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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
8/31/11 7:50 P

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My targets are 50g of protein (35 from flesh), 160g carbs, 2000mg sodium, 1000mg Phosphorus, and 2000mg Potassium.

My meal structure is:
5 oz of meat/protein daily.
7 servings of Grain/Carbs
3 servings of fruit
3 servings of veggies
5 servings of fat
65 oz fluids

I don't' have a calorie target. but this generally works out to be 1200 or less a day. Because carbs have the greatest potential to raise blood sugar, I'm to spread them across three meals when I'm eating protein (which slows down sugar absorption). My snacks are usually a fruit serving or raw carrots and once in a while some salt-free mini pretzels. I often eat extra servings of fruits or veggies because they don't have many carbs.

I know Jean's meal plan is completely different and so is Caroline's, I think. Maybe it's because I'm diabetic? Not sure....



Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
JO-ANIMATION's Photo JO-ANIMATION Posts: 1,252
8/31/11 5:52 A

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I guess we all are seeking that "magic"!! Sorry to hear that you have to start over again, but you did it once, I believe you can do it again!!! I meditate for keeping positive! And it does get frustrating with everything I am doing, not to see the scale move, but I feel good! So, I focus on that! Mindset is important!! I realized that after dx and wondered why I just wanted to sleep all the time. I suppose many of us have to "push" ourselves...we understand, others without CKD sometimes don't get it! I just keep trudging on...I lost 2 pounds after 2 weeks of intense workouts and eating healthy...it's a start!! And a big accomplishment for me...I know it's hard for me to lose those extra pounds...and I know most of the time it's easier to just go to sleep and "wish," but that's just undermining my goal!

What was you're eating plan like when you lost the weight? I would love to know!! Get back on that saddle, if you haven't already. I'll cheer you on!!

There is a Rainbow even after the worst of storms. js
The 3 keys to SUCCESS: Confidence, Persistance, and a Dream. js
Do or Do Not, there is no try. (Yoda: Star Wars)


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
8/30/11 2:15 P

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Wish I had some magic for you! This was right when I was diagnosed and I wasn't doing any exercise or dieting. Then I saw the renal dietician and got my diet directions. Started following the diet and dropped 15 lbs. I hadn't even added exercise to my routine yet.

Then I started up my sugar bingeing again and I'm right back where I started.

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
JO-ANIMATION's Photo JO-ANIMATION Posts: 1,252
8/30/11 11:16 A

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Thanks Claire and Darlene!!

Darlene: I agree 1000% with everything you said. Glad you went organic too!!

Claire: yes, I'm worried about my poor eating habits too. thanks for that! I have added more calories to my diet, and you are an inspiration! Congrats on your weightloss. I have lost 2 pounds and am jumping for joy! That's because I am staying more active. I am not diebetic. Not sure you knew this...so I have no diet restrictions from the nephrologist, even with salt. But I was only eatting about 500 calories a day, which i knew was bad...never hungry, so I am eating small things throughout the day, until I can get to see a renal dietitian. Can hardly wait!! My exercise routine is pretty intense. So I know I am burning the carbs I eat in the morning off. Then I either have a protein shake (genisoy) or eat low fat lean protein, sometimes meat or cheese or beans. No carbs any other time except the morning. I make tea and take the vitamins that I was told to do now, again! Feeling a little less tired, but if I go to my room, the bed is still quite tempting, but I try to lay down for just an hour and meditate to get rid of stress...that seems to be helping. then I will eat those smaller meals (maybe six) noshing on fruits and veggies...no carbs only in the morning, protein after workouts, and snacking on fruit and veggies. So far so good, I am in about the 1200 calorie range now instead of 500, so it's a step in the right direction.

How did you lose? Any tips?

There is a Rainbow even after the worst of storms. js
The 3 keys to SUCCESS: Confidence, Persistance, and a Dream. js
Do or Do Not, there is no try. (Yoda: Star Wars)


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
8/29/11 7:51 P

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Jo, many people actually have to add calories into their prescribed diet because otherwise they would not hit their calorie target. All those veggies and fruits are packed with good stuff but are low on calories. So they have an extra tbs of olive oil or butter. I found this to be true on the diet I was given. I lost 15 lbs in a month and I was only 25lbs from my target.

But one must follow the diet absolutely with no cheats to see if this would be your experience as well. (I have fallen off the wagon and am now reacquainted with those lost lbs!)

I look forward to hearing what your renal dietitian will say about your current eating schedule it may not be what you eat but also when you eat it. I'm still concerned about the morning carb loading (I know someone said that was ok but there I've not found any documentation from any reputable kidney disease authority that agrees so I'm concerned for you.).

Claire
********
Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
DARLENEK04 Posts: 28,034
8/29/11 1:27 P

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I agree Jo....I only buy organic.........I don't use sweetners....I don't bake anymore,
so no use for them. My husband uses Stevia in his coffee but thats it.

From research the aspartame and goop they use for blood thinner, Coumadin, are both
ratpoison. My husband does a lot of research, so it is helpful to know what kind of poison
is being pumped into us.

Another thing, the harassment Dairy farms are going thru here and in Canada for selling
raw milk is pathetic...I saw last week in the news where the FDA along with a FBI swat team
raided one dairy farm.......confiscated all their milk, cheese and stuff..that is intimidation in
America.....and what happened to free choice.


If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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JO-ANIMATION's Photo JO-ANIMATION Posts: 1,252
8/29/11 9:21 A

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Thank you Jean for the WELCOME!!!

As I wondered and asked before, has anyone had any luck losing weight with CKD? I know everyone is different...in different stages, different ages, different reasons how we developed CKD...but I was hoping that someone in our group can give me just a smidge of direction.

I don't eat much, once a day, usually. I am trying to limit carbs to morning, exercise to burn those off, keep as active as physically possible, then after about at least 1 hour of REAL excersise (1/2 hour cardio, 10 min abs, 20 mins of strength, 15 minutes of stretch or yoga and 10 min of meditation) I eat protein. I am trying to not eat and go lay down...but eating makes me sleepy!! And it's so hard to break this habit. (Most of you are not strangers to fatigue either, so I have read!) I am trying to not eat after 6pm and between 3 and 6 either eating fruits and veggies or juicing. I've been doing this for the past 2 weeks and nothing has changed on the scale!

Any help would be wonderful. I do not have a renal dietitian, YET! I am going to ask about that on my next dr. appt. I believe its at the end of Sept and Nephrologist is in Oct. Until then, can ANYONE give me a little help?

That's nutrisweet, right? I only use organic stevia...even regular stevia is not very good for anyone. I am eating organic, have seen and read too much on the hormones and antibiotics our dairy cows and other animals (chickens) which are administered to produce more. It's banned everywhere else in the world, except in America! Got to make those extra bucks, it's really criminal, but its FDA approved...the poor cows are so SKINNY and sick..and there utters are HUGE!!.thus the reason for antibiotics. No wonder children are bigger and reaching puberty quicker in the US. And many people are becoming more immune to antibiotics...I know I don't need any more hormones for one, you all probably don't need them either, I'm guessing. My adrenal glands are all messed up...It's a little more money, but worth it, our health and the health of our family is more important, what do you think about all this?

There is a Rainbow even after the worst of storms. js
The 3 keys to SUCCESS: Confidence, Persistance, and a Dream. js
Do or Do Not, there is no try. (Yoda: Star Wars)


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SETAGOAL1's Photo SETAGOAL1 Posts: 3,096
8/27/11 12:42 P

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emoticon Jo emoticon

You are with a caring group of people here we are glad you joined us.
If you need encouragement please just ask we have plenty to share.

I see you have felt the caring and concern we share.

Have a great weekend

Janet

Janet
EST,
Massachusetts, USA


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DARLENEK04 Posts: 28,034
8/26/11 6:26 P

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Jo,
One other thing, avoid anything with Aspartame in it. Originally was invented as rat
poison............causes me severe headaches........


Darlene

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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JO-ANIMATION's Photo JO-ANIMATION Posts: 1,252
8/26/11 12:27 P

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Thanks once again, Caroline! Lots of great ideas!! I will get the DO (I am going to her b4 the nephrologist)and ask her for that note! I hope one of the 2 docs will do it for me, they aren't too friendly, very business like in nj, hurry you in and out and hardly listen to anyone. Like cattle!!! The website is a GREAT idea...maybe they will understand a little better. I will look for that at my other posts! Thanks for all your help!

There is a Rainbow even after the worst of storms. js
The 3 keys to SUCCESS: Confidence, Persistance, and a Dream. js
Do or Do Not, there is no try. (Yoda: Star Wars)


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CBEVNOW's Photo CBEVNOW Posts: 6,318
8/26/11 1:45 A

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Jo, i posted on another forum for you about being tired. this is one of CKD symptoms and it is so true. I had the same problem My hubby didnt believe me, when i would get so tired sometimes after doing some thing like cleaning a closet or changing bed linens. I finally went to one of the kidney sites and printed all these things out for him, so he could see them. dont let any one try to push you to go beyond your limit it will only make things worse for you, and your kidneys.Eating can be a problem also. I have Fibro and osteo arthritis, i can not take any pain meds for this so its not fun.
Also the stress can really make us ill, i to had my beloved grandson die 3 years ago in a car accident, i was care taker of my 93 year old mother and she died later so i know the feeling. I try to take care of me, we cant help what others think, we have to take care of us. Yes i have to make my self do things some times, But i have learned this hurts more than it helps, so learn to go at your on pace. I to like to sleep but it goes in spells, some times i cant sleep at night. Lately i have been sleeping good at night. but i will still take a little nap in the day.I had my Dr. write a note to my family as to how serious CKD is and the symptoms i had like sleeping were normal. Ask your Dr. to do this for you and then your family will believe what you are saying.
A Renal dietitian is the way to go, for they know Kidneys and what you need as to what your blood work says. and yes i am anemic off and on, so see you are of the norm with CKD. My Phosphorous got so high i had to take a binder then got it down to normal and I'm off the binder, but i have to watch it very close.
You are normal as far as all these things go, so dont feel bad, just take care of you, be the captain of your ship.
My exercise is walking, that's what i like to do.
Caroline emoticon emoticon emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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JO-ANIMATION's Photo JO-ANIMATION Posts: 1,252
8/25/11 10:58 P

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Thank you SOOO much for all the info! Thank you Darlene, Faith, Claire and Caroline...hope I didn't miss anyone!!

I don't drink soda at all, but I do have to up my water for sure! I have a tendency to get very low in potassium (dehydrate all the time) and have been on rx potassium many times. So, hubby is always getting me low cal Gatorade, but this is a recent thing. I, like many of you I am assuming, get low in iron, I've been on rx iron (YUCK!) and B12 shots...I'm trying to get better with the vitis! I've also been on rx D way too many times...so lately I have changed some things, out of desperation!! I have gone organic, especially with any meats and proteins and trying to juice (what a pain!). I also buy organic stevia.
I exercise A LOT...also great for some other medical problems that crept up, like RA, IBS, and I sometimes get "thrown" out of the gym I belong to, I have a personal trainer, but she's just a kid, but she works me out pretty hard. I also jog, started last year. I've been doing yoga for over 10 years and do classes for about an hour. I find that the yoga really helps the aches and pains. I was dx with fibro...but I question that. So, what I am getting at is exercise isn't an issue for me, but an eating plan is. My husband, Don, will call me from work to "remind" me to EAT!!! That's how bad I am. I am sure I am in a starvation mode(and have been for a long time) and I am going to both my nephrologist and DO soon, so I am going to look into the dietitian everyone recommended. I have been to one, quite some time ago, but I wasn't dx with the CKD at that time, it was for the high blood pressure. But I have cut salt out of my diet since my 20's. I am 52.
Even though I exercise alot, I need more activity. After and before, all I want to do is SLEEP!! I know that's a big problem too. Anyone else have this problem? I literally have to PUSH myself to do stuff. ANYTHING!!! I was always the "gogo" girl, always doing something. And my metabolism was really good, now it's about zilch. I'm on beta blockers for high blood pressure and other meds that slow down my metabolism and make me fatigued. I need to talk to the dr's about that too. Anyone have CKD due to high blood pressure? Like I said I have had it since I was a kid. My kids have it too...they are all in there 20's and like myself at that age, they don't pay attention and don't take there medication. I take it very seriously...and I know STRESS is the worst. But who on this planet doesn't have stress in their lives...since Mom, grandmother and best friend died all in a 6 month period of time, I felt like my whole world fell apart. It was a lot since I was so close to all of them, I lost my support circle and that is really important for all of us with CKD to keep the stress down and have a good support circle. Not too many understand, I found out, except others with CKD!!! I think my husband and adult children just think I'm lazy...so that doesn't help. I'm not depressed, just completely wiped out, probably why when I go out, I try to stay out!! Otherwise I go right to my bedroom, my lair as I call it! Trying to make small changes sometimes feels so hard!

When I was dx, I had an MRI...just awful, right?!!! HOLD YOUR BREATH!!! They found my adrenal glands were enlarged and I have tumors on both. Also a small tumor on one kidney. So, I have read that is more bad news for not having an appetite or for the metabolism. When I jog, I can get my heart rate up to about 120, not too bad, I guess. But it takes a lot to get it there because of the meds! Anyone else have problems with the adrenal glands or medications? The drs really don't help with info and diet...just go over test results and send you on your way with a pat on the back!!

I'm so glad I found this site!! I look forward to helping anyway I can! Like said before any help is welcome, even if you talk about what you eat or how you initially got CKD helps. I know everyone's body is different, but we can pick up little tips by hearing others stories and what helps them. I'm already looking at the one site I have seen on this team that was recommended. Davita has a lot of good info, but I really am going to look for that dietitian. Hope the doc will give me a referral. In the meantime, I will poke around here and post often. Thanks for your help and any help you can suggest along the way!!!

There is a Rainbow even after the worst of storms. js
The 3 keys to SUCCESS: Confidence, Persistance, and a Dream. js
Do or Do Not, there is no try. (Yoda: Star Wars)


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CBEVNOW's Photo CBEVNOW Posts: 6,318
8/25/11 9:20 P

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Wow, i am so proud of all of you. Great information from all of you for our new member. We do care for each other on this team and try to help each other and give our support. CKD is a difficult disease, as Claire said we have different needs in our diets.
Darlene says drink water she is so right and no pop, colas what ever you call it. if you drink any thing Tea is ok and once in a while a Serria Mist by Pepsi. I do not use Splenda, did you know it has Formaldehyde in it. I use Stevia it is a plant based Sweetener. You can buy Stevia in the raw and use it cup for cup like sugar.
A Renal dietitian is the way to go, some Dr. wont recommend a Renal Dietitian unless you are in 4th stage, insist you want to go because it is preventative and this will usually get he or she to see your way.
Ducky is our runner and i walk or my dog Lexy walks me. Exercise is important also for your bones.
I also take extra Vitamin D3 5000 iu a day as to what my Neph says. And a prescribed vitamin called Renal Caps. I also have high phosphrous and really have to watch it.. There are some good sites to go to on the web.
Jean follows the dialysis diet and has kept her
ckd under control. We are all different but i believe we have learned a lot from each other on this team. Respect, care, love, honor, i wish i could meet every one of you some day.

Caroline emoticon emoticon emoticon emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
8/25/11 7:33 P

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Also, Jean has put together a pretty comprehensive listing of the things one should and shouldn't eat. You'll find those threads in the "Kidney Health" forum on our team page. The threads are named "Fruit/Juice" "Dairy" and so on.

Caroline, one of our team co-leaders, uses the diet planning tools on the aakp.org website (American Association of Kidney Patients). That site has all kinds of good stuff!

Each of us have a slightly different diet depending on how our kidney disease is progressing or retreating, so no one is going to be able to hand you a paper and say do this. It's extremely helpful to use the services of a renal dietician (which you will hear from us over and over again!), so if you doc hasn't referred you to one get him/her to do so. The dietician is the one that can tailor your diet for you based on your blood test results.

Welcome to the team and good luck!


Edited by: CLAIRE_LEFT_SP at: 8/25/2011 (19:34)
Claire
********
Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
DUCKYONTHERUN's Photo DUCKYONTHERUN SparkPoints: (26,961)
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8/25/11 6:04 P

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Welcome Jo.
I myself only have 1st and occasionally 2nd stage kidney problems. My problems are usually acute. But my father is on dialysis. His kidneys are totally failed and I care for him so I am very familar with the issues.
I think Darlene covered everything initially. She's awesome, isn't she. We are here for you.
Faith

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DARLENEK04 Posts: 28,034
8/25/11 3:59 P

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Jo,
Welcome to the group. I am no expert by any means, but the first thing I would suggest,
is don't let this get you down. Everyone has something going on, some more than one or
three or more.

Jean and Caroline have been at this far longer than I, and know a lot more....but both are
dealing with personal issues right now, so I just invited myself to welcome you and try to
help a bit. I am sure they will be checking in with you though as soon as they can.

I would recommend if you drink soda to stop. I drink a minimum of 12 cups of water a day,
sometimes more if I am outside for any length of time, no tea, and only one cup of coffee a
day, however that will stop if it does not stop upsetting my stomach.

What I researched on my own is this: don't overdo the protein, potassium, or phosphorus
foods....now having said that, what I think you need to do is find a RENAL DIETICIAN. She/he
can recommend much more healthy items for you...

I take high dose Vitamin D3, 3000 units a day...and my dr. recently had a bone scan done &
mine are doing great.
I should tell you I have Hypo-thyroidism which causes lethargy, High blood pressure which the
meds are bad for the kidneys which is why I am frantically trying to lose to get off those meds,
I also have Arthritis, and back problems.

I can sympathize with the no appetite, I eat a lot of veggies, chicken breasts, anything I can
to aid my health.
You are blessed to be a lot taller than I am. LOL...I am 5.3...

I think if you can get linked up with a Renal Dietician, you will feel more in control and they
would be the healthiest choice.

Let me know if I can answer any specific questions or help you in any way....

Blessings,
Darlene

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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JO-ANIMATION's Photo JO-ANIMATION Posts: 1,252
8/25/11 2:24 P

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I was dx with ckd stage 3. I wound up in the hospital back in 2006 dehydrated and docs found out than. I have had problems with high blood pressure since I was a kid...and boy, do i need HELP!! I was thin all my life, now I'm not hungry and weigh more than I ever have. Between 180 and 190 (I'm 5'8")...and really don't have a direction. The nephrologist and other dr's I go to say just do what I'm doing, that I am doing great, but I think they are CRAZY!!!! LOL All I want to do is sleep,so tired! I go to the gym and overdue it (excerise guru!) and I'm clueless on what I am suppose to eat and not eat...would soooo appreciate some guidance!! Everytime I look in the mirror I see a fat person, which also takes a bad turn on doing things that I use to love! I'm losing bone and muscle mass...so I am sure it is my diet, since I am never hungry!! Well that's my little story, and I hope I can help some of you and of course am going to look through this team for tips!! Hoping I can break that 180 mark!!!

There is a Rainbow even after the worst of storms. js
The 3 keys to SUCCESS: Confidence, Persistance, and a Dream. js
Do or Do Not, there is no try. (Yoda: Star Wars)


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