Hello my name is Tommy and i am 41. sorry for the typos and misspellings lol i cant take the speed of spell check :P i was first diagnosed WAY back in 1998 with F S G S . At the time they thought i had 2 months to 2 years before i would be on dyalisis. I do believe i am a stage 4 - I think in 98 i was a stage 3 .My story is LONG ( thank you God) In 1998 the doctors installed a natural fistula shunt - WOw things were moving fast , At first i had no hope, i thought my bell was about to toll. I wont even put into writing how i punished( treated) myself for the next 6 or 7 years . I suppose in 2005 they told me i was in remission ::: shakes his head around:::: what happened to the 2 month to 2 years deadline ? Even though it had been nearly 7 years i was still waiting to wake up dead. How my life was changed. Ok to the point - sorry i'm long winded , i cant imagine people will read this but i got a story to tell - this is it in a nut shell
In 2005 i had a son :) Still self loathing with lots of bad habits and getting fatter by the day. But wow he is another turn around the corner . I'm now the dad? This took some getting use to (still) but i started to come around -My boy was 2 i was like 37 - and 335 lbs. We are at the zoo one day , having a great time ! I had him all excited to see the tiger exhibit , it's that way i point ! Bang he is off like a shotgun ! Aww how cute ...he is running == wait a minute , i'm starting to fall behind... sucking wind!! running after a 2 year old who is losing me . There it was ! my life flashed in front of me as i started to panic about losing my son . I'm going to DIE right here in the zoo and mmy little guy is going to be lost and no one will know - ok you get the picture - thank god he stopped and waited for me ( granted he was maybe 20 30 feet ahead of me but still ) I got him by his hand ( sucking air hard) i could just seee me sitting in my wheelchair to fat to play ball - you know , it all just hit me - i couldnt bear the though of him standing over my coffin because i liked to sow fast food and drink beer . that was it man - It ended right then and there. the next day i me and a old friend i confided in joined the YMCA = it was something like the biggest loser with a trainer . Wow i started using a food diary and workking out . i was motivated. the weight started comming off - next thing you know im going from taking 30 pills a day to taking 10 27 months later i had lost 162.5 lbs . I'm up 10 pounds from my lowest weight right now around 180 . My doctors say i am good at this weight . Oh yea i hit my goal came off all these drugs = my creatine levels went down = in 1998 it was 3.5 - its been as low as 2.3 my last test it was 2.9 - its always been up and down I think as high as 7 at one point .then in june the doctor was like yea you have shown increase signs of protein in your urin 2.5grams - then 3 months laster in augit was 5- Great news FSGS possibly active again ( not great news sarcasem ) so here last week i did another 24 hour collection it was down to 4grams - and another type of protein reading had cut in half - yea i should probley educate myself a little more on my disease i'm to busy trying to will it away to think about it . which is why i joined this group last week and just decided now to write my novel . Anyway my doctor told me he did not think FSGS was active again ( of course im waiting to wake up dead any day now HERE WE GO AGAIN!) I've never really felt sick except from the meds - and like after they tell me " maybe its active " then i start feeling tired and bla . ANYWAY at least on the scale im not over weight ( in my head i will always be that fat guy) I am now that girl in highschool who would eat a dry salad and talk about how fat she is when in reality she is thin. even when i just made that comparision i thought is that accurate? am i thin ? so i'm really just going by what people tell me sidetraced again :
ok i've come to the point LOL i need to control my protein!!! i've never really followed a renal diet and i figure its about time i do . 67 grams a day - 2300 cal to maintain the weight i'm at . i'm usally at my protein limits between 1200 and 1500 cal so any tips on foods to eat to keep my protein down and my calories balanced .would be great my diarys should be wide open for all - i welcome everyone who wants to be a spark friend to hit me up -
Before this protein thing smacked me in the face - i was starting to think i was in the clear . I was thinking about opening a gym , becoming a personal trainer - maybe helping people. Cause i gotta say i was a worthless slug - if i can lose 160 lbs anyone can because there was not a person more lazy then i! with more bad habits! Then i heard the words - "could be active".here again i wonder is the bell going to ring? should i not bother with this trainer stuff ? opening a gym? sounds like a pipe dream . oh yea i stopped smoking years ago - before i lost all the weight . .... I stopped smoking ??? i lost 160 lbs ????
someone tell me something I CANT DO !
here is my gallery of my before and after - probley have to cpy and paste the addi into your browser
| current weight: 162.0