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SAMMIESMOM13's Photo SAMMIESMOM13 Posts: 4,973
4/27/14 12:10 P

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thank for your quick reply. I have read alot of your posts here, looking for help. Part of the problem is, I am doing this for him, not myself. He hates to exercise, I mean - I have to constantly keep after him to get up and walk. It should be 3x @ 10 min. a day, minimum. Well, good luck with that. Multiple meds, one of which says "low/no leafy veggies". Oxygen, lab work, nebulizers (COPD), I am just worn out being nurse, chief cook, and bottle washer. My house is a disaster, and I am so worn out I just look at it and feel like crying. I have my own issues, bad back/leg pain. So I am just looking for whatever help I can find. I will have to try and find out if a dietician would be covered in his insurance. Otherwise that is not an option. I don't really need recipes, I need "menus" to give me more of an insight. Soups have been a good option, but now with summer coming I need to find out what else I can make. I love to cook, but this is so beyond limiting I barely know what to do at this point. Thanks.

Carol
My Blog: natureartbyandre.blogspot.com
My website:
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If one is to save oneself, one must take a step, and then another... C. S. Lewis



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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
4/27/14 11:46 A

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Hi Sammiesmom - I know how overwelming it can be to find out what is healthy is not healthy for diseased kidneys.. I am re-posting info on nutrition this week... so please be patient.

Because so many things impact our kidneys please read my post from today: www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=13217x36692R>x57662241&src=email


I want to encourage you to go to the national kidney foundation website kidney.org and Davita.com and sign up for their newsletters and search their sites, as they do offer recipes and other helpful info.

I feel I need to clarify two things: Most of the nutritional value postings in the forum if for those who have severe kidney failure, can you please clarify for me what stage your dad is in? If you do not know this - I want to encourage you to make a phone call and ask. This will help you clarify exactly what should be included and excluded in his dietary needs. I can then help you further narrow down a few things - but with his diabetes and chronic kidney disease you may need to consult a dietitian.

the second thing is - while I can offer guidelines I am a kidney patient who shares her experiences and research in our forums, I am not a doctor and I encourage all to follow their doctor recommendations as we each have unique issues with our kidneys.

Please do not hesitate to email me or leave a post. I will get back to you.

Please look for nutritional info this week.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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SAMMIESMOM13's Photo SAMMIESMOM13 Posts: 4,973
4/27/14 11:14 A

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I have joined this team because I am caring for my dad who is pre-diabetic and has kidney disease. I am trying to learn about diet and what I can feed him. In reading posts here I am getting just about to the hair-pulling stage. Easy items- no salt, no/low sugar, less meat. But then I find because of potassium and phospherus - low intake of things like oranges, bananas, beans, lentils, etc. Now I just finished the low phospherus post- no whole grains. My gosh, what is left to eat by the time you get thru these "don't eat" things? I am just about to my wit's end. Plus I have been trying to find information on sample menus to cook for him. I can't find anything basically. Just lots of "don't eat" lists. I am on a very low income and can't just run out and buy cookbooks, and then find it isn't anything I could/would really cook anyway. Went to the library, all sorts of vegan/vegetarian, low carb, etc. diets but nothing for this sort of thing. I just don't know what to do at this point. Do you have any posts here that I've missed for what he CAN eat? Please HELP!!! Thanks.

Carol
My Blog: natureartbyandre.blogspot.com
My website:
www.natureartists.com/carol_andre.as
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If one is to save oneself, one must take a step, and then another... C. S. Lewis



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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
4/22/14 10:47 A

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Hi Rosie emoticon

I will encourage you to implement lifestyle changes that can help improve your kidney function: drink water through out your day + one cup of cranberry juice a day, get 7 - 8 hours of sleep a night, exercise 10 - 60 mins a day.

Avoid foods & beverages with a high content of phosphorous. Know that foods that are considered healthy like dark green veggies and whole wheat are not good for kidneys that are diseased.

I will encourage you to explore dietary needs at the national kidney foundation, visit www.kidney.org/ to enroll and look up dietary needs for being in stage 4 kidney failure. Avoid processed foods, fast food, and sugary beverages.

There is much info within our forums - in the Informational forum.
I hope you find encouragement, support and information within our team.
emoticon your kidneys!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ROSIEM10's Photo ROSIEM10 SparkPoints: (15,589)
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4/22/14 4:24 A

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Hello all, I am Rosie and it seems I have being very ignorant to Kidney disease. I learnt 2 weeks ago that I have a count of 29, was not explained to me that I was in a severe state of 4th stage kidney failure, I did my own research and got quite a shock! Where from here....I have no idea, open to all thoughts and ideas!

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ROSIEM10's Photo ROSIEM10 SparkPoints: (15,589)
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4/22/14 4:19 A

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Hello all, I am Rosie and it seems I have being very ignorant to Kidney disease. I learnt 2 weeks ago that I have a count of 29, was not explained to me that I was in a severe state of 4th stage kidney failure, I did my own research and got quite a shock! Where from here....I have no idea, open to all thoughts and ideas!

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ASOBFALLS's Photo ASOBFALLS Posts: 9,936
1/16/14 2:03 P

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Stay focused...avoid the goodie tables...buy lots of Fruits & Veggies
well...whatever is in your diet!

Joyce, a Daughter of the King, that is, a Princess!
leader Christian Women with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=10853


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KLASSONES38's Photo KLASSONES38 SparkPoints: (13,532)
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1/16/14 1:10 A

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Maybe I should move to medical updates...

But boy am I glad to be done with those appointments. I'm still a bit lost in this process, but so far all signs seem to be pointing to GO...

I met with a nephrologist, transplant coordinator, donor advocate, psychiatrist (!) and transplant surgeon. My bloodwork came back all good. CT scan was fine, the surgeon says we're looking to take the left. I figure if he's willing to call dibs, I gotta be more than halfway to the official "greenlight," right?

I'm back home in CA, I gotta do 2 rounds of urine collection (sorry for the TMI), and more bloodwork (one fasting). After that the coordinator tells me we'll get the official word.

Please keep a good thought for me, and I'll report in once I get the final yay or nay...

One thing I'm somewhat embarrassed about, I put on a good 10 pounds over the holidays. The doctors asked me to lose another 10 pounds. So now I'm 20 in the hole emoticon

My hope is that I can lose the 10 pounds by the end of March (before I head off to Vegas for my bday), and then the remaining 10 by my anticipated surgery date in mid-summer (last week of June/early July). Should be completely doable as long as I stay focused emoticon

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ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,321
1/15/14 9:17 A

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Welcome, Joyce! All the best to you and your husband.

Lady Di
from the Land of Lincoln
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
1/12/14 7:25 P

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emoticon Joyce,
I hope you find much information, support and encouragement in our team forums to LOVE your kidneys. Wishing all the best health for you and your husband in his journey of living with kidney disease.
Jean

Edited by: LIFE-FAITH at: 1/12/2014 (19:26)
Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ASOBFALLS's Photo ASOBFALLS Posts: 9,936
1/12/14 4:32 P

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emoticon I am 63 and healthy..still work full time...donated blood again last week! Been awhile.
Hubby is just being told about kidney failure and we are learning about it.
Enjoying the 4 seasons we have in the Misouri Ozarks.... emoticon
Joyce

Joyce, a Daughter of the King, that is, a Princess!
leader Christian Women with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=10853


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ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,321
12/19/13 6:38 P

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Good luck!

Lady Di
from the Land of Lincoln
CBEVNOW's Photo CBEVNOW Posts: 6,307
12/18/13 11:35 P

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Klass, wishing you the best. Keep us posted. You are awesome to donate. We need more like you.
emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
12/16/13 11:48 A

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emoticon emoticon

Keep us updated and best of wishes!

Jean

Merry Christmas! What a gift you are giving! emoticon emoticon emoticon emoticon

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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KLASSONES38's Photo KLASSONES38 SparkPoints: (13,532)
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12/16/13 3:35 A

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And now the bad news...

I gotta truck my tuchis into Boston for three, count 'em, three appts...12/20, 12/26 and 12/27.

Gotta meet with 5 or 6 different people and go through a battery of tests...I do wish the spirits could do it all in one night, er, the doctors and staff could do it all in one visit emoticon

Please keep a good thought I pass all the tests with flying colors. I'm a bit nervous, I hope I'm as healthy as I think I am emoticon

Will report back. Wish me luck, and happy holidays to all!

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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
12/5/13 3:40 P

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emoticon emoticon

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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KLASSONES38's Photo KLASSONES38 SparkPoints: (13,532)
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12/5/13 4:07 A

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Today I got some terrific news--I spoke with someone at Mass General, someone I've been faxing all my testing results to (physical, bloodwork and the like)...I told her the results are pretty good, but since I had them done in May, they may indicate I'm 50 pounds heavier than I actually am...

She asked for my current weight and height, did a quick calculation of my BMI, and said I should be fine to qualify as a candidate. YIPPPEEE!

Granted, she's just the medical records coordinator, not the doctor, but I figure she must know a little somethin' somethin'...and she sent me a bunch of registration paperwork, so all sounds are pointing to GO. I'm just very happy to possibly get this show on the road.

Just wanted to share my happy news emoticon

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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
12/3/13 6:51 P

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emoticon emoticon emoticon emoticon emoticon emoticon

Welcome to our team!!

Welcome back to SP!

emoticon on your weight loss and maintenance.

There are a few members on our team who have been donors. What a gift you are giving to your brother - emoticon ! YOU are my hero! You are emoticon !!

Thank you for sharing your story - I hope you stay with our team and learn how to LOVE your kidneys as you will now have ONE kidney doing the work for two - it will adapt, but I am sure you will want to care for that kidney the best that you can.

Best of luck in your journey and best of luck to your brother for a healthy transplant and process! God speed to both of you!

Jean


Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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KLASSONES38's Photo KLASSONES38 SparkPoints: (13,532)
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12/3/13 3:09 A

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Greetings all...

I'm brand-new to the team. This is my 3rd or 4th go-round on SP, I can always lose weight, just have a devil of a time keeping it off, a common tale I'm sure...

This time around I have a strong motivation: my brother needs my kidney.

Is there anyone else out there who had to lose weight in order to donate? I've lost 55 pounds thus far, which is a bit more than half of what I'd like to lose, but I'm just hoping against hope it's enough to please the powers that be at Mass General Hospital. I'm really not made to be model-thin (short and squat and built like a little linebacker, just like all the other women in my family), so I'm really very concerned they're going to tell me what I've done is good, but not good enough...I'm already struggling a bit with the holidays upon us, and I've gained and lost the same 2 pounds for about a month now...

I feel the need to also tell you, I'm healthy as a horse other than being fat. My kidneys couldn't be better. I got comprehensive blood work done, everything was good (I think my sodium was high, by ONE point, doc said don't worry, and my cholesterol should be under 200 and it was 200)-and this was when I was 50 pounds heavier. Shouldn't that make all the difference?

I'd love to hear any donor or recipient stories you'd be willing to share with me. My bro is 35, I'm 39. My parents are 72 (Dad) and 69 (Mom), so I'm definitely the best candidate. But I live in CA and they live in MA, so that makes things a bit difficult as well. He's been on dialysis for exactly a year now. We're hoping to meet with someone from the hospital when I come home for Xmas in 2 weeks. I'm sending them testing results now, but with the caveat that everything's going to show I was 50 pounds heavier than I am now, so if they meet me in person hopefully they'll be impressed. So far I just know we have the same blood type, but I assume there will be some more testing involved...

I'm rambling, sorry but that's my story, I'd love to hear yours!

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AZULVIOLETA6's Photo AZULVIOLETA6 SparkPoints: (52,810)
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7/31/13 4:49 P

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My mom was 69 when she received the kidney.

Apparently there is a hard-and-fast cutoff of 70 years of age for donors, but the main surgeon on their transplant team is over 70 and he felt like he could do it, so he gave my dad a chance to prove himself. My dad hardly even has any grey hair at 71--he has aged extremely well.

Dances: salsa (standard/LA), casino, rueda de casino, cumbia Colombiana, bachata, mambo, cha-cha-chá, merengue, reggaetón.

Currently learning: Mexican cumbia, danzón, Cuban rumba

Dances to Learn in the future: flamenco, tango Argentino, samba, belly dancing, bhangra, ballroom rumba


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/31/13 9:44 A

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emoticon sorry it has taken me so long to get back to you... my dad passed away

I am excited to hear your story! 71 is WOW for donating! How old is your mom? That is great that they are both doing well.

We have much in our forums on how to love your kidneys..

I hope you find much helpful info, support and encouragement in our team!

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,321
7/25/13 10:03 P

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Welcome to you!
Wow - that is amazing that your dad donated at 71. Good for him for being in such good condition! Glad to hear both him and your mom are doing well.

Lady Di
from the Land of Lincoln
AZULVIOLETA6's Photo AZULVIOLETA6 SparkPoints: (52,810)
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7/25/13 6:59 P

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Just popping my head in to see what you are talking about over here. I got into a discussion today on the main Café board about kidneys and I though I should check out kidney teams

Other than a few stones in my early 20s (I had WAY too much calcium in my diet...long story) my kidneys are fine. However, my mother has chronic kidney disease. In March of 2013, my father donated a kidney to her. She was right at the point where she was going to have to go on dialysis (I think that her function was about 17% at the lowest), so she got the kidney just in time. My father was 71 when he donated, so he had to get all kinds of special permission and have his health VERY thoroughly worked up in order to go through with the surgery.

It was a very positive experience overall and went much better than I had expected. My father is doing great and has healed wonderfully. My mother has had some small challenges in dealing with the anti-rejection drugs, but she is doing well too.

Dances: salsa (standard/LA), casino, rueda de casino, cumbia Colombiana, bachata, mambo, cha-cha-chá, merengue, reggaetón.

Currently learning: Mexican cumbia, danzón, Cuban rumba

Dances to Learn in the future: flamenco, tango Argentino, samba, belly dancing, bhangra, ballroom rumba


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/15/13 8:41 P

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emoticon to our team!

I used to help you on "cant do this on my own" team... I hope you find much support, encouragement and helpful info in our forums.

We acknowledge our faith but there are teammates who do not share our faith - they respect us and we respect them by not "over sharing".

Please let us know if you have questions - this is a very caring team. We offer support, encouragement and info on our experiences in Loving our Kidneys.

God Bless you and I am glad you found us!

Please feel free to share your experience in our forums.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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GLITTERGIRL69's Photo GLITTERGIRL69 Posts: 10,206
7/15/13 4:56 P

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HI all. I currently lead a Christian team here called, Can't Do This On My Own. I recently had a kidney stone, and I can tell you that I will NEVER love any of my kidney stones! What I love about having a kidney stone was relying on God to help me through it and the peace which He gave me through my worst pain, and how He took care of me. Looking forward to getting to know you. BTW I realize that this is NOT a Christian team. In the future I will keep my commits about God checked, but will say I talk about God wherever I go. So, if this offends anyone sorry.

LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
7/8/13 9:41 P

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emoticon emoticon emoticon
Welcome!
I hope you find much encouragement and support from our team and much information on how to LOVE your kidneys within our forums!

Glad you found us - please feel free to share your story.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,307
7/7/13 12:47 P

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I am glad you are with us, Auntcat., Are you still on a special diet, how often are you checked by your Nephrologist. Were you on Dialysis, if so for how long. Please let us know about your self. emoticon emoticon
Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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AUNTCAT's Photo AUNTCAT Posts: 142
7/6/13 5:13 P

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I just discovered this team today. I thought it would be an appropriate team for me to join since I am currently living with one kidney. It will be a year at the end of this month since I had surgery to have a kidney removed. There is currently no evidence of the cancer having spread. My kidney is functioning fine at this time. The fact that I only have one kidney helps motivate me to eat healthier. I AM definitely more into reading labels that I use to be. I DO feel better than I had prior to surgery. emoticon emoticon

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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
6/30/13 8:53 P

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Nancy emoticon to our team!

I hope you find much encouragement, support and helpful information in our team and our forums.

I wish you the best with your health issues - umm cannot say that I have tried to elevate my feet while on the computer, but would think that is challenging! I could do it with my kindle though!

emoticon emoticon emoticon emoticon Take care of you! and LOVE your kidneys!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CATLADY52's Photo CATLADY52 Posts: 13,385
6/30/13 5:45 P

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I'm new to the team. I didn't even know it existed until today. I'm seeing a nephrologist that the arthritis doctor referred me to. Two months ago my primary care doc increased the amount of Lasix and Potassium I take to twice as much, which I've done.

Now I am going through a bout of leg swelling that has gone on for at least two weeks. The nephrologist said to up the dosage for four days and have a urinalysis. He also said to elevate my feet for a couple of hours a day. (Have you ever tried to elevate your feet while being on the computer?) I'm hoping to get an answer in the next few days as to what I can do about this.

Nancy


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
5/19/13 8:48 P

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Cathy and Linda I want to encourage you with exercise and a kidney friendly diet (dialysis diet - not nephrologist approved) you can maintain your CKD - for me - I started out with almost stage 4 creatinine and GFR numbers - now I am almost stage 1 readings - what this means is I am maintaining my CKD, I still have CKD. My creatinine numbers jump around when I am not sticking to my diet and exercise and when I have meds that affect my kidneys and/or proceedures that can impact my kidney function also (tests with dye need to be cleared with nephrologist, other tests that impact kidneys are colonoscopy - not the procedure but the prep, cat scan with dye - amongst others).

Welcome to both of you - I hope you find encouragement and much info to help you on your journey to maintaining your kidney health.

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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TIMEFORME60's Photo TIMEFORME60 Posts: 349
5/19/13 7:35 P

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Linda, thank you! I'm feeling lost and kind of alone. I didn't realize how serious it was until the Nephrologist said to me yesterday that I was 2-3 years from dialysis. But some of what I read on here makes me think there are things that I can do to maybe delay that. It's nice to know there are others in the same situation. Thanks again!

Cathy



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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 12,477
5/18/13 5:33 P

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Cathy, I am at the same place you are. Functioning at 29 (I assume you mean the eGFR) and the Nephrologist did not tell me what that meant. I have diabetes too. I have an appt. with new Nephrologist but not until Aug. 20!
In the meantime we can read about what to do and what to eat and what not to eat.
We are in this together.


.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
5/18/13 10:13 A

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emoticon Cathy,
I am so glad that you have already found some information that will help you.

Doctors in my opinion do not get "pushy" enough when it comes to our kidney health.

There is a lot of info on learning to love your kidneys through nutrition and exercise.

Please feel free to post questions and information in our forums.

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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TIMEFORME60's Photo TIMEFORME60 Posts: 349
5/18/13 9:26 A

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Hi my name is Cathy. I am 59 years old. I have had diabetes for 13 years and my doctor has been telling me for a couple of years that my kidneys were not functioning as well as they should be. Either she didn't stress enough what that meant or I did not pay good enough attention. Anyway, yesterday I met with a nephrologist and was told that my kidneys are only functioning at 29. I am absolutely terrified! I am not sure what I should be doing. I found this team last night and have learned more here already in one night than I have learned from my doctors. I do have an appt with the dieticians but not until May 30th. I joined SparkPeople a while ago and have been using the nutrition tracker to track my food although not consistently. Now I have to get serious about losing weight and controlling my diabetes while learning what I can do to help my kidneys. I like what I see here and think it will help me alot.

Cathy



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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 12,477
5/17/13 1:46 P

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Evidently I am at stage 3 or 4 kidney failure. I need this team!
Thanks for the welcome.
Linda

.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
5/17/13 9:37 A

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emoticon Linda

Chronic Kidney Disease (CKD) means that your kidney's are chronically not filtering toxins from your body.

It will depend upon which type of disease that you have - there are a few different varieties and stages of CKD. I do not know anything about the type that you have stated, but there may be someone on our team who has the same type as you.

Having the right nephrologist makes all the difference in the world. I want to encourage you to write a list of questions that you have and take it with you and go through that list one by one with your nephrologist. You deserve to have answers.

We have much information in our information and loving our kidneys forums.

Please feel free to ask questions and share information.
Jean

Edited by: LIFE-FAITH at: 5/17/2013 (09:38)
Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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BOHEMIANCAT's Photo BOHEMIANCAT Posts: 12,477
5/17/13 9:25 A

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Hello, I have a long history of illness, kidney being the latest one. I am trying to switch Nephrology doctors. It is quite a process. Will be on the phone more today with doctors.
I don't know what I have. My eGFR reading are very low. I don't know what CKD means.
I have Hyperaldosteronism and diabetes and the tests show my kidney function is off. No one has explained anything to me yet. This will be my third Nephrologist, hopefully third time is the charm.
In 2011 the endocrinologist discovered I have high aldosterone levels. Since then, my health has been a roller coaster. We thought I was having a stroke last June, but the MRI showed I was not. It was the Hyperaldosteronism causing the problem and I was dehyrdrated. I was on 5 blood pressure medicines. I took charge and went on the DASH or low sodium diet. Now I am taking only one blood pressure med, Spironolactone, and my blood pressure is in control.
I have had high blood pressure since age 26.
My father died young of kidney disease, age 42.
I am 62, live in warm Texas, have a wonderful husband (most of the time) and two cats.
I hope to learn more on this team.
Thanks!
Linda

Edited by: BOHEMIANCAT at: 5/17/2013 (09:30)
.•*´¨ ) ¸.•*¨) -:¦:-♥
(¸.•´(¸ ;.•Linda in central Texas•*¨)♥
♥.•*¨-:¦:-. ;.•.♥


"Don't take my kindness for weakness, because I am one strong woman."
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
5/14/13 1:30 P

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Hi Karisa, emoticon

Can you please clarify if you are trying to avoid CKD or if you have CKD and are trying to maintain it?
Diet plays a huge part of avoiding CKD and maintaining it. (two different diets completely)

I am not sure if salt sensitivity is a sign of CKD.

I do not cook with salt, however, you need a dash of salt daily to avoid the development of goiters. Salt is the ony way our bodies get the needed mineral of iodine.

Please clarify your Q in regards to diet and I will be happy to elaborate on which information you should be looking for - our forums are full of information on kidney friendly diets for those with CKD, if this is not you - you need a different diet plan.

Jean


Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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KARSTAIRS's Photo KARSTAIRS SparkPoints: (10,197)
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5/14/13 11:24 A

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Hello, my name is Karisa. I am interested in learning more about CKD. I am 56 years old and I have had reoccurring urinary infections all my life, since I was 3. For years my blood pressure was kind of low. Starting from age 45, it was in the "normal" range, only in the last 6 years has it been a little high. Is salt sensitivity (edema in the face and sometimes ankles) since childhood a sign of CKD? How can diet help? Do you have good ideas for cooking with little to no salt?

My name is Karisa and I have 140 lbs. to lose. I live in Fresno California, in a cute studio, where I hope to be painting masterpieces again. At the moment trying to grow flowers without killing them before they bloom.


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4/30/13 8:09 P

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Good luck, Chris! You can do it!

Lady Di
from the Land of Lincoln
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
4/27/13 7:57 P

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Hi Chris,
emoticon to our team!


emoticon We have much info on how to love your kidneys for better health.

Please feel free to share info, ask questions and posts in the forums.

Praying for God's grace for you.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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MILLIFRED's Photo MILLIFRED Posts: 672
4/27/13 5:06 P

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Hi Chris; join the team and reach out for support! Use the nutrition and fitness pages to help you in your journey. I know you probably don't have much energy with dialysis - I've been there but try to stay as active as possible. Follow your Kidney diet to help protect your body and stay motivated to get better!

Millie, NW Arkansas in Central time zone


I am the bread of life;
John 6:48


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CJOHNSONKY's Photo CJOHNSONKY Posts: 13
4/27/13 1:17 P

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Hi there, my name is Chris.

I am 27 and I am on dialysis. I am trying to lose weight so I can get on the transplant list.

Keep being Awesome!
Chris


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
4/14/13 7:03 P

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emoticon emoticon emoticon emoticon

Welcome to our team!
Hi Millie!

Yes, I experience dizziness when my Vit D is low.
I was put on 10000 mg daily, but it was too much!
I now take one 10000 pill a week and 2000 a day.

Welcome to our team!
May you find much support and information in our forums!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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MILLIFRED's Photo MILLIFRED Posts: 672
4/14/13 5:48 P

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HI! My name is Milie; I put some of the info for introduction in another thread but basically, I developed chronic renal failure after an attack of toxic shock syndrome which put me in multi system failure and almost killed me about two years ago. It was the result of a botched kidney stone removal when the surgeon punctured a ureter and spread infected urine throughout my abdomen. I also almost completely lost my hearing during that treatment for that. I spent 3 months on dialysis and finally rebelled and went to see a different neph. He said they were giving me the wrong BP medicine which was keeping my kidneys from healing. I changed meds, went off dialysis and continued to improve. However I am still hovering between stages 3 and 4 with GFR's ranging from 26 to 30. I am working on diet and exercise but have difficulties with the exercise due to a residual dizzyness from the severe illness; however, I was started on high doses of Vit D recently when a new neph in a different part of the country where we had moved discovered my levels were very low. That seems to be helping the dizzyness and I am now able to be more active! Has anyone else had that experience with Vit D? I am a nurse practioner so am fairly knowledgeable about CKD, especially since this experience.

Millie, NW Arkansas in Central time zone


I am the bread of life;
John 6:48


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
3/4/13 6:58 P

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emoticon emoticon emoticon emoticon

Paula thank you so much for sharing your story! and your experience.

I look forward to learning more from you as you share your information.

This team is all about learning to love your kidneys - whether they are diseased or not. We do have a few on a our team who are here due to a family member having one type of CKD or another.

I am thankful you came back to share your experiences.

Jean



Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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PAULAROCKS3's Photo PAULAROCKS3 Posts: 91
3/4/13 6:21 P

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Hi everyone! I re-joined the team last week, but have just had the opportunity to introduce myself. My name is Paula - I'm from Alberta, Canada. My husband Tom, is 45; is in end-stage kidney failure. and has been on peritoneal dialysis now for 11 months. He does it from home every night for 8 hours while he sleeps. Other than this, our lifestyles have changed very little. He continues to work full-time as a mechanic, and feels great most of the time.

It all started in 1998 with a little fender-bender which was enough to make him pee blood. An ultrasound revealed that he had polycystic kidney disease which is very prominent on his dad's side of the family. Our youngest child was 1 when he was diagnosed. At the time of his diagnosis, his function was 50%, and there was nothing to be done, according to the doctors, other than to monitor it yearly with a nephrologist. Being a man, of course this didn't happen.

About 3 years ago in October, he fell - dislocated his shoulder and tore his rotator cuff. Very luckily, and because it adversely affected his livelihood, he had emergency surgery to repair it a week after it happened. At the time of his surgery, he had no family doctor, but the surgeon indicated that his blood pressure was "heart attack" high and that he should have it looked into. Again, no go. He's invincible,you know ;)

The next summer, he was having back pain which for him, was quite common when a cyst ruptured. Only this time, instead of bleeding for just a day or so, he bled for a week. The only reason I got him to see a doctor was because my family doctor was on vacation and the substitute doctor agreed to see him for a referral to the nephrologist only. He went, did some preliminary blood work, and was immediately referred to the nephrologist because his createnine was through the roof. We went to see the nephrologist, and his kidney function at that time was 15, which means he was in end-stage kidney failure. So the fun began.

He takes blood pressure meds, cholesterol meds, a thing to contol gout, and a synthetic form of Vitamin D. We attempted to control the failure through diet, and he did it for about a year, but by last March, his GFR was 6 and the doctor wouldn't let it go any further without dialysis. The bizarre thing is that he never felt sick - never got the flu, or colds, or anything the kids and I got. The doctor and nurses at the clinic were always so amazed by him, because he felt so good - he should have been hugging the toilet and sleeping most of the time. Anyhoo, he chose peritoneal, had the catheter inserted in April, and started the dialysis at the end of April last year.

In the meantime, we had 4 very wonderful women, offer to donate their kidneys to Tom. My blood type didn't match so I was immediately removed as a candidate. My sister went right to the end of the testing before she was disqualified for pre-hypertension and pre-diabetes; our girlfriend was disqualified for high cholesterol; another girlfriend because she was allergic to eggs, didn't know it, and had been malnourished for years (weird eh?); and another because her own kidney function was compromised. Tom says he'd rather have a cadeveric kidney (one from a deceased donor), anyway, because they're done with it, and he won't have to feel guilty that way. I understand what he's saying, and we know the challenges don't end with a transplant. So, he continues to wait for a kidney - here in Alberta, the average wait time is 3 - 5 years and in October of this year, he'll just be at the 3 year mark.

We have been blessed with 2 beautiful kids - a son who will be 18 on St. Patrick's Day, and a daughter who will be 16 on the 13th of this month. Both are currently healthy and happy; however, our daughter, was diagnosesd with polycystic kidney disease, on accident, when she was 10. She's been having chronic tummy pain, and the doctor ordered an ultrasound of her abdomen which is when they found the cysts. Most polycystic kidney patients aren't diagnosed until their late teens or early-adulthood, so this blew our doctor's mind. Anyway, we have her checked every year, and she's doing just fine. Our son hasn't been checked, and we won't have him checked until he shows symptoms. The reason for this is life insurance - sounds petty, but it is what it is. Because of the family history already, any notion of even being tested for the disease will disqualify him. He very bravely says he's going to give his sister one of his kidneys :) This is possible, but only after he's 30 and has no indication of the disease. The odds are 50-50.

After all my long-windedness, the reason for joining the team, is that I'd like to help anyone with questions about peritoneal dialysis, or the process of donating a kidney. I am very well-versed in these topics these days. I've also been volunteering for the local kidney foundation, and last year, was the top individual earner for fundraising - I earned $5,000 + for the local foundation which helps families financially when a kidney becomes available for transplant because if that happens, the patient and a caregiver, ie. me, has to go to Calgary within 24 hours for the surgery and live there for 6 weeks after the surgery.

Please feel free to ask anything you want to know, and if you're farther along in the process than we are, I'd love to visit with you about your challenges and successes as well!

Thanks for reading!! Paula

Edited by: PAULAROCKS3 at: 3/4/2013 (18:29)
I'm working on keeping all the promises I make to myself - I'm worth it!


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2/26/13 9:27 A

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emoticon emoticon emoticon
Welcome back!

I want to encourage you to write down all of your questions and fears so they can be addressed. I would definately ask for your urologist to be in contact with and work with your nephrologist.

Please keep us posted!
We want to encourage you!

Take care of you and if you have any questions please feel free to post them, many on this team are very supportive and caring!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,321
2/26/13 8:08 A

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Welcome back, Lisa!

Lady Di
from the Land of Lincoln
CBEVNOW's Photo CBEVNOW Posts: 6,307
2/26/13 1:07 A

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Hello Lisa and welcome, Sounds like you have a lot going on. What does your Nephrologist say about removing your left Kidney. Has your Urologist talked to your Nephrologist, about removing the Kidney. The not knowing is what scares us. and we have all been there. Take care of your self and please let us know what the Dr. says
emoticon emoticon emoticon emoticon

Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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2/25/13 11:55 P

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Hello my name is Lisa and I am 30 years old!

I remember joining this group along time ago!

I am back on Sparkpeople and getting real about my health this time. I have a left renal vein closed off by a blood clot and collateral veins that have taken over. I recently found out the Collateral veins aren't doing a good job and I'm not getting enough blood flow to my left Kidney. My Urologist wants to now take it out since it's not functioning properly. I have stage 3 Kidney Disease and also I am going to be tested for Lupus Nephritis.

I will do anything now to lose weight,with health in mind and keep my Right Kidney healthy. I see the Urologist next Monday. I am scared and don't know what to expect.

Thank you for letting me share my story.

LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
1/18/13 11:39 A

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emoticon Kelly!

Wow! Congrats on both of you working to get on the list. It can be a process - just remember it is one step at a time.

YOU are a HERO for donating!
Thank you so much!

I hope you find helpful information on loving your kidneys in our forums.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
1/18/13 11:36 A

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emoticon Janet,
Wow! Thank you so much for sharing your experience!

I am working towards the goal of NO transplant and NO dialysis.
I maintain my kidney functions with almost normal readings.

So glad to have you! Please feel free to share your experiences in our forum!

Jean

emoticon emoticon emoticon emoticon emoticon


Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CROSS-STITCHER's Photo CROSS-STITCHER Posts: 59
1/18/13 10:21 A

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Hi
My name is Kelly and I'm losing weight so I can be tested as a kidney donor for my husband. He is 35 years old and at stage 5 kidney failure due to Polycystic Kidney Diease. He is currently on peritoneal dialysis. I set up the machine, clean it, and hook him up. He does dialysis every night for 9 hours.

So far I have lost 9 pounds in 5 weeks. My hope is to be at my goal by December 2, which is Hubby's birthday. He also has to lose weight to start the process of getting on the transplant list. We are both hoping to be ready to start the process in December.

Looking forward to "meeting" you all and having support in this journey.



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1/17/13 11:54 P

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Hi everyone! My name is Janet and I'm a kidney dialysis patient. My husband is my caretaker and we use the NxStage 1 system hhd. It's the best on the market as far as I'm concerned. I do dialysis 5 days a week, about 2 1/2 hours a treatment. I know to some of you that sounds awful but I promise, if you have to go in center for dialysis, that's awful! After my treatments, about 30 mins or so, I'm ready for my day. I go to work most days (legal secretary) unless boss decides to let me have the day off. Otherwise, I live a pretty normal life. I've had a transplant that lasted 16 years and was blessed by it. Oh, and I do have FSGS....it's what took my natural kidneys. I found out at the age of 15 that I had a kidney disease.....I'm now 41 and going strong! There is life after dialysis....you just gotta know where to look emoticon

~Janet~
The first verse I ever learned was~
Matthew 7:7 Ask, and it shall be given you; seek, and ye shall find; knock, and it shall be opened unto you

Luke 17:6 And the Lord said, if ye had faith as a grain of mustard seed, ye might say unto this sycamine tree, Be thou plucked up by the root, and be thou planted in the sea; and it should obey you.

Central Time-Mississippi
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
1/7/13 6:44 P

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emoticon Justlittlebear!

Yes, CKD can progress quite quickly if there are things in our lifestyle that impact the disease.
Through diet and exercise I maintain my CKD stage 3 with almost normal readings (stage 1). This does not mean that I am cured or that my CKD is dormant, it just means I am doing all that I can to slow the disease and that my kidneys are functioning well.

Dye can cause those of us with CKD to go into full renal failure - there are steps that can be taken for someone who has to have a test done using contrasting dye. When I went in for a test this past year - they checked my creatinine levels - which came back withing normal readings... my nephrologist was NOT happy - as they gave me the dye without consulting her - this wont happen again to me - but what she stated to me - the risks for me are not worth it - as I work so hard to maintain - the risk of full renal failure is high for those os us with this disease..

There is much info in our forums on kidney friendly food. I will repost a few soon.

Losing weight is challenging - losing weight with CKD is more challenging - just do not give up! and move your body more! Some of us in stage 3 will not make it to stage 4! Most of us give up and quit fighting and this is when the disease wins!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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1/7/13 5:59 P

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Hi,

I found your post to be quite interesting because I was diagnosed in November 2012 with stage 2 kidney disease. I have never been one to take a lot of medicine. However, I did have a Heart Cath done in November of 2011 when I had symptoms of a heart attack. Three years ago I had an MRI and there was no evidence cited of kidney disease. Then, in Nov 2012, due to anther fall, the MRI showed cysts on both kidneys and I was diagnosed with Kidney Disease. So maybe the dye has something to do with the formation of the cysts.
Anyway, I just joined this group because I have to learn how to change my diet. I need to lose the 30 lbs I've gained in the last year and a half (after learning that I have a sinkhole under my home). I live in FL, I have a son and daughter and a three year old granddaughter. I also have a dog and three cats. I work as a school teacher and do real estate on the side. I am not one who likes uncertainty - so the idea that the stages progress without any rhyme or reason is frustrating. I know I need to change my diet - eliminate salt, eliminate red meat, and sugar, and lose weight slowly. My doctor was very specific about the need to lose the weight slowly.

Edited by: JUSTLITTLEBEAR at: 1/7/2013 (18:00)
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
1/7/13 9:45 A

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Hi Sharon,
emoticon to our team!

Yes, dye is bad for ckd - chronic kidney disease ... I have done a few posts on the harm dye can do. We have many topics on nutrition for ckd. I repost some where the info has not changed. You can find many topics in the informational forum.
Please let us know if you need help or more information.

There are a few of us on this team who maintain their ckd through exercise, nutrition and being proactive for our health - (like avoiding dye's for testing)... I hope you find much support, encouragement and information in our team forums.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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JAQUANAH's Photo JAQUANAH Posts: 2,029
1/7/13 9:16 A

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Hello - I joined this team about an hour ago, then got interrupted by the needs of DH Jim, who is a diabetic kidney patient. He was having an episode of low blood sugar. I am here hoping to get some ideas about how to help him, particularly about handling the diet. I joined SP in 2010 and got my weight under control in a year. I was never obese. Just needed to lose 12 pounds to get my BMI under control. Jim was obese. Probably that is what caused, or at least contributed to, his health problems. He has been shuffling between hospital and nursing home for 6 months. Got out about 2 weeks ago and I hope to be able to keep him well enough that he can stay at home.

As my first effort to help others, I want to tell you about that first hospital admission. He woke up before dawn one morning last July, telling me that he felt like there was a log on his chest and he couldn't breathe. I called the ambulance and when he got to the ER they called in the cardiac team. He was rushed to the cardiac unit where they used a lot of dye to find out whether he had a blockage. He did not. The dye caused the kidney disease he already had to get much worse. I'm thinking it would be a good idea for all kidney patients and their families to know how much damage that dye can do.

I am a member of several other teams but have not been active for the last 6 months for obvious reasons. Not sure how often I will check in here. I'll do my best to be a contributing member.

SHARON
aka JAQUANAH

Orange Park, Florida

There is nothing in a caterpillar that tells you it is going to be a butterfly. - R. Buckminster Fuller
CBEVNOW's Photo CBEVNOW Posts: 6,307
12/26/12 3:18 A

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A lot of people who are diabetic, get CKD. As my sister in law. And yes you must take care of your self. Its hard enough having one disease but 2 is harder. I hope she will respond and take care of her self. Love her kidneys, is a good way to start, and yes diet is very inportant.

C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
12/23/12 9:27 A

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Hi Angela,
emoticon emoticon
Welcome to Loving our Kidneys team.
We have a lot of info in our forums on diet and other things that can help slow and maintain chronic kidney disease.

I RP:repost a lot of the articles which entail information that impact the health of our kidneys.

Please let us know if you have any questions.
We have many helpful members - God Bless and take care.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ANGELAA8's Photo ANGELAA8 Posts: 129
12/22/12 4:06 P

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Thank you Diana,

I'm hoping to introduce her to Sparkpeople and get her to join this group too. She's 78 and does use the computer but only basic stuff. I think she could really enjoy using Sparkpeople and I think I could help her via Sparkpeople with meal planning

Looking forward to learning!

Edited by: ANGELAA8 at: 1/14/2013 (14:42)
SIMPLY4DHEART's Photo SIMPLY4DHEART Posts: 540
12/22/12 3:26 P

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emoticon emoticon emoticon emoticon Angela emoticon I am sorry about your Mom, I wish you the best on your LIfestyle journeys, this is great team, with tons of information to help you understand and better support your Mom in her Kidney failure diagnosis. emoticon Diana

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ANGELAA8's Photo ANGELAA8 Posts: 129
12/22/12 3:11 P

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Hi my name is Angela,

My family and I are just finding out that my mother has stage 3 kidney failure

Edited by: ANGELAA8 at: 1/14/2013 (14:41)
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
11/27/12 8:54 P

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Hi Anne,
emoticon emoticon emoticon
Caroline answered your Q's.. I have almost changed my GFR and Creatinine to stage 1!
You can change CKD with diet and exercise.
Please let us know if you need further info or help.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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AEHEGE's Photo AEHEGE Posts: 2,780
11/27/12 8:52 P

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Thanks for the reply - it is very helpful and encouraging. I will check out the sites that you mentioned. I was hoping for a dietitian to help me, but the person at the dr.'s office who makes appointments just said the doctor would take care of explaining the diet. I haven't met many doctors who will spend much time on this. Probably just lists. We live in Idaho where potatoes are such a part of everyone's diet. That will be the hardest part for him. This is his only serious illness, but a very serious one. We hope to maintain as well as possible, though.

--Anne from Idaho
BLC 17 - 25 Powerful Prism Panthers team.

www.blcpanthers.com

www.fitbit.com/user/22K64D


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CBEVNOW's Photo CBEVNOW Posts: 6,307
11/27/12 4:54 P

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Welcome, to our team. GFR of 37 is considered 3rd stage. And yes it can be improved, my GFR dropped to 26 one time and i got busy and was strict with my diet and raised it to 52 GFR. Now this is my belief, diet plays a very important part in CKD. Ask to see a Renal Dietitian for they know all about KIDNEYS.
There are some very good sites you can go to and get lots of good information. I had to do this as when i was told i had CKD i knew nothing and my Nephrologist was not the best. I did change Neph. and now i have the best.
DaVita.com is a great site, it has every thing on it.
aakp--American association of Kidney Patients--They have some good things also, you can ask them for a little booklet which has a list of foods and restaurants, that tell you the amount of Potassium, Phosphorus, Sodium, Protein, Calories in each food item. I as for 2 booklets, one to carry in my purse and the other i keep in the kitchen.
I know its scarey, but hang in there, i my self was in denial for a few months, then i got angry , then decided i better get serious about this disease and learn all i could about it.
Remember Potassium affects the heart, so take it serious, It can be controlled. He will have to watch his diet.
I will get back to you i dont want to over whelm you on all this.
C emoticon

Edited by: CBEVNOW at: 11/27/2012 (16:57)
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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AEHEGE's Photo AEHEGE Posts: 2,780
11/26/12 3:00 P

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Hello.
I joined this group last week when my DH had a second episode of Acute Kidney failure and was hospitalized overnight both times. The docs said it could be Chronic, but he won't be able to see a specialist until next week. So I just feel so unsettled, as we don't really know how to handle this. He is 76 and has been in what we thought was good health until these episodes. He had high potassium levels. I read on this forum about GFR ratings. He had a blood test to day and I saw a listing for eGFR. It said his was 37. That was alarming to me, having read about GFR here. Can this number be raised? We have been changing things in his diet, but really want to see a dietitian to find out what is best for him. I guess my question to you all is what is eGFR compared to GFR and can this be improved or at least stabilized?

Thanks. I have already learned alot on this forum and feel a little hope from some of your stories of normal living.

--Anne from Idaho
BLC 17 - 25 Powerful Prism Panthers team.

www.blcpanthers.com

www.fitbit.com/user/22K64D


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
11/20/12 10:07 P

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Hi Ellen,
Well stage 3 can turn into stage 4... goodness!
So glad you have joined us, not so glad you have CKD.
We have many topics in our forums on Loving your kidneys and how to fight or maintain this disease. One is nutrition and the second is exercise.
I hope you find helpful info, encouragement and support on our team!
We have many members who have poly... and just plain old ckd, or are a recipient or a donor.
Please let us know if you need help, support or info.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
11/20/12 12:48 P

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Good Afternoon! My name is Ellen and I live in South Dakota. I am 61 and I was told my ckd is mild but my GFR is 51 and what I read on yahoo search that is stage 3. But my kidney specialist said no thats mild. So I think I will get a second opinion, I have high blood pressue, and diabetes and I've had high uric acid problems for 2 years.Polycystic kidney disease runs in my uncles family, who was my dads brother, so my grandfather had it my uncle had it and now my cousin has it.

I also have other conditions that mess me up big time and so I'm here to get the wieght off and get moving. I hope to get to know everyone as time goes by, hope you all have a good day, its really nice here today, for November.


Ellen
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
11/18/12 7:38 P

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Welcome to our team!
I am sorry this welcome is late - I have MIA - I am taking care of my parents..PLUS

Welcome welcome welcome!

We have a few on our team with polycystic kidney disease.
Congrats on making a commitment to improve your health!

We have many topics in our forums on kidney health!

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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KGARVON SparkPoints: (16,201)
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11/16/12 1:53 A

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Hi I am 32, wife and mother of 3 kids. 8,7,&5. I work part time and home school my youngest child. I am over 300 lbs. I have polycystic kidney disease. I just started going to the gym! I have made a 1 year comment to the gym. I want to turn my life around.


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WINFIELD28's Photo WINFIELD28 Posts: 6,363
9/7/12 12:14 P

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Thanks for being available to answer my questions! I really appreciate that.
I will be in touch with you soon. I am working this afternoon and tomorrow, but may send you a SparkMail in the next couple of days. Thanks again!

“There are no short cuts to any place worth going.”

Proverbs 3:5: "Trust in the Lord with all your heart, and lean not on your own understanding; in all your ways acknowledge Him, and He shall direct your paths."

ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,321
9/7/12 12:01 P

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I was right at 50 years old when I donated, Maria. Now 55. Doing well for an old woman!
You are welcome to send me an email if you have any specific questions or concerns. Would be happy to share my experiences with you.

Lady Di
from the Land of Lincoln
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
9/6/12 6:20 P

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emoticon Maria

We have a lot of information in our Information forum.
If you are interested here is a link for transplant chronicles:
kidney.informz.net/kidney/profile.as
p?
fid=491


I wish you the best.
We do have some donors on our team.

Please let us know if you need any help or information.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
9/6/12 6:14 P

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I apologize 2feeling I did not get a message regarding your post..sometimes spark does that.. then again it has been a crazy week!

emoticon to our team!!!

One of the main things you can do for your kidneys: drink water as your main beverage, flush your kidneys often (10 cups of water a day) when you do have pop - drink clear pop, if you drink other things - try to drink water based fluids - coffee or tea.

There is a lot of info in our information forum in regards to diet and exercise for healthy kidneys.

Please let us know if you need help at any time.
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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WINFIELD28's Photo WINFIELD28 Posts: 6,363
9/6/12 1:47 P

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Hi, my name is Maria and I am from Minnesota.
My younger brother has kidney disease and will need a kidney transplant in the near future.
I and my siblings are beginning the process of seeing if one of us can donate a kidney to him. There were 5 of us when we started this process several months ago and now it's my 2 younger sisters (ages 39 & 43) and myself - age 53. I am looking for personal information on the donation process and would appreciate any information that anyone could provide. I have such mixed emotions that I need to work through and would appreciate hearing from other donors - especially those that are over 50 years old. How are you doing? Thank you!


Edited by: WINFIELD28 at: 9/6/2012 (13:50)
“There are no short cuts to any place worth going.”

Proverbs 3:5: "Trust in the Lord with all your heart, and lean not on your own understanding; in all your ways acknowledge Him, and He shall direct your paths."

SIMPLY4DHEART's Photo SIMPLY4DHEART Posts: 540
8/30/12 3:31 A

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HI team,I am New
Looking for educating myself about Kidney disease..I do not have Kidney failure right now that I have been told.I want to learn as much as I can and understand how to prevent Kidney disease or if I do get diagnosed I will better prepare and know what to should it happen.
I have Chronic heart disease and my valve regurgitates and does pump my blood properly so it gets backed up and that is why I have CHF(Congestive Heart Failure)and I am on Lasixs RX to keep fluid from building up as well.These prescription strength medication among others I take can cause problems with my organs and I have to get labs done, every so often to make sure they are in Therapeutic ranges and if not,well not sure since so far so good.
As time goes on and I continue these medications,I do not know that and not sure what?
I am hoping to learn what I can do now to keep my Kidneys healthy to prevent any issues in the future.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,603
8/29/12 8:42 P

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You can find kidney friendly recipes at these websites:
www.davita.com/recipes/
www.kidneysdothat.org/recipes/
and some by our very own Claire - here on spark
recipes.sparkpeople.com/cookbooks.as
p?
cookbook=392352


There are several articles in our forums on healthy foods for the kidneys and foods to avoid.
If you do a google search for spark + kidney info a lot of our forums come up.
I do most of the healthy kidney posts in the Information forum.
Please let us know if you need further info or help.

Loving our kidneys is our goal on this team.
Jean



Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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AL-EE-SUN's Photo AL-EE-SUN Posts: 280
8/29/12 7:11 P

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Hi team! My name is Alison, and my sister -- Susan (sooz1982) -- and I are joining this group after recent developments around her 2010 kidney transplant. She just went through a chronic rejection period that resulted in the loss of most of her kidney function (leaving her at 17%). After the consultation with her docs, we have decided the best ways to extend the life of this transplant are to embrace a more renal friendly lifestyle including foods, fitness, and friends. =)

We both have had positive experiences with SparkPeople and thought this was the best place to come in the wake of this news.

Anyone have any suggestions for where we can find delicious, kidney-friendly, recipes to test out?

Edited by: AL-EE-SUN at: 8/29/2012 (19:42)
live well. be kind.


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SETAGOAL1's Photo SETAGOAL1 Posts: 3,096
6/30/12 4:03 P

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emoticon You are with a caring group of people here we are glad you joined us.
If you need encouragement please just ask we have plenty to share.
emoticon

Janet
EST,
Massachusetts, USA


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