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6/26/11 2:10 P

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Thank you all again for the welcome
Sorry the steroids have sent me into ff and have sprnt last few weeks blitzing house cleaning frOm top to bottom
My first blood test after steroids has shown gfr up 15 to 45
But unfirtunately I've now gotca kidney infectiOn
And as my form of kidney condition is an allergy to medication
To NSAIDs and the nephrologist did not want me to take antibiotics as they are another cause of my particular condition in some people I'm pretty anxious as steroids are also suppressing immune system and masking how bad infection is just worrying that could go back to square 1 or worse function drop down again was on gfr 30 sorry for moany post just lack of sleep over last few mths and pain have made me cranky
I need to come on spark people not fb to fill stuff in
I'm going biggest loser

CBEVNOW's Photo CBEVNOW Posts: 6,457
6/17/11 10:47 P

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So sorry I'm late on the welcome, emoticon I'm glad you are on our team, this is a very caring and sweet team. We try to help each other any way we can. I'm in 3rd stage and holding and i want to stay at this stage. We support each other any way we can. Feel free to post any time. Again WELCOME.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.

 current weight: 20.0  over
NANA-JEAN's Photo NANA-JEAN Posts: 8,938
6/16/11 7:09 P

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emoticon emoticon emoticon

WOW! So glad members welcomed you - I am not getting my SP mail.
Welcome to the team!
Please feel free to ask questions, goal a goal, post a post... no worries on how long.. or just hang out and read up on kidney health.
I hope you find encouragement and support on your journey to health!
and learning how to love your kidneys.

Dad: BIBLE: Basic Instructions Before Leaving Earth
me: FAITH: Forwarding all issues to heaven

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA

Those who think they have not time for bodily exercise will sooner or later have to find time for illness.~Edward Stanley

"Seventy years are given to us!Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone

 Pounds lost: 34.0 
6/16/11 4:38 P

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Thank you so much for the welcome
I think I could be a " lucky " kidney illness sufferer as I was fit and healthy until feb apart from my weight and within 2 weeks of me being ill they found kidney function had dropped dramatically and I've had the last 5 mths to read up on kidney diseases
They tried to at first to say it was diabetes and high blood pressure
As have family history but after 3 different diabetes tests all negative and resting bp of 120/70. They started looking at auto immune then after those tests returnees a negative they did a biopsy which Is how I was diagnosed
If this is acute I can recover well but still theta a chance I won't
As my cholesterol is high ( started craving salty butter as my potassium level dropped ) I was refered to a Dietician
I have had my diet evaluated And apart from tge salty butter which has been removed already my diet was balanced and healthy
I hate the taste of pop / soda diet or otherwise I don't eat crisps/ chips etc candies junk food not too keen on meat
I cook from scratch dont add salt to cook or to meals and I'm trying to find lower sodium stuff
And low fat but notice they lower fat and raise salt content on stuff grr oh and I'm drinking 3 litres water but keep forgetting to hit my water button on here !!
Sorry for waffle
I'm seeing nephrologist in the pm and get blood and urine results 1 week after steroids
Will let you know how it went thank you again
Thank you all for listening to me
My problem is portion size and eating too much healthy stuff

ROSES17's Photo ROSES17 Posts: 11,847
6/16/11 3:43 P

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emoticon to the team. I think you will like it here. There is much information here and if there are any questions, ask away- don't be shy.

Eastern North Carolina

 current weight: 266.0 
DARLENEK04's Photo DARLENEK04 Posts: 34,602
6/16/11 3:37 P

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Welcome to the group. We are all in the same boat, one way or another.
Drink your water, if you drink soda stop, especially diet..................

Let us know how we can help you...


If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher


A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb

 Pounds lost: 19.0 
WENDYJM4's Photo WENDYJM4 Posts: 20,566
6/16/11 6:48 A

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hi and welcome to the team and good luck on your weight loss journey emoticon . By eating healthy, exercising and by looking after yourself is the right way to go. This is a very supportive team and if you have any questions ask us. Read as much as you can on the team home page, Jean (team leader) has loads of information there.

South Australia

(GMT + 10:30)

 current weight: 233.0 
6/15/11 10:38 P

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hi i am a mum of 2 and 42 yrs old
ive been told i have tubulointerstitial nephritis due to an allergic reaction to a NSAIDs called voltaren prescribed by my dr i only took 1 dose the 2nd dose came straight back up
my kidneys are at 30% function im anemic low on pottasium and now hypercholesterolic

am on steroids to supress my immune system just started last week and have been told to lose weight which was my intenmtion in jan bfore i became ill the treadmill is testament to that ! im on low fat low cholesterol low salt diet
the steroids have given me an energy i havent had since jan but i cant fully use the energy as i had biopsy just under 2 weeks ago have found my sleep is terrible the lack of it making me hungrier than normal and i know the steroids will too and also cold develop diabetes from the steroids so ive got to control my weight my eating and exercise sorry a bit ranty
and hi everyone i do waffle a lot

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