I am 50 years old and was diagnosed with ESRD in May of 09. It was quite a shock. I had developed high blood pressure a few months previously and the Dr. had been trying to find a BP drug that worked for me that I was not allergic to. I ended up in the hospital one night with scarily high BP. After running tests, the nephrologist came in & told me I had stage 4 ESRD and that I would probably need dialysis and a transplant.
My biggest questions were Why and How. Not why me? but Why did this not get noticed before? The kidney dr. got my labs from my regular dr. and looked them over.(I love my regular dr. & my nephrologist. They work closely together.) Apparently, my #'s must have been going up and down because he showed me that the #'s all looked to be in the "normal" range. If my BP hadn't shot up that night, it might have been even longer before it was found. I did not go on dialysis right away. The dr. recommened it but my #'s were up where I could survive without it. I put it off until April of '10. I finally couldn't take being tired and not wanting to eat anything (both my drs. were getting concerned about my weight loss). I have been on dialysis since then. I go 3 days a week/4 hours at a time. It's been a big adjustment. BUT the first day after I had my first treatment (in the hospital) I woke up and was hungry! Both my drs. just about danced for joy!
I am trying to get on the transplant list but one of the conditions is a dental exam and I do not have dental insurance. Nobody that I've talked to will take a new patient w/o insurance. The search continues.
My husband wants to be a donor but we are different blood types. We want to do the cross matching but I still have to get that dental exam!
I respect all of you that have donated kidneys. I wish more people would. Last August, my husband & I did a "walk" for the NKFI (National Kidney Foundation of Illinois). We talk about organ donation to almost everyone that we meet. It is vitally important.
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