Hi, I'm Diane and I'm new to SP as of this week.
I have a couple of neuro conditions..one is Dystonia and with that I have essential tremor in my left hand. My older sister and I both have Dystonia, it came on at the same age, at age 45 and both of us overnight and completely out of the blue. We've been tested by Mayo Clinic and other doctors and they believe there is a genetic component but the gene has not been isolated yet for all forms of Dystonia.
So as to why we have it we do not know. Both of us have movements at times in all limbs, but not cervical or facial Dystonia as is quite common.
With that being said we are both very active and do our best to get as much exercise as possible and live the fullest most "normal" lives we can. Nether of us work outside the home. I need a great deal of rest at times so it is impossible to hold a normal job.
For a time in 2004 I was completely bedridden and unable to walk without great difficulty. But now I am very mobile, using a walker and cane only when I am having a bad spell and today I walked on a treadmill for about 15 minutes!
I hope to be successful losing some of the weight that the different drugs have put on me. I am feeling very encouraged and optimistic!
| current weight: 168.5