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UNICORN212's Photo UNICORN212 Posts: 9,172
12/23/13 9:56 P

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I am sorry to hear about your loss, and sorry I did not see your comment earlier.

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Be kind to yourself. Especially this time of the year.

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
11/7/13 9:49 P

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Debbi's journey came to an end on Tuesday, November 5, 2013. She was a warrior!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
10/18/13 4:01 P

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Debbi came for a week. She got to go to her favorite Asian buffet and she got to go to the county fair. A friend very kindly lent us a wheelchair so this was possible. She was very tired when she left to go back. She went into a hospice house for several days after she got home so they could stabilized the meds for pain. She is now home. They have furnished a wheelchair, walker and hospital bed to help her be more comfortable. I will be going to Kansas on Tuesday to stay with her for two weeks. My daughter, Brenda, will come from Idaho before I leave, to stay a while. We will be taking turns with different members of the family so her husband can continue to work. She is such a fighter!!! Please keep her in your prayers!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
9/19/13 7:44 P

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Debbi's children did a fundraiser so that Debbi could make the trip home while she stil can. She will fly in Thursday evening and I am so looking forward to seeing her. I just hope it is't too much of a strain for her.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
8/3/13 7:34 P

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PET scan not good Cancer is in her hips, thighs, several places in spine and in her neck. They are doing radiation on the hips and thighs as well as the brain. This is to alleviate the pain.
Thank you for your prayers.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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ENNAID11's Photo ENNAID11 SparkPoints: (8,153)
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7/27/13 11:08 A

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Sorry to hear about Debbie's health problems. My thoughts and prayers go out to you and to her.

Take care

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
7/26/13 8:24 P

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Well, I guess the other shoe has fallen! Debbi had an MRI done because she has been having headaches. Cancer has gone to lining around her brain. She starts radiation next week. She will also have a PET scan done to see why her hip has started bothering her. Please pray for her.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
5/26/13 8:27 P

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Well, tomorrow is Debbi's birthday. What a blessing that she gets to celebrate this one!!!!!!!! Thanks to everyone who has prayed for her. Without you, she might not be here for this birthday. I love you all.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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5/4/13 8:58 P

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My prayers are with you.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
5/4/13 7:08 P

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Well, a lot has been going on. It turns out that the people who were running the study that Debbi was involved in were not sending reports to her Dr. He saw she was having some trouble walking and did an xray that came out okay but he was concerned and had her get copies of her tests and results. It turns out that there was a new lesion and they should have taken her out of the study then and started her on radiation. He pulled her out of the study and she went through radiation treatments and is now going through chemo again. He told her that if there is no improvement after this series of chemo that they will discontinue treatments. I am glad he is looking out for her. All we can do now is pray.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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2/5/13 9:39 A

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What wonderful news!!

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
2/4/13 8:45 P

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Debbi had a PET scan done last Friday. The doctor called her to tell her that one of the tumors has started to shrink and there are no new tumors. The Lord is really blessing us!!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
1/7/13 3:35 P

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Just an update. Debbi has been doing the every week treatment until this week. She gets to skip this week. After her appointment next week she will only have to go once every three weeks. I am so relieved about that because she has already been snowed in once and just beat another storm by hours. She is a real trooper!!! Thanks to everyone for their prayers. The Lord listens.!!!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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11/26/12 2:33 P

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Many more prayers on their way. Hopefully her treatment with work. She is amazing if she can drive for 8 hrs each way. That in itself must be exhausting.

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
11/25/12 6:26 P

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Well, first week went okay. Second week she had a multitude of tests and a biopsy. The next day she had the actual treatment. She went by herself this time which worries me but she is stubborn and maybe that is what will carry her through. That was the day before Thanksgiving and by the time the treatment was done and she got on the road for her 8 hour trek it was 3:00 in the morning when she got home. She will see the Dr. this week and have some blood work done. I don't know how she does it - 8 hours each way!! I really hope this works because time is running out. More lumps have appeared and she is having a lot of pain in her back. Many prayers needed!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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11/14/12 7:50 A

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My prayers are with Debbie. Good luck.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
11/13/12 3:35 P

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Well, tomorrow is the first treatment for Debbi in this new study. It has never been done for a breast cancer patient before so they are really starting new with this. She underwent a lot of testing last week and will have the actual treatment tomorrow. She will be staying overnight so they can observe how she is handling it. Say a prayer.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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4/16/14 221.6lbs
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ENNAID11's Photo ENNAID11 SparkPoints: (8,153)
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10/26/12 8:43 A

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Hi everyone - hope Debbie is able to sort everything out to her advantage.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
10/26/12 7:35 A

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Debbi met with the Dr. in Denver and instead of the original study they were going to include her in they have put her in a different study. This one has to do with cloning T cells so her body can fight the cancer. It sounds very promising. She is trying to work out where she can stay the nights she will have to be there overnight. I think that is for about two weeks. She is also checking in to Angel Flights to see if she qualifies and won't have to drive the eight hours each way.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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JIBBIE49's Photo JIBBIE49 Posts: 55,479
10/23/12 8:43 A

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www.drfitt.com This is the link to Roby Mitchell M.D. as I follow him since my son, Nathan, had Testicular Cancer. Dr. Mitchell is in Texas, but knows doctors around the country. He had advanced prostrate cancer and treated himself with diet and exercise.

I do hope Debbi is doing well after her trip to Colorado.

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ENNAID11's Photo ENNAID11 SparkPoints: (8,153)
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10/18/12 9:33 A

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My prayers are with your friend Debbie.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
10/17/12 7:39 P

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Debbi saw the Dr today and got all her test results and imaging to take to Denver with her next week. The lumps in the breast area are getting larger and are getting dry and scaley. She said that is how the disease (Inflammatory Breast Cancer) started. It eventually gets red and infected. She said she doesn't have any more skin she can afford to lose in that area and hopes the new treatment will nip it in the bud. She needs lots of prayers at this point.!!!!


i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
9/29/12 7:36 P

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Debbi has been asked to be interviewed on the radio as they are doing a special on terminal diseases and how people handle the situation. She is hoping to be able to get the word out about IBC so that more women will become aware of it. She is going to try to get me a copy of the tape. She is a fighter and will never give up!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
9/21/12 8:05 P

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Well, Debbi got the results of her last PET scan. It appears there is activity in the lymph nodes in her neck and well as more activity in the spine. Apparently the shots aren't working. Back to the drawing board I guess. Keep her in your prayers. I have a feeling she is really going to need them.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
9/16/12 8:49 P

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Thank you for the prayers. It is good you have joined a group. They will certainly help because they have been through it too. I have lost two husbands and after the death of my last husband I joined one of those groups and it really did help to know that the thoughts I had weren't crazy they were just a natural part of the process.
Debbi will be getting the PET scan on Tuesday and will see the Dr about the results on Thursday.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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4/16/14 221.6lbs
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 current weight: 227.0 
 
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ENNAID11's Photo ENNAID11 SparkPoints: (8,153)
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9/15/12 6:03 P

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Hi Carolina - prayers being said, you are in our thoughts. Started Bevreavement sessions on Wednesday. It goes on for 8 weeks. I was "nice" to speak with other ladies who are going through what I am going through.

Dianne

Edited by: ENNAID11 at: 9/15/2012 (18:04)
HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
9/14/12 8:44 P

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Debbi is having pain in the neck area the last few days. The Dr. thinks it is degenerative disc disease but they will be doing a PET scan to be sure it is not the cancer progressing. Say a prayer for her please.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
9/6/12 9:20 P

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Debbi had her first shots last Thursday. They will try this treatment and if it doesn't work they will then have her get in the program at Denver. Her hips were sore for several days but that has worn off now. She is still very upbeat about what she is going through. The Lord is helping her through this I know and it gives me great comfort.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
8/24/12 9:33 P

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Debbi saw the Dr in Denver and was told that the new study wouldn't begin for six weeks and that they didn't want her to go that long without treatment. They suggested some new treatments that she could take back to her Dr in Kansas and want to see her in about a month. We are back to wait and see. She is holding up really well and I am so proud of her.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
8/24/12 9:30 P

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Dianne: It really does get better but it never goes away. My husband died in a fire that demolished our home about 3 years ago. It was hard at first because there is so much that has to be taken care of but the support I got was wonderful and now I am living my new life to the fullest. That is how you have to look at it. It is a new life but we never forget the old one.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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ENNAID11's Photo ENNAID11 SparkPoints: (8,153)
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8/18/12 7:51 A

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Good morning everyone. Hope everyone is as well as they can be in these circumstances. I am do OK - but I have some days that are realy hard. I just need to hear a song or another memory of my dh and I sit there and cry. But as everyone keeps telling me - time will help to lessen the pain.

Take care everyne.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
8/12/12 12:51 P

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Debbi and Gordon had a wonderful week at the beach!! They have returned home. She saw the Dr. the day after she returned home and found out that he has been researching a study at Denver that he thinks will help her. He arranged with the Dr heading the study to interview Debbi to see if he thinks she is right for the program. She goes to Denver on the 22nd of August to be interviewed. Keeping my fingers crossed.!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
7/30/12 4:19 P

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Debbi and Gordon arrived safely on Saturday. She has started to grow some hair back but she said it won't last because she is back on chemo and it will come out again. Gordon was like a child when he saw the ocean for the first time. My unit is situated right next to the pier so he will be able to enjoy it fully. Debbi is having so much fun showing him things for the first time. I am so glad I was able to do this for them!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
7/22/12 6:19 P

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Sorry I have been away from this so long but It has been a crazy month. Debbi arrived safely. She is very thin but in great spirits! We had a marvelous week at the beach and did some shopping. Ate out a lot and she actually put some weight on while she was here. Unfortunately, so did I !!! Closing on the property that my house used to be on took place on schedule so I was able to book tickets for Debbi and her husband, Gordon, to come back to North Carolina so they can have the honeymoon they never had. They will be arriving next Saturday. Debbi is back on chemo and unfortunately, some of the lumps have re-appeared. Saying prayers and hoping for the best.


i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
6/25/12 4:22 P

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2 days!!!!!!!!!!!!!!! She will be here in two days. We have already started filling up her social calendar. Of course the first night will be spent at her son's apartment so she can see the grandchild she hasn't seen yet. Saturday we will check in at Peppertree in Atlantic Beach to spend the 4th of July week there. She will certainly get her fill of the beach. So many people made this possible for her. It just makes me tear up to think about it. People are truely wonderful!!!!!!!!!!!!!!!!!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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SWDESERTLOVER's Photo SWDESERTLOVER Posts: 2,943
6/15/12 9:24 A

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Oh, what wonderful news! I'm so happy for you all. God Bless you and I will continue to send prayers your way.

Cindy emoticon

Cindy
"May your trails be crooked, winding, lonesome, dangerous, leading to the most amazing views. May your mountains rise into and above the clouds."
Edward Abbey
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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
6/14/12 10:34 P

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We are flying high today!!! Debbi had PET scan and some of the spots on her thigh and spinde have disappeared and the one on her rib is smaller. We were going to be happy if things had remained unchanged but this was a real blessing!!!!!!!!!!! Those prayers are really working. Keep them coming!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
6/6/12 8:09 P

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Debbi had to skip chemo today because the numbness that was only in her fingers and feet has spread to her thighs. The doctor has moved the appointment for the PET scan to next week instead of waiting until the 20th. If it shows that the chemo has had no effect than it will be discontinued entirely. In the meantime he is looking into some chemo therapies that don't have the numbness as a side effect. So I guess we are in a holding pattern. She is pretty upbeat about the whole thing. She is having a hard time getting her husband to talk with her about the cancer. I think he is in denial but eventually will accept what is going on. Praying for everyone who has to go through this. If I can help in anyway just let me know and feel free to email me.
21 days and counting!!!

Edited by: CAROLINAKIWI at: 6/6/2012 (20:10)
i am not going to get old until i am 110 and then i'm going to think about it!!!!

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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
6/4/12 8:01 P

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My thanks to all of you for your prayers and please know you are in mine as well. Debbi and i are doing a countdown until she is here. 23days!!!

i am not going to get old until i am 110 and then i'm going to think about it!!!!

4/2/14 220lbs
4/9/14 219.2lbs
4/16/14 221.6lbs
4/23/14 220.4lbs


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FABTAB Posts: 30
6/2/12 10:45 P

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it was helpful to learn that your daughter missed chemo to have a joyful time. My husband has been twisting himself in knots because chemo #5 was so hard on him, and he has one more to go, according to the original plan. It will take some pressure off him when I tell him about your daughter's beach holiday. Thanks!

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SWDESERTLOVER's Photo SWDESERTLOVER Posts: 2,943
6/2/12 5:19 P

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I am so sorry to hear about your daughter. It's wonderful, however, that so many are helping her to do the things she wants to do. My husband has been fighting pancreatic cancer for almost three years; he was diagnosed at stage IIB but is now a stage IV with mets to his lungs. We try to keep fun things planned for him as much as possible and I think it is what keeps him so positive. Please know that I am thinking of you and keeping Debbi and all of you in my prayers.

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"May your trails be crooked, winding, lonesome, dangerous, leading to the most amazing views. May your mountains rise into and above the clouds."
Edward Abbey
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CAROLINAKIWI's Photo CAROLINAKIWI Posts: 629
6/2/12 6:37 A

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My daughter, Debbi, just turned 45 on May 27th. She is in stage 4 breast cancer. This is her fourth fight with the disease. I am a survivor and her sister is a survivor. My sister died of breast cancer at the age of 38. To make a long story short, I am going to track her progress relative to how we perceive it.
We are making it possible, when it is in our power to do so, for her to achieve some of the things she wants to do. I guess we are helping her with her "bucket list". Her sister was able to make it possible for her to go to Reno and see the sights there. April was bowling in a tournament there and flew Debbi there to join her. They had 5 wonderful days there. The Curves group I belong to are making it possible for her to come home (she lives in Kansas and we are in North Carolina) so she can spend some time at the beach. She really misses the ocean and is looking forward to this trip. People are just so wonderful. They will never know how much this means to my family! She had to skip chemo this past week as she is having some bad side effects. She will see the doctor next week and I guess they are going to discuss where to go from here. Sharing this journey with you helps me to accept the situation.

i am not going to get old until i am 110 and then i'm going to think about it!!!!

4/2/14 220lbs
4/9/14 219.2lbs
4/16/14 221.6lbs
4/23/14 220.4lbs


 current weight: 227.0 
 
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248
217
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155
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