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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
12/10/14 11:08 A

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Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 13,354
12/10/14 9:18 A

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Improvements! No protein in urine either month!
Lab results:
December 3, 2014
BUN 17 (normal!)
Creatinine 1.6
eGFR 32

October 8, 2014:
BUn 29
Creatinine 1.7
eGFR 30





.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
10/29/14 10:16 A

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I am sorry to hear that! Take care of yourself! emoticon
jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 13,354
10/29/14 10:07 A

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Was in ER last night with atrial fibrillation, a new thing for me. They are putting me on new drugs, not happy about it, but better than a stroke I guess. Hope the drugs do not further interfere with my kidney function.

.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 13,354
10/18/14 12:52 P

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.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
10/18/14 9:26 A

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keep on keeping on and dont give up!
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jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 13,354
10/18/14 8:40 A

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My eGFR was 30, BUN 29, Creatinine 1.7, all off.
Everything else was in range even my A1C. I hope to improve by next time.

.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 13,354
10/9/14 9:53 A

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.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
10/9/14 9:34 A

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My GFR is 66 woohoo! my creatinine is 9.0, phosphorous is normal, BUN is 15, but my D is low

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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KLASSONES38's Photo KLASSONES38 SparkPoints: (16,167)
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2/11/14 1:40 A

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Just got the official news (figured, but now it's official), that my kidney is indeed a perfect match for my brother's.

Got the news just when the scale says I have now lost all the weight I gained over the holidays (hospital says they'd still like me to lose 10 lbs, but should be completely doable by July 4th, have a wedding that day in Ohio, will fly from there to Boston for surgery).

Now I just need to figure out where best to recover and who's going to help me...my poor mother is going to have her hands full with both her "kids" post op, but I have at least one aunt and probably 2 (one aunt who said she would, volunteered the other in absentia) who will lend a hand, so we should come through it with flying colors emoticon

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1/31/14 4:42 A

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Thank you BohemianCat, and happy to hear your good news, I don't think it should ever feel wrong to share positive health news emoticon

So back atcha...brother is out of the hospital and had a terrific day today, after a great night's sleep. Somehow figured out a good position to sleep in despite the new port in his neck.

AND his regular dialysis place says his arm port seems to be healing perfectly and ready for use...hospital that fixed the fistula said it could be 1-2 weeks. So we'll have to wait for the official go-ahead from them, but still, it's a positive sign.

I gotta tell you all, I'm almost ready to take my own kidney out with a spoon and just FedEx it to my brother. Sorry for the graphic image, but it's easy to not even really think about it when things are going well and my brother's at the gym or hanging out in town with his friends, but then something like this happens and I feel the need to hit the fast-forward button. I had told them summer was the best time for me, and it is, and they still want me to lose like 15 pounds, which should give me plenty of time to do just that, but then stuff like this happens and I feel like I should fly home next weekend. Bah!

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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 13,354
1/29/14 11:55 A

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Sorry about your brother. I will pray for him.

Not to steal your thunder, but I am better. My creatinine and BUN are normal. The eGFR is still low, 31, but up from 26. Sodium, potassium, magnesium, calcium are all normal too! Woo Hoo!

Edited by: BOHEMIANCAT at: 1/29/2014 (11:56)
.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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KLASSONES38's Photo KLASSONES38 SparkPoints: (16,167)
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1/29/14 2:13 A

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Bah!!!!

Brother is in the hospital.

Fistula got clogged, went in for surgery to fix and couldn't due to blood clot and embolism...so the poor kid had to get a catheter in his neck to get his dialysis.

IN HIS NECK???? That just sounds wrong...

Has any one else ever heard of this happening?

As bad as I feel for my poor brother, I feel horrible for my poor mother, who is physically and emotionally exhausted...her birthday's coming up in the next few weeks, I'm racking my brain trying to come up with a great birthday gift for her to give her some kind of respite from all she's going through with my brother.

My dad is there and so is an aunt, so thank goodness for that, but she's the one at the hospital with him...and apparently the staff at the hospital isn't as patient-friendly or efficient as she would like, long waits with no updates.

He's due to be released at some point tomorrow, so I guess this will pass, but geez...I just keep picturing my poor lil' bro getting tapped like a keg in his neck. What a wretched turn of events.

Thank you to all for letting me vent, not that I'm even the one who needs to vent at this point, but I'm hating the fact that I'm not there to comfort my brother and mother emoticon

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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 13,354
11/11/13 11:46 A

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My latest lab still show stage 3 kidney failure.
I am believing for healing.
I will pray for you CBEVNOW, and ask for prayers for myself.
Linda

.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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CBEVNOW's Photo CBEVNOW Posts: 6,327
11/3/13 3:10 P

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My latest medical , has not been so great. Lots going on. will post later on this. emoticon for me please.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
5/8/13 12:21 P

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I got my labs back today - while things are still in the "normal" range - they are slightly elevated since my colonoscopy. My last test in Sept 12 : my creatinine was .88 is now .97. I will still take it! My bun is 15 and was 14 and my GFR is 61 and in the fall it was 70.

Not bad!

I have some work to do though - My white blood count is low and my cholesterol is 5 points high... I only had high cholesterol once and I got it down in 7 weeks... I am going to work hard to repeat this!

I will be getting my blood work done again in 8 weeks!!

Jean

Edited by: LIFE-FAITH at: 5/8/2013 (12:46)
Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,327
2/15/13 1:05 A

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Here is a good site to go on, very informative.

Life Options very educational lifeoptions.org
or http://lifeoptions.org/
check it out/ emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
12/26/12 3:22 A

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I am checking my BP and recording it for my Neph, and will Fax it to her after 4 weeks. If its better i will see her in 4 months if not i will go in right away. I hope every one is doing good. Take care all.

C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
12/17/12 1:14 A

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I went to my Nephrologist on Tuesday Dec. 11. I am doing good. Kidney function is 51%, my Phosphorus is still high, so i am still taking Foresonal , a binder for Phos. My vitamin D is still low( Slightly) so continue on Vitamin D3 of 5000 units a day.
Parathyroid hormone, is elevated but with in acceptable range. I'm still anemic so i will continue medicine for this. My Blood Pressure was 191/102 that day, and i had a headache. I had to rest in the office for a while. So she upped my Cardizem again for high BP.
i found out by way of internet, Looking up all my meds and there symptoms, 3 weeks before my appointment, with her, I had all the symptoms of this one BP med i was on, and i had been feeling bad for 2 years now, My former Neph. just did not listen to me. So i quit taking it, all these symptoms went away, i could not believe how good i felt. also another med was causing my heart rate to be rapid, so she took me off of this. I am to keep a record of BP for 4 weeks and let her know how it is, if still up i will go back in Jan. if not up i will go in 4 months. I say i am doing good because every thing has NOT CHANGED THAT MUCH, so that is good, except BP. It has been good since Dec. 11.
So be sure and check your meds, never stop a medication until you check with your Dr. first.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
11/23/12 5:01 P

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I am walking better every day. BP is still up and down but not as high as it was last week, Thank you Lord.

C emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
11/2/12 8:51 A

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emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon Alec!

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,327
11/2/12 2:53 A

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Great for you Alec, my GFR is 51 % so i know how you feel. Diet, and exercise is such a big part of this disease. Keep up the great work.
emoticon emoticon

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KAYAK001's Photo KAYAK001 SparkPoints: (8,506)
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11/1/12 7:04 P

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good news from my doctor, results of my blood test today shows that my GFR has improved to 50 (from a low of 39) and my creatinine is now down to 142 (from a high of 177) looks like diet and loosing weight is helping. i don't need to back for another month.

emoticon alec

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CBEVNOW's Photo CBEVNOW Posts: 6,327
10/19/12 9:56 A

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Well i am still having the heel pain, i dont know what the Dr. can do, i have to go back and see him. Other wise all is well at the moment.

emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
10/10/12 12:01 A

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WOW, you are doing great. I go tomorrow, to my lady Neph. so im hoping for some different in put. I could never relat to my Neph. who is closer by, but i need results. She, new Neph is in Knoxville about 20 minutes away at St. Mary's Hospital. She is suppose to be one of the best in this area.I have been gaining weight and i am miserable, i need to get some results on this..As you know when i cant walk this doesnt help and it makes me feel like i cant breathe.

Jen i am so proud of you, Be sure and tell every one on this site how you followed your diet and i still say this is a key issue.
c emoticon

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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
10/9/12 6:52 P

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Caroline thank you for the link...

I have a big emoticon emoticon emoticon emoticon news to report!!!

My GFR is 75 and my creatinine is .88 I am almost to stage one total readings with my CKD! My new neph was so impressed today - they wrote down everything I have been doing!!
I do not go back for ONE whole year!!

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,327
10/9/12 3:22 A

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Here is a good site, you might want to look at, it explores so much about CKD in a very easy way to understand.

www.kidneyfacts.com

C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
10/5/12 8:21 P

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Thanks Jen, i did the water thing, still painful, i think i will be going back next week to Dr. I still cant walk.
I am sure every one has read about the Arsenic in the Rice, i was reading a article about it and it amazes me all the things that have Rice in them. So manny different foods, with Rice. Please read labels and then make your own decisions about what you can eat. There also was a recall on some beef from Walmart Stores, i never eat any meat from Walmart. So watch out for this and the Peanut Butter .
C

C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
10/2/12 6:14 P

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I did see the popcorn lung info.

Freeze a bottle of water.. and then roll back and forth 10 - 15 mins a day.. it works! I had a heel spur and this is the only thing I did to remove it.

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,327
10/2/12 4:34 P

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Went to Dr. last week and i have a Plantar Fasciitis and a Heel Spur and it is very painful, i have been limping for over a month now (hoping it would go away) I am on cortisone so i will swell up like Puffin Stuff and this stuff makes you hungry for any thing. I was on it before and my Dad said i believed you would eat a greased rock, i felt like it.
A Plantar Fasciitis can be caused by Arthritis, which i have, Going barefoot which i do in the house all the time with my socks on.
the meds have helped a lot and Dr. told me to get a heel pad, which i did, but today is first day of trying to walk on it and still painfull. So now time to rest it a bit. emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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9/23/12 10:20 P

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Has any one seen the article on the microwave popcorn. The man who ate a least 2 bags a day, and now has a rare disease and he won millons of dollars in a law suit.
I can not stand to smell microwave popcorn let alone eat it. But that is me. It has aleays been stated that microwave popcorn is not good for us, so please if you eat it, please reconsider.
C emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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9/21/12 8:41 P

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Woo Hoo, for you Jen.I still dont know any thing.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
9/21/12 8:39 P

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OH MY My creatinine levels are .88 - the best reading in four years since I was diagnosed with CKD.

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,327
9/16/12 7:25 P

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Jean, The best to you on PT and massage, I hate Pt. but it does work. I hope your pain level will be lower.

I am off to see my PC Dr. tomorrow about my heel and knee. He will say, well i have to send you to a specialist, i hope not, i get so tired of this, just xray it and get on with it.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
9/13/12 2:22 P

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btw: my ankle's arthritis is the cause of all my discomfort and pain!!!

I am off to PT for about 6 weeks and message therapy...yipeee

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
9/13/12 2:21 P

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Yes - that is how it goes...

Oh Caroline - 26? GREAT job on moving it back up!

It matters what we eat and how we move.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,327
9/13/12 12:32 A

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GFR-Stages of Kidney Disease
Stage 1--90--- ml/min or higher
Stage2--60-89---- ml/min
Stage3--30-59--- ml/min
Stage4--15-29--- ml/min
Stage5--less than 15 ml/min
My Neph. explained it like this 4th is dialysis and 5th is transplant.

I was in stage 3 when diagnosed i did drop to 26 one time but i brought my GFR up to 46 to 3rd stage and still holding. It can be done with diet at least this is how i did it and walking for my exercise .

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
9/5/12 9:13 P

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Go ahead and remove it Lab and Blood work.
I do not want to confuse any one on this team.

Caroline emoticon

Edited by: CBEVNOW at: 9/5/2012 (21:30)
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
9/5/12 6:13 P

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Oh... so sorry I was editing my response when you replied... no - just post in this one - I do not have the Lab or blood work stickied.

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


Total SparkPoints: 132,200
 
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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
9/5/12 6:11 P

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Those are the facts on how we got here, yes. But, that doesn't really answer my question - do our team leaders want us to update the same info in 2 different threads?

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
9/5/12 6:07 P

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Claire - I am leaving this thread in the introductory forum - Caroline started the other thread earlier in the summer. (Lab or blood work)



emoticon emoticon emoticon Keep going Claire!!

Edited by: LIFE-FAITH at: 9/5/2012 (18:11)
Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


Total SparkPoints: 132,200
 
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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
9/5/12 5:24 P

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I'm a little confused on our threads. What is the difference between this thread and the "Lab or Blood Work" thread. I've always updated the other one with this info - are we abandoning the other one?

Seems like a duplicate to me....

Here's the update I just put in the other thread:

Got my blood tests from 8/17 testing:

eGFR 53 (stage 3)
Potassium 3.6 (normal range 3.5-5.2)
Creatinine 1.14 (0.60-1.40)
Sodium 144 (135-145)
Phosphorus 3.0 (2.5-4.5)

So, even though I'm not eating a good diet and not exercises, my #s are better than they've been in a while - go figure.

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
CBEVNOW's Photo CBEVNOW Posts: 6,327
8/21/12 11:40 P

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Claire, have you heard any thing on your blood work yet. Let us know how you are doing.


Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
8/10/12 1:09 A

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Claire, hoping for good news for you.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
8/9/12 6:16 P

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Jean, you are doing so well! I'm glad you like your new doc, too.
emoticon
C, I know you're working hard on your health and you'll keep plugging away at getting healthier.
emoticon
I had some blood tests done just before I left for Mich - I called today and asked them to send me a copy of the results, so I should have something to report next week.

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
CBEVNOW's Photo CBEVNOW Posts: 6,327
8/9/12 3:10 A

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Thanks Jen. I am doing good, very carefully watching all morsels going into my mouth. Sounds like you have a good Neph. now, i am so glad for you. It is so important to have a Dr. you can believe in.


Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
8/7/12 5:30 P

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emoticon Caroline

I saw my new neph today - she is VERY pleased with my stats and what I am doing to maintain my CKD. All of my numbers are good and holding at stage 2. The BUN is within normal limits but for me is high. She told me to drink more water... I said hmmm... I drink almost a gallon a day... maybe I was dehydrated when they did the test... fasting an d all that - I tend to wait to drink a lot until after the test... grrr!

I go back in 2 months.
Very different from my neph.. made me get undressed to do a full body check and urinalysis. She went over everything with me. Did not have that done before either. I LIKE HER.

So I want to encourage all of you find a neph you trust and LIKE. Who will make you do things you dont want to do - tests, getting undressed..ect. They are good ones.

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,327
7/29/12 6:46 P

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Hi, every one, well i had my visit with my Neph on the 25, this past Wed. I really am going to have to get to work.
GFR was 45 down from 52----Creatine is 1.23----rage is o.60to 1.10 so its high
Sodium was 142---range is 136-145 so i have to watch this and i do so i cant understand this, but will have to be reallt careful.
Phosphorus was up 2 points but under limit, so pretty good there.
Ferritin is low, so i am on this to get my level up, i knew i was anemic, i could tell by the way i have been feeling.
Parathyroid is high--67.2--range is 15.0to65.0.
Uric Acid is 5.5 ==range 2.4-5.7 so its up
So i have some work to do.

Caroline emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,327
6/28/12 7:28 P

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Claire so sorry about your labs but they are still pretty good. You know you can work on them. Jen, you are doing awesome.
Me i will know in a few weeks where i am at in my labs.
Take care every one.

C emoticon emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
6/28/12 1:34 P

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I got my labs back:

I am still maintaining my stage 3 CKD at stage 2 readings However: my BUN is too high! Too much protein in my system... ugh!

My GFR is at 67 woohoo! and my creatinine is down 0.07 points... from 1.0 to .93
My phosphorous is 67.

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


Total SparkPoints: 132,200
 
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124,999
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,827
6/27/12 8:54 A

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Keep going Claire - do not give up the fight!
emoticon
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


Total SparkPoints: 132,200
 
100,000
112,499
124,999
137,499
149,999
SparkPoints Level 20
CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
6/27/12 5:10 A

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I got lab test results about 10 minutes before I left for Michigan. I don't remember the exact #s, but my eGFR is in the mid 50's - down from 63 - and my creatinine is toooo high. My sugar binge is doing it's damage.

Claire
********
Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
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