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Essential Tremors

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ICANLOSEMORE
ICANLOSEMORE's Photo SparkPoints: (23,130)
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5/19/13 12:44 P

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Hi, didn't know there was a group for this. I have a familial tremor. Not too bad at this point, some days are worse than others. I honestly don't know a great deal about this and look forward to reading through some of the posts. I know mine is getting worse with age. Currently I do not take any medications. I will be 57 soon, wow sounds older when I write it down. LOL. The tremor is one of a multitude of blessings I was gifted with at birth, so it is not a problem until I am having a bad day of tremors and trying to do detail work, in painting or sewing etc. looking forward to getting to know you. Janet


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LONG35
Posts: 10,325
2/9/13 7:58 P

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I agree with your analysis completely. There are people who don't fill their prescriptions because they can't afford them. If it is for BP or some other life altering condition, it definitely can be a life or death situation. If you are low income and use the 'public option' (whatever it's called in the state you live in) you can only take the drugs that are in the formulary. If they don't work they don't care. I have Medicare and AARP (private insurance) and there are still drugs that they won't pay for. I can go to any doctor I want (if they will take my insurance - many don't), but I have to pay 20% of the cost. We can get generic drugs rather cheap, but a lot of the time they don't work, or won't work for your particular problem. I spend, out of pocket, about $300.00/month on my own medications. That's why I'm still working at 78.

Been working all day. Time to take a break and dig out my Nook. Reading is very relaxing to me.
Fran



SLIMMERKIWI
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2/9/13 3:01 A

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I don't have a problem getting appointments. If I want to see a specific Dr at the Medical Centre I can usually get one within about 3 days. For the popular ones we may sometimes have to wait a couple days longer, but if whatever the problem is, is important, AND if we speak to one of the nurses, we can generally see a Dr that day because they always have a Dr doing acutes as well as appointments. The hospital, depending on how serious the matter and how busy that department we may have to wait up to 6 months to get that initial appointment, but once in their system there is no problem. I managed to get hubby into the Cardiology and the Gastro Departments within a couple weeks because he was already seeing Specialists in those Departments.

All the Public Hospital appointments are free for NZers and those with Permanent Residency. My Family Dr I pay $17 per visit, and the medications are fairly cheap, and after having the first 20 prescriptions from 1st Feb, for a family, then we now have to pay $5 for SOME scripts, up from $3 previously. Some of the scripts are free. I get a Disability Allowance because of very low income and on-going health problems, so what I DO pay I can claim back. Each year I work out how much I pay by getting print-outs from the Medical Centre and Pharmacy and then it is reimbursed on a weekly basis. I also claim for my Soy Milk because I can't use ordinary milk, which is a lot cheaper. They reimburse based on the difference between what the cost of the ordinary milk is per litre, and what I pay for the Soy.

I know that on the Dealing with Depression Team, I have been totally gobsmacked by how much the P.Meds are, and totally amazed that your Insurance Companies can dictate what P.Med the patient can take. Some members have been quite vocal because they are taking meds which aren't anywhere near as effective for their mental health condition/s. As far as I am concerned that is criminal - tantamount to manslaughter in some cases!

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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LONG35
Posts: 10,325
2/9/13 1:32 A

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Lucky lady! I think I've heard that it's hard to get appointments, etc. when you have socialized medicine, but I'd sure be willing to make the change. Our system is really, really terrible.
Fran



SLIMMERKIWI
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2/9/13 1:19 A

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In NZ most don't have Medical Insurance because it isn't generally needed here.

Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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LONG35
Posts: 10,325
2/9/13 1:09 A

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Jenn, Kris is the knowledgeable person on the acupuncture.

In answer to your question about insurance - my insurance did not pay for it Medicare and AARP), however my DH has a work related injury and is on Workman's Comp insurance. They do pay for it and his doctor sent him for treatment (which he refused). My best suggestion is to ask the questions.

There are several medications on the market (prescription) that will help control the Essential Tremors, including Atenolol (a BP medication which I can't take). When it is particularly bad I take a 5ml Valium and it gives relief for a few hours - I can live with that. I know there are others - ask the questions!
Fran



SLIMMERKIWI
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2/8/13 2:38 A

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Jenn - Below is a link to the Dr I went to. He wrote many books on Acupuncture (American Award Winning ones, too, even tho' he practices in New Zealand) and also taught it to Medical Professionals, and has attended conferences around the world on the subject . I am sure that if you message him using his link that he will be able to give you some more information. You will be able to listen to some of his radio interviews from that link if you want, too!
www.robinkelly.co.nz/

He is also a very talented musician :-)

I wouldn't let your Dr fob you off like she is. There ARE things that can be done about it - I KNOW because I am living proof! Just ask around the various Health Professionals you work with and I am sure that you WILL eventually find someone well qualified to help you!

Take care,
Kris

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


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CARPEDIEM1982
CARPEDIEM1982's Photo SparkPoints: (5,965)
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2/8/13 2:23 A

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Kris,

Thank you for sharing your story with me. That is really great that the acupuncture helped so much for you. I was also told this is something I need to 'deal with'. Did your insurance cover acupuncture?

I will take a look at the articles on the forum here!

Thanks,

Jenn

“Don’t wish for it, WORK for it”.
-- Unknown
"This isn't about dieting, this is about lifestyle change... to survive. Every pound I lose, is saving my life!"
~CarpeDiem


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CARPEDIEM1982
CARPEDIEM1982's Photo SparkPoints: (5,965)
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2/8/13 2:17 A

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Fran,

Thank you for your response and support. How exactly does acupuncture help our essential tremors? I never heard of that or was offered that.

I am an RN in a hospital. When I listen to a patient's heart for a minute, the patient often times asks me if I am nervous. I explain to them that I have the essential tremors and assure them that it will not impact the care I give them. I have talked to my doctor about this on numerous occasions and her solution is to just tell the patient that I have Essential Tremors... I just feel like I shouldn't have to explain to a patient what MY medical problem is when I am entrusted to care for them.

I have to start a lot of IVs and I will get asked if I am nervous when I am prepping to start the IV. NOPE...in fact it is one of my favorite things to do (skill wise) because of the challenge I have with having Essential Tremors.

I am looking for ANY way to help lessen the tremors so I can continue on with my job. I love what I do. Thank you for the idea of acupuncture!

Jenn

“Don’t wish for it, WORK for it”.
-- Unknown
"This isn't about dieting, this is about lifestyle change... to survive. Every pound I lose, is saving my life!"
~CarpeDiem


 current weight: 178.0 
 
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LONG35
Posts: 10,325
2/1/13 7:26 P

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Can't believe it has been 5 years. Where does the time go? Nice to hear from you.

I, too, am very right sided. My Mother was a piano teacher, and she tried to teach me to play. I can play any melody on the piano, sight reading or melody I heard, but the left hand won't cooperate. I was told up front that the tremors would get worse. I'm really grateful that it is still livable. In answer to your question - no, weather affects my osteo and my RH, and even my bad temper - but not the tremor. Stress, on the other hand, affects me big time.

Have a nice weekend. Jenn, don't get discouraged. Read the information on the site and experiment. You'll find something that works for you.
Fran




SLIMMERKIWI
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2/1/13 3:16 A

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Fran - I'm sorry to hear that your tremors are getting worse.

Have you found the winter has affected it much?

BIG hugs to you.
Kris xx

Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 151.0 
 
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181
166
151


SLIMMERKIWI
SLIMMERKIWI's Photo SparkPoints: (112,109)
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Posts: 20,424
2/1/13 3:14 A

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Hi Jenn - welcome to our Team.

I was diagnosed a few years ago with Benign Essential Tremors (no family history.) Unfortunately I couldn't have medication because of asthma - those meds can prove fatal for asthmatics. My Neurologist told me I would have to learn to live with it. As time went on my Right Arm became very very painful with the constant tremors. Because I am very right-handed, I found it very difficult doing some things, and drinks were the worst. There were times when my whole body was affected, but that was if I was particularly stressed or very tired. In the end I asked my GP about Acupuncture. He told me it was worth a try because nothing else was viable. I have to say, I am VERY pleased that I did.

The Dr I went to (Medical Dr) treats mainly with Acupuncture. I went quite a long time, but because they treat the whole body/mind at the same time, and because I had a lot going on after a bad car accident (with pain and very bad depression) it took a lot of treatments but we got it licked (pretty much.) I now only have tremors if I am really tired or stressed and mostly the tremors that I have at those times are only mild. I haven't needed Acupuncture since November 2008 :-)

If you haven't already, you might like to explore the links that are on the main Team page. You may find something helpful in them.

Take care,
Kris



Co-Moderator Dealing with Depression
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=953


Team Leader Essential Tremors :-) (Benign and Familial) www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=30225


Co-Leader Crohn's Can't Stop Me
www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=17464


I am not a Dr - please check with your qualified Health Professional for a diagnosis and treatment plan


 current weight: 151.0 
 
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196
181
166
151


LONG35
Posts: 10,325
1/31/13 11:00 P

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The only thing I know for sure is that it is genetic (most of one side of my family has it). Some of us have used Acupuncture successfully. Some of us have used various types of medications (unfortunately I am allergic to Atenolol, which is what they wanted to give me). Since my tremors are mostly in my right hand, and I am right handed, it does present a problem - especially since I still run an office. When I write it puts stress on the hand, and off it goes. Sometimes I take a 5 ml Valium, and it quiets things down enough for my to complete what needs to be done. I have had it for so long that it is just an unpleasant part of my life. It is definitely getting worse as I age.
Fran






CARPEDIEM1982
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1/31/13 9:35 P

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Hello all,

My name is Jenn and am 30yrs old from WI. I was diagnosed with essential tremors in December 2009. When I was diagnosed, I was put on propranolol 10mg every 4 hours as needed. This worked for a short while, but than needed a higher dose. I now take propranolol 60mg ER daily and have the short acting 10mg tablets for breakthrough tremors. I usually take these when I get really upset or stressed. That seems to exacerbate the tremors. I can tell that the tremors are very gradually getting worse as time goes on. I look forward to supporting/receiving support from others who have essential tremors. I also hope to learn more about the disease as well.

Talk soon!

Jenn

“Don’t wish for it, WORK for it”.
-- Unknown
"This isn't about dieting, this is about lifestyle change... to survive. Every pound I lose, is saving my life!"
~CarpeDiem


 current weight: 178.0 
 
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