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FANCYQTR's Photo FANCYQTR Posts: 6,070
5/18/14 6:09 P

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Hi Jennie. I just read your intro and I can say that my symptoms are similar to yours except the bloating and gas get really bad. Seems that dairy is causing some of the problems, too, and that is something that I can't completely quit. I am having problems with quitting bread. I can do okay with some things, but I still have troubles sometimes giving up the breads. It is hard sometimes to eat a hamburger or some other kind of sandwich without it and I have always had luck with rolls and milk to get rid of other problems. But I go from one to the other. So I look to this site for help, too. I did find out there are a couple bakeries around here (one very close), but it seems like the quality varies. I got some things a few weeks ago that were really good, but yesterday they didn't seem as good.

Darlene


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MOMTOMYRTLE's Photo MOMTOMYRTLE Posts: 35
4/30/14 6:00 P

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Thanks for all the info. I was told that Dove (made by mars incorp) was actually safe to eat just recently. However many dark chocolates that I like are processed in facilities that also process wheat and dairy so to stay away from them for a period of 60 days. I believe my Dr. is just trying to keep me as gf/df as possible for a set period to see if symptoms alleviate altogether or if we have potentially another issue in disguise.

I am finding that now after the initial shock that I was more gluten free then not before and 90% of my flares have been in line with eating out and huge gluten feasts :)

Any other products and advice I appreciate.

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KRMUTTON Posts: 15
4/30/14 4:30 P

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Jennie - I live in a small town also, however we are lucky to have specialty food stores near by. I order from Amazon as it is a lot less expensive and convenient. I have a couple of suggestions for shakes. I use either the Herbalife Allergen Free or Total Soy Meal Replacement. I mix them with water or milk (soy, dairy, rice) then add a combination of fruit and/or peanut butter. The nice thing about the shakes is you can add a some cocoa baking powder to get your chocolate fix:) I haven't tried, but want to, banana, peanut butter and cocoa!

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DIANNAWATSON1's Photo DIANNAWATSON1 Posts: 656
4/29/14 8:31 P

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I can understand not eating milk chocolate, but why not dark chocolate??? I, too eat it, and Dove dark specifically. Makes life worth living!!!

The King Arthur bread is a mix. I, too use it pretty well exclusively. No matter the GF bread, it just isn't the same and I use very little, usually as toast - that is pretty good.

Order stuff on line - Amazon is the biggest seller, Vitacost is second biggest. I've used Vitacost for a couple of years and am very happy with their service.


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MOMTOMYRTLE's Photo MOMTOMYRTLE Posts: 35
4/29/14 2:12 P

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I am feeling a bit better. I still have upper right abdominal pain off and on. But it is more of a pressure then a pain. I am adjusting to gf/df living. I am not happy about giving up my dark chocolate or my bread. I am an avid runner and I used these foods as crutches to get me by. I too ate bread daily. I preferred Alvarado st bakery sprouted breads but the second ingredient in those is wheat gluten so I am currently suffering through a loaf of udi's white because that is all we have locally. I do bake bread by hand (old school with wooden spoons and bowls) So next month I will research recipes that are wheat free and gluten free to try my hand at. So far cooking at home is easy. I prefer vegetarian lifestyles but I have 4 kids and a hubby who are meat eaters so I have tried to incorporate lean white chicken into my diet to help make up missing calories(its nearly repulsive to me) So long story short.

I am learning. I haven't had a headache in a week. I haven't felt bloated or gassy (except when I used to much apple cider vinegar last night :) I don't miss much other then my chocolate. I do have a couple boom choco boom bars but they aren't very good. and the lara bars actually make my gums itch.

I have had a piece or two of dove dark(confession time) That will always be my vice. I appreciate the list of products. I live in a small town and don't have many options.

I think I need to buy a juicer so I can drink lots of smoothies for snacks:)

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KRMUTTON Posts: 15
4/29/14 12:59 P

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Hi Jennie. Welcome. I am curious how you are feeling after a few more days of being on the GF diet. I started eating GF because I was breaking out with hives and pinpointed it to breads and pasta. After giving it up I found my skin as cleared. In addition, the 1-2 migraines I would have a month are now decreased to 1-2 a year, my mood is better and I don't have the bloating/gassy feeling. It's not easy to go GF, however once you have done it for awhile it gets easier. I used to eat bread daily and it was hard to give up but now, 2 years later I don't really miss it. I do make King Arthur's GF bread, but 1 loaf will last me a couple of months. It takes a lot of time to find the products you like. Here are some of my suggestions - Pamela's Pancake Mix is great for muffins, pancakes and other like items, Ancient Harvest Pasta and King Arthur's GF bread if you have a bread maker...if not UDI's multi-grain bread isn't that bad.

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DIANNAWATSON1's Photo DIANNAWATSON1 Posts: 656
4/23/14 5:51 P

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Welcome, Jennie. You would be wise to work on the Gluten Free (GF) diet. I'm much older than you and was only diagnosed in 2010. Since then, my digestive problems have ceased and I feel much better. If the doc wants you to be tested for Celiac, do it. That is a good test. You have a wonderful variety of foods to choose from. Read the book Wheat Belly. It is really medically involved and I think there is a synopsis of the information also available which would be much easier to absorb. The Internet is full of information. hope you live in an area where GF foods are readily available. I have to order most of mine because of where I live.

You can do it and will lose the cravings shortly. Once you feel better, doing without is certainly better than putting up with the pain.

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MOMTOMYRTLE's Photo MOMTOMYRTLE Posts: 35
4/23/14 3:17 P

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Hello all, My name is Jennie and I am new to gluten free living. I have been having on going stomach ailments for years that have been ignored, or miss diagnosed (and potentially missed diagnosed again but anything is worth a shot at this point)

Some of my symptoms over time have been upper right abdominal pain. That seems to happen sporadically and comes and goes usually after bouts of loose stool and constipation sorry if that's tmi. Bloating, gas, belching, G.E.R.D., Migraines, anxiety, extreme cravings and joint pain.

All of these symptoms have been evaluated and treated individually but never looked at as a whole until my regular dr got back my labs and ultra sound results. My ultrasound was to rule out gallstones. Which I am not at a high risk category for and his pa was grasping at straws when I went in with yet again another complaint of persistent upper right abdominal pain. I am 5'5" and weigh 124. I am a runner and love sports. I eat a vegetarian diet by choice (which has always been high in wheat, rye and barley)

So yesterday at a follow up my physician went over all my symptoms as a whole and asked how I felt after eating breads and pastas. Which I honestly replied bloated and gassy but I attribute it to the high fiber content. I did mention that eating on a flat belly diet plan did help alleviate my symptoms but was hard to adhere to because I craved breads and pastas bad. Which I also attribute to my running and needing the fuel.

After a few more questions about what foods were on that particular eating plan he got a look of "AHA" and said he felt I have a gluten intolerance and possibly something called Celiac. Which I have never heard of. He ordered me onto a Gluten Free eating plan for 30 days then a follow up. He said some of my symptoms may not clear up if it is Celiac Spru and will require endoscopy diagnosed it completely but he felt comfortable with trying the elimination challenge where I go gluten free for 30 to 60 days then slowly add back in gluten for a period of 6 days and asses. Due to my symptoms not being extreme. Just a mild upper abdominal pain with irregular bowel movements. So I left the doctors office with a potential diagnoses but no real answers as to gluten free or Celiac Spru. He did explain the disease to me but honestly it was all jumbled up jargin as things sometimes get when we are in the dr and in shock.

So I started researching and find myself even more confused. I get what gluten is. Im surprised it is in so many products (many of my favorite staples) I decided to get onto my long time fitness buddy spark people and search for people who may have some light for me.

Is it possible to have a minor gluten intolerance and never know it? Are any of my listed symptoms the same as any of you. Im on day 1 and feel like crap.

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