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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,404
7/29/12 6:19 P

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Caroline, I think that is "calling the Kettle black!" Nine Surgeries is more than plenty! I hope no more for you also....

aria

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aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


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CBEVNOW's Photo CBEVNOW Posts: 6,318
7/29/12 5:59 P

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Aria, i sure hope you dont have to have any more surgery. I think you have had enough. So take care of your self. emoticon emoticon
Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,404
7/26/12 11:57 P

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Caroline, Yes the surgery can be easier if they are blessed with lapiscopy. But i have read not all removals can be done that way... as I said.. I had an 8 inch incision on my side and back. I also since then have had a c-section, Lapiscopy tubal ligation and a Bi Lateral Breast reduction... so some of my "hints" are brought over from them also :)


~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


 Pounds lost: 30.0 
 
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CBEVNOW's Photo CBEVNOW Posts: 6,318
7/26/12 11:01 P

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Thank you Aria for your information . this was very interesting.
Do you think that today this surgery might be a little easier on the donor than it was years ago. I know when i had my Gall Bladder removed years ago it was much harder on me then it would be today. Every thing has advanced so much. Just a thought. emoticon again.

Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,318
7/26/12 10:54 P

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Welcome, Kim, yes we love having you on our team. A huge THANK YOU for being a donor. This child is fortunate that you are doing this, it gives him another chance at life. Please keep us informed. Please post about this experience, when you feel like it. I know it will help us understand more about donating. emoticon emoticon

Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,404
7/26/12 3:26 P

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glad they will be able to possibly do a scope... i have an approx 8 inch scar on my back...the scope will help with healing time totally!

~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


 Pounds lost: 30.0 
 
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KIMEDWARDS24 SparkPoints: (47)
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7/26/12 3:08 P

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Thanks for the list... I'll keep that for when I am packing! I live in WNY and the surgery will take place in Boston. If all goes as planned they will do it with 3 incisions and a scope. I expect I'll be out of town for about a week and then out of work for a short while. I'll definitely keep your suggestions in mind! emoticon


"Rowing harder doesn't help if the boat is headed in the wrong direction." ~ Kenichi Ohmae


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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,404
7/26/12 1:00 P

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part 2... sorry it is longer than planned and of course pick and choose what ya need! ~aria

11.If you have a choice of which Kidney... chose your non-dominate hand side... it will affect the first couple days of surgery while the insision is up but after that... it will hurt less on your dominate side... which often allows you to do small stuff faster...
12. Have people lined up to drive for You for 6-8 weeks (my last surgery)... My son has therapies 2x a week... I gave Print outs of pics of the people allowed to pick him up both to the school and therapy agency they still asked for IDs but were also able to identify faces quicker.
13. If you can pre-freeze meals do... then all you need to do is warm via microwave, oven, or crockpot.
14. Write a letter to the boy receiving your kidney... you will probably never deliver it... but it helps the emotional process.
15. You may want to ask about plastic surgery techniques to verify it will minimize the scar and scar tissue. (I got to be my Urologist's Practice patient on the new stitch technique he had learned the weekend prior to my surgery... I am thankful for very little scar tissue 20 yrs later)
16. Have the A&D ointment available and Aquifor or Lubraderm or citrofil (think I mispelled all of those) lotion ready after 6-8 weeks and the incission has closed... the new scar will itch.
17. Be creative in your cleaning... Broom with a dust rag (or swiffer) can go up the walls to clean or down to dust baseboards... there are "modified" solutions online...search them out.
18. Find and stock up on Good Books and hand crafts or Hobbies you have been meaning to do.
19. Listen to your body... and communicate it to your dr and nurses... the 2nd time they got me up to walk, all of a sudden I felt like I was going to black out... By giving the nurses warning they were able to get me safely to a chair. (Not wishing this on you but if something doesn't feel right let them know and decide.)
20. Other than when I wasn't allowed to eat right before and after surgery, I did not have a limited diet... a hamburger brought in by mom, a pizza by another friend... etc Some Hospital food is great others you may beg for the burger....
21. Take your cell phone... it has your phone book in it... Possibly make a phone tree so that person at the hospital with you isn't calling 30+ people.. we set it up so Mom called 2 people (aunts & uncles) then each of them called 2-4 people to relay news..on down the lines. "Surgery was a success..."
22. By the time you get to shower again you will be needing it...if they offer ya non water shampoo use it... it helps.
23. Take Music with you... I spent a lot of my time just having earphones in so I didn't have to listen to the beeps of IV machines, heart monitors etc.
24. Buy a puzzle book or 2... word search, sudoku, etc. When confined to the hospital Variety is helpful.
25. Leave all Jewelry at home... it is worth not losing it.
26. If the offer you pain meds and you feel you don't need them (right then) say so... they can hold off- 6nd give it to you a bit later... but take the meds before you are *really* hurting besides dull ache cuz pain is easier to prevent than try to "chase" after it is getting bad..(this is for at home too)!
27. Plan on sleeping alone for a bit...every move someone else makes you will feel.. (unless you have a temperpedic or air bed).
28. Move!!!! Yes I mean it once you are home from the hospital do what you can and push yourself BUT DON'T OVER DO IT!!!! I.e.listen to your body
29. Exercise as often as possible prior to the surgery... the more fit you are the faster you heal.
30. After surgery, have your PCP check on your kidney function from time to time...you want to keep the only one left healthy and by a few tests they can catch problems before they may get bad.(more than likely they will come out within normal range since you do not have issues, but once a year at the physical won't hurt your budget or Kidney.
31. The Kidney foundation has excellent info, don't discount it.- they also sometimes have grants to help with utilities etc while you are layed up due to surgery and can't work some agencies more than others.
32. Water!!! Not sure your location but remember the hotter and more humid it is out ... affects your need for water... we keep a filtered pitcher in the fridge for cold water (I can't drink room temp water much... but know your preference and know it may change with the surgery...use a straw... you drink more with a straw and it works your lungs.
33. Remember you can stager pain meds... RX and Ibfn (once ok'd to use it again as it thins your blood) so every 6 hrs RX and 3hrs in take a Ibfn so it will wear off 3 hrs into your next Rx pill/dose. Remember your Rx med probably has Tylonel in it so don't over do Tylonel.
34. Take sweats and lots of them... my waist had the incission... the elastic needed to be comfy not too tight/binding...same with undies... buying a size bigger for the surgery isn't bad...
35. As much as you may not care for the support hose on your legs...WEAR THEM! They prevent more problems than they can cause. Even after you go home...
36.have slip on shoes (loafers, flip flops, slippers) bending over to tie your shoe won't happen for a bit
37. Shave/wax your body before the surgery... it won't last your healing time but you won't have unsightly hair that's 2+ inches either.
38.if you have long hair have someone french braid it... for surgery and after ...you won't feel like dealing with it for a few days.
39. Take a Prepaid phone card ($20 for XX min of long distance calling) ... hospitals want you to use them for long distance calls.
40. Take a real box of tissue their small boxes are handy but hard on the nose.
41. If You don't need it... tell them no... they will bill ya for each item of medical supplies.. But don't be too worried about the bill.
42. Make sure your dr and your anistesilogist knows for sure your drug allergies AND things you don't respond to "typically". ie Demorol has the same affect as saline solution on me. But it isn't on my allergy list cuz I don't "react" to it as an allergian.. it just has no therapudic use for me.. one surgery I forgot to tell the antistigologist they woke me up after administering a mega dose of Demorol. Needless to say I was hurting.
43. Take button up pj tops and comfy bottoms... they are more comfy and cover more (especially prior to surgery if you are there for anytime before they roll ya in)..an older pair is ideal cuz if they get messed up they go in the trash.
44. Take pics (copies) of your family with you and a roll of scotch tape or precut "pkg"... you can tape them to the wall or the table for the time you are there..it also allows you to hang up "cards" you receive.
45. Attitude is everything!

Edited by: MALKS_ARIA at: 7/26/2012 (13:27)
~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


 Pounds lost: 30.0 
 
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KIMEDWARDS24 SparkPoints: (47)
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7/26/12 10:56 A

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WOW - thanks for the info... I hadn't thought about the adrenal gland... I'm at work so I'll come back to re-read this again later today. I look forward to Part 2 another time!

"Rowing harder doesn't help if the boat is headed in the wrong direction." ~ Kenichi Ohmae


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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,404
7/26/12 10:45 A

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So much has changed in 20 yrs.. but in my experience... the things I learned that i will pass on...
Part 1 - will post more a bit later :)
1. as soon as they say you can exercise DO!
2. Your Body will go through adjustments... Hair texture / color, Pain Tollerance, etc from the anistisia... as well as the Surgery
3. You will have "Phantom" Kidney Pain/awareness to it's function ... for me this was normal.
4. Be ready to drink a TON of Fluids.... Ask the dr their recommendations... but the recommendations I was given is approx 1gal or 128 oz of water / tea/ non cafinated Soda... a day to keep the other kidney flushed properly... this was more so the first 6 mo.
5. Find out how extensive... Are they removing an adrenal gland too or just the Kidney... Adrenal Gland removal effects how you process Stress.
6. I would wakeup craving salt... eat 2 or 3 low sodium Saltine Crackers and then drink 20-32 oz of water... The reason you crave the salt is to retain more water.
7. Understand You just had *major* surgery... you will not be lifting for 6-8 weeks.. so if you have young Kids have them crawl into your lap.
8. Use an extra pillow or 3.... they help and make difference... carry one with you for a while... laughing hurts so does coughing..
9. You can function Perfectly well with just one Kidney... and it is worth it.
10. I still have a nerve that is sensitive after all these years... when I first started seeing long term my Significant Other I just warned him to press firm or else I will feel tickling, and or wince ... from the sensitivity not pain.


~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


 Pounds lost: 30.0 
 
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KIMEDWARDS24 SparkPoints: (47)
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7/26/12 9:53 A

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Thank you! I'd love to talk to you about your surgery and living with one kidney... if you have time to write back that would be great!


"Rowing harder doesn't help if the boat is headed in the wrong direction." ~ Kenichi Ohmae


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MALKS_ARIA's Photo MALKS_ARIA Posts: 2,404
7/26/12 9:36 A

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I definately am not boss around here... but welcome :) It is "Kidney Related" and we are very thankful for the choice you are making. Many of us here are in varying degrees of Kidney Issues... I currently have Poly-Cystic Kidney had a Kidney removed in 1992 and they have found a cyst on the last kidney... but thankfully for now my Kidney Function is "normal". I at times feel like the "odd one out" but it is my own insecurities and doing... cuz these ladies are emoticon !!!!!!!!

aria

~~~~~~~~~~~~~~~~~~
aria

3 pounds at a time!! I can do it!!

Small Steps pave the way to big changes!!

No matter the obstacles, we can climb over them!


 Pounds lost: 30.0 
 
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KIMEDWARDS24 SparkPoints: (47)
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7/26/12 8:52 A

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I am working to lose 12 lbs by Sept 1st to continue with the next round of testing so I can donate my kidney to an 11-yr-old boy... I'd like to join your team - if you'll have me! emoticon

"Rowing harder doesn't help if the boat is headed in the wrong direction." ~ Kenichi Ohmae


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