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WIND_FLOW SparkPoints: (0)
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12/11/10 5:09 P

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I completely understand the morning thing. It seams like no matter what time I wake up I can't get out of bed and get ready for the day until around 5pm. Whenever I get jobs I have to work night shifts and its so frustrating, especially when you have plans, or something you have to do and your body just drags on you like your carrying someone on your back.

ZAIRAROS's Photo ZAIRAROS Posts: 41
6/25/10 6:34 P

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well I don't know if this is what I have but on January I tested positive to Eb and the doctor told me that this is going to be a lifetime thing he told me I have to check my hepatic enzymes every time i feel sick and at least every 3 month do a sonogram on my liver.He also told me that I have to loose weight, sleep well,and don't get stressed ( easy right ? emoticon ). If this is the name of what I have im soooo glad I found you guys because after that time its being an uphill battle for me just trying to don't get another crisis. I'm tired that every time I feel funny I have to start with vitamin C (1000mg) 3 times a day and Tylenol to control the stupid fever and joint pain. did someone explain me a little more about this thing thanks

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FOWLER1010 Posts: 1
6/14/10 6:07 P

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emoticon

Edited by: FOWLER1010 at: 6/15/2010 (09:45)
DMBFANKAYSIE Posts: 5
3/18/10 3:31 P

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I'm so glad to have found this website and most of all to have found this group. Its nice to have a place that people with CEBV can share stories and iformation. I was also in and out of doctors offices for a long time and I was told I had so many different things, until I finally found the doctor I got to now. She figured it out on my second visit to her and I thank her so much for that. Its nice to finally know what is wrong and I had never heard of CEBV before. I think the most difficult thing about having CEBV is trying to get friends, family, and coworkers to understand that its not something I can completly control. I can do things to help it but I can't control it.

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GAILA66's Photo GAILA66 Posts: 74
3/17/10 12:20 P

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I completely understand. I was told by doctor after doctor for about 20 years that I was depressed then finally found a doctor who did a blood test and figured out what the real problem is. I have adapted my life and have found that if I am in bed by 7:00pm every night that I can usually make it through the work day the next day. Of course there are times that I simply can't. Fortunately I am blessed with a job that works with me.

A happy life is a conscious effort and a conscious decision.

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TRISHATRYIN's Photo TRISHATRYIN SparkPoints: (11,869)
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2/26/10 4:17 P

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i didn't see the dr oz show. wish i would've.

i so hear you on the 'family not getting it'.
mine always say to me 'you're always tired. you're always sick'..like it's a bother to THEM!...um yeah, helloooo it's a bother to ME! sooo frustrating!

ok i feel better now that i've vented :)
& i guess they really can't help it anyways. there's no way you would understand it, unless you've actually lived it..

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TXLAKELADY Posts: 1
2/22/10 8:15 P

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I didn't see the Dr Oz segment. I heard it was a disappointment. You can get support and information from the forum on cebv.org. Check it out! Pat

MORETHANWEIGHT's Photo MORETHANWEIGHT Posts: 644
2/19/10 9:17 P

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i was really shocked to see that there was a group here for this however i can't tell if this is an inactive group~~I hhope not
i don't know if anyone else saw it, dr oz had a segment about ebv on his show the other day, almost everyone tested positive for being exposed to this virus
living wiht this disease sucks
i am tired of being tired so often
can't get out of bed most mornings
would love someone to share these feelings with as my family just doesn't get it

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