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5/2/15 9:34 A

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Hi Nelliec,
emoticon to our team!
There is much info in our forums on how to love your kidneys.
Please update your email to include updates in our forums, as I update monthly and try to post new information on kidney health.
I did respond to you in the char forum.
Please post any questions and explore our many topics in the informational forums.
God Bless you!
Jean



Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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NELLIEC's Photo NELLIEC Posts: 40,448
5/1/15 1:51 P

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Hi, I just found out the other day that I have kidney disease. I will be hearing from a specialist about having an appointment. My daughter, who is an RN, let me know about a kidney class, so I will be going to that soon.

I do have to say this came to me out of left field and was quite a shock to my system!

Maintaining.

2 Timothy 1: 7
For God did not give us a spirit of timidity, but a spirit of power, of love and of self-discipline.
Nellie
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AMYROSEC's Photo AMYROSEC SparkPoints: (260,041)
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2/8/15 3:28 P

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Hello Jean thank you for the welcome!

My dad had a visit with the Kidney Dr. and he is up to 25% up from 20% 3 months ago. He has a tricky diet to follow low potassium, low sodium and low phosphorus. It seems that when you find things that are low potassium it is high in sodium, or it is low in sodium and high in potassium. I do the cooking of his meals and I must be doing good with it as his kidney function is improving. I really don't know what stage he is in as my mom didn't ever say. He doesn't exercise much as he has really bad pain in his legs and the Dr.'s have no idea what is causing his pain.

I was just curious with getting the stones if that will increase my odds of getting CKD. Every 3 months I have to do a 24 hour urine collection test for Uric Acid. They want me to drink 12 cups a day, I can only manage to drink 10 a day. I have been talking to a Dietician about the highly restrictive High Oxalate Diet the Urologist wants me to follow.


I am so happy to hear that you are up to the stage 2, that is terrific news!

Amy

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1/27/15 8:56 A

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emoticon Amy,
With your dad having CKD you could develop CKD, depends upon whether his CKD is iatrogenic (caused by a treatment or drug) or if it is hereditary.

I will encourage you to ask your doctor to monitor your creatinine,GFR, and your BUN - these numbers will tell your doctor if you have any type of issue with your kidneys, and while these numbers will not tell all, they are the first thing to check.
We have much information in our forums on these numbers and what they mean. If you google creatinine, GFR and BUN our team pages should come up.

With kidney stones, I would push the water daily and become educated about what to do to minimize the stones.

Welcome to our team, I hope you find this info helpful. Please ask more questions if need be.
I do not know if your dad can improve his kidney function with dialysis right around the corner, but I would definitely encourage him to try.
I was diagnosed in stage 3, now I am stage 2. I eat kidney friendly foods, exercise 10 - 30 mins 3-4 x a week, push my water (almost a gallon a day some days), sleep 6-8 hours (8 is the goal), and I watch what meds they put me on... no motrin, aleve, ect with ibuprophen.

Jean



Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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AMYROSEC's Photo AMYROSEC SparkPoints: (260,041)
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1/27/15 12:10 A

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Hello I am Amy......My dad had CKD. His kidney function was at 16% and with changing his diet it has gone up to 20%. He is tired of fighting and having such a restricted diet. He takes I do believe it is Keflex( it is a liquid) once a week to rid his kidneys of excess potassium. He says the stuff tastes horrible. My mom and I went with him to a kidney dialysis class about 6 months ago when he was at the 16%. He does not want to go through dialysis at all.

I now have a problem with kidney stones and I don't know if this will end up as CKD later in life?

Edited by: AMYROSEC at: 1/27/2015 (00:11)
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CBEVNOW's Photo CBEVNOW Posts: 6,378
12/28/14 10:54 P

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MBLIFE, you are so right to be concerned about any type or stage of Kidney Disease. Please see a Nephrologist as soon as you can. do you know for sure you are 2nd stage. What is your GFR.
I want to stress any Kidney Disease is something to be concerned about.. Please take care of your self.


Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,378
12/28/14 10:50 P

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Drockstar, have you seen a Nephrologist or did I miss that. I would recommend one to see. they can tell you so much more about this disease. And yes Jean is so right no no meds like Aleve etc.. there are so many different things you can and cannot have ---Only due to what your blood work says. Also another no, no is Pop or soda as some call it, depends on where you live. very bad for the Kidneys. My Neph did say I could have Sierra Mist once in a while if I wanted. But im not taking the chance. As you see with my diet , for me I have been blessed to be 3rd stage for some 7 years.. dropped to fourth stage, one time and it scared the begevies out of me so got strict with my diet. So back to 3rd stage again.
best to you on this journey.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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DIETROCKSTAR's Photo DIETROCKSTAR Posts: 93
12/21/14 3:59 A

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Thanks for the comment Jean. My doctor is really on top of things. He keeps on you. He kept pushing for the weight loss. I know a lot of people hate that from their doctor. I did too. So I did something so I wouldn't have to hear about it anymore. That, and I kept getting bigger and fitting into nothing.

I have started meditating. I am working with a therapist. These are struggling times. Ibuprofen helped me function a lot. Now I have to say "no" a lot more.

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DIETROCKSTAR's Photo DIETROCKSTAR Posts: 93
12/21/14 3:59 A

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Thanks for the comment Jean. My doctor is really on top of things. He keeps on you. He kept pushing for the weight loss. I know a lot of people hate that from their doctor. I did too. So I did something so I wouldn't have to hear about it anymore. That, and I kept getting bigger and fitting into nothing.

I have started meditating. I am working with a therapist. These are struggling times. Ibuprofen helped me function a lot. Now I have to say "no" a lot more.

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MBLIFE24's Photo MBLIFE24 Posts: 201
12/11/14 2:14 P

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Hello! I'm new to the forum. Just found out fairly recently that I have Polycystic Kidney Disease and an enlarged liver. Doctor wasn't too concerned and gave me very little information, but I am obviously concerned! Based on reading lots of information online and having my numbers from a life insurance check up, I would gage it as stage two. That is just an assumption on my part. It has somewhat rocked my world. I know it is genetic and have several family members currently on dialysis. I would like to avoid that if possible, or stave it off as long as I can.

"Sunshine is delicious, rain is refreshing, wind braces us up, snow is exhilarating; there is really no such thing as bad weather, only different kinds of good weather."~John Ruskin




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ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,423
11/2/14 9:08 P

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Welcome new members! This is a great team with a wealth of good information and resources!

Lady Di
from the Land of Lincoln
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11/2/14 8:04 P

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Hi, emoticon to our team!
I really want to encourage you to seek other pain relieving methods other than ibuprofen, as this is what caused my kidney disease. I was on 800 mg 3x day ... as I have a handicapped ankle. I have learned to live with the pain and use other methods for relief... ice, heating pad, exercise when tolerated, message therapy, elevation, and yes I have checked some info on medical marijuana... do you know it can come in pill form?

emoticon on your weight loss!

You can maintain your ckd if you choose to eat a diet that is kidney friendly. It is nice to read that you have a dr who is showing concern in stage 2, they dont usually say much until stage 3 and that is still minimal, it is stage 4 when they get pushy to change things... and by then you may need dialysis... or get on the transplant list...

We have much info in our forums on how to love your kidneys and maintain your stage.
I would go to the information forum and click the very first page and click on topics that interest you - then ask questions. We have a wonderful team and everyone willing to help, as Wendy and Lottie have demonstrated.

Please feel feel to post in our forums, ask questions, update us, share info.

The best I can tell you from the get go to love your kidneys... eat a kidney friendly diet, exercise 10 + mins a day, 7-8 hours of sleep a night, drink 8 -10 servings of water a day to flush your kidneys, and learn all you can about kidney health.

emoticon your kidneys
jean


Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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DIETROCKSTAR's Photo DIETROCKSTAR Posts: 93
11/1/14 2:32 A

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Hi,

I just found out I have Stage 2 CKD. I have had it for over a year, I just didn't realize that is what my doctor was saying. He said to watch my Ibuprofen usage. I have fibromyaglia so I use it quite often. I went back this week for a physical and I had a shoulder issue which I wasn't sure if it was arthritis (I'm 48). It turns out it is a shoulder impingement. He okayed me to take ibuprofen 400 2 x a day for this for 3 days. As I was leaving the office, they now have a checkout station. They give you a print out of all your health issues. I had no idea I was in a stage of kidney disease and have been for more than a year. I just got my latest egfr which is 77.

I don't have diabetes or heart disease. I lost 80 pounds so I would not get those things as they run in my family.

Needless to say, I have not taken any ibuprofen since. I am looking into medical marijuana, if I can find out information on kidney toxicity. I hate the smell of pot. I never thought I would have the need for that crap. But I read about a component called CBD which doesn't get you high and is an anti inflammatory agent. I was told for so long to take ibuprofen. That it was ok to take up to 2400 mg a day. Doctors are full of crap.


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10/15/14 2:05 P

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emoticon Magnolia

emoticon emoticon emoticon

Welcome to our team!
We have much helpful info in our forums!
Please feel free to ask questions, post in our forums, and get involved with
our team!

emoticon
emoticon Your kidneys!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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MAGNOLIA416's Photo MAGNOLIA416 Posts: 5,030
10/15/14 11:02 A

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Hello! I have Renal Lupus Glumeronephritis. It's inactive!! But I've been really sick in the past and my kidneys are damaged.

I'm interested in positive, empowering information and support to help my kidneys function as well as possible, for as long as possible!



If you don't like the road you're walking, start paving another one!

Dolly Parton


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9/28/14 11:04 A

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emoticon Tiffany,
I hope you find much information to help you with loving your kidneys in our team forums! I believe we have a post or two about kidney stones. We do have a ton of information for people who may not have kidney disease, but want to avoid it. Most of us on our team do have chronic kidney disease (CKD), some have given an organ and some need a transplant, while others may have polycystic kidney disease, so we are a diverse group of people who want to love our kidneys!
Please feel free to ask questions, post in the forums, and share information.
Glad you are here!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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PETE4JC's Photo PETE4JC Posts: 1
9/26/14 1:43 A

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Hi, I'm Tiffany. I'm happy to find these teams to join. I really need a community to be able to talk to. I don't know if I technically have kidney disease. It has been very hard to find definitive information about things. What I do know is I have been diagnosed with hyperoxaluria. My body can not process oxalates like other people can. As a result, I have had multiple kidney stones for the last year and a half. I've read that the disease I have is known to affect the kidneys and liver. I hope it's ok that I joined this group.

FLSUNSHINE1931's Photo FLSUNSHINE1931 Posts: 3,773
9/24/14 10:00 P

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Thanks Jean for the welcome. Means a lot. It is all new to me, and am trying to find what I should be eating to maybe reverse this.

Going to bed now, have a Ladies Group meeting in the mornng at church.

Have a good night's rest.

Marsha
emoticon

"God will take care of what you go through. You take care of how you go through it."- Zig Ziglar

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9/24/14 9:00 P

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emoticon emoticon emoticon
Hi Marsha!
Welcome to our team!
We do have lots of information in our forums, please do not hesitate to ask questions, browse and post in our team forums!
Let me know if there is anything you need help with.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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FLSUNSHINE1931's Photo FLSUNSHINE1931 Posts: 3,773
9/24/14 7:06 P

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This is all new to me. I went to the doctor for blood results, and said I had type 3 kidney disease. Said that I should be fine, but didn't go into any food that I should watch out for, so on the computer I get. I love Spark, so figured there might be a forum here. Sure enough.

I am 83, and she said that I should not worry because at my age it is not unusual. I still want to be around for a while.

I am a widow lady of a little over 2 years, live by myself, but Nov 1st I have a dear church friend moving in an apt over my garage. I have one wonderful Son that talks to me every day, keeps my yard up, and a wonderful Daughter-in-Law, 2 Grandchildren, and 6 great grands. I live in Fl. as you can tell by my name. :Just call me Marsha.

I will check the threads and will jump in soon.

Marsha


"God will take care of what you go through. You take care of how you go through it."- Zig Ziglar

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SAMMIESMOM13's Photo SAMMIESMOM13 Posts: 5,900
4/27/14 12:10 P

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thank for your quick reply. I have read alot of your posts here, looking for help. Part of the problem is, I am doing this for him, not myself. He hates to exercise, I mean - I have to constantly keep after him to get up and walk. It should be 3x @ 10 min. a day, minimum. Well, good luck with that. Multiple meds, one of which says "low/no leafy veggies". Oxygen, lab work, nebulizers (COPD), I am just worn out being nurse, chief cook, and bottle washer. My house is a disaster, and I am so worn out I just look at it and feel like crying. I have my own issues, bad back/leg pain. So I am just looking for whatever help I can find. I will have to try and find out if a dietician would be covered in his insurance. Otherwise that is not an option. I don't really need recipes, I need "menus" to give me more of an insight. Soups have been a good option, but now with summer coming I need to find out what else I can make. I love to cook, but this is so beyond limiting I barely know what to do at this point. Thanks.

Carol
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4/27/14 11:46 A

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Hi Sammiesmom - I know how overwelming it can be to find out what is healthy is not healthy for diseased kidneys.. I am re-posting info on nutrition this week... so please be patient.

Because so many things impact our kidneys please read my post from today: www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=13217x36692R>x57662241&src=email


I want to encourage you to go to the national kidney foundation website kidney.org and Davita.com and sign up for their newsletters and search their sites, as they do offer recipes and other helpful info.

I feel I need to clarify two things: Most of the nutritional value postings in the forum if for those who have severe kidney failure, can you please clarify for me what stage your dad is in? If you do not know this - I want to encourage you to make a phone call and ask. This will help you clarify exactly what should be included and excluded in his dietary needs. I can then help you further narrow down a few things - but with his diabetes and chronic kidney disease you may need to consult a dietitian.

the second thing is - while I can offer guidelines I am a kidney patient who shares her experiences and research in our forums, I am not a doctor and I encourage all to follow their doctor recommendations as we each have unique issues with our kidneys.

Please do not hesitate to email me or leave a post. I will get back to you.

Please look for nutritional info this week.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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SAMMIESMOM13's Photo SAMMIESMOM13 Posts: 5,900
4/27/14 11:14 A

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I have joined this team because I am caring for my dad who is pre-diabetic and has kidney disease. I am trying to learn about diet and what I can feed him. In reading posts here I am getting just about to the hair-pulling stage. Easy items- no salt, no/low sugar, less meat. But then I find because of potassium and phospherus - low intake of things like oranges, bananas, beans, lentils, etc. Now I just finished the low phospherus post- no whole grains. My gosh, what is left to eat by the time you get thru these "don't eat" things? I am just about to my wit's end. Plus I have been trying to find information on sample menus to cook for him. I can't find anything basically. Just lots of "don't eat" lists. I am on a very low income and can't just run out and buy cookbooks, and then find it isn't anything I could/would really cook anyway. Went to the library, all sorts of vegan/vegetarian, low carb, etc. diets but nothing for this sort of thing. I just don't know what to do at this point. Do you have any posts here that I've missed for what he CAN eat? Please HELP!!! Thanks.

Carol
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4/22/14 10:47 A

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Hi Rosie emoticon

I will encourage you to implement lifestyle changes that can help improve your kidney function: drink water through out your day + one cup of cranberry juice a day, get 7 - 8 hours of sleep a night, exercise 10 - 60 mins a day.

Avoid foods & beverages with a high content of phosphorous. Know that foods that are considered healthy like dark green veggies and whole wheat are not good for kidneys that are diseased.

I will encourage you to explore dietary needs at the national kidney foundation, visit www.kidney.org/ to enroll and look up dietary needs for being in stage 4 kidney failure. Avoid processed foods, fast food, and sugary beverages.

There is much info within our forums - in the Informational forum.
I hope you find encouragement, support and information within our team.
emoticon your kidneys!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ROSIEM10's Photo ROSIEM10 SparkPoints: (15,607)
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4/22/14 4:24 A

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Hello all, I am Rosie and it seems I have being very ignorant to Kidney disease. I learnt 2 weeks ago that I have a count of 29, was not explained to me that I was in a severe state of 4th stage kidney failure, I did my own research and got quite a shock! Where from here....I have no idea, open to all thoughts and ideas!

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4/22/14 4:19 A

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Hello all, I am Rosie and it seems I have being very ignorant to Kidney disease. I learnt 2 weeks ago that I have a count of 29, was not explained to me that I was in a severe state of 4th stage kidney failure, I did my own research and got quite a shock! Where from here....I have no idea, open to all thoughts and ideas!

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ASOBFALLS's Photo ASOBFALLS Posts: 11,544
1/16/14 2:03 P

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Stay focused...avoid the goodie tables...buy lots of Fruits & Veggies
well...whatever is in your diet!

Joyce, a Daughter of the King, that is, a Princess!
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Maybe I should move to medical updates...

But boy am I glad to be done with those appointments. I'm still a bit lost in this process, but so far all signs seem to be pointing to GO...

I met with a nephrologist, transplant coordinator, donor advocate, psychiatrist (!) and transplant surgeon. My bloodwork came back all good. CT scan was fine, the surgeon says we're looking to take the left. I figure if he's willing to call dibs, I gotta be more than halfway to the official "greenlight," right?

I'm back home in CA, I gotta do 2 rounds of urine collection (sorry for the TMI), and more bloodwork (one fasting). After that the coordinator tells me we'll get the official word.

Please keep a good thought for me, and I'll report in once I get the final yay or nay...

One thing I'm somewhat embarrassed about, I put on a good 10 pounds over the holidays. The doctors asked me to lose another 10 pounds. So now I'm 20 in the hole emoticon

My hope is that I can lose the 10 pounds by the end of March (before I head off to Vegas for my bday), and then the remaining 10 by my anticipated surgery date in mid-summer (last week of June/early July). Should be completely doable as long as I stay focused emoticon

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1/15/14 9:17 A

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Welcome, Joyce! All the best to you and your husband.

Lady Di
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1/12/14 7:25 P

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emoticon Joyce,
I hope you find much information, support and encouragement in our team forums to LOVE your kidneys. Wishing all the best health for you and your husband in his journey of living with kidney disease.
Jean

Edited by: LIFE-FAITH at: 1/12/2014 (19:26)
Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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1/12/14 4:32 P

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emoticon I am 63 and healthy..still work full time...donated blood again last week! Been awhile.
Hubby is just being told about kidney failure and we are learning about it.
Enjoying the 4 seasons we have in the Misouri Ozarks.... emoticon
Joyce

Joyce, a Daughter of the King, that is, a Princess!
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12/19/13 6:38 P

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Good luck!

Lady Di
from the Land of Lincoln
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12/18/13 11:35 P

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Klass, wishing you the best. Keep us posted. You are awesome to donate. We need more like you.
emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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12/16/13 11:48 A

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emoticon emoticon

Keep us updated and best of wishes!

Jean

Merry Christmas! What a gift you are giving! emoticon emoticon emoticon emoticon

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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12/16/13 3:35 A

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And now the bad news...

I gotta truck my tuchis into Boston for three, count 'em, three appts...12/20, 12/26 and 12/27.

Gotta meet with 5 or 6 different people and go through a battery of tests...I do wish the spirits could do it all in one night, er, the doctors and staff could do it all in one visit emoticon

Please keep a good thought I pass all the tests with flying colors. I'm a bit nervous, I hope I'm as healthy as I think I am emoticon

Will report back. Wish me luck, and happy holidays to all!

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12/5/13 3:40 P

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emoticon emoticon

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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Today I got some terrific news--I spoke with someone at Mass General, someone I've been faxing all my testing results to (physical, bloodwork and the like)...I told her the results are pretty good, but since I had them done in May, they may indicate I'm 50 pounds heavier than I actually am...

She asked for my current weight and height, did a quick calculation of my BMI, and said I should be fine to qualify as a candidate. YIPPPEEE!

Granted, she's just the medical records coordinator, not the doctor, but I figure she must know a little somethin' somethin'...and she sent me a bunch of registration paperwork, so all sounds are pointing to GO. I'm just very happy to possibly get this show on the road.

Just wanted to share my happy news emoticon

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12/3/13 6:51 P

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emoticon emoticon emoticon emoticon emoticon emoticon

Welcome to our team!!

Welcome back to SP!

emoticon on your weight loss and maintenance.

There are a few members on our team who have been donors. What a gift you are giving to your brother - emoticon ! YOU are my hero! You are emoticon !!

Thank you for sharing your story - I hope you stay with our team and learn how to LOVE your kidneys as you will now have ONE kidney doing the work for two - it will adapt, but I am sure you will want to care for that kidney the best that you can.

Best of luck in your journey and best of luck to your brother for a healthy transplant and process! God speed to both of you!

Jean


Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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12/3/13 3:09 A

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Greetings all...

I'm brand-new to the team. This is my 3rd or 4th go-round on SP, I can always lose weight, just have a devil of a time keeping it off, a common tale I'm sure...

This time around I have a strong motivation: my brother needs my kidney.

Is there anyone else out there who had to lose weight in order to donate? I've lost 55 pounds thus far, which is a bit more than half of what I'd like to lose, but I'm just hoping against hope it's enough to please the powers that be at Mass General Hospital. I'm really not made to be model-thin (short and squat and built like a little linebacker, just like all the other women in my family), so I'm really very concerned they're going to tell me what I've done is good, but not good enough...I'm already struggling a bit with the holidays upon us, and I've gained and lost the same 2 pounds for about a month now...

I feel the need to also tell you, I'm healthy as a horse other than being fat. My kidneys couldn't be better. I got comprehensive blood work done, everything was good (I think my sodium was high, by ONE point, doc said don't worry, and my cholesterol should be under 200 and it was 200)-and this was when I was 50 pounds heavier. Shouldn't that make all the difference?

I'd love to hear any donor or recipient stories you'd be willing to share with me. My bro is 35, I'm 39. My parents are 72 (Dad) and 69 (Mom), so I'm definitely the best candidate. But I live in CA and they live in MA, so that makes things a bit difficult as well. He's been on dialysis for exactly a year now. We're hoping to meet with someone from the hospital when I come home for Xmas in 2 weeks. I'm sending them testing results now, but with the caveat that everything's going to show I was 50 pounds heavier than I am now, so if they meet me in person hopefully they'll be impressed. So far I just know we have the same blood type, but I assume there will be some more testing involved...

I'm rambling, sorry but that's my story, I'd love to hear yours!

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My mom was 69 when she received the kidney.

Apparently there is a hard-and-fast cutoff of 70 years of age for donors, but the main surgeon on their transplant team is over 70 and he felt like he could do it, so he gave my dad a chance to prove himself. My dad hardly even has any grey hair at 71--he has aged extremely well.

Dances: salsa (standard/LA), casino, rueda de casino, cumbia Colombiana, cumba Mexicana, bachata, mambo, cha-cha-chá, merengue, reggaetón.

Dances to Learn in the future: flamenco, tango Argentino, samba, belly dancing, bhangra, danzón, Cuban rumba, ballroom rumba


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7/31/13 9:44 A

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emoticon sorry it has taken me so long to get back to you... my dad passed away

I am excited to hear your story! 71 is WOW for donating! How old is your mom? That is great that they are both doing well.

We have much in our forums on how to love your kidneys..

I hope you find much helpful info, support and encouragement in our team!

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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7/25/13 10:03 P

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Welcome to you!
Wow - that is amazing that your dad donated at 71. Good for him for being in such good condition! Glad to hear both him and your mom are doing well.

Lady Di
from the Land of Lincoln
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Just popping my head in to see what you are talking about over here. I got into a discussion today on the main Café board about kidneys and I though I should check out kidney teams

Other than a few stones in my early 20s (I had WAY too much calcium in my diet...long story) my kidneys are fine. However, my mother has chronic kidney disease. In March of 2013, my father donated a kidney to her. She was right at the point where she was going to have to go on dialysis (I think that her function was about 17% at the lowest), so she got the kidney just in time. My father was 71 when he donated, so he had to get all kinds of special permission and have his health VERY thoroughly worked up in order to go through with the surgery.

It was a very positive experience overall and went much better than I had expected. My father is doing great and has healed wonderfully. My mother has had some small challenges in dealing with the anti-rejection drugs, but she is doing well too.

Dances: salsa (standard/LA), casino, rueda de casino, cumbia Colombiana, cumba Mexicana, bachata, mambo, cha-cha-chá, merengue, reggaetón.

Dances to Learn in the future: flamenco, tango Argentino, samba, belly dancing, bhangra, danzón, Cuban rumba, ballroom rumba


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7/15/13 8:41 P

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emoticon to our team!

I used to help you on "cant do this on my own" team... I hope you find much support, encouragement and helpful info in our forums.

We acknowledge our faith but there are teammates who do not share our faith - they respect us and we respect them by not "over sharing".

Please let us know if you have questions - this is a very caring team. We offer support, encouragement and info on our experiences in Loving our Kidneys.

God Bless you and I am glad you found us!

Please feel free to share your experience in our forums.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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7/15/13 4:56 P

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HI all. I currently lead a Christian team here called, Can't Do This On My Own. I recently had a kidney stone, and I can tell you that I will NEVER love any of my kidney stones! What I love about having a kidney stone was relying on God to help me through it and the peace which He gave me through my worst pain, and how He took care of me. Looking forward to getting to know you. BTW I realize that this is NOT a Christian team. In the future I will keep my commits about God checked, but will say I talk about God wherever I go. So, if this offends anyone sorry.

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7/8/13 9:41 P

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emoticon emoticon emoticon
Welcome!
I hope you find much encouragement and support from our team and much information on how to LOVE your kidneys within our forums!

Glad you found us - please feel free to share your story.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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7/7/13 12:47 P

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I am glad you are with us, Auntcat., Are you still on a special diet, how often are you checked by your Nephrologist. Were you on Dialysis, if so for how long. Please let us know about your self. emoticon emoticon
Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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I just discovered this team today. I thought it would be an appropriate team for me to join since I am currently living with one kidney. It will be a year at the end of this month since I had surgery to have a kidney removed. There is currently no evidence of the cancer having spread. My kidney is functioning fine at this time. The fact that I only have one kidney helps motivate me to eat healthier. I AM definitely more into reading labels that I use to be. I DO feel better than I had prior to surgery. emoticon emoticon

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6/30/13 8:53 P

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Nancy emoticon to our team!

I hope you find much encouragement, support and helpful information in our team and our forums.

I wish you the best with your health issues - umm cannot say that I have tried to elevate my feet while on the computer, but would think that is challenging! I could do it with my kindle though!

emoticon emoticon emoticon emoticon Take care of you! and LOVE your kidneys!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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I'm new to the team. I didn't even know it existed until today. I'm seeing a nephrologist that the arthritis doctor referred me to. Two months ago my primary care doc increased the amount of Lasix and Potassium I take to twice as much, which I've done.

Now I am going through a bout of leg swelling that has gone on for at least two weeks. The nephrologist said to up the dosage for four days and have a urinalysis. He also said to elevate my feet for a couple of hours a day. (Have you ever tried to elevate your feet while being on the computer?) I'm hoping to get an answer in the next few days as to what I can do about this.

Nancy


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5/19/13 8:48 P

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Cathy and Linda I want to encourage you with exercise and a kidney friendly diet (dialysis diet - not nephrologist approved) you can maintain your CKD - for me - I started out with almost stage 4 creatinine and GFR numbers - now I am almost stage 1 readings - what this means is I am maintaining my CKD, I still have CKD. My creatinine numbers jump around when I am not sticking to my diet and exercise and when I have meds that affect my kidneys and/or proceedures that can impact my kidney function also (tests with dye need to be cleared with nephrologist, other tests that impact kidneys are colonoscopy - not the procedure but the prep, cat scan with dye - amongst others).

Welcome to both of you - I hope you find encouragement and much info to help you on your journey to maintaining your kidney health.

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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5/19/13 7:35 P

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Linda, thank you! I'm feeling lost and kind of alone. I didn't realize how serious it was until the Nephrologist said to me yesterday that I was 2-3 years from dialysis. But some of what I read on here makes me think there are things that I can do to maybe delay that. It's nice to know there are others in the same situation. Thanks again!





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