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QUELINDA2's Photo QUELINDA2 Posts: 11
11/5/12 4:24 P

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I am new to SP and to this team.
I am on SP for motivation. I want to be strong and fit, which I started working on a year ago. Now I want to tackle some weight! I need accountability, and plan to lose 14 for 1st goal, with overall of 20-25.
I was surprised to find ET as a team. I've known I had it for 9 years. I went undiagnosed for 4 years, with "internal tremors" between wake/sleep cycles. I didn't have a hand tremor so misdiagnoed - they put me on meds that caused some weight gain. Glad to be off of those for several years, now to take responsibility and get the weight off!
I don't understand how to find posts I've made. Can you tell me if there is somewhere to search that?
Thanks!
Carol

GANGANDI's Photo GANGANDI Posts: 185
1/6/12 10:38 A

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Thank you for the welcome Fran.

Yes, I have joined several groups so far and one in particular brought me here. It is a crochet group that one of our famous crochet pattern designers started for all of us crocheting gals to join. I had no idea about sparkpeople before she suggested it to us. It is truly terrific, so far I've loved all the recording of my foods and exercise and the people in the groups, truly supportive!

Di

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LONG35 Posts: 10,325
1/6/12 1:34 A

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Hi Diane, welcome to the group.

I don't have any idea what Dystonia is, but I do have ET. That came on me very young, but has not cause any great problems - more nuisance than anything. Makes it difficult to write or do small muscle things with my hands, but after reading so many of the blogs on here I feel very fortunate. ET is definitely genetic.

This is not a large group yet, but just hang in here. You will get more responses. You might also wander around the Spark site and you might find other groups that you would like to visit. There's a lot of very nice people out here that are more than willing to help out any way they can.

Have a good evening.
Fran

GANGANDI's Photo GANGANDI Posts: 185
1/5/12 9:51 P

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Hi, I'm Diane and I'm new to SP as of this week.

I have a couple of neuro conditions..one is Dystonia and with that I have essential tremor in my left hand. My older sister and I both have Dystonia, it came on at the same age, at age 45 and both of us overnight and completely out of the blue. We've been tested by Mayo Clinic and other doctors and they believe there is a genetic component but the gene has not been isolated yet for all forms of Dystonia.

So as to why we have it we do not know. Both of us have movements at times in all limbs, but not cervical or facial Dystonia as is quite common.

With that being said we are both very active and do our best to get as much exercise as possible and live the fullest most "normal" lives we can. Nether of us work outside the home. I need a great deal of rest at times so it is impossible to hold a normal job.

For a time in 2004 I was completely bedridden and unable to walk without great difficulty. But now I am very mobile, using a walker and cane only when I am having a bad spell and today I walked on a treadmill for about 15 minutes!

I hope to be successful losing some of the weight that the different drugs have put on me. I am feeling very encouraged and optimistic!

Diane




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