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Positive Positives HIV / AIDS and Our Supporters

A Guide to Posting in Your SparkTeam Forum

  FORUM:   Introduce Yourself to Team Forum
TOPIC:   Hi all 

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Author: Message: Sorting Last Post on Top

SparkPoints: (1,325)
Fitness Minutes: (1,512)
Posts: 4
2/26/12 9:54 P

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Welcome Pattie,

A new diagnosis is almost always overwhelming at first. You are right that it is not the death sentence that it used to be, but it is hard to believe that at first.

I have been HIV positive for at least 28 years, and probably a few more than that. It is hard for me to remember what it was like before I tested positive. I am fortunate that there have been so many advances is meds and the like since I first began this journey.

My best advice is to take things a day at a time at first. Help your daughter to find a good doctor, one who listens to her concerns. Over the years I have been fortunate to have had some very good doctors, but I also fired one doctor who I couldn't work with. A good case manager will help greatly to sort out the many you and your daughter will have to deal with.

Good nutrition is important along with getting more in tune with your body. Now, if I feel like I am getting tired, I take a break and take a nap. I focus on the important things and accept that I don't get to do everything that I want. Truth be told, it is good advice for everyone.

I am also fortunate to have a good group of supportive friends and family. It took time to develope the trust to share my status with others, but now I accept the fact that if someone has a problem with my status, it's their problem and not mine. Life is too short to fill it with people who can't handle the news. Real friends will be there for you, the others probably weren't good friends anyway.

Hope life gets better for you soon.


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PATTI7177's Photo Posts: 290
2/26/12 12:05 A

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Thank you for the warm welcome. I am sorry for your situation but I am glad you have found some positive aspect of it. May you both enjoy many years of good health!

 current weight: 229.5 

PHEBESS's Photo Posts: 31,157
2/25/12 10:40 P

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Hi and welcome to the team!!! I'm married to someone who, after our 7th year together, found out that he was HIV pos - after 10 years of false negative tests. It isn't optimal, but hey, it's easier than dealing with something like cancer. Changes how both of us view life - we both appreciate small things, our time together, all that.

Healthy eating and exercise help.

And you might talk to a dr to find out if there's a support group in your area.

Hugs to you - it's normal to be numb for a while.

"Dance as if no one is watching."

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PATTI7177's Photo Posts: 290
2/25/12 7:13 P

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Hello everyone. My name is Pat and my 27 year old daughter was diagnosed with HIV and hepatitis C just yesterday. I am numb. Although I know it is not a death sentence, the thought of losing a second child is overwhelming!. My son died while risk taking 3 and a half years ago and a large part of me died too. My daughters and grandkids are what keep me alive and going everyday. I have a lot to learn and look forward to reading everyone's posts. I am glad I have a safe place to look for support. She is not ready for people to know so I have few people to talk to. Thank you all for being here.

 current weight: 229.5 

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