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RAWSUNSHINE's Photo RAWSUNSHINE Posts: 59
3/2/14 3:44 A

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Hi everyone! My name is Hannah and I've been diagnosed with PCOS for almost 3 years. I wrote a blog about it on my sparkspage, but its been quite a journey in discovering why my body wasn't cooperating. I am very keen on dealing with everything naturally, I took the medical route already and nothing helped, in fact I think it made it worse. I'm hoping that this team can be a support and one where I can help support others too!

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UKIEMOM18 SparkPoints: (6)
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7/24/13 3:53 P

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Hello ladies! My name is Renee and I have been diagnosed with PCOS officially close to 9 months ago. I have asked my GYN for 2 years if I had it and he told me that yes I did and he assumed I knew. Once he did that, I went on the internet and found my current doctor who is wonderful and very knowledgeable about PCOS. She did tons of blood tests and put me on thyroid meds and metformin. I have been on metformin since I went to her but am going to have to go off of it since I have not felt "normal" since I started. I can't go to work on some days since I have such bad diarrhea. I have also found that I am a carrier for non-classical CAH and that it has a connection with PCOS. I have one son who was a miracle baby since I had him unexpectedly. I would love to talk to more ladies who know more than me and can understand where I am coming from.

JOANNA1205's Photo JOANNA1205 SparkPoints: (13,382)
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3/7/13 2:33 P

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Hello everyone, My name is Lucinda and I have pcos and have for a very long time. I need a complete 100% lifestyle turnaround. PCOS rules my life 24/7 and I can feel my health deteriorating and on pain pills daily. I am per-diabetic and Insulin resistant. I am hoping to make some friends and find some support here in my journey in turning my life around.

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SMARTIN77's Photo SMARTIN77 Posts: 357
1/20/13 8:29 P

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Hi~ I am Sandra from Indianapolis, IN. I was officially diagnosed w/ PCOS in 2003. I didn't choose to go for conventional treatments, but I also didn't really change my lifestyle either. I've learned a lot about nutrition and natural/alternative medicine over the years but put very little into practice. I didn't think it was possible to eat and live healthy on our income (even when my husband and I were both working). I was too entrenched in poor eating habits learned in childhood, and didn't have much willpower to escape my S.A.D. diet. The times I stuck with it, no matter how brief, I did see positive changes.

I've always battled irregular periods since high school. I didn't have a period my entire senior year...before that it was pretty much clockwork. But a visit to the ER and some hormone pills brought the period on. Over the years, I've gone months without a period, or months with one. For two years, from Spring 2010 to Summer 2012, I had a period for 2 yrs. straight with no end in sight. It was a difficult time, and I didn't have medical insurance or even money to buy healthy foods. I understood how people feel who have debilitating diseases which leave them in chronic pain. I finally went to the ER, not able to deal with the hemhorraging a moment longer. They gave me birth control pills which ended the nightmare within a couple days. I only took them for one month, and since then, my periods are still irregular, but spaced a little more evenly and regularly than before. Birth control has never been something I wanted to take, but it was a last resort measure.

I deal with heart palpitations, pre-diabetes, pre-hypertension, insomnia and other ailments which I know are directly related to PCOS. In November, I re-joined Spark determined to change. I gave up fast food, and I track my cholesterol and sodium as well as vital nutrients. I'm learning all I can and putting it into practice...FINALLY! I am seeing results. God has blessed me with some awesome cysters on Spark who have dealt with PCOS and these other issues, and were able to reverse them through diet and exercise. I, too, want to be a success story and motivate and encourage others along their way.

emoticon emoticon emoticon





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TAVILY SparkPoints: (1,415)
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1/1/13 4:41 P

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Hello fellow PCOS ladies! I just started Spark People and hopefully this program will help me lose some weight. I am 25 years old from Moscow, ID and was diagnosed with PCOS a little over a year ago. My husband and I just started trying to have a baby so I need to get into a healthier weight to help. I am excited to try this out and to read all of your posts about how this helped with your symptoms and goals!

Edited by: TAVILY at: 1/1/2013 (16:44)
CLEVER13's Photo CLEVER13 SparkPoints: (4,465)
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12/24/12 12:43 P

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Hi Everyone, I just re-joined SP today. I've been under crazy stress all year because of a career change and parental illness. I was doing fine finding inspiration in my new career and looking at the positives until about August, when I was diagnosed with PCOS. I'm about to turn 31 so I want to take care of it now. I lost a little over 10lbs after forcing myself on a doctor-recommended vegetarian version of Atkins. But, it's difficult to stick with and was killer on my stomach and digestion. I was also still finding myself eating some 'fake meat' to make up for the protein. After falling off of that and gaining back some of the weight, I decided it wasn't for me. I, like some of you, don't want to be on metformin either. I'm trying to keep the carbs down, but mostly I'm focusing on whole foods and really limiting my grains, rice, etc. It's not an exact version of what I'm doing, but I try to follow some of Ani Phyo's weight loss book recipes. Wish you all the best!

Just do it. No one else will do it for you.

Non-food awards:
150 - manicure
145 - spa pedicure
140 - new earrings
135 - new necklace
130 - new shoes
125 - new outfit!


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HEALTHYDAISY's Photo HEALTHYDAISY Posts: 94
7/17/12 11:13 P

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Hi, I have been a member of Spark People for 2 1/2 years (on & off) with moderate motivation and success. I was diagnosed w/ PCOS a week ago and was pretty much floored by it. I am 49 and really expected the GYN to tell me my irregular cycles were the result of menopause. He said we would discuss metformin which sent me to the Internet and I have decided I want to approach this in a non-pharmacological manner before I go on a life-long medication that is not FDA approved for the condition.

One thing I learned in my research is that a low carb/high protein diet is best. The default on the nutrition tracker is 55% carbs. I had to go in and edit the tracker to reflect a 40% protein, 30% fat, 30% carb mix. I've been following this for four days and have dropped 2 lbs. Unreal results for me. I have pretty much cut out anything considered a baked good except Arnold Sandwich Thins, Triscuits, and 100 calories whole grain sandwich wraps. Luckily, I have used whole grain pasta for years and developed a taste for dark greens (kale, spinach, & swiss chard) in the past two years. I am really concentrating on veggies, berries, lean protein, & low/no fat dairy.

I have re-vamped my exercise routines to include a greater variety of aerobic activities and cut weight lifting activities.

For years I have wondered why it seems that I have chronic inflammation and how I could reduce it. I am sort of wondering why I am just being diagnosed at my age. My entire life I have struggled with my weight, anxiety, & acne. My hair started to thin in my 30's, but the irregular cycles and chin hair are recent symptons. I agree with others that this just isn't on most Drs. radars. The dr that diagnosed me is a fellow of the ACOG. My primary care physician just sort of shrugged when I told him about the diagnosis.

If the diet & exercise changes are not enough I am considering acupuncture. A study out of Sweden found that women who used acupuncture had a reduction in waist circumference and those who exercised did not. Hopefully, both would be more effective.



Edited by: HEALTHYDAISY at: 7/17/2012 (23:37)
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RIVKAHLYNN's Photo RIVKAHLYNN Posts: 500
7/10/12 12:40 A

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Hi my name is Rebecca and I was diagnosed with PCOS when I was 16 and have been fighting it ever since. I have been put on metformin and on progesterone in the past, though there is no need for progesterone any more. It is a struggle trying to lose weight keep it off and be happy with myself. Thank you for allowing me to join this group and share with you all

May you always dance to the music that lives in your heart. Be you and be beautiful!


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KLUTERACOON's Photo KLUTERACOON Posts: 90
6/24/12 10:09 P

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Hi,
My name is Dani, I was unofficially diagnosed with PCOS about 3/4months ago. I started on the InsuliteLabs PCOS system. It's a combination of nuetracueticals, so far I've noticed a huge difference in the month that I was on it. They have a great website with tons of info on PCOS. I'm trying to control things as naturally as possible first before I start on Metaformin or go back on Birth control.

5/22/12 183 lbs
5/28/12 182 lbs
6/4/12 180 lbs
6/11/2012 179 lbs
6/18/2012 177 lbs
8/6/2012 172 lbs
12/30/2012 158 lbs


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AJHONDRNGAL's Photo AJHONDRNGAL SparkPoints: (35,400)
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5/16/12 4:01 P

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Hi! My name is Ann. I live in Boise. I've been married for 25 years and have four children...three boys and a girl (ages 24, 21, 17, 15) and a beautiful daughter-in-law.

I've suspected I have PCOS for YEARS... literally. I think the first time I started considering it was something the doctor didn't quite say back in 1995, after I had an experience with infertility and needed drugs to get pregnant with my third child. Ever since I've wished doctors would notice the hair on my chin, but they haven't. I even came right out and told one doctor that I had pcos symptoms, and she ignored me.

Most recently, I went to the ER because my blood pressure had suddenly spiked. They were so aggressive in bringing it down that suddenly I plummeted from 170/100 to 85/45 in seconds. The stress of it brought on a heart attack. They proceeded to ignore all other symptoms because "something must be wrong with your heart." An angiogram showed that my heart is perfectly fine. Since then I have been tested for my thyroid (and the doctor showed her incompetence there...good thing she moved.)

I'm here because my new doctor pointed out pcos in our visit today. FINALLY! He told me to look it up online. I told him I'd already studied it. He asked if it was possible I had it. I told him, "It's very likely." So I've been doing some research again. I looked at the list of symptoms today and I have had all of them for quite some time. It makes me angry that the doctors would overlook those symptoms, even when I tell them I have them.

As a teen I had my own unique cycle, so I'm not exactly sure when pcos symptoms started, but I suspect it was after my first miscarriage when I suddenly gained 20 pounds in two months OR after my first baby when I stopped having periods.I had them as long as I nursed and then none when I quit nursing. The doctor I saw then gave me a progesterone shot and my cycle has been irregular ever since. Over the years it got to the point where I was having one period per year. It has improved in the last few years. Or the beginning may have been when I returned from Honduras and noticed a sudden thinning of my hair. I'm not sure.

On weight gain...I never gained too much during pregnancy. 23 pounds was my largest gain at those times. My problem was gaining after I stopped nursing. I would always put on weight until I was back to my final pregnancy weight. Then I would maintain until the next baby.

Until now weight loss hasn't been that hard. Realistically I have been concerned about weight loss since 1989. I tried several different things, but finally found a plan I liked in 1999. I was able to lose enough weight and inches to be happy about the results. But the more I did the more I realized that my eating had been covering up emotional issues. So I had to take time to work through those, and that took me until 2007. In the meantime, I started trying this same diet plan in 2004. At that time my cycle became more regular and I was able to make the same kind of progress as before. Currently, my cycle is more regular than it has ever been.

However, sometime in the last 5 years or so, things have really slowed down. This year I have made the switch to eating more vegetarian (which I see in my research is a good thing to do). The sad part is that I'm really struggling to lose anything. I can maintain with my old habits, but I'm lucky if I see 2-3 pounds come of in a month...if that, when I do everything perfectly. It's getting very frustrating. A girl I know decided to stop eating sugar and to exercise 6 days a week. She lost 80 pounds in 9 months. I wish it could be that easy for me, but I know it's not. I have to have all the pieces in place and sometimes I wonder if I'll ever have all the pieces, let alone have them in the right places.

Just one last thing. I really do want to lose weight so I look good. I especially want to figure this out before I get heart disease and diabetes. Up until now the doctors have been content to help me down the slippery slope into those diseases like it's inevitable. I don't trust them anymore because I don't feel that they have my best interest at heart. I felt more hope with this new doctor today. So basically, I'm not diagnosed yet, but I'm looking for a team to learn from. I liked seeing that you try to do things as naturally as possible, which goes with what I'm trying to do. (I'm also working with a naturopathic doctor.)

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MIMISLILLUVS's Photo MIMISLILLUVS SparkPoints: (2,660)
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5/14/12 10:06 P

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Hi my name is Michaela. I am 38 and was diagnosed about 9 years ago. My main symptom was no period and after so many negative pregnancy tests the Dr. and I had a chat. I am very lucky, I have 4 children. I didn't start to miss periods until about a year before I got pregnant with my last child. I just had a period for the first time in about year and I credit it to weight loss. Very difficult, lengthy, kick my butt weight loss. I didn't do low carb this time so it took much longer and was much more difficult however I worked my butt off to lose that weight (so far) and I will not be letting that achievement go anytime soon. I am very interested in what others are doing for not only their weight loss but for their P.C.O.S. I've pretty much ignored my situation because I didn't care, sad I know but, I don't want to be that person anymore and I'm not so, that's why I'm here. I'm looking forward to getting to know you all.

~*.*Mimi*.*~

"Don't dig your grave with your own knife and fork."
~English Proverb


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PAPAYA319's Photo PAPAYA319 Posts: 2
3/17/12 3:59 P

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Hello,
My name is Pi and I was diagnosed yesterday. It was a bit of a shock, as I had no idea when I went in for my regular GYN visit that I had anything in need of diagnosis! Fortunately, my doctor is extremely knowledgeable on this subject (that I'd never heard of before) and connected the dots for me. Now I see how all my seemingly un-related issues are all connected by PCOS. I've been living with this for years, and had no idea. At first I was really freaked out, but I'm trying to re-frame my thinking. Now I can actually DO something about my symptoms! I've been trying to lose weight for years with minimal (and extremely frustrating) results. Learning that my body has been actively working against my goals is mind-blowing. I've been online for the past 24 hours, reading about PCOS, low-GI diets, and insulin issues, trying to get a handle on things and figure out where to start. My doctor prescribed Metformin, too, which should help jump-start things, right? I stumbled across a reference to SPARK on another PCOS forum. I'm hoping that the community aspect here will help me stay on track.

Also, does anyone know of a good android phone app for checking GI on foods or other PCOS-related dietary issues? Thanks!

Every journey begins with a single step...


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CHATTERJESIS's Photo CHATTERJESIS SparkPoints: (2,874)
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3/15/12 2:37 A

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Hi Ladies!

Its really nice to find you all here.
I am 26, ofcourse overweight with PCOS, i have hypothyroidism too.
We are married for 4years, and started trying for a baby last year....before trying my period was normal.
But dont know how it disappeared then!Did an unsuccessful round of Clomid, got periods,and devastated.
My periods are so scanty and less these days, so I decided to lose my extra kilos off.Just after marriage I had one miscarriage.Now i am really depressed and down!
in 2010 I lost 20+ pounds with Spark people.
Planning to lose more 15lb more this year.I wish to lose weight and get my regular period and probably ovulation back.

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RASPUT1NA Posts: 2
2/6/12 2:42 A

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Hello, I'm a 29 year old graduate student and university instructor, and I need a good kick in the pants to get myself back in shape! I'm 5'1'' and currently 154lb, the heaviest I've ever been. I was at a weight I felt very comfortable with for the past ten years, but put on an extra 20lbs over the past two years (grad school stress? sedentary grad school life? laziness? all of the above, I'm sure). I really shocked myself, especially when I saw photographs taken of me recently. I'm hoping that with regular exercise, watching what I eat, perseverance and an optimistic outlook will help me lose (and permanently keep off) those extra 20lbs this year.

Specifically on PCOS: My sister was diagnosed with PCOS three years ago. I, myself, have been asking doctors, getting inconclusive tests done, and reading up on it for over four. I don't think any of my previous doctors ever took me seriously; many of them didn't seem to know much about it--or how to test for it--at all. I'm just now starting to see a new gynecologist who does, and who diagnosed me with PCOS last fall. I was put on BCP ten years ago (by my pediatrician!) in order to regulate my very whacky menstrual cycle, and now that I take the birth control pill as a form of family planning as well, my new gynecologist doesn't want me to risk going off hormonal birth control for three months in order to get the endocrinological blood work done to verify her diagnosis. I'm happy with that decision myself; until I'm ready to start thinking about having children, I'd only want to continue taking BC to regulate my cycle and take natural, holistic measures to influence my condition as it is.
Right now that means managing my weight before I have to add hyper tension and/or pre-diabetes to the list of my concerns. I'm glad to have found a support network of other women working against the same conditions I am!

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LONGWINDINGROAD's Photo LONGWINDINGROAD Posts: 553
1/26/12 2:17 P

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Hi, Iím Tricia and I found out I had PCOS about 4 years ago. The GYN I went to gave me little information. She said that they didnít know what caused it and that there was no cure. Have a great day! I left there feeling like I was stuck with something I would never be able to fix. I went to an endocrinologist (that I didnít like) and he told me my only option was to go on BC and Metformin, eat a SUPER low carb diet (only 45 grams of carbs/dayÖthis included the carbs from veggies and fruits), and MAYBE if I lost weight I would one day be able to have kids with lots of fertility drugs. I felt even worse than I did BEFORE I went to see him. I wasnít hoping for a miracle, but I WAS hoping for some more positive advice.

After that terrible trip, I kept up a low carb diet (although I wasnít as worried about the carbs from veggies) for 1 month. I lost maybe 10 poundsÖwhich is good, but it was SO hard to keep up. I was grouchy and miserable. I pretty much fell off the wagon and have been jumping on and off ever since.

Iíve finally started to feel more positive, like thereís a light at the end of the tunnel, and Iíve been doing a LOT of research on PCOS and eating. My cousin is a personal trainer and going to school for nutrition and suggested to me that I try a Paleo style diet. Itís still pretty limiting, but Iím at the point where I want this weight goneÖI want kidsÖitís time to try something different that doesnít involve BC and Metformin.

This is my journey!


Tricia



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AMYHOLLIDAY's Photo AMYHOLLIDAY SparkPoints: (8,009)
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1/22/12 8:40 P

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Hi. My name is Amy and I am 34. I was diagnosed with PCOS when I was 11 after only one year of menses. But I guess since that first year was one long constant period it should have clued someone into my problem. But it wasn't until I was hospitalized with them all bursting at once that a doctor finally listened to my mom and myself that something wasn't right. I was told then that I would not be able to have children which was like crushing all of my future plans all at once.
At 20 I was also diagnosed with endometriosis and they said I had another cyst that was the size of a golf ball that needed to be removed. When they got in they found out it was actually the size of a grapefruit. At this time they had to remove half of my ovary also. I was devastated thinking the doctors were all right and I would never have a baby. Well six months later I was pregnant. He is my first of four. But I have had 2 laproscopic procedures and a leep procedure to be able to have them, but I am very grateful that I was able to have them after being told for so long that it was impossible. I had actually given up all together when it happened.
I do still have major problems every month, but at least my periods are on schedule. I know that there are at least 2 days where I don't want to move and all I want to do is cry from the pain. The only remedies I use are over the counter tylenol and advil and a heating pad/ ice pack. I have learned to endure it and am just praying for menopause to knock on my door because doctors in my area will not do a hystorectomy for anything and if they do it is only the partial ones so I will still have to deal with the cysts coming and going too.

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MELMULLINS1018's Photo MELMULLINS1018 SparkPoints: (300)
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1/21/12 2:37 P

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Hi! My name is Melissa and I am about to turn 33. I was diagnosed with PCOS January 2008, 3 months after I got married. It was hard to deal with at first but now I think I have pretty much come to terms with it and know there is no need being angry. I have to work with it. It took a few years to see it that way. After spending thousands of dollars on fertility treatments, DH and I decided to just go with the flow. At times I see a baby and still wish for one, but what happens, happens. I had gained so much weight in a short period of time. I lost 25 pounds and within a few months, gained it back. Living with PCOS, you know that it doesn't take much to put the pounds back on. January 2011, I finally found a DR that knows about it. I have lost 55 pounds since my visit with her and I AM going to lose the last 25. My favorite saying, Don't let PCOS be a stumbling block, let it be your stepping stone. We need to educate others so they will know the signs before it is too late. emoticon

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MAGGY1978 Posts: 4
1/17/12 11:00 P

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@ Carolyn - Thanks a lot for responding. You truly are quite spontaneous. It was great to read your post. I am currently on metformin and i try to exercise everyday for 30 minutes. Do you follow the diet recommended by spark people ? Sorry, but i am quite naive when it comes to low carb and all.

@ TRUMPETCOWY
Welcome to SP. I know the feeling and the drive to lose weight when you desire to have a baby . I am a mom of 2 and trust me , diet , exercise and metformin + clomid was what made my dream come true. i am back in the saddle of weight loss as with the baby came an additional 50 pounds . But its all worth it.

Hope we can all face this evil disease with courage and a smile emoticon

TRUMPETCOWY's Photo TRUMPETCOWY Posts: 80
1/17/12 11:27 A

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Hello Everyone!

I am 27 years old and recently diagnosed with PCOS. I have been married for over three years and we have been trying to get pregnant for the past 4 months. As a teenager I always had irregular periods, but I also had an eating disorder so I blamed the irregularity on that. When I was 15 I began taking birth control pills to regulate my cycle. I have been on them consistently since last January (2011). At that point we were going to "see what happens" in the baby making department. For the past 4 months I have noticed that my cycles have been getting longer and longer... from 33 days to 39 days... to 46 days! So i called the doc and he diagnosed me. Now that I have been doing research on it I am realizing that I should be losing weight (at LEAST 10lbs) to increase my chances of conceiving. If that's not motivation I don't know what is!

I'm very thankful that SP has a forum for PCOS! I really need the support!

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CAROLYNGOLDADE's Photo CAROLYNGOLDADE Posts: 54
1/17/12 11:22 A

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Hey Maggy! I'm Carolyn, the group's "leader" and It's so great to meet you. I am 34 and also a mother of 2. First of all...you have done exactly what you needed to do. You've taken that first step and that is so often the hardest to do. The next step is becoming educated. It sounds like you are also headed in the right direction for that as well. You really have to know how PCOS affects your body in order to know what the next step is so by being educated in it...that solves that. The next thing is to constantly remind yourself that you are worth this. Our emotional state is the number one deal breaker for weight loss. It's a difficult journey, and what we tell our "thought closet" can either make us, or break us. We are beautiful. We are strong. We can do this! EVEN if we never lose another pound, the goal is to be healthy and try to reverse the effects of PCOS. I'll tell you what I am doing...and it works. I have a meal eating plan. I have two sheets of paper on my wall in the kitchen. One for my husband, and one for me. My whole family is on my eating plan. My husband and I are eating as if we were on Weight Watchers. We just don't want to fork out the money right now for the monthly pass, so I have done my research, from when I was on it before and I set our numbers of our daily points allowance, and we are sticking to that. About 1200 calories for me...1800 for my husband. We are eating breakfast, snack, lunch, snack, dinner, and snack. This is a lot of information for this tiny little box, but I'd be glad to talk with you more. I also have a blog that is just simply encouragement. I have been working with PCOS and researching it for 13 years. But I am not a doctor and will never claim to be. There are a ton of medications out there....but I chose to stop it all and go naturally. It's working wonderfully! The most important step....get moving! I do Zumba everyday (just started last week) but before that I walked at least a mile every day or did our elliptical. That is the key. It will keep our emotions stable, eating on track, and energy to last the day.



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MAGGY1978 Posts: 4
1/17/12 9:55 A

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Hi
My name is Maggy from Irving tx. Its good to see so many women go through the same emotions that i do. I must admit that i am quite overwhelmed with the website and all the information that's available. I am 33 and a mother of 2. I was diagnosed with pcos @ 16 but never knew what to do . I was just wondering if someone could throw some light on how to use the pcos forum and where can i get pcos friendly recipes. I am 5 3' and weigh 175 pounds ):
My goal is to be healthy and look great and lose atleast 40 pounds to fit in a size 8.

Please advise on how to get started . ( sorry i feel a lil depressed today )...

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1/14/12 8:05 P

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Hello everyone... sorry if the scent of salt water and sand wafted in after me; I seem to have some of it clinging to my clothes :)

My name is Melissa but I answer to Missy, Lissa, Hey You, and Ummm, Yeah, That Sarcastic Brunette. I'm 43 and have had PCOS for a long time. I know my symptoms occurred years before my official diagnosis in 2005- the first clue was the facial hair mimicking piano wire (oh yeah, soooo sexy when cuddling with your husband, woo hoo). Although I'm lucky enough to have periods regularly, the timing falls anywhere within the 30 to 36 day window which is partly why two of my GYNs couldn't correctly diagnose me.

My diagnosis came when I was married to my ex-husband (known as The Thirteen Year Starter Marriage) and I wanted to see if I was healthy enough to conceive. Hmmm... well, it certainly indicates that God knows more than me because He pretty much said silently "Yeah, I don't think you should dip into that gene pool." Turns out that even on Metformin and Clomid and several other unpronouncable items, my numbers could never get past the negative mark and my female plumbing would be an "adults only" playground. I came to a positive acceptance of it and moved ahead with life.

Fast forward... unhappy in life, wanting to find my own joy of life I dropped 190 pounds (that's how much the Ex weighed) and emerged joyous. Love found me two days after my divorce was final when I met my soul's heart Jack and we've been married since 2008. He understood about my PCOS and everything associated with it... and we decided that instead of human kids, we'd share our love with furkids... so we have our sheltie Mollie (Sweet Girl) and our Jack Russell Terrier, Josie (Little Girl).

I had lost weight five years ago but trust me, it was not the best way to do it. I was intensely depressed, only eating once or maybe twice a day, and walking up to five miles nightly to escape the emotional pain of a crappy marriage. My lowest scale mark was 140 pounds but I lacked muscle definition and my PCOS symptoms were still prevalent.

Fast forward to today... I offically join Sparkpeople after getting enthused from listening to my audiobook of Spark. Although I've been watching my caloric intake since the first of the year, I miss online support and would like to make new friends who understand what a PCOS body goes through. I'm not taking any medication or supplements (horrid gag reflex so unless it's as small as a BCP or comes as a chewable or liquid, I'm up the creek!) but I would prefer to learn how to eat better and expand the food repetoire...

I'm always looking for friends, so feel free to add me and message me whenever you like :)


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MERRYROBYN's Photo MERRYROBYN Posts: 315
1/1/12 9:20 P

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Hi! My name is Michelle and I am 39 years old. I used to volunteer in at my church nursery and my only dream in life was to get married and have 13 kids!!!! I got engaged when I was a teenager and tried to have a baby right away, but years went by and nothing happened. Well, at least with me. My fiancť got another girl pregnant and then I knew the problem was with me and not him. Finally when I was 24 years old I found a Nurse Practitioner that took me seriously and tested me for hormone problems. She suspected PCOS, but nothing showed up on the tests.

For the next fifteen years, I have been single and just working all the time. I have tried to eat healthy and stay active, but nothing helped me lose a pound. Oh, I take that back, I did the Atkins diet for a few months and lost 4 lbs. Yippie. I was allowed either a cup of lettuce or half a cup of vegetables per day. I actually missed salad as much as I missed chocolate. It didn't seem like a healthy diet for the long term and didn't give me the results in the short term.

I moved in with my boyfriend when I was 38 and now I can consider having a baby before its too late. I just got diagnosed with PCOS and started taking Metformin just a few weeks ago. I want to lose 50 lbs before having a baby, and its been so frustrating. I have been tracking my calories and I am down to 1,000 to 1,200 calories a day (like my skinny doctor told me to do) and haven't lost a pound. I really feel so confused, what works? I am close to just having a liquid diet and protein bars. Any suggestions? Books to read? Please leave it as a comment on my page so I will see it, thank you!

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CAROLYNGOLDADE's Photo CAROLYNGOLDADE Posts: 54
1/1/12 2:13 P

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Amy is so nice to meet you! You and I have an amazingly similar story. All of the above, we have gone through. We also adopted to boys as teenagers, actually, through the foster care system and do not have children biologically. We also would have amazingly talented children and I have so often longed to see what a child from US would turn out like. Instead, God gave us two teenage boys that posses both my husband and myself, characteristics.It's almost as if God gave them life to other parents, knowing they would belong to me. Knowing I would not be able to conceive, so HE gave them to another woman to have....for me. I look forward to getting to know you and going through this journey together. Welcome!



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MONTANA722's Photo MONTANA722 Posts: 3
1/1/12 11:46 A

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Hello, my name is Amy and I'm new to Sparkpeople as of last night. I found your group as I was setting up my account! :)

I was diagnosed with PCOS wayyyyy back in 1992. My husband and I tried for many many years to conceive, but with the PCOS, endometriosis, and hostile cervical mucus, I finally had to admit to myself that God had another path for us to follow. I still have ALL of this weight that I'm carrying around, and it's very difficult to shed, but I do have children in my life now. I teach first grade, and we adopted a sibling pair (boy and girl) through the foster care system a few years ago.

I think the thing I hate the most about PCOS is the cosmetic things now. I hated it for its interference in my reproductive effectiveness for a long time, but I've accepted that now. Now I hate the excess weight, the skin tags, the fatigue, and the difficulty losing weight. I'm hoping to find support and encouragement here in dealing with all of those things. (And yes, from time to time, I still grieve the loss of never having had a child with my husband, if I'm totally honest. We would have had a beautiful, talented child (because of him, not me). :)

"If you always do what you've always done, you'll always get what you've always got."


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DANDEE1966 SparkPoints: (723)
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11/28/11 9:12 A

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I need all the support I can get. Today I started eating more healthier and I am setting a goal to walk at least a mile Monday thru Friday. I will be weighing in Friday morning so I will be letting everyone know how I have done. Thanks once again for the encouragement!

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CAROLYNGOLDADE's Photo CAROLYNGOLDADE Posts: 54
11/27/11 9:28 P

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Welcome Amanda! I'm so happy you have joined our team. I'm Carolyn and I'm the Leader of All Things PCOS. I'm so happy to have another team member to share this journey with! I hope that you find the support and enocuragement you have been looking for. If you have any specific questions, or just anything at all...please feel free to ask!




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RISINGBLUESTAR's Photo RISINGBLUESTAR Posts: 1,656
11/27/11 8:35 P

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Hi I'm Amanda. I have just been diagnosed with PCOS in June of this year but I have known that I've had it for a while. I am really struggling with it and could use ideas and advice so that's why I joined this team. It's nice to know that there are other people who go through this but I wish none of us had to deal with it.







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CAROLYNGOLDADE's Photo CAROLYNGOLDADE Posts: 54
11/27/11 4:29 P

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Welcome DeAnn! I'm Carolyn, your friendly All Things PCOS leader and ;-) I'm so glad you joined us. I too am struggling to lose the weight so maybe together we can get this done! I look forward to talking with you further and spending this remarkable journey together!



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DANDEE1966 SparkPoints: (723)
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11/27/11 6:19 A

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Hi my name is DeAnn and I have battled PCOS for 20 plus years and am tired of being beaten up with this dreaded syndrome. I am ready to enjoy the life that God has for me and start getting healthy despite my circumstances. I am determined that I will get contol of my diabeties, weight gain, and over all health despite PCOS. This journey will be a hard road but will be well worth the fight. I am faced with type 2 diabeties and I am 75 pounds overweight and I am looking for support to help me fight the battle placed before me.

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CAROLYNGOLDADE's Photo CAROLYNGOLDADE Posts: 54
11/20/11 7:34 P

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Hello! I'm the teams new leader! It has been renamed to All Things PCOS and I am so excited to get to know all of you! I am Carolyn. I was diagnosed 13 + years ago and have posted like crazy all over this group in the last 30 minutes haha. Much love to you all!



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MANDY9R SparkPoints: (324)
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10/14/11 2:19 P

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Hello!

I was diagnosed with PCOS 6 years ago (I'm 24 now). When my doctor told me, she acted like it wasn't a big deal, so I sort of let taking care of it slip to the wayside. BIG MISTAKE! I had a 5 month long period and my hemoglobin got so low I had to have 2 blood transfusions. My new doctor has explained to me how to take care of myself and take control of my body, instead of the PCOS controlling me. Getting on the ball and starting diet and exercise! But I needed major support, so I joined this!

Excited to talk to and meet everyone!

ELP06C's Photo ELP06C Posts: 504
9/2/11 2:52 P

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Hello my name is Ellen, I'm 22. I was diagnosed with PCOS yesterday! I've been having terrible problems with irregular periods, acne, and morning sickness. I had a million tests done and got all the results yesterday. I have the typical cysts in my ovaries- as discovered by the ultrasound, high levels of testosterone, high cholesterol, low white blood cell count, and very low Vitamin D. My doctor decided to put me on Metformin and today was my first day taking it. I've been reading a lot about it and it seems to cause pretty bad GI problems, I'm hoping I don't experience that. I'm not diabetic, just insulin resistant and I'm not overweight. However, I have all the other typical symptoms.
I'm not sure what to expect from the Metformin, or what it's supposed to do. My doctor did not explain at all what PCOS means or what Metformin is supposed to do, so I'm trying to figure it out on my own.

TERRILGENTRY SparkPoints: (19,357)
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7/7/11 2:02 P

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I was diagnosed with PCOS over 8 years ago after finally finding a doctor that acknowledged it as a syndrome and didn't just make excuses and tell me I'd have to live with it. I've tried everything as far as losing and maintaining weight goes, but it is just always a struggle. I also am blessed with irritable bowel syndrome so taking metformin made me even more miserable! emoticon

Finally, during the summer of 2007, I had to make a change in order to pass the fitness requirements for a career change. I hired a personal trainer, was put on a strict 1500 Calorie a day meal-plan, and was finally able to lose almost 80 pounds over approximately 6 months (however that consisted of at least 2 hours of training a day). I was finally happy with my body again; however, miserable depriving myself of everything I loved and exhausted from spending every spare second exercising.

After changing careers and moving and then getting used to a new job (and not having the same amount of free-time to exercise, I have gone backwards and need to snap out of it and get back on track. I am glad to see SP has a group, specifically for PCOS users, as so many of my friends and family just don't seem to understand it and think it's more of an excuse than an actual physical reason why I have to watch what I eat and exercise so much more than your average person just to maintain a healthy weight!

I am looking forward to having the support to get back on track and get to a place where I feel more comfortable and confident!

WOOLYLAMB's Photo WOOLYLAMB Posts: 1
7/2/11 8:44 P

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7 years ago, I was diagnosed with PCOS. It was a revelation and a huge motivator to become healthy and alter my body's path toward diabetes. I had always struggled with obesity since I was a teenager. I lost 50 pounds between the summer of 2004 and 2005, and kept it off until 2010, when I began to gain most of it back. It's been a huge set-back. I am undergoing some big personal transitions, which make this period in my life particularly challenging. I'm looking to this space as a way to focus on my health and get the support I need.

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AERGRRL SparkPoints: (0)
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6/20/11 7:49 P

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Hello! My name is Tia and I am in my late 20s. I found out I had PCOS only a few months ago. I had never heard of it before, but I now believe many of the females in my family had it but were never diagnosed. I don't have an issue with weight, but I had been having trouble getting pregnant for a few years. Knowing the physical effects PCOS can have, I am trying to make more of an effort to stay healthy for my future. I just joined a gym and was looking for a way to track my workouts when I found Spark People. So....Hello! ^_^

RISINGBLUESTAR's Photo RISINGBLUESTAR Posts: 1,656
5/24/11 9:12 P

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Hey everyone. I am new to this team. I saw an Endocrinologist today. I have seen one before, but he just dismissed me so I persuaded my doctor to send me to a different one. The appointment went well. He said he believes I have PCOS. I have had symptoms since I was 15. I am 22 now. I didn't know PCOS was genetic until he told me. Nobody else in my family has it or has symptoms. He said he was going to repeat some of the bloodwork I already had done just to rule anything else out. I go back in two weeks. I had to wait 9 months to see the last Endocrinologist, but I only had to wait one week to see the new one. The doctor I saw today was very respectful and he said he thought he could help me. That was a very nice change from the arrogance and disrespect of the other doctor.
The symptoms PCOS causes can be depressing, but I am just trying to keep a positive attitude about things. It's not always easy, but the least we can do is try. I know that I would have to work harder to lose weight and it's not going to be easy at all. The most frustrating thing is when you are eating careful and healthily and exercising and don't lose a single pound. We just cannot give up. I also just wanted to say that it is really important to advocate for yourself when you know something isn't right. My doctor said she wasn't convinced I had a metabolic issue, but I refused to accept that and asked if I could see a different specialist since the last one treated me so terribly. KIRSJJ, I hope you find a better treatment that works for you. emoticon






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ANNYKEYZ's Photo ANNYKEYZ Posts: 16
5/10/11 12:08 P

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Hello, I was diagnosed with PCOS 6 years ago after suffering 2 miscarriages and a 20lbs weight gain in less than a year. At first, I concentrated on my fertility. I was blessed with two beautiful children without needing much assistance. But now, I am almost 40lbs overweight. I need to concentrate on my weightloss. It seems doing mildly is not working for me (exercise 3 times a week and lowering my carb intake). I need help...

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HAPPY-ROO's Photo HAPPY-ROO Posts: 4
4/18/11 7:03 P

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Hi everyone!

Im new to SP and very excited about making some positive changes. I was diagnosed with pcos almost 3 years ago now, and at the time i was pretty slim and in denial about how damaging my eating habits are on my body. 3 years and 30lbs later im finally facing up to the realities of what pcos can mean and im determined to become and stay as healthy as i can so i can minimise the long term effects.

I look forward to sharing this journey with you all!

Gluttony is an emotional escape, a sign something is eating us.


follow me on twitter :

ruthy_mac


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NEUPORDENE's Photo NEUPORDENE Posts: 107
4/17/11 11:39 A

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Hi I'm Kimberly...knew I had PCOSfor years, but finally found a doctor to confirm it last week. She recommended a few things and I hope to see some results.

Life isn't a destination, it's a journey.


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KRISANNABANANA's Photo KRISANNABANANA SparkPoints: (0)
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4/16/11 1:20 A

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Hello everyone
I just found out that I have PCOS TODAY!
I'm sad that I have had to go through so many health issues (I'm 20) as well as doctor issues (my doctor treated me like a hypocondriac when I tried to solve my long list of issues, so I went elsewhere. My doctor found out and basically fired me!), but now I see that pretty much every health problem I have ever had (and some general annoyances) are most likely caused by PCOS. I am looking forward to moving forward with my life now that I have found the answer I have been looking for all these years.

I am in need of some positive reinforcement, if anyone would like to share their PCOS success stories with me, it would really cheer me up right now.

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LEYLA2's Photo LEYLA2 Posts: 265
4/7/11 5:21 P

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hi my name is amber, i was diagonsed with PCOS when i was 21, i am now 38, i have been blessed with 2 beautiful children with the help of Metformin and of course God.

i would say my PCOS on the moderate side, but i do find my weight has creeped up over the years.

looking for support in terms of working on eating better, excersising and keeping my PCOS at bay, as i have Type 2 diabetes that runs in the family, and i lost my own mother to a massive heart attack at the tender age of 47

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IAMPEBBLES2 SparkPoints: (0)
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4/4/11 12:31 P

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Hello....My name is Tiffany and I was diagnosed with PCOS about 2 years ago. It took three years of hell to get a diagnosis. I gained a lot of weight very quickly those three years. I have never had a weight problem in my whole life. I have three kids. My health just kinda went downhill after having my girl in late 2003.

I just started the South Beach diet today. I need to get my health back on track.

Wish me luck!

KYAREN's Photo KYAREN SparkPoints: (26,889)
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4/1/11 4:30 P

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Hi,
I'm Inma from Spain.
I was diagnosed PCOS some years ago (around 6 I think) and I am with metformine.
My husband and I have been trying to have a baby for three years and now we are in the waiting list for IFV, but they have told us that if I don't lose some weight I won't be in treatment. So here I am, trying again to do it...

Hope I can do it this time :)

Inma.

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BELLA107's Photo BELLA107 Posts: 10
3/29/11 7:02 P

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Hi SIGGAHTH! It's so hard to change our habits, isn't it? I struggle with this too. When I get into a slump, I remind myself that the days are just going to keep on coming no matter what, so I may as well do something constructive with them, even if they do not initially yield any obvious outer results (like slimming down in size).

"Even a small star shines in the darkness."


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ANNABEE11's Photo ANNABEE11 SparkPoints: (0)
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3/27/11 8:25 P

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Hello! I was diagnosed with PCOS in January so I am fairly new at how to deal with the issues and diet that go along with this condition. When I finally learned about what was going on with me and was diagnosed I was put on metformin. Since then I have been trying to cope with all of the negative effects of taking metformin (spontaneous vomiting, bathroom issues, nausea, etc.). I am currently trying to research what sort of diet I need to be on so that I can lose weight and learn to maintain a healthy lifestyle. I am so glad to see this group so that I can find out what others are doing to control and maintain their lifestyle. emoticon

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KATISONIT's Photo KATISONIT Posts: 423
3/26/11 6:20 P

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Hey Guys,
My name's Kat and I have been diagnosed with PCOS for about 11 years, and am about to get back on meds to control it. I've been losing weight for the last few months and coming to terms with how this condition (and other things, of course) have molded my perception about life. It's nice to see that there is a team on Spark for support about this condition.



"Run mad as often as you choose, but do not faint."

"If it's going to be a world with no time for sentiment, Grant, it's not a world that I want to live in."

SIGGAHTH's Photo SIGGAHTH Posts: 68
3/26/11 5:46 P

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Hey, my name is Sigga, I'm from Iceland and I got diagnosed with PCOS a year and a half ago. I haven't been very good at fixing my diet and exercising yet but I am trying to change that now. :)

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KATEH711 Posts: 1,525
3/14/11 8:30 A

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emoticon to the team Lindsay!!

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LINNER89 SparkPoints: (391)
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3/12/11 8:14 P

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Hi my name is Lindsay. I'm 21 and have just recently been diagnosed.

XNIKOX's Photo XNIKOX Posts: 22
2/28/11 1:45 P

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Hello Everyone,

I was diagnosed with PCOS about 5 1/2 years ago. I actually have never heard of this condition until my diagnosis. They started me on birth control & it actually started to help me lose some weight.

Unfortunately from that point on, stress has over taken my life & I gained any weight I lost plus some on top of it. When I tried to start losing again, it just wasn't coming off...even when I was eating (decently) well & exercising.

A month ago I saw an endocrinologist as recommended by my GYN. He put me on metformin & gave me specific dietary instructions that I should learn to live by. So far, I find that if I stick to the program & track with sparkpeople, it really works. I'm glad I found this forum to know that I'm not alone. Thanks for having this up for us emoticon

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ROFOMOM's Photo ROFOMOM Posts: 117
2/25/11 10:34 A

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I was diagnosed with PCOS about 6 years ago. . . after having my first child.
When I first found out I was devastated . . .
. . . but then realized that I should be glad to know!
I NOW know what health issues I'm at risk for and have a MUCH better understanding of how and why my body works the way it does.
I have taken all the information and REALLY turned my health around!
I am so happy now and have maintained a healthy weight for a LOOONG time, even during and after pregnancy!
I still know that I have it - PCOS is always going to be a part of my life but I feels good to have a group like this and be able to share with others about it!

If you want to read more about my "health journey" and even see before and after pictures - feel free to check out my blog. The link is below!

Read about my balancing act - healthy living, parenting and daily life!
www.reallifeinrofo.com
I have a good story to tell ;)
C2OOPER's Photo C2OOPER Posts: 25
1/28/11 5:55 P

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Hi there!
My name is Chrystal. I was diagnosed with PCOS in 2008 at 29 years old. It was suspected long before then I just didn't "quite" meet the criteria until then. Its been a wild hormonal ride since but I try to take it in stride. I am currently on Metformin and Byetta.
I am a military wife and a proud mother to a 3 year old daughter.
I am using spark people to educate myself about exercise and nutrition as well as gain perspective through interacting with others, and take my life back into my control.
Look forward to getting to know everyone. emoticon

Chrystal
Dx PCOS - 4/2008
Metformin- 1700
Byetta- 5mcg X 2


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JULIEANNCAN's Photo JULIEANNCAN Posts: 6,507
1/4/11 6:59 P

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emoticon
Hello. My name is Julie. I was diagnosed with PCOS at the age of 16. I am currently 29. I have tried Metformin about 3-4 times and cannot tolerate it. Today is my first day at SparkPages. I am hoping to become a healthier and happier me both inside and out.

Besides being a vegetarian, another health diagnosis has brought me here as well. I look forward to talking with you! :)

"At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us."
- Albert Schweitzer


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NEWSGIRL2177's Photo NEWSGIRL2177 SparkPoints: (44,806)
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1/4/11 1:45 P

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Hi ladies,
My name is Heather and I've been fighting this PCOS for a few years now. I'm so bad about taking pills, so Metformin didn't really work for me. My doctor never really gave me any more info, so I've turned to the Internet to gain any tips. And now it seems like the only way to really get any relief is to lose a lot of weight. At least I hope that's the answer!
I'm glad this group is here and I hope to learn a lot from you all.

-Heather

"Pursue the things that make you feel alive." - SP


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VENUSRED's Photo VENUSRED Posts: 17
12/28/10 9:50 A

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Hi,

I just found out that I have PCOS. I've probably had it for 20 years since that's when some of the symptoms started. I've even been told in the past that I do not have PCOS. But I am trying to get pregnant now, so I went to a reproductive endocrinologist last week and he showed me on an ultrasound how I have polycystic ovaries. Why did no one see this before -- the ultrasound was from several months ago. Anyway, I really want to improve my health, eat a low-glycemic diet, exercise more, lose some weight, and conceive a baby. I've been on sparkpeople in the past and I realized there was probably a pcos group here and I was right. Yay!

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STRATHSPEYCHIC's Photo STRATHSPEYCHIC SparkPoints: (11,683)
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11/17/10 6:06 A

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Hi

I found out that I had pcos almost 2 years ago, have probably had it for around 6 years but didn't realize what was going on.
I've been trying to lose weight since my mid teens but I never stuck with it long enough figure out what works for me, I know I'm going to be able to get my weight under control now, because I'm on the track to finding the right supplement and exercise balance for my body.
but this group looks like it has some useful information and fellow cyster's that are losing the weight, so hope fully I'll be able to help motivate some of you and get some motivation too.

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KACISJOURNEY's Photo KACISJOURNEY Posts: 128
11/8/10 11:53 P

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Hi ladies - My name is Kaci and I was diagnosed with PCOS about years ago. I actually took care of a friend and she died from complications of this. I watched what doctors would ) or would not ) do too long and I felt very discouraged.I did the birth control/metformin which over a period of a couple of years did reduce the cysts but did nothing for my weight. My doctors basically kept shoving that all my problems were fixable only by weight loss therefore I chose not to lose weight.

I am now doing this for me and to prove them all wrong. I am swimming 4x a week, logging in my food, measuring ABSOLUTELY EVERYTHING that goes into my mouth, as well as talking and trying to be accountable. I have friends on spark that encourage me and even strangers that do the same.

I was reading over some of your posts and all I was ever told was to lose weight. I was never given anything about what I should or should not eat or what would make it worse or better. I realized when I was reading through all your information that since I joined spark - I am pretty much doing most of those things.

I look forward to being a part of this group and to helping others.

Kaci

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TWIN75's Photo TWIN75 Posts: 201
10/11/10 8:11 P

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Heather- I would go to a PCOS support web page and there are check off lists on most of the websites. Take in the list and circle all that apply. Just be straight forward and say you are exhausted with dealing with PCOS and need to move to the next treatment. That just bites!!!

I do know what you mean though....I started feeling crazy before I was diagnosed. Two different doctors told me I am getting "old". NO JOKE! I am only 35!!! I mean I could understand if I were a little closer to the menopause stage and such...but give me a break.
I will keep you in my thoughts that your appointment goes well and you get some relief!!! emoticon

Lori


~~Lori~~

Life is not about waiting for the storm to pass....it is about learning to dance in the rain.




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SPOILEDDIVA's Photo SPOILEDDIVA Posts: 54
10/11/10 12:19 P

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Thanks for the support and encouragement Lori, I was diagnosed w/ PCOS 16 years ago, after 4 years and 4 different doctors telling me that I was just young and that my periods hadn't established themselves yet, (I was 17 when I started suspecting something was wrong) I finally did the research myself and went to a DR and specifically asked them to test me for it, and what do ya know? That was the problem. I have had this same problem with nearly every doctor I come across for nearly everything, from PCOS, to pneumonia, to Hypoglycemia!!!! I am beginning to think something is wrong with the way I present myself...like there is something about me that says, "Don't take me seriously, I'm a flake"
Sorry to vent, I go see yet ANOTHER Dr. tomorrow and I just know I will get the same treatment.

"Only strong people can accept when they are hurting." - Jillian Michaels
02/02/11
Wt.- 153.8
10/07/10
Wt.- 155.8


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TWIN75's Photo TWIN75 Posts: 201
10/10/10 10:38 P

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Heather---I am sorry you are having a hard time with the doctors. You have all the classic signs of PCOS. I really hope that you find the right doctor that is willing to treat you. My normal primary doctor seriously told me that I had to realize that I am getting older and my metabolism and hormones can cause these changes. It was my gynecologist who finally diagnosed me and is treating me now. I really hope you find a doctor who is willing to treat your PCOS. good luck. emoticon

Edited by: TWIN75 at: 10/10/2010 (22:39)
~~Lori~~

Life is not about waiting for the storm to pass....it is about learning to dance in the rain.




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NERDYCARLA's Photo NERDYCARLA Posts: 660
10/9/10 5:20 P

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hello..my name is carla and i was diagnosed with pcos at 21 and i am turning 30 this year. my doctor knows that i have had it since i was 12 when puberty started. i am trying my dangdest to live low carb and with pcos it is so so sooooo hard. i have also join OA to change my mindset about food.

i hope to get to know everyone and help when i can...

thank you

Carla

DONE GIRL OF THE DAY
Feb. 17, 2010
~~~~~~~~~~~
Tracker shows first 100 pounds lost...i want to lose 200 in total!
~~~~~~~~~~~~
"Live long and prosper" Spock

"Happiness can be found, even in the darkest of times, if one only remembers to turn on the light."
Albus Dumbledore





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SPOILEDDIVA's Photo SPOILEDDIVA Posts: 54
10/7/10 11:41 P

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Hello everyone,
My name is Heather and I am new to this board but not to PCOS or to Spark People. I was doing great - in the best shape of my life when 4 years ago, I was taken off BCP b/c of migraine headaches. I was put on Spironolactone for hair growth and acne and have been staedily gaining ever since. I am finding extreemly difficult to lose this weight and am trying to keep from getting discouraged. I started having trouble w/ my blood sugar (hypoglycemic symptoms) and was told it was anxiety related and to just "ignore it." I am hopeing to find some support and tips on how to deal with this w/o meds since I have been denied Metformin 2xs by 2 different Drs!
I feel like I am beating my head against a brick wall!!!
emoticon

"Only strong people can accept when they are hurting." - Jillian Michaels
02/02/11
Wt.- 153.8
10/07/10
Wt.- 155.8


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TWIN75's Photo TWIN75 Posts: 201
9/28/10 1:14 P

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Hi! I am Lori and about 2.5 months ago I was diagnosed with PCOS. For YEARS I have had symptoms of this, but the embarrassing symptoms that I would not mention to my doctor. I just thought that maybe I was eating too much again and then blamed my early hysterectomy on hormone levels. Once the acne got worse... I was tired 24/7, night sweats, and constant weight gain occurred...I decided to mention this and found out there was such a thing as PCOS. I never heard of this. I just started on Metformin....YUCK!!! Holy smokes I am not feeling well. Is anyone else on this and if so...does it subside???

Lori

~~Lori~~

Life is not about waiting for the storm to pass....it is about learning to dance in the rain.




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SINGINGLILACS's Photo SINGINGLILACS Posts: 414
9/16/10 11:36 A

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Hi there! My name is Nette. I have been with spark for a long time, but PCOS is giving me so many problems that I decided you gotta have it to understand it. I've got 95% of the side effects and it's getting worse the older i get. I've been out of work for 3 months and right now my biggest problem is the eating and major depression. I'm a crazy person that is eating and sleeping and crying.
The crazy part is PMDD. I feel mental even on good days!LOL Anywayyyy, now that I have gained back the whole 60 some pounds i have to start again.
I'm looking forward to hearing from and losing with you all. I have had problems with this for years and years. So if any of my experiences can help anyone please ask.

A LITTLE OF SOMETHING IS BETTER THAN ALOT OF NOTHING!!

00
U
\----/


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SOONERSFL3's Photo SOONERSFL3 Posts: 11
9/7/10 9:56 A

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Hello! I'm at my wits end and I'm hoping sparkpeople can help. 5 years ago, sparkpeople helped me lose those pesky last 10 pounds. Since then, I've been diagnosed with PCOS and gained almost 50 pounds. I'm doing infertility treatments and doing a frozen embryo transer in hopefully a few weeks. I'm supposed to eat low carb -- but I just can't eat all meat. I'm on metformin 750. I need support to help turn pcos around! What are you all eating each day?

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SICKNTIRED2010's Photo SICKNTIRED2010 Posts: 55
8/26/10 4:10 P

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Hello! Just discovered this board today! My name is...sickntired2010! LOL I'm new to SP and have lost a whopping 1 lb so far (I know, at least it's a start). I'd love to talk with other PCOS sufferers as this weight loss thing is a struggle! I'll blog about my PCOS issues one of these days.

Hello!!!!!!!!!

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CHELSEA_MARIE3's Photo CHELSEA_MARIE3 Posts: 211
8/8/10 3:46 P

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Hi All, My name is Chelsea and I'm new to the team. I am 20 years old a full time college student and I work at a day care. I found out I had PCOS when I was 17. It has been hard. Children are my life so the thought of not having them is a ruff one for me. I'm here to develop a healthy life style so that I can manage my symptoms and to better my chances at having children one day. I could use any advice to have to give and love to chat so if you need support please let me know!! emoticon

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SYRIINA Posts: 13
8/3/10 12:25 A

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I'm new to the group but I've had a SP account for a while even though I've only just started using it again.

I was diagnosed with PCOS early because my mom has it and noticed the symptoms in me. I've been on and off birth control to help regulate my cycle for about 8 years now. I've been struggling mentally to lose weight for about 3 years now, but every time I lose 10 pounds, I get some sort of mental block and now I'm heavier than ever.

I'm actually working up my courage to call the local university to get some counseling because it seems like every day now I get hit with how bad it's gotten.

I have so many weight-related medical problems that it's ridiculous. I'm also hoping to be able to start trying for kids in a year or so and I'd like to not have to do too many fertility treatments to get pregnant.

I have so many reasons to lose weight but none of them seem to stick. Maybe I can do it this time.

Edited by: SYRIINA at: 8/3/2010 (00:37)
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WE4PEPPERS's Photo WE4PEPPERS Posts: 67
7/8/10 5:41 P

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In 2003, with no complications, I gave birth to my son. I was so shocked when after that I had 3 miscarriages, one as late as 17 weeks. I was then diagnosed with pcos and given metformin. My daughter was born in 2006. We did not try again until last year and I used metformin again. This time I had a 20 week miscarriage immediately followed by a 12 week miscarriage. I am not really interested in trying again but am very concerned that if what is going on in my body is killing my babies, what is it doing to me long term? I am scared of the possibility of diabetes and heart disease. I really want to lose the weight and get things under control. I still dream of another baby but realize that that may not be a possibility.

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VBNAVYWIFEDORE's Photo VBNAVYWIFEDORE Posts: 129
6/23/10 5:33 P

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Hi Ladies!

My name is Katilin and I was diagnosed with PCOS 6 years ago with nothing more of an explanation besides "I have other patients to see, Google it." So, needless to say, I have learned everything I could on my own. But no matter how much knowledge I gained about this problem, I never made a step towards correcting it and living a healthier lifestyle. When I was diagnosed, It didn't matter to me that much that my fertility was in jeopardy... I was 18 and single. Why did I care about having babies? Well, now I am 24, married and want to start a family of my own. Now I have to get my weight and health under control. Any tidbits of advice would be greatly appreciated. This problem effects women in so many different ways. So no solution will work exactly the same for everyone. But I think if I try to follow enough advice from women who deal with this in a daily basis... my chances of success go through the roof. So, any information at all, no matter how small or insignificant you think it may me, please pass it along to me. You never know what the key to success will be.

thanks in for all the supportive words on the message boards. I have learned more in the last hour reading message board posts than I have in 6 years learning about this on my own.

Your help is invaluable!

The Biggest Loser Season 9 Quote:

Ashley - "What if I go in there and I can't do it.'

Sherry - "But what if you go in there and you can?"
QUELEENDAH's Photo QUELEENDAH Posts: 132
6/21/10 6:26 P

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I'm new to this group and semi new to PCOS. I was diagnosed less than a year ago. I've had issues with my period since I was 14. I had multiple cysts and would go years without a period. When I asked my doctors about my lack of periods, I was told to be thankful that I didn't have to deal with them.
I got pregnant after 3 yrs without a period with my oldest son. It was a huge shock, but I was excited. It took me 6 yrs later, several miscarriages and 2 rounds of clomid to get pregnant with my 2nds son. After both pregnancies, I'd gain a lot of weight, thanks to meds they put me on to prevent migraines/seizures. Afterwards, once I was put on birth control the weight just slowly fell off.
After my 3rd son was born, I just couldn't get the weight off. I was exhausted all the time and my periods were a mess. I finally went to my new obgyn and laid out my history from the time I was 14-31. She immediately told me about PCOS and ordered hormone levels tested and a glucose test.
I've been taking Met now for a year and as long as I am really careful with what I eat, I feel a lot better.
For the last year I've been trying to conquer depression issues that had a lot to do with PCOS.
I finally feel like I am in a place where I want to deal with becoming healthy. I've cleaned up my mind and now I want to clean up my body.

There is so much information out there, that sometimes I am thrilled and want to just attack it, then I have the days where the information is overwhelming and I want to cry.

Motivation is the biggest thing I need right now.I'm struggling in thinking I am worth it, but I'm am trying. I'm trying really hard. Anyway, thanks to anyone who read this.

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ANGIE899 Posts: 8
6/18/10 7:16 P

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I'm new to this group but not really new to PCOS. I was diagnosed with PCOS in 2002 when I was trying to conceive my second child and having absolutely no luck. Eventually I was put on a low carb diet and metformin and exercising and lost 35lbs in no time and ended up pregnant....that was in 2003 and had my second child in 2004. I kind of just let my PCOS do what it wanted after that but now am wanting to live a healthy life for myself, my kids and my husband. I have lost right around 40 lbs since March of this year and have another 75-100 lbs before I reach my goal. I'm having a problem staying motivated. When the weight was dropping quickly in the beginning motivation was no problem but now it's slowed and my motivation has dropped. I still want this....I know there is a skinny healthy woman screaming to get out of this shell she's in right now :p Hope you ladies can help me with that motivation! And I'll help you all when I can as well!

One day at a time...that's all I can do.

I can do all things through Christ who strengthens me!!

That **** is bananas yo! ~ Shaun T
PIBBLELVR's Photo PIBBLELVR SparkPoints: (0)
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5/10/10 7:05 A

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Hey all.

I'm not that new, but I rarely stop by. I was wondering if there is anyone else out there that doesn't use any medication for the PCOS?

kim

~Kim~



next goal:
10/1/10: 200 lbs


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NERDYCARLA's Photo NERDYCARLA Posts: 660
4/17/10 3:22 P

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hello everyone..my name is carla and i am here to lose some/alot of weight...

right now i am:
*a curves member
*an aleast 5 miles a week bike rider
*i have given up pork and red meat
*i am on a plan to give up meat all together in the next 3 months
*and lastly i am a type 2 diebetic with PCOS so i am eating lower carb


i think that is everything lol...well at my biggest i was 345 pounds...and i am down to (at the beginning of the month to 313)

later everyone can not wait to get to know yall

carla

Carla

DONE GIRL OF THE DAY
Feb. 17, 2010
~~~~~~~~~~~
Tracker shows first 100 pounds lost...i want to lose 200 in total!
~~~~~~~~~~~~
"Live long and prosper" Spock

"Happiness can be found, even in the darkest of times, if one only remembers to turn on the light."
Albus Dumbledore





 current weight: 305.0 
 
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LISAHOLST Posts: 1
4/14/10 9:42 P

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Hey everyone! My name is Lisa and I am 27 years old. I have no children yet unless you count my 18 first grade students I teach that I adore. I was diagnosed with PCOS a month ago. My husband and I were preparing to TTC and my obstetrician recommended that I have my ovaries checked out. Both of my sisters have PCOS, but have been able to conceive. They each have three children. They did however have a lot of miscarriages in between. The only symptoms I noticed was weight gain and an excess of hair. When I got off of the pill I ended up gaining 40 yes 40 pounds. It wasn't overnight but no matter what I have tried WW's, HCG diet I was not able to lose. Not great news for a person that loves to shop for clothes. I cringed as I watched my size go up every shopping trip. I was put on Metformin right away and have seen no sign of weight loss. Yesterday at my endocrinologist appointment he suggested that I walk 60 minutes a day, eat only 30 carbs per meal and stay under a 1500 calorie a day diet. He also told me that he might up my increase in Metformin based upon my lab results. I am hoping that I will be able to lose soon and find ways to adjust my food intake so I am able to stick with this and get healthy again. Fitting into my size 4's wouldn't be a bad thing either.

NEWLIFE801's Photo NEWLIFE801 SparkPoints: (0)
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3/23/10 10:08 A

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My name is yvonne and I am 29 yrs old. I am not really new, but have been on hiatus the past few weeks. I have no real good excuse, I just don't think that I was ready.

I found out that I have PCOS just recently after my hormones went psychotic after I had an ectopic pregnancy last July. For awhile I had myself convinced that if I could just get pregnant again right away it would take away all of the heartache...then I wasn't getting pregnant, but I was gaining weight like no tomorrow and not having a period. I have always been irregular when not on birth control, but I had never actually gone without.

They did mountains of bloodwork and finally decided that I have PCOS and should see an Endocrinologist, but then, because I was sick and on anti-biotics I did not get my bloodwork done "on-time" so they cancelled my referral. Real Nice!!!

Needless to say I have now found a new family doc and have a new referral. I have to go back on Thursday to discuss the results of my bloodwork which has put my health and weight issues back under the spotlight....so here I am!

~ Live, Love, Laugh~

Yvonne


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WIFEOFARMYGUY's Photo WIFEOFARMYGUY Posts: 205
3/21/10 6:39 P

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Hi Everyone! My name is Tina and I've just recently been diagnosed with PCOS and pre-diabetes. I'm on Metformin 2x a day. I met with a nutritionist and the plan is for me to eat 6x a day, making sure there's a good balance of protein, carbs and fat in each meal. It's all really new to me, so I'm taking it bit by bit. The balanced eating and eating 6x a day is probably the hardest part for me. I've always been a grab and go kind of eater. No more!
I'm glad to see there's a PCOS group on Sparkpeople and look forward to learning more about the journey with all of you.

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PEACEPOET's Photo PEACEPOET Posts: 1,228
3/14/10 11:00 P

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Hi everyone! My name is Diana. I've been on SparkPeople since late December but just found this team. :)

I am 38 (almost 39) and was only diagnosed officially with PCOS a couple of years ago--also diagnosed as prediabetic after I had to fight to get a glucose tolerance test when my fasting sugar levels were normal. (Long story, but I have a new doc now!)

Long before I got officially diagnosed, I suspected that I had PCOS after reading about it. I never had regular periods, ever. I got put on the pill at age 17 to try to "jump-start" my cycle and when they took me off after 12 months, I went a year with NO periods. The military doctors (my dad was Air Force) never did figure out what was going on. Obviously neither did my own doctors all through my 20s and early 30s, even when I was going through fertility treatment I never heard a diagnosis of PCOS. Now I wonder how they could have missed that.

In my first marriage we tried Clomid and IUI unsuccessfully...which I guess was a blessing in disguise since we ended up divorced. My second husband and I conceived without even trying, which we consider a serious miracle. Our son Aidan is now 7 years old and the joy of our life together!

I am fortunate that I only have mild symptoms of PCOS, the main ones being the infertility, prediabetes and cholesterol problems (which also run in my family). I am not on Metformin. I am on the pill to give me regular cycles (since I am not trying to get pg) and I use diet and exercise to control my sugar and cholesterol levels.

I have come down more than 20 pounds from my heaviest, but am still not back to my pre-pregnancy weight and even that was not where I needed to be. I figure I have about 35-40 pounds to go to be in a healthy range for me. I've lost 13 since joining SP 2.5 months ago so that's a good start!

Diana

Goal 1: 190 pounds
Goal 2: 180 pounds
Goal 3: 170 pounds
Goal 4: 160 pounds
Goal 5: 150 (pre-pregnancy weight)
Goal 6: 140 pounds
Goal 7: 130 pounds
Final goal: 125 pounds


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CFGAGLIA Posts: 1
3/12/10 11:43 P

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I'm new to SP but not to PCOS. A few years ago I went on weight watchers and lost 90 pounds then something snapped, I fell apart and gained it all back in a year. I'm going back on metformin and BC, but I've been off them for six months while I had no health insurance.

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NEELIXNKES's Photo NEELIXNKES Posts: 6,738
3/7/10 1:53 P

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Hi! My name is Deb. I have had a sparkpeople account forever but just started using it regularly in January. I have been dx with PCOS with IR for more than 8 years now. This is my fourth attempt with Metformin and I am not sure if I have just modified my diet enough that I can tolerate it or what is going on but I have been on 1500mg pretty consistently since July with (knock on wood) few side effects. I am hoping to lose a total of 41 lbs by my wedding anniversary in July and have about 17 lbs left to go. All I know is that this time needs to be the last time to battle my weight and hopefully my hormones under control.



~Deb

Co Leader of the One-der-land Will-a-bies www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=41088

&
Co Leader of A Book Club team
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=10007


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LADYPUERCOLOCO's Photo LADYPUERCOLOCO Posts: 427
3/1/10 5:20 P

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Welcome! In the past I had lost a lot of weight and definitely had fewer PCOS problems. Then I got the bright idea to get the Mirena since I was getting periods again; long story short I gained 80 lbs in a year and had more problems than I'd ever had with the PCOS. I am now in the process of trying to lose again after having it removed last September and having laproscopic exploratory/cyst removal/tube tying fun in October. Good luck with the gastric!

Be faithful to that which exists within yourself.
~Andre Gide


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