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WHOVIAN85's Photo WHOVIAN85 Posts: 861
9/22/12 2:41 P

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When we goto the specialist I will mention this and ask them to retest him but our primary care physician said they tested it 3 times and it came back positive but its always a chance that could be the case. I am glad you mentioned the toothbrushes, I will definitely make sure to not let us use each others toothbrushes and we have the power battery operated ones, were due to replace the brush heads anyway so thank you for the reminder. This group has been very kind, Im thankful for Kelly for creating it.

"The good things donít always soften the bad things ó but vice versa ó the bad things donít necessarily spoil the good things or make them unimportant."
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SW: 232
CW: 203.2
LGW: 150


 current weight: 211.0 
 
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PHEBESS's Photo PHEBESS Posts: 32,014
9/22/12 12:25 P

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Our dr said one very important thing people don't realize is DON'T share a toothbrush - you sometimes get microscopic bleeding and people don't know this is happening - so make sure everyone in the house knows that they have their own personal toothbrush, and we don't share those. (I've learned to always get my toothbrush in a color different from DH's, because when he's sleepy at night he sometimes gets confused. I've had to throw away my toothbrush on occasion when he accidentally uses mine.)

If he has no detectable viral load, he can wait a bit - and you do realize that some people get a false positive test result? Any chance that's what happened?

"Dance as if no one is watching."


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WHOVIAN85's Photo WHOVIAN85 Posts: 861
9/22/12 12:08 P

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Thank you for all your advice and support. I'm dealing the best I can and learning like you to live for today and not worry about the other stuff until it comes my way. I'm anxious for his appointment to get here so he can get started on his medicines and see his specialist. He already has a case manager and I remind him everyday to take his vitamins and working hard with our little ones to teach them to cover their mouths and not to drink after each other so they won't get sick or spread germs to their daddy. I am a little anxious myself since I'm still in the waiting period of testing again in the end of october and 2 months after that.

"The good things donít always soften the bad things ó but vice versa ó the bad things donít necessarily spoil the good things or make them unimportant."
Doctor Who Series 5: Vincent and the Doctor
SW: 232
CW: 203.2
LGW: 150


 current weight: 211.0 
 
232
208.75
185.5
162.25
139
PHEBESS's Photo PHEBESS Posts: 32,014
9/20/12 9:49 P

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I was freaked out for quite a while too, so expect that. But we manage to adjust to just about anything, we humans, and soon life will be somewhat back to normal. You'll always have to check meds, you'll always need to plan ahead, and you'll always need to practice safe sex. But that's better than a sudden aortic aneurysm (which a friend of ours died from two years ago) - so I try to look at it that way.

My DH, like yours, has a really strong immune system and has made a remarkable comeback with the meds - so I'm thankful for that, as well as good doctors, and life-saving medications. And I'm going to enjoy whatever time we have together. The rest, well, I can't worry about that now.

"Dance as if no one is watching."


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WHOVIAN85's Photo WHOVIAN85 Posts: 861
9/20/12 7:07 P

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Thank you for aswering all my questions, I appreciate your kindness very much. Its helping slowly put my mind at ease. emoticon

"The good things donít always soften the bad things ó but vice versa ó the bad things donít necessarily spoil the good things or make them unimportant."
Doctor Who Series 5: Vincent and the Doctor
SW: 232
CW: 203.2
LGW: 150


 current weight: 211.0 
 
232
208.75
185.5
162.25
139
PHEBESS's Photo PHEBESS Posts: 32,014
9/20/12 4:35 P

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I get tested every year (just once a year) - have always shown up negative. You likely will too - if a person has a nondetectable viral load, it's very difficult to spread.

"Dance as if no one is watching."


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WHOVIAN85's Photo WHOVIAN85 Posts: 861
9/20/12 9:25 A

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I feel the exact same way about my husband, I'm glad I found this group. Do you still have to get tested yourself? I am nervous about testing again in November and then another 2 months afte that.

"The good things donít always soften the bad things ó but vice versa ó the bad things donít necessarily spoil the good things or make them unimportant."
Doctor Who Series 5: Vincent and the Doctor
SW: 232
CW: 203.2
LGW: 150


 current weight: 211.0 
 
232
208.75
185.5
162.25
139
PHEBESS's Photo PHEBESS Posts: 32,014
9/19/12 8:10 P

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As I told DH, I wouldn't leave him if he got a disease like cancer, why would it be any different with HIV?

"Dance as if no one is watching."


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WHOVIAN85's Photo WHOVIAN85 Posts: 861
9/19/12 7:27 P

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Thank you, reading that does put my mind at ease a little. We have three little boys who love their daddy bunches and I love him very much too. I honestly believe were soul mates and I already do that every morning with his vitamins until he goes for his first appointment to his specialist. I'm not sure if I confused you with the numbers thing, but my husbands were so low as in undetectable for the virus, I was told thats a good thing because his immune system is strong and that as he long as he takes his meds he will live a long life. The whole fact on them living on 6 months less then people without makes me feel really good- I too can live with that!! I couldn't imagine my life without him in it. We have the support of our family and the few friends we have but some people are still so cliche about the whole idea of someone being HIV+ or AIDS. It's sad, he is still my husband, like I told him when he found out, my feelings for you have not changed. I still love you and your still my husband, you just have to be careful to not get sick and take your medicines and goto your doctors. His diagnosis has changed how I view life too, all I focus on is today and making the most of it with the ones I love.

"The good things donít always soften the bad things ó but vice versa ó the bad things donít necessarily spoil the good things or make them unimportant."
Doctor Who Series 5: Vincent and the Doctor
SW: 232
CW: 203.2
LGW: 150


 current weight: 211.0 
 
232
208.75
185.5
162.25
139
PHEBESS's Photo PHEBESS Posts: 32,014
9/19/12 6:14 P

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My husband is also HIV+ and his numbers were so low he had actual AIDS - this was about 10 yrs ago, and we got him started on a cocktail of meds. His bloodwork is now almost back to normal, his viral load has been undetectable for years, and he's doing great.

This disease has changed how we live - we both live for NOW versus planning for the future - but we also are good about making sure he takes his meds, gets his lab tests every six months, all that stuff.

Last info I read was that HIV+ people live only about 6 months less than people without HIV - I can live with that!

Good luck - and be willing to talk with your close friends, they'll understand. You need your own support system, people you can talk to. Also, let your husband know that you're backup (like a coach) - he's responsible for taking his meds, but you're the backup so you'll check every morning and every evening, to be sure he's taken them.

"Dance as if no one is watching."


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WHOVIAN85's Photo WHOVIAN85 Posts: 861
9/19/12 2:26 P

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Thank you SOO much, my husband has a case manager and will be going to his first appointment with his infectious disease dr on Oct.3rd. His rest of his blood work came back very good and he takes good care of himself health wise and nutritionally with eating and walking everyday. Yes, he takes extra calcium and extra vitamin C, we all do to prevent getting sick. I didn't know about the osteoporosis, so thank you. I will definitely mention that to him.it really is nice having someone to talk too about this and getting support. I want to do everything in my power to take good care of my husband. forgot to add the dr said his levels were extremely low of the viral load and most likely why I didn't get infected because he is a carrier but its not transmittable. I was scared to put myself out here like this, but I am glad I did,sparkpeople and its members are amazing. Again, thank you!

"The good things donít always soften the bad things ó but vice versa ó the bad things donít necessarily spoil the good things or make them unimportant."
Doctor Who Series 5: Vincent and the Doctor
SW: 232
CW: 203.2
LGW: 150


 current weight: 211.0 
 
232
208.75
185.5
162.25
139
WASHNDWYER SparkPoints: (1,325)
Fitness Minutes: (1,512)
Posts: 4
9/19/12 2:15 P

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I am sorry to read about your husbandís infection. Getting support and advice will certainly be of help to both of you. While each person's body handles the virus differently, the outlook for most is generally good if they take care of themselves. Eating right, getting enough sleep and avoiding stress are all positive things that the two of you can do. Find yourselves a good infectious disease doctor that you trust and can relate to will also be a great help.

I was infected sometime before 1984 and I am doing very well. My viral load has been less than 40 for years and all of the other routine tests that one takes with aging are in the normal range, or better than normal. My doctor said on my last visit that he wished that his cholesterol levels and blood sugars were as good as mine. I began taking meds as soon as AZT was released in 1989 and have been through several different combinations of drugs since then. Taking meds is now just a normal part of my life. Yeah, Iíd rather not have to take them, but to me they have been a real lifesaver. Fortunately, there are a number of good drugs available and the side effects have been greatly diminished. If a particular drug does cause side effects, talk with your doctor and find an alternative. There is no need to take something that you hate because of side effects. That only will make adherence more difficult and staying on a regular schedule with your meds will slow down any possible virus mutations.

It might also be helpful at first to get a good case manager, especially if you donít have good medical coverage and need to navigate your way through the Ryan White system. I havenít had to use one for years, but at first it was a God send not having to navigate the system all on my own.

The one possible side effect that you can help prevent or lessen the effect of is osteoporosis. While not everyone with HIV has problems with it, there is an increased risk either from the meds or from the virus. Taking a good calcium/vitamin D supplement will help with that. I didnít realize that I had osteoporosis until a study that I participate in started measuring height with each visit. I had lost three inches without noticing it. I am now treating it as well.

I wish the two of you well on your journey.


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WHOVIAN85's Photo WHOVIAN85 Posts: 861
9/19/12 12:05 P

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Hi, I saw this group on here and would like to join. My husband has been recently diagnosed HIV+, its been very hard for us. I have been depressed and scared of getting him sick. Its so hard to believe that he has it and even harder for me to type this, and tell others. I'm not a very open person but I NEED to meet other people who have HIV and live normal lives, I need to know its possible for him to live a long life. I need support and advice from others going through similar situations as myself and my husband. I tested NEG twice so far but I still am required to retest 2x more before a final negative reading will written in my medical records. I love my husband very much and will do anything to support him and be there for him.

"The good things donít always soften the bad things ó but vice versa ó the bad things donít necessarily spoil the good things or make them unimportant."
Doctor Who Series 5: Vincent and the Doctor
SW: 232
CW: 203.2
LGW: 150


 current weight: 211.0 
 
232
208.75
185.5
162.25
139
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