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HARSHBSK's Photo HARSHBSK Posts: 43
12/8/11 11:42 A

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Well my TSH wound up being "normal"...but my testosterone was not, and I've been diagnosed with PCOS. My consolation is that it explains the incredible difficulty I've had in even maintaining my weight, much less losing, and that I WAS RIGHT. Haha, I know that's bad, but my doctor was just SO sure I was going home and eating big macs all day every day on the couch...

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YICHE12's Photo YICHE12 SparkPoints: (178,496)
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10/25/11 2:32 P

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Well, in a way let us hope that your TSH shows up abnormal. I am sure that you can ask your doctor for a referral for a specialist if need be. Ob/Gyn is very different from Endocrinologist!!!

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HARSHBSK's Photo HARSHBSK Posts: 43
10/25/11 11:51 A

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There are several endocrinologists in my area, however, they won't see you without a PCP referral. So if my TSH winds up being "normal", I'm SOL :(

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10/25/11 11:33 A

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It is frustrating, needless to say!!! Is there an endocrinologist in your area. Do check out the list of doctors on the link I have attached below. Most doctors don't know how to help patients with Hypothyroidism.

www.thyroid-info.com/topdrs/index.ht
m




Lise (pronounced Lees) - GMT (+4 hours Eastern Time )
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HARSHBSK's Photo HARSHBSK Posts: 43
10/25/11 10:06 A

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I'm SO frustrated!!! I went to my OB/GYN for my annual check up and told her that I was worried I might have PCOS (bc I was hoping she would test me and in the process, do thyroid testing to rule that out), mainly because I keep gaining weight. So she goes over to her little BMI chart to tell me how high my BMI is...first off, I KNOW how much I weigh and how high my BMI is...second, I have ginormous boobs regardless of my weight and the BMI/height/weight charts do NOT take that into account. ANYWAY...I'm like, look, I've been working out, I just ran a freaking 5k, I've been working with a trainer and a nutritionist...something is NOT right. She tells me I need to up my running to 5 days a week at least!!! Ok, so I'm telling you that I've cut way back on carbs and calories, I'm running 4 days a week and I've GAINED 20 lbs in a year?? FINALLY, she agreed to do some testing, but I have a feeling that she's only going to do TSH and glucose, and that she'll be one of those docs who think that 5.0 is normal for TSH. I go in for testing tomorrow so I'm PRAYING that my TSH is through the roof!!! I need some kind of explanation for why no matter what I do, I keep gaining weight!

Sigh...sorry about the rant...

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HARSHBSK's Photo HARSHBSK Posts: 43
10/14/11 10:00 A

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Thanks Yiche! I'm so ready to march in there and demand my rights! Hehe :) Your posts on here are so helpful btw!!! I'm starting to plan how I'm gonna live the rest of my life, regardless of whether I can get a diagnosis...obviously, my metabolism is slow even if tests don't prove it and i think a hypothyroid lifestyle will help :)

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10/13/11 6:59 P

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What happened to me is that I was feeling some symptoms but I attributed these to my being menopausal. Back in 1997, when I was doing my annual physical tested me because he felt my thyroid was slightly enlarged. My results came back normal. It's not until two years later that my symptoms did persist and that my results came back abnormal. He told me that more than likely, I had been Hypothyroid for many years before being actually diagnosed. Had I known more about Hypothyroidism I would have researched the condition more. Nowadays, with all the information on the internet, we can do this for ourselves. Hugs and good luck!

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HARSHBSK's Photo HARSHBSK Posts: 43
10/13/11 3:21 P

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Thanks for your input Batgirl! I'm hoping I can get my doc to order the full battery also, especially Vitamin D because I am SO much worse in winter/cloudy days. And I'm a lab technologist so believe me, I scrutinize my numbers haha. Docs hate it when you do that because they think that if you're in a 'normal range' you're normal...but I've always felt if i have 2 or 3 analytes that are 'normal' but low/high, then something isn't completely right. But we shall see...

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THE_BATGIRL's Photo THE_BATGIRL SparkPoints: (5,872)
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10/13/11 2:37 P

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Oh, I sympathize. Few things are more frustrating than having a mystery illness! When you get your labs done, tell your doctor how you're feeling and that you know something is wrong. There are a few things that can cause those symptoms, so it'd benefit you to get some additional tests done. My doc always tests me for my thyroid numbers, lyme disease, iron, vitamin D, blood sugar (for insulin resistance) and cholesterol because she gets a much better picture of what's going on that way.

When your labs do come back, ask for numbers - "normal" is very relative! I feel hypo at a TSH of 2, but great at less than 1, even though the normal range is .3-3.

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HARSHBSK's Photo HARSHBSK Posts: 43
10/13/11 1:21 P

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Thanks Heidi! Were you able to get diagnosed using FT3/FT4? Or some other test? Are you feeling relief from being diagnosed/getting a prescription?


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HEIDISHOPE's Photo HEIDISHOPE SparkPoints: (59,260)
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10/13/11 11:31 A

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Even with years of my hair falling out, weight gain and no energy, my labs from my General Practitioner came back normal for years. It wasn't until I got a complete detailed breakdown on my bloodwork by a new doctor who went looking that mine was found. A generalized routine test won't find it; it takes a specific test.

Good for you for taking the initiative to get help!


Blessings,
Heidi

Proverbs 3: 5-8 "Trust in the Lord with all your heart
and lean not on your own understanding; in all your ways acknowledge Him, and He will make your paths straight. Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones. "




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HARSHBSK's Photo HARSHBSK Posts: 43
10/13/11 11:06 A

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Hi everyone! I'm glad I found this group! I have been STRUGGLING with losing weight for years now and NOTHING has worked. I've had my thyroid checked in the past and it was 'normal', but I don't FEEL normal...and lately I have been seeing a nutritionist, who was also frustrated with my lack of weightloss (and actually have gained since I started working with her!). She mentioned checking my basal body temp and I'm well under the 'normal' range, so she's pretty sure that I could have a problem with my thyroid.

Now I feel a bit better with a partial diagnosis in mind and am going to go to the docs to get labs done! However, I'm worried that my TSH or T3/T4 will still not show a problem...I've been reading about fluoride in tap water and how that binds to thyroid hormone instead of iodine...TSH will still be perfectly normal but the thyroid does not function the way it should. I'm in the process of getting filters and distilled water now...but I was wondering, has anyone else encountered a problem of having all the symptoms of hypo but not the labwork? What did you do? Do you just change your lifestyle/food/supplements as though you are hypo and improve? Or have you found a doc that will give you the right drugs to get your thyroid cranking again?

Sorry for the length :) And PS, I'm loving all the diet tips!!

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