT Scan is next month unless something comes up today. I do fight not losing weight as during chemo I lost down to 103. I try to hold around 121 now. (I have dieted all of my life and this is weird to fight weight loss.) When I joined Sparks originally I weighed 183 lbs. The nutrition problems that I face are my sodium remains low (which is bad)...anybody have any suggestions? I look forward to sharing in this forum.

Jean

If you think you are beaten, you are.
If you think you dare not, you don't.
If you'd like to win but think you can't,
It's almost certain you won't.
Life's battles don't always go
To the stronger or faster man,
But sooner or later, the man who wins
Is the man who thinks he can. (Walter D. Wintle)



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MANNYINFLORIDA's Photo MANNYINFLORIDA Posts: 58
10/21/12 8:02 A

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Hi Bob,
Good to hear you have reached your goal weight and are in remission. Sounds like you live in paradise and a great place to enjoy the outdoors.
Hope you won't have to go through surgery again and the nodes are benign.
I am 15 months post op and 8 months chemo free. I also need to get my weight under control but lack of energy has been my downfall. Some of my problems are post surgery issues which I am just beginning to get under control.
As for the team, there is no team leader yet. Seems like some of the people have moved on to other things, but if we can keep it going let's do it.
Cheers!

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CAPECODDOGFISH's Photo CAPECODDOGFISH SparkPoints: (252,325)
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7/28/12 1:48 P

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I'm Bob from Cape Cod. I am a lung cancer survivor and have been Cancer free since 2008. I have reached my weight goal and am exercising at the community gym here.
My yearly checkup has been changed to six months as my surgeon found a few more suspicious nodes in my left lung. Nothing to worry about yet but he is keeping a close eye on them to make sure. If I have to go back in the hospital again, I was told that the surgeon is using robotic surgery now so no more slice and dice..LOL
On the bright side, I live here on Cape Cod and I love it here. I have 3 miles of woods at the side of my property which my dog and I use daily and a working horse farm in behind me. Bucolicsville!! I am exactly 1 mile from the ocean and 1 mile from the biggest lake on Cape Cod.
I hope I can fit in with this team. Bob from Cape Cod.

Edited by: CAPECODDOGFISH at: 7/28/2012 (13:49)
Bob from Cape Cod





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