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NEVERGETNAKED's Photo NEVERGETNAKED Posts: 2,456
10/17/10 4:38 P

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Gary, thanks for another inspiring blog! I voted 'I liked this blog' and hope it gets the recognition it deserves.

Didi
Co-Leader : Living With Neuropathy
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VXWALL1942's Photo VXWALL1942 SparkPoints: (75,327)
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10/17/10 1:29 P

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Gary! Enjoyed the blog and would like to see it reach 'Outstanding Blog Post' status as it is motivational and inspirational as well. Pain is to be overcome and that I am fortunate to be able to do most of the time. What I haven't done is commit totally to the Spark People regime. Today all that changes. I can overcome my shortcomings and physical limitations to have a success story such as yours.

vicki

vicki

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Some mistakes are too much fun to make only once. -Anonymous

If life is a bowl of cherries, what am I doing here in the pits? -Erma Bombeck


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HLTHYETER's Photo HLTHYETER Posts: 1,327
10/17/10 11:22 A

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Neuropathy is the pits--I really appreciate this team and its support. I have written a new blog telling about some of my difficulties in dealing with this disease. I hope you are doing better with the pain.



" The pain you feel today will be the strength you feel tomorrow."

God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;


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VXWALL1942's Photo VXWALL1942 SparkPoints: (75,327)
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10/13/10 8:07 P

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Thanks Lynne! I'll check with my dr on that cocktail. I get 8 hours of sleep but they are smattered throughout the day and night. Maybe you've got something here. I've also heard Lyrica can help when served up with Neurontin.

vicki

Co-moderator
Dealing With Depression


Team Leader
Living with Neuropathy

Co-moderator
SP Class of May 1-7, 2011

Some mistakes are too much fun to make only once. -Anonymous

If life is a bowl of cherries, what am I doing here in the pits? -Erma Bombeck


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LYNNEJ5's Photo LYNNEJ5 SparkPoints: (0)
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10/13/10 4:15 P

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After many months of pain, numbness and the feeling like I have a very tight shoe on, I finally saw a specailist and her diagnosis was severe periphial neuropathy. My family doctor had already ordered Cymbalta which seemed to help some. I am on Neurotin but because of Epilepsy. The specialist also put me on Amytriptiline and those combination of drugs has done the best for me. I at least get enough of a relief that I can sleep which was one of the biggest problems. The pain I could deal with during the day as I already deal with pain from other issues. It was at night that I was having the most problems. Anyway I think everyone is different and you may have to see a specialist to try and get some kind of relief, but this kind of pain is real and it is not a pleasant thing to have to deal with. I really feel bad that you are having so much trouble. Keep coming back and let us know how you are doing. emoticon emoticon emoticon Lynne

Edited by: LYNNEJ5 at: 10/13/2010 (16:16)

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ANNABELLE1957's Photo ANNABELLE1957 Posts: 1,357
9/18/10 3:15 A

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thank you so much i will look for those,and i like the quote you have also bless you

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HLTHYETER's Photo HLTHYETER Posts: 1,327
9/17/10 11:16 P

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For help going to sleep I use natural supplements--melatonin and valerian root--both are very inexpensive and available at discount stores like Walmart.

" The pain you feel today will be the strength you feel tomorrow."

God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;


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ANNABELLE1957's Photo ANNABELLE1957 Posts: 1,357
9/16/10 2:26 A

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thank you for the info,will check it out
i have lupus and fibro,and alot of arthritis of different kinds, diabeties, so it is a combo of alot all at the same time,, but have pushed through and fight it daily with no meds, praying and going on. thank you again

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NEVERGETNAKED's Photo NEVERGETNAKED Posts: 2,456
9/12/10 6:55 P

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Hi Annabelle! emoticon to the team! I hate to say it, but exercise seems to be the best remedy. It really does help reduce pain, but you have to keep at it.
Is a lot of your pain neuropathic? There are some inexpensive creams on the market that can help. Put some peppermint oil in it and it works even better! I can't remember all of them, but one is called Neuragen and is available at Walgreens. There are also some vitamins that can be beneficial. Especially the B vitamins. There are several posts that cover the effects and which ones are the best.
What type of neuropathy do you have?

Didi
Co-Leader : Living With Neuropathy
teams.sparkpeople.com/neuropathy


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ANNABELLE1957's Photo ANNABELLE1957 Posts: 1,357
9/12/10 5:05 A

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new here ,,live in chronic pain from many health issues,just wondering if anyone has some ideas for natural remedies,,ty as i dont have health insurance and cant see a doc regularly, thank you so much

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
9/10/10 10:37 A

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Marie, May I ask what the cream is that you use?

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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YAZMAMA's Photo YAZMAMA Posts: 971
9/9/10 11:52 A

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Hi Kathy, I'm new here too. I was just taken off Lyrica and put on Neurontin and find it does nothing for my pain. As for the TENS unit, there was just a study in the Am. Journal of Med. (I think it's somewhere on the health page) about them. From personal experience, I thought it helped my back...caution, make sure you can get replacement electrodes for it. I stopped using mine because they were either impossible to find or very expensive.

Otherwise, hang in kid. I have a lot of neuropathic pain in my feet. I use a blanket lift (may be an idea for you) as well as otc neuropathy cream. SO I know where you're coming from. emoticon

Marie
"Old friends pass away, new friends appear. It is just like the days. An old day passes, a new day arrives. The important thing is to make it meaningful: a meaningful friend - or a meaningful day. " - Dalai Lama

I know God will not give me anything I can't handle. I just wish that He didn't trust me so much.
- Mother Teresa

"It's a gift to be simple, a gift to be free"
-Shaker hymn

I pray everyday for the strength to accept those "gifts" the Lord g


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
9/9/10 10:13 A

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Hi Kathy,

First, Like Didi, I am wondering why you are on Gabapentin and Lyrica. They are practically the same medication. They are both seizure medications that seem to help with neurological pain. Usually they use a seizure medication in combination with a serotonin inhibitor type antidepressant such as Cymbalta. Sounds like you really need to be in contact with a better doctor. A neurologist or even a Rheumatoligist would be better at helping you.

Pain is something we are all living with having Neuropathy, but with the proper medications the pain should be reduced.

Exercising is really important. It may make you hurt at first but with in time you should actually start having less pain. I know when I first started doing my exercises my pain was at a 6 on the scale of 1-10. Now I consider it a 3. So stick with the exercise the physical therapist gives you.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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HLTHYETER's Photo HLTHYETER Posts: 1,327
9/8/10 11:36 P

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Hi Kathy,

I have recently had a few twinges of pain--they are very welcome for me as I have no feeling whatsoever in my feet. I have learned that pain can be a friend if we can accept it--it can keep us from doing even more severe damage to our bodies. I know that may not feel like the answer you need right now, but I just wanted to point that out. I have had tremendous struggles with neuropathy. Check out some of my blogs to see what they have been like. The good news is, despite all that I have lost over 60 lbs in 6 months and now do cardio on a recumbent cross trainer for 60 minutes four or more times per week, plus strength training. I urge you, with your doctor's support, to explore the limits of what you are able to do because as the other members have suggested, exercise is hugely important in dealing with neuropathy. God bless and best wishes for improvement.

Gary

" The pain you feel today will be the strength you feel tomorrow."

God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world
as it is, not as I would have it;
Trusting that He will make all things right
if I surrender to His Will;


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NEVERGETNAKED's Photo NEVERGETNAKED Posts: 2,456
9/8/10 8:21 P

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Hi Kathy! It's nice to meet you! I'm sorry you're having to deal with so many painful issues. I'm wondering why you're on both Lyrica AND Neurontin? And why you're not on something stronger than Advil for the pain? I think I'd ask your doctor to refer you to a pain specialist, who would be better equipped to manage your pain. I hope the TENS unit gives you some relief. It takes some getting used to, but it can be used pretty much anywhere on the body.
Depression can elevate pain levels, as well. Something like Trazadone can help with sleep and anxiety. I think if you can get your pain under control, some of the depression will lift. Exercise seems to the cure-all answer. There are a lot of exercises you can do in bed/on the floor, and some that can be done from a chair. The more you do them, the easier they become, and the better you'll feel. The resistance bands are an excellent idea also.
I hope you're able to get some relief. Please come back and keep us posted on how you're doing.
emoticon

Didi
Co-Leader : Living With Neuropathy
teams.sparkpeople.com/neuropathy


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VXWALL1942's Photo VXWALL1942 SparkPoints: (75,327)
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9/8/10 2:32 P

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Hi Kathy. So glad you chose to join us on this journey to a healthier and happier lifestyle. You're in the right place at the right time. This is a caring and compassionate group with support and encouragement to share when you post.

I'm sorry you are having so much discomfort because of your neuropathy. I have peripheral neuropathy and am also unable to walk. Stay with your dr and PT to find some resolution to your pain. The tens unit should give you some relief once you're accustomed to it. Be sure and work with the physical therapist to be certain you are using it correctly. I found it helped me a great deal.

For inspiration and motivation, read some of the Success Stories above. They're by and about ordinary people who have achieved extraordinary things with Spark People. We all have a success story to live and tell. I look forward to celebrating your successes with you.

Come back soon and post often. We're here for you any time. You may try some Chair Exercises to give yourself the needed exercise for weight management as well as increasing endorphins in the brain to improve your mood and help you feel better.

vicki


vicki

Co-moderator
Dealing With Depression


Team Leader
Living with Neuropathy

Co-moderator
SP Class of May 1-7, 2011

Some mistakes are too much fun to make only once. -Anonymous

If life is a bowl of cherries, what am I doing here in the pits? -Erma Bombeck


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DANCINGANGELS's Photo DANCINGANGELS Posts: 2,517
9/8/10 2:01 P

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emoticon This is how I feel most of the time now. I was diagnosed with diabetic neuropathy in my right leg about two months ago but am finding that living with the pain is really hard and could use some help, support and suggestions of how others do it. I am taking 900 mg of gabapentin three times a day and 150 mg of Lyrica twice a day and sometimes 600 mg of Advil all for the pain and still have it. They ordered me a Tens unit and I find out how to use it tomorrow afternoon at physical therapy.

It is really difficult to get out of bed, on and off the couch, walking, exercising and sleeping in night because all I have is more pain. So how do you do what is important like exercising.

I also just found out I have carpal tunnel syndrome in both hands and have to have surgery. I am diabetic, have cholesterol problems,hypertention, depression, anxiety and panic disorder. Had three back surgeries last year and knee surgery so far this year .

I am now also having pain in my left leg similar to that in the right. I also have a lot of pain in my lower buttocks area. Anyway right now I feel like I walk like a duck because of the pain. Ouch!!!

Well had better go for now. Hope to hear from everyone soon. Kathy

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